Discussions By Condition: I cannot get a diagnosis.

Dizziness,fatigue,muscle twitching..

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Tricia75
  • September 12, 2010
  • 03:36 AM

My symptoms started July14th..it started out with just feeling a little out of it all day..sort of in a fog. I got very concerned when i got out of the car and staggered a little, feeling very dizzy. The next day it continued, later that night i had a migrane on the left side of my head (it seemed to be coming from the back of my head up by the base of my skull) The next morning all the muscles up the back of my head on the left side were very tight (not painful when touched or stiff at all..just this tight sensation) and the dizzyness was still there. I was really scared so i went and had an MRI with contrast done on my brain and neck..came back normal. They gave me meclizine for vertigo but it didn't help because i dont' think its vertigo..its dizziness not spinning. After awhile of being dizzy i started to get really freaked out that something was wrong and was having panic attacks over it..but i didn't realise what they were, i just thought it was part of the whole illness. Which made the whole thing worse..i've also been extremely fatigued the whole time and started having muscle twitches all over. I chalked the fatigue and muscle twitching up to the panic attacks and anxiety, as i know that can do alot of crazy things to your body. I tried to just relax and go about the day but it seemed like i wasn't able to control the panic..it was like my brain was just doing it on its own. I've been into the Dr. about 8 times and 2 trips to the ER just to see if anyone could help me. My doctor gave me muscle relaxers which did nothing but help with the twitching. I've been dizzy and fatigued for almost a month now, with no answers and no help. I have had complete blood work done, came back normal as well..i've had my urine checked..i've been drinking Emergen-C to try to build my immune back up..i've seen the ear nose and throat doctor, who refered me to an audiologist to check my inner ear/vesibular system..which all came back normal as well. I asked if i should see a nuerologist and the audiologist said he didn't think i needed to and gave me some exercises to do at home but they are not working. The fatigue is what is really bothering me. I don't understand how the dizzyness and fatigue are connected..but its really effecting my life seriously. i have 3 kids and can barely manage to clean up the house, go shopping and just do all the things i need to do. I'm so frustrated that soooo many people are suffering with this in all these posts and not one doctor knows anything about it. They just keep saying it will get better or its a virus. But in the meantime, my kids and I are suffering. I thought maybe i had labyrinthitis because everything i am experiencing pointed to that but the Audiologist said no because with that disorder he said i would be "spinning in circles" and not having this floating, dizzy sensation. I started taking a low dose of valium 5mg. for the panic attacks and that seemed to help imensly just to calm me down and helps me deal with the dizziness a little better. When you go so long being dizzy with no break except for when you sit down, it really starts messing with your head and your mood. The tightness in my head has subsided somewhat but i cannot for the life of me get over this fatigue and dizziness. I am thinking of doing a parasite detox or a candidia detox, as i'm running out of options and money trying to figure this out. If anyone has ever beaten this or has any suggestions i would love to hear from you. I am wondering if i should try a chiropractor or acupuncture or go to a nuerologist..but i'm not so sure a chiropractor would make sense for the fatigue..maybe the dizziness, but if they are both there for the same reason it just doesn't add up...UGH!! Anyone??

Reply Flag this Discussion

5 Replies:

  • When you go so long being dizzy with no break except for when you sit down, it really starts messing with your head and your mood. Sounds like POTS at least is a part of your trouble (it could be chronic fatigue immunity dysfunction syndrome CFIDS but right now you dont have enough going on for me to be able to sure of that). POTS stands for postural orthostatic tachycardia syndrome and the dizziness will be worst in heat and also worst when standing... as by your comment you said something which said it isnt as bad when sitting.. im thinking your issue is an "orthostatic" issue... hence probably POTS (unless its just low BP). I also noticed that you said you staggered out of the car.. position changes such as sitting to standing, can trigger POTS eposides. POTS can cause your issues due to not enough blood getting to your brain at times (esp when standing or upright). POTS is a form of dysautonomia, an issue with having a dysfunctional autonomic nervous system disorder. http://www.dinet.org/http://www.dinet.org/symptoms.htm (thou twitching isnt on that list.. i have POTS myself and hence know it does cause twitchiness and spasms at times) Take care not to over do things.. as you may be at the start of CFIDS with the common coexisting POTS rather then just POTS alone. If start of CFIDS, not resting enough and overdoing things... may make the condition worst. (Its way too early at this point of time to know if its CFIDS) Anyway.. i suggest to get tested for POTS as there are things which can be done to treat POTS if it is this causing your symptoms and its certainly by your 'orthostatic' symptoms a very possible cause. best luck
    taniaaust1 2,267 Replies
    • September 12, 2010
    • 02:32 PM
    • 0
    Flag this Response
  • Hi there. Wow... i read your post and thought i was looking into a mirror. A few things to make a long story short. I suffer from.. fatigue, muscle twitches, visual problems (vitreous floaters), dizziness, sore throat/foggy voice, headaches. I was bitten by a tick in 2003 (didnt know it) had a rash from the Lyme. Treated for lyme and still have lingering symptoms. Through diagnostics (mri) dr. found nothing but i've lost curve in my neck/spine. He said it was nothing to worry aboutI decided 2 years later to read up on Kyphosis (loss of curvature in the neck) and i couldnt get over how many of my problems could be related to it. Went to Chiro and had some tests run (ultrasound and xray) the Chiro said I had not only lost my curve but was now loosing so much i went from 45* normal spine curve to -9* He said its a long haul, but thinks that a lot of my symptoms/problems are because of the nerves being constricted from their optimal performence. I have seen doctor after doctor. Neurologist after specialist. Im done with them. I am trying chiro!!!!!!!!!!!!!!!!!!!!!!!!!
    Anonymous 42,789 Replies
    • December 22, 2010
    • 09:18 PM
    • 0
    Flag this Response
  • I had a very similar experience after eating dinner at a Japanese restaurant. I had ordered something I had never eaten before (bbq beef, a beef cooked in a very heavy sauce) and shared that with my husband. He was fine but next day I woke with a horrible one sided headache, extremely stiff neck and extreme tiredness plus foggy head. This lasted about 4 weeks non-stop until I went on "failsafe diet" for two weeks to cleanse my body (during that 4 weeks I was on the internet trying to figure out what was the problem with that meal as my husband ate the same meal and he was fine). That diet fixed my problems and also helped me to solve all my mysterious problems I have had on and off for years. Now I avoid all the problem foods and I feel fine.BecMy symptoms started July14th..it started out with just feeling a little out of it all day..sort of in a fog. I got very concerned when i got out of the car and staggered a little, feeling very dizzy. The next day it continued, later that night i had a migrane on the left side of my head (it seemed to be coming from the back of my head up by the base of my skull) The next morning all the muscles up the back of my head on the left side were very tight (not painful when touched or stiff at all..just this tight sensation) and the dizzyness was still there. I was really scared so i went and had an MRI with contrast done on my brain and neck..came back normal. They gave me meclizine for vertigo but it didn't help because i dont' think its vertigo..its dizziness not spinning. After awhile of being dizzy i started to get really freaked out that something was wrong and was having panic attacks over it..but i didn't realise what they were, i just thought it was part of the whole illness. Which made the whole thing worse..i've also been extremely fatigued the whole time and started having muscle twitches all over. I chalked the fatigue and muscle twitching up to the panic attacks and anxiety, as i know that can do alot of crazy things to your body. I tried to just relax and go about the day but it seemed like i wasn't able to control the panic..it was like my brain was just doing it on its own. I've been into the Dr. about 8 times and 2 trips to the ER just to see if anyone could help me. My doctor gave me muscle relaxers which did nothing but help with the twitching. I've been dizzy and fatigued for almost a month now, with no answers and no help. I have had complete blood work done, came back normal as well..i've had my urine checked..i've been drinking Emergen-C to try to build my immune back up..i've seen the ear nose and throat doctor, who refered me to an audiologist to check my inner ear/vesibular system..which all came back normal as well. I asked if i should see a nuerologist and the audiologist said he didn't think i needed to and gave me some exercises to do at home but they are not working. The fatigue is what is really bothering me. I don't understand how the dizzyness and fatigue are connected..but its really effecting my life seriously. i have 3 kids and can barely manage to clean up the house, go shopping and just do all the things i need to do. I'm so frustrated that soooo many people are suffering with this in all these posts and not one doctor knows anything about it. They just keep saying it will get better or its a virus. But in the meantime, my kids and I are suffering. I thought maybe i had labyrinthitis because everything i am experiencing pointed to that but the Audiologist said no because with that disorder he said i would be "spinning in circles" and not having this floating, dizzy sensation. I started taking a low dose of valium 5mg. for the panic attacks and that seemed to help imensly just to calm me down and helps me deal with the dizziness a little better. When you go so long being dizzy with no break except for when you sit down, it really starts messing with your head and your mood. The tightness in my head has subsided somewhat but i cannot for the life of me get over this fatigue and dizziness. I am thinking of doing a parasite detox or a candidia detox, as i'm running out of options and money trying to figure this out. If anyone has ever beaten this or has any suggestions i would love to hear from you. I am wondering if i should try a chiropractor or acupuncture or go to a nuerologist..but i'm not so sure a chiropractor would make sense for the fatigue..maybe the dizziness, but if they are both there for the same reason it just doesn't add up...UGH!! Anyone??
    Anonymous 42,789 Replies
    • January 3, 2011
    • 00:06 PM
    • 0
    Flag this Response
  • Hi. I believe your initial problem was worst because of the mri contrast. It is gadolinium and contains heavy metal. I got blur vision, brain fog, painful muscles after just 1 injection which wasnt necessary. It is a dangerous thing to do and i advice others to stay away from gadoliniun before you get poisoned and crippled.
    Anonymous 42,789 Replies Flag this Response
  • Hi. I believe your initial problem was worst because of the mri contrast. It is gadolinium and contains heavy metal. I got blur vision, brain fog, painful muscles after just 1 injection which wasnt necessary. It is a dangerous thing to do and i advice others to stay away from gadoliniun before you get poisoned and crippled.
    Anonymous 42,789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.
Advertisement

Safe Sex With Hepatitis C

Prevent the spread of the hepatitis C virus.

Preventing Lung Infections

With COPD, it’s important to protect your lungs.

8 Health Dangers of Depression

Unmanaged depression can take a toll on your physical health.

Food Choices for Diabetes

What, when and how much you eat affects your blood sugar.

6 Exercises for Multiple Sclerosis

Ease your way into these stretching and strengthening moves,

Advertisement