Discussions By Condition: I cannot get a diagnosis.

extreme cravings, thirst, brain fog, depression, bloating

Posted In: I cannot get a diagnosis. 16 Replies
  • Posted By: ghostlike
  • September 30, 2010
  • 00:45 PM

hello everyone. not sure where to begin, but i'll do my best to be succinct and relevant. i've been going downhill steadily for the last 2 1/2 years. I am desperately looking for direction and help; any possibilities or suggestions are greatly appreciated.

the short story:
- extreme thirst/cravings for specific nutrients (potassium, sodium,
magnesium, calcium, sugar, vitamin c, omega oils)
- brain fog
- fatigue
- bloating/distention
- excessive hunger and thirst
- gastrointestinal upset (prolonged belching spells, periodic diarrhea)
- irritability
- depression
- shortness of breath upon light exertion
- difficulty concentrating or performing any mentally-demanding tasks
- full-body weakness
- i have been to several different doctors ranging from GP’s, nephrologists, gastroenterologists, and endocrinologists with very little to show for.

the long story:
i'm going to focus mainly on my more recent and extreme symptoms as they are very odd and i feel that they could provide the biggest clues as to what might be going on.

my most recent set of symptoms (for the last 12 months) deals with wild thirst/cravings for several nutrients: potassium, sodium, vitamin c, calcium, magnesium, sugar, omega oils, and others that i am unable to pinpoint. these cravings are strong enough and loud enough to cause my lips to dry up, turn pale and eventually crack and bleed if i dont quench the thirst. my tongue and throat take on the texture and feel of rubber when i am experiencing this. depending on the type and severity of the thirst, my body is very aversive to water--my taste buds reject it, my stomach tells me it is too full to take in any water.

I have my arsenal of foods and supplements that i carry with me everywhere i go to deal with each craving: potassium chloride, table salt, blackstrap molasses (magnesium), milk (calcium), kiwi/strawberries (vitamin c), ground flaxseed (omega oils), lentils (unknown nutrient). needless to say, it is quite a hassle to make sure i always have my grab-bag fully stocked to get through a day at work or out and about. if i try to ignore the cravings, they only get stronger and i subsequently feel worse physically and mentally until i satisfy the craving (brain fog, fatigue, irritability, bloating). I can go to bed with a strong craving for calcium and wake up desperate for a glass of milk in the middle of the night or first thing in the morning; in other words, i've given my body time to see if the craving will pass or if something else can substitute, with no success. I need to satisfy these cravings to make it through a day at work or perform day-to-day tasks; when i try to ignore the cravings i am physically and mentally of no use as i feel so awful.

the purpose or function of the cravings seems linked to my GI tract. Very often when i begin to satisfy a craving my stomach begins to rumble and i can feel my intestinal tract moving and churning... subsequent to this i often feel a very noticeable lift in my physical and mental state. Sometimes satisfying a craving will lead to a bowel movement which varies greatly from solid and well-formed, to watery diarrhea, to my personal favorite: acidic burning diarrhea from the bowels of ***l that leaves me in severe pain for several minutes afterwards. other times immediately upon drinking/eating what i am craving i begin belching profusely for sometimes 10-20 minutes straight, this will relieve some bloating. every day the cycle continuously and randomly alternates between cravings, with occasional periods of feeling satiated and/or being thirsty for just plain water.

I have been to several doctors, with not much in terms of results (high cholesterol, high blood pressure, low vitamin d). I have seen a gastroenterologist and been tested for a handful of things including celiac disease (All antibodies came back negative except for “Gliadin IgG Antibodies” at 28.6); i also had a colonoscopy and was given a 2 week course of antibiotics for possibe SIBO (small intestinal bacterial overgrowth). I have tried a gluten free diet for 6 months and did not notice any improvement in my symptoms. I have also seen a nephrologist to have my kidney function checked, again everything came back fine. I am pretty much at my wit’s end as to what is going on or how to get back in good health.

Any help or suggestions would be greatly appreciated.

Reply Flag this Discussion

16 Replies:

  • i also forgot to mention that my thyroid and blood sugar has been fine through all testing. i was also considering ph balance as a possible part of the problem, although i have used test strips and they always show a relatively normal ph. my cholesterol is very high (290) and my blood pressure seems to always run high (~150/110).thanks for any suggestions.
    ghostlike 5 Replies
    • October 1, 2010
    • 02:56 PM
    • 0
    Flag this Response
  • DiD u find out what was wrong? I have all the same symptoms and have seen quite a few specialists myself. hello everyone. not sure where to begin, but i'll do my best to be succinct and relevant. i've been going downhill steadily for the last 2 1/2 years. I am desperately looking for direction and help; any possibilities or suggestions are greatly appreciated.the short story:- extreme thirst/cravings for specific nutrients (potassium, sodium,magnesium, calcium, sugar, vitamin c, omega oils)- brain fog- fatigue- bloating/distention- excessive hunger and thirst- gastrointestinal upset (prolonged belching spells, periodic diarrhea)- irritability- depression- shortness of breath upon light exertion- difficulty concentrating or performing any mentally-demanding tasks- full-body weakness- i have been to several different doctors ranging from GP’s, nephrologists, gastroenterologists, and endocrinologists with very little to show for.the long story:i'm going to focus mainly on my more recent and extreme symptoms as they are very odd and i feel that they could provide the biggest clues as to what might be going on.my most recent set of symptoms (for the last 12 months) deals with wild thirst/cravings for several nutrients: potassium, sodium, vitamin c, calcium, magnesium, sugar, omega oils, and others that i am unable to pinpoint. these cravings are strong enough and loud enough to cause my lips to dry up, turn pale and eventually crack and bleed if i dont quench the thirst. my tongue and throat take on the texture and feel of rubber when i am experiencing this. depending on the type and severity of the thirst, my body is very aversive to water--my taste buds reject it, my stomach tells me it is too full to take in any water. I have my arsenal of foods and supplements that i carry with me everywhere i go to deal with each craving: potassium chloride, table salt, blackstrap molasses (magnesium), milk (calcium), kiwi/strawberries (vitamin c), ground flaxseed (omega oils), lentils (unknown nutrient). needless to say, it is quite a hassle to make sure i always have my grab-bag fully stocked to get through a day at work or out and about. if i try to ignore the cravings, they only get stronger and i subsequently feel worse physically and mentally until i satisfy the craving (brain fog, fatigue, irritability, bloating). I can go to bed with a strong craving for calcium and wake up desperate for a glass of milk in the middle of the night or first thing in the morning; in other words, i've given my body time to see if the craving will pass or if something else can substitute, with no success. I need to satisfy these cravings to make it through a day at work or perform day-to-day tasks; when i try to ignore the cravings i am physically and mentally of no use as i feel so awful.the purpose or function of the cravings seems linked to my GI tract. Very often when i begin to satisfy a craving my stomach begins to rumble and i can feel my intestinal tract moving and churning... subsequent to this i often feel a very noticeable lift in my physical and mental state. Sometimes satisfying a craving will lead to a bowel movement which varies greatly from solid and well-formed, to watery diarrhea, to my personal favorite: acidic burning diarrhea from the bowels of ***l that leaves me in severe pain for several minutes afterwards. other times immediately upon drinking/eating what i am craving i begin belching profusely for sometimes 10-20 minutes straight, this will relieve some bloating. every day the cycle continuously and randomly alternates between cravings, with occasional periods of feeling satiated and/or being thirsty for just plain water.I have been to several doctors, with not much in terms of results (high cholesterol, high blood pressure, low vitamin d). I have seen a gastroenterologist and been tested for a handful of things including celiac disease (All antibodies came back negative except for “Gliadin IgG Antibodies” at 28.6); i also had a colonoscopy and was given a 2 week course of antibiotics for possibe SIBO (small intestinal bacterial overgrowth). I have tried a gluten free diet for 6 months and did not notice any improvement in my symptoms. I have also seen a nephrologist to have my kidney function checked, again everything came back fine. I am pretty much at my wit’s end as to what is going on or how to get back in good health. Any help or suggestions would be greatly appreciated.
    Anonymous 42,789 Replies
    • February 25, 2011
    • 10:25 PM
    • 0
    Flag this Response
  • Hi - I had these symptoms and was diagnosed with Gilbert's Syndrome - http://en.wikipedia.org/wiki/Gilbert's_syndromeHope that helps!hello everyone. not sure where to begin, but i'll do my best to be succinct and relevant. i've been going downhill steadily for the last 2 1/2 years. I am desperately looking for direction and help; any possibilities or suggestions are greatly appreciated.the short story:- extreme thirst/cravings for specific nutrients (potassium, sodium,magnesium, calcium, sugar, vitamin c, omega oils)- brain fog- fatigue- bloating/distention- excessive hunger and thirst- gastrointestinal upset (prolonged belching spells, periodic diarrhea)- irritability- depression- shortness of breath upon light exertion- difficulty concentrating or performing any mentally-demanding tasks- full-body weakness- i have been to several different doctors ranging from GP’s, nephrologists, gastroenterologists, and endocrinologists with very little to show for.the long story:i'm going to focus mainly on my more recent and extreme symptoms as they are very odd and i feel that they could provide the biggest clues as to what might be going on.my most recent set of symptoms (for the last 12 months) deals with wild thirst/cravings for several nutrients: potassium, sodium, vitamin c, calcium, magnesium, sugar, omega oils, and others that i am unable to pinpoint. these cravings are strong enough and loud enough to cause my lips to dry up, turn pale and eventually crack and bleed if i dont quench the thirst. my tongue and throat take on the texture and feel of rubber when i am experiencing this. depending on the type and severity of the thirst, my body is very aversive to water--my taste buds reject it, my stomach tells me it is too full to take in any water. I have my arsenal of foods and supplements that i carry with me everywhere i go to deal with each craving: potassium chloride, table salt, blackstrap molasses (magnesium), milk (calcium), kiwi/strawberries (vitamin c), ground flaxseed (omega oils), lentils (unknown nutrient). needless to say, it is quite a hassle to make sure i always have my grab-bag fully stocked to get through a day at work or out and about. if i try to ignore the cravings, they only get stronger and i subsequently feel worse physically and mentally until i satisfy the craving (brain fog, fatigue, irritability, bloating). I can go to bed with a strong craving for calcium and wake up desperate for a glass of milk in the middle of the night or first thing in the morning; in other words, i've given my body time to see if the craving will pass or if something else can substitute, with no success. I need to satisfy these cravings to make it through a day at work or perform day-to-day tasks; when i try to ignore the cravings i am physically and mentally of no use as i feel so awful.the purpose or function of the cravings seems linked to my GI tract. Very often when i begin to satisfy a craving my stomach begins to rumble and i can feel my intestinal tract moving and churning... subsequent to this i often feel a very noticeable lift in my physical and mental state. Sometimes satisfying a craving will lead to a bowel movement which varies greatly from solid and well-formed, to watery diarrhea, to my personal favorite: acidic burning diarrhea from the bowels of ***l that leaves me in severe pain for several minutes afterwards. other times immediately upon drinking/eating what i am craving i begin belching profusely for sometimes 10-20 minutes straight, this will relieve some bloating. every day the cycle continuously and randomly alternates between cravings, with occasional periods of feeling satiated and/or being thirsty for just plain water.I have been to several doctors, with not much in terms of results (high cholesterol, high blood pressure, low vitamin d). I have seen a gastroenterologist and been tested for a handful of things including celiac disease (All antibodies came back negative except for “Gliadin IgG Antibodies” at 28.6); i also had a colonoscopy and was given a 2 week course of antibiotics for possibe SIBO (small intestinal bacterial overgrowth). I have tried a gluten free diet for 6 months and did not notice any improvement in my symptoms. I have also seen a nephrologist to have my kidney function checked, again everything came back fine. I am pretty much at my wit’s end as to what is going on or how to get back in good health. Any help or suggestions would be greatly appreciated.
    Anonymous 42,789 Replies Flag this Response
  • Hi you two. I have all the same symptoms too but they come and go and I found that they are dependent on my diet. I usually eat dairy-free and gluten-free foods and found that the times when I just ate whatever what I wanted the symptoms came back.I have tried juice fasts and have even gone on mucus-free diets and during these times I have felt fantastic, 100% like a true human being should. In my experience, blood is formed in the gut and so it is so important what goes in there. I still don't know what the diagnosis of the condition is. My workmates find my constant thirst unusual. I am personally tired of feeling all the other symptoms as well. I am now 35 and it only gets worse as I get older. It's hard to have discipline and live on a limited diet. Unfortunately there is no quick cure or tablet. I found these books so helpful: "The Cause & Cure of All Human Illness" and "Rational Fasting" both by Arold Ehret. There is also a website worth looking at www.ehret.org.I think our bodies are like cars. You can't keep putting the wrong fuel in and wonder why a lot of problems start to come up.Good luck with it all!
    Anonymous 42,789 Replies Flag this Response
  • I have some of the same symptoms. I have sob, bloating, and sticky feces on occasion. My gliadin antibody igg is elevated but the gliadin iga is normal along with immuglob a serum and transglutaminase A. Everything else is normal as well. I have been doing research and found articles that show a correlation between celiac and candida overgrowth in the gut. Brain fog is a sign of candida overgrowth along with a lot of your other symptoms. Also, small intestinal bacterial overgrowth (sibo) can cause elevated igg or iga antibody expression.
    Anonymous 42,789 Replies Flag this Response
  • Plural and Unregistered, thanks for the responses. it's nice to hear from someone who is experiencing similar things. could either of you tell me more about your symptoms? i'm really curious to chat with someone else having similar experiences, especially the thirst/cravings. do either of you drink saltwater? it seems to be the most extreme and abundant of the cravings i have.Plural, i plan on doing a few days of fasting this week; thank you for the tips.i am also considering doing a liver flush, as i have recently had some intermittent bright spots while using a combination of sam-e and some liver cleansing herbs. have either of you tried anything of this sort?thanks.
    ghostlike 5 Replies Flag this Response
  • That sounds a little like what I experienced for years. The only thing that worked for me is drinking Odwalla (I lived on that for a couple months) and then I slowly added an oatmeal type smoothie to my diet and that has worked miracles for me. I mix soymilk, dates, walnuts, flaxseeds and a little oat flour in a blender and just drink it raw. Sometimes I add soy protein, I can also mix flaxseed meal with some light yogurt and walnut oil (omega 3's) and have that. I do occasionaly crave V8, especially spicy hot V8, it works wonders for the vitamin and mineral cravings. Though be careful because it will go right through you due to sodium content. And while I won't drink plain water, I do notice that if I am active physically I can drink more watery liquids. It helps your body absorb the water you drink and gives you some nice endorphins to help you sleep and feel good. I normally have a diet soft drink that contains some sodium and caffeine and that works ok for me, rather than drinking plain water. Along with tea/coffee.I try to keep the smoothies I have nutrient dense (lots of nutrients/calories in a small amount of smoothie) and this has helped with the stomach pain/bloating and exhaustion after eating because I don't have to digest a lot of food. I stay away from big meals or a lot of raw fruits & veggies, even though you're supposed to get a lot of them, I only have them in small quantities and very well blended.Probably the biggest changes for me were discovering V8 (made my excessive thirst and cravings subside), Odwalla (for vitamin C) and discovering I can add walnut oil and raw oat flour to my smoothies. I also feel a lot better if I have an energy drink about 3-4x per week. I like the Monster "Absolutely Zero" flavor in the blue and purple can (gets me through the day) but they can keep you up at night so don't overdo it.Hope those help you, hang in there.
    Anonymous 42,789 Replies Flag this Response
  • Im wondering if you get any other symptoms you didnt mention with whatever the issue is eg headaches and/or dizziness? Does anything seem to trigger the fatigue and full body weakness?
    taniaaust1 2,267 Replies Flag this Response
  • I am battling an infection which was not diagnosed correctly for several years. When it got really bad, I was able to get a correct diagnosis.When I was at my worst, I drank as much as possible (10 to 15 liters a day) and was always severely thirsty. I had a dry mouth.I had little energy, and became exhausted doing things which would normally be easy.I had many of the same symptoms as you.I have tried a lot of things. I have found oregano oil is very beneficial for me. I have improved a lot.Also avoid sugar.
    Anonymous 42,789 Replies Flag this Response
  • Im wondering if you get any other symptoms you didnt mention with whatever the issue is eg headaches and/or dizziness? Does anything seem to trigger the fatigue and full body weakness?taniaaust1, i very rarely get headaches, but i do experience dizziness and very strange head sensations during the episodes at times. eating is a major trigger for the fatigue and the bad spells. it can be anything, an apple, a handful of almonds, doesn't seem to matter. also if i eat before satisfying a thirst/craving for something else such as salt or potassium, the bad spell is much more pronounced.
    ghostlike 5 Replies Flag this Response
  • Im wondering if you get any other symptoms you didnt mention with whatever the issue is eg headaches and/or dizziness? Does anything seem to trigger the fatigue and full body weakness?taniaaust1, i very rarely get headaches, but i do experience dizziness and very strange head sensations during the episodes at times. eating is a major trigger for the fatigue and the bad spells. it can be anything, an apple, a handful of almonds, doesn't seem to matter. also if i eat before satisfying a thirst/craving for something else such as salt or potassium, the bad spell is much more pronounced.
    ghostlike 5 Replies Flag this Response
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  • unregistered, thanks for the input. what type of infection have you been diagnosed with (if you don't mind me asking)?an update of sorts... a few weeks ago, i was able to get through several days without drinking saltwater, potassium chloride, etc. i made it through about 4 days and had well-formed stools and felt really good overall. i was 100% certain that i was cured, this was as good as i've felt in years.at about the 4th or 5th day my body hit a wall... i had really bad fatigue and brain fog, to the point where i missed work and wasnt capable of much of anything but laying on the couch or in bed. i was having a hard time quenching my thirst, so i began drinking saltwater again. over the next several hours i began having rotten gas and diarrhea as everything got moving again. i have not been able to achieve the really good feeling i had for those 4 or 5 days since.any thoughts on this? it seems that underneath the cravings, or if i ignore them completely, i become constipated with debilitating fatigue and fog. my intestinal muscles just feel completely "dead" or as though there is no peristalsis occurring. any thoughts?
    ghostlike 5 Replies Flag this Response
  • unregistered, thanks for the input. what type of infection have you been diagnosed with (if you don't mind me asking)?an update of sorts... a few weeks ago, i was able to get through several days without drinking saltwater, potassium chloride, etc. i made it through about 4 days and had well-formed stools and felt really good overall. i was 100% certain that i was cured, this was as good as i've felt in years.at about the 4th or 5th day my body hit a wall... i had really bad fatigue and brain fog, to the point where i missed work and wasnt capable of much of anything but laying on the couch or in bed. i was having a hard time quenching my thirst, so i began drinking saltwater again. over the next several hours i began having rotten gas and diarrhea as everything got moving again. i have not been able to achieve the really good feeling i had for those 4 or 5 days since.any thoughts on this? it seems that underneath the cravings, or if i ignore them completely, i become constipated with debilitating fatigue and fog. my intestinal muscles just feel completely "dead" or as though there is no peristalsis occurring. any thoughts?Electrolyte imbalance?
    Anonymous 42,789 Replies Flag this Response
  • I asked about if you got headaches and/or dizziness cause I was wondering if you could have Postural orthostatic tachycardia syndrome (POTS) as several of your symptoms fit it thou some of what you said dont really sound like POTS. Those with POTS get very thirsty and tend to drink a lot... drinking a lot helps some. Those with POTS also get salt cravings (and its recommended with it to have a lot of salt as you need to keep your sodium up). Eatting may trigger off POTS and certain things can affect it negatively eg alcohol. Also exercise can affect POTS people badly Those with POTS can have coexisting IBS (irritable bowel syndrome) which can cause constipation and diarrhea and bloating. POTS can cause all your symptoms except the following part below "cravings for specific nutrients (potassium, magnesium, calcium, sugar, vitamin c, omega oils)" So your case has me confused if it was POTS as I havent heard of cravings like those in POTS. best luck in finding an answer
    taniaaust1 2,267 Replies Flag this Response
  • I too have the same symptoms but I have had various conditions associated with them. Abdominal pain for no reason and excessive cravings like I got to have it now or die were attributed to Graves Disease (hyperthyroidism):p. The excessive thirst was attributed to Graves and Pernicious Anemia. The fatique as well as all of the above were attributed to Multiple Sclerosis which also could be attributed to Graves and Anemia. :p
    Starstruck 6 Replies
    • December 14, 2012
    • 08:40 PM
    • 0
    Flag this Response
  • can you please post your LAB RESULTS? rather than just symptoms. It is easier to give better answers that way. Perhaps your doc did not test for something of significance.extreme thirst is usually the first sign of diabetes. Did your doc order an HBa1c test for you or just tell you your blood sugar is okay based on a fasting or random blood glucose test? Ask your doc to do an HBa1c test.Have you tested your calcium and vitamin D levels? and PTH levels?
    Anonymous 42,789 Replies Flag this Response
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