Discussions By Condition: I cannot get a diagnosis.

Severe jaw pain and swollen glands, have not been diagnosed yet?

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • June 26, 2010
  • 04:23 PM

I have had jaw pain for over a year accompanied by what I thought to be sinus infections (last summer). The sinus infections stopped around January, but the jaw pain got worse and is only on one side. Thinking it was due to a rotting wisdom tooth I had the tooth pulled. The pain did not go away so I went back to the dentist, I had several dentist look at me and had x-rays, they said nothing was wrong with my teeth. I have been very tired, dizzy and have no energy. My neck and face are swollen on the affected side and I developed an infection in my throat. I went to the ER, had a fever and my throat was almost swollen shut. I was told that one of my tonsils had grown back (I had them removed as a child) and I was put on erythromycin. My throat and fever went away but the pain and swelling of my face and glands in my neck remained. This was about 2 months ago. The dizziness and pain continued so I went to a new doctor. All he did was put me on another antibiotic, penicillin. This did nothing so I changed doctors. On the first visit to the new doctor I was put on azithromycin. My blood was taken and an appt was scheduled a week later. During the week I developed a large abcess under the skin under my arm. Upon the second doctors visit blood work showed low iron and low vitamin D. Doctor put me on another antibiotic, Bactrim, and steroids and ordered another blood test. Upon the third doctors visit blood work showed elevated WBC count and a referral to a neurologist. Now I am waiting to set up an appt with the neurologist. I still have no idea what is wrong with me. Obviously the severe pain and swelling is not due to an infection as I have been an all these antibiotics. I am very worried and do not understand why I was referred to a neurologist. I don't know what to do, I cannot wait this long to see the neurologist, the pain is so severe I cannot sleep and the dizziness and fatigue are interfering with daily life. I also have a headache all of the time. The pain is on the left side, it radiates from the tempomandibular joint into my ear and across my cheekbone and down into my neck. Any suggestions?

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3 Replies:

  • it could be infection, but not a bacterial infection but could be fungal wich the antibiotics could make worse. Until you figure out what this is try to use coconut oil on the skin closer to your pain. It does wonders. If does not help it would not damage your skin, instead it would soft it. I have had jaw pain for over a year accompanied by what I thought to be sinus infections (last summer). The sinus infections stopped around January, but the jaw pain got worse and is only on one side. Thinking it was due to a rotting wisdom tooth I had the tooth pulled. The pain did not go away so I went back to the dentist, I had several dentist look at me and had x-rays, they said nothing was wrong with my teeth. I have been very tired, dizzy and have no energy. My neck and face are swollen on the affected side and I developed an infection in my throat. I went to the ER, had a fever and my throat was almost swollen shut. I was told that one of my tonsils had grown back (I had them removed as a child) and I was put on erythromycin. My throat and fever went away but the pain and swelling of my face and glands in my neck remained. This was about 2 months ago. The dizziness and pain continued so I went to a new doctor. All he did was put me on another antibiotic, penicillin. This did nothing so I changed doctors. On the first visit to the new doctor I was put on azithromycin. My blood was taken and an appt was scheduled a week later. During the week I developed a large abcess under the skin under my arm. Upon the second doctors visit blood work showed low iron and low vitamin D. Doctor put me on another antibiotic, Bactrim, and steroids and ordered another blood test. Upon the third doctors visit blood work showed elevated WBC count and a referral to a neurologist. Now I am waiting to set up an appt with the neurologist. I still have no idea what is wrong with me. Obviously the severe pain and swelling is not due to an infection as I have been an all these antibiotics. I am very worried and do not understand why I was referred to a neurologist. I don't know what to do, I cannot wait this long to see the neurologist, the pain is so severe I cannot sleep and the dizziness and fatigue are interfering with daily life. I also have a headache all of the time. The pain is on the left side, it radiates from the tempomandibular joint into my ear and across my cheekbone and down into my neck. Any suggestions?
    amylonelygirl 6 Replies Flag this Response
  • Sorry to hear about your suffering. I have a friend going through the same thing, Did you ever get a diagnosis?
    Anonymous 1 Replies
    • October 25, 2014
    • 01:23 PM
    • 0
    Flag this Response
  • I am having a very similar problem only the swelling in my face is not noticeable but I can feel it my lymph node's are swollen in the left side of my neck and I just feel dizzy and sleepy all the time.. the doc sent me to have my blood drawn for a mono test. And a week ago the stat care doc said it was a sinus infection and put me on amoxicillin.. did you ever get a answer or did you ever feel normal agiain.
    Mitzy36 1 Replies
    • September 14, 2015
    • 11:27 PM
    • 0
    Flag this Response
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