Discussions By Condition: Pain

Severe bilateral foot pain with no diagnosis

Posted In: Pain 2 Replies
  • Posted By: imvenus143
  • June 18, 2010
  • 03:56 AM

Any information would be helpful.

I have had bilateral foot pain for several years. It does not bother me until I stand for more than 5 or 10 minutes. The longer I stand the worse it gets. It is so difficult to describe but it feels like my feet are being stabbed a thousand times from all different angles. Sometimes I can stand barefoot in the grass for short periods of time but the minute I even try to walk on pavement or a hard surface I get these attacks. I have been tested for lupus, ra, ms, lyme disease. I have had an eeg? nerve function test, every blood test known to man. I have been tested for thyroid conditions and genetic conditions. I have had xrays, have gone to an ms specialist, a neurologist, a rheumatologist, pain management doctors, a podiatrist, an infections disease specialist and years of physical therapy. I sleep with bilateral plantar facitis braces, I get a shot of dexamethasone once a month, neither of which seem to help. I was on neurontin for years, I am now on Lyrica. My diagnoses have included everything from high arches, reflex sympathetic dystrophy, and fibromyalgia. I was told today that since everything is inconclusive that they want to put me on methotrexate to see if it helps. They already have me on synthroid as they are concerned that it may be a thyroid condition even though my thryroid levels are completely normal. This condition has progressively become worse. This past weekend I attended a fair with the kids and I was on my feet for several hours. My feet were so swollen that it actually felt like the backs of my calves were bruised and it has never been this bad. I could not even push the gas pedal in the car and we had to have someone come get us. By the time I got an appointment with the doctor today they weren't swollen anymore but I told him that until yesterday I couldn't walk at all. The last time my feet swelled they put me in the hospital for 4 days and found nothing and sent me home. They tested my heart and kidneys and I have blood tests for both every 6 months. I do not smoke, I do not eat anything with salt in it, I am 15 pounds over weight but my weight fluctuates over and under. I used to drink soda but I have not drank anything but green tea or water for the past year. I am also on hydrochlorithiazide but it was prn until today when he told me that he wants me to try it every day. I am 38 years old and was approved for social security in 2006. They approved me because I can not function on pain medications amongst the other issues. My doctor wants to put me on Methadone and I do not want to be on Methadone. I have been on Lortab, Percocet, Fentanyl patches and I am on Soma. Ironically the only thing that seems to work is the Soma but I think it is because it helps me sleep where the narcotics give me nightmares and aggrevate my sleep disorder. My general doctor knows that I am not seeking drugs and he knows that I hate taking them. I have had arguments with some specialists that don't know me because they have outright told me that all I have is fibromyalgia and I don't need narcotics.

I want to have my feet amputated and as crazy as it may sound I just want to be without pain. My rheumatolist told me that I can't schedule elective surgery for foot removal. My general doctor told me that since they don't know what it is that they may still have just as much pain even if they are not there.

In 2002 I was bitten by something while I was at work. It could have come from anywhere because I was on the hospital ramp when a helicopter came in from a rural area. I felt it bite me but did not see it. The next day I had a perfect ring along with swelling on my arm. My supervisor made me go to the ER. They said it was just a local reaction from a bite from either a bat or a bug but the fang marks were huge. Three weeks later I was hospitalized with encephalitis. From here everything went down hill and this is when I started having major pain issues. For the most part everything but the feet is bearable. I do have a hernated disk in C5 but the neurologist says it is not bad enough for surgery. I developed intersticial cystitis and also lost the protective lining in my stomach. I had over 20 ulcers when they did the endoscope but none tested positive for H. Pylori. I am 100% convinced that every one of these problems has something to do with whatever bit me. Before then I never had any issues at all.

I know it seems like a lot of information but I am out of options and resigned to the fact that I am going to be in pain the rest of my life. If anyone has any ideas it would be greatly appreciated.

Thank you for your time.

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2 Replies:

  • I'm so sorry your are going through all of this, but I can relate. I could cut and paste your intro and pass it off as my own story. I have had chronic bilateral foot pain for 10 years and my symptoms are the same as yours and I've been tested for everything you've been tested for. HOwever you did not mention the possbility of Tarsal Tunnel syndrome. Your symptoms sound very very similar to mine and I have found a doctor in Scottsdale, Dr Stephen Barrett who is amazing and specializes in difficult foot conditions. I've had the nerve test and everything came back negative, but due to my verbal description of pain he still believes I have tarsal tunnel syndrome. I just had my second surgery with him last week. It's too soon to say if it worked, but I'm very confident in Dr Barrett and his ability to figure this thing out with me. He is amazing and brilliant. Compassionate and so accessible via phone, email, etc. It's worth a shot at getting his advice on your situtaiton. Since I live in Chicago I sent him all my background info and he reviewed it for a few weeks and then we had a phone consultation on his thoughts. I flew down to Arizona and met with him and had my first surgery in October. He is used to working with people from other states. Hopefully he can shed some light on your situation. Best of Luck! Any information would be helpful. I have had bilateral foot pain for several years. It does not bother me until I stand for more than 5 or 10 minutes. The longer I stand the worse it gets. It is so difficult to describe but it feels like my feet are being stabbed a thousand times from all different angles. Sometimes I can stand barefoot in the grass for short periods of time but the minute I even try to walk on pavement or a hard surface I get these attacks. I have been tested for lupus, ra, ms, lyme disease. I have had an eeg? nerve function test, every blood test known to man. I have been tested for thyroid conditions and genetic conditions. I have had xrays, have gone to an ms specialist, a neurologist, a rheumatologist, pain management doctors, a podiatrist, an infections disease specialist and years of physical therapy. I sleep with bilateral plantar facitis braces, I get a shot of dexamethasone once a month, neither of which seem to help. I was on neurontin for years, I am now on Lyrica. My diagnoses have included everything from high arches, reflex sympathetic dystrophy, and fibromyalgia. I was told today that since everything is inconclusive that they want to put me on methotrexate to see if it helps. They already have me on synthroid as they are concerned that it may be a thyroid condition even though my thryroid levels are completely normal. This condition has progressively become worse. This past weekend I attended a fair with the kids and I was on my feet for several hours. My feet were so swollen that it actually felt like the backs of my calves were bruised and it has never been this bad. I could not even push the gas pedal in the car and we had to have someone come get us. By the time I got an appointment with the doctor today they weren't swollen anymore but I told him that until yesterday I couldn't walk at all. The last time my feet swelled they put me in the hospital for 4 days and found nothing and sent me home. They tested my heart and kidneys and I have blood tests for both every 6 months. I do not smoke, I do not eat anything with salt in it, I am 15 pounds over weight but my weight fluctuates over and under. I used to drink soda but I have not drank anything but green tea or water for the past year. I am also on hydrochlorithiazide but it was prn until today when he told me that he wants me to try it every day. I am 38 years old and was approved for social security in 2006. They approved me because I can not function on pain medications amongst the other issues. My doctor wants to put me on Methadone and I do not want to be on Methadone. I have been on Lortab, Percocet, Fentanyl patches and I am on Soma. Ironically the only thing that seems to work is the Soma but I think it is because it helps me sleep where the narcotics give me nightmares and aggrevate my sleep disorder. My general doctor knows that I am not seeking drugs and he knows that I hate taking them. I have had arguments with some specialists that don't know me because they have outright told me that all I have is fibromyalgia and I don't need narcotics. I want to have my feet amputated and as crazy as it may sound I just want to be without pain. My rheumatolist told me that I can't schedule elective surgery for foot removal. My general doctor told me that since they don't know what it is that they may still have just as much pain even if they are not there. In 2002 I was bitten by something while I was at work. It could have come from anywhere because I was on the hospital ramp when a helicopter came in from a rural area. I felt it bite me but did not see it. The next day I had a perfect ring along with swelling on my arm. My supervisor made me go to the ER. They said it was just a local reaction from a bite from either a bat or a bug but the fang marks were huge. Three weeks later I was hospitalized with encephalitis. From here everything went down hill and this is when I started having major pain issues. For the most part everything but the feet is bearable. I do have a hernated disk in C5 but the neurologist says it is not bad enough for surgery. I developed intersticial cystitis and also lost the protective lining in my stomach. I had over 20 ulcers when they did the endoscope but none tested positive for H. Pylori. I am 100% convinced that every one of these problems has something to do with whatever bit me. Before then I never had any issues at all. I know it seems like a lot of information but I am out of options and resigned to the fact that I am going to be in pain the rest of my life. If anyone has any ideas it would be greatly appreciated. Thank you for your time.
    Anonymous 42,789 Replies
    • January 19, 2011
    • 09:12 PM
    • 0
    Flag this Response
  • Has anyone suggested testing for Bartonella??? Foot pain is definite symptom, that presents like severe plantar faciitis (sp?)
    Anonymous 42,789 Replies Flag this Response
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