Discussions By Condition: I cannot get a diagnosis.

excruciating pain in teeth, jaws and radiating to face, ear, and head

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: Traveler123
  • March 26, 2010
  • 03:57 PM

Basic background info:

Male, early 40s, in perfect health, almost never got sick, excellent dental health, normal weight-high ratio, regularly exercises, daily vitamins, health-conscious, mostly vegetable-eater.

Crisis:


DAY-1: Excruciating pain in back teeth, both sides, upper and lower started 3-19-2010 (FRI), minor "tooth-pain" started about 6-8 weeks ago, they were fairly minor and insignificant but got progressively worse, leading to the 3-19 melt-down.

Pain is truly "Excruciating"! 4 pills of Advil every 6 hors but it has virtually no effect on the pain.

]DAY-4: Went to dentist for x-ray and diagnose on Monday morning (3-22), dentist could not found anything wrong dentally.

DAY-5: Went to NYU Dental School for comprehensive evaluation on 3-23, took full mouth x-ray and undergone 3 hours of examination, was told by the supervising faculty that the teeth and gum and everything dentally are in perfect order, that the pain is not caused by tooth even though it feels like it is, possible causes are sinus disorder or TMJ, they gave me a referral to TMJ specialist but the earliest appointment is May 13.

DAY-6: Pain increase in durations and severity, nothing can stop the pain, each wave of attacks lasted hours and the only relief was when I passed out from the suffering.

DAY-7: Went to medical doctor (3-25) for emergency visit for the pain and check out the sinus, was told sinus was no problem at all and must be TMJ, ever though I told the doctor the Advil has no effect, she won't prescribe pain killer, told me to take Motrin, what a joke! I didn't know that Motrin and Advil are the same! She knew but she played the joke on me! Can you believe that? the visit cost me $150, I am in unemployment without insurance.

Used ice pack last night for about one hour and continued to took 4 Advil, the ice had greatly reduced the pain and was able to sleep without suffering the pain until passed out.

Day-8: 3-26, today, woke out with only minor pain, first time in 8 days, but soon the pain came back, stronger than ever, ice pack did help this time, nether did 4 Advil.


What can I do? How can I stop the pain? The dentist said he can't help go see a doctor, Doctor said she can't help to see TMJ, with no job and no savings I can't afford the specialist and they won't do the x-ray, CT, or MRI because these are extremely expensive tests. I don't qualify the medicaid because I am on unemployment insurance.

Any advice will be greatly appreciated! Thanks so much.

Reply Flag this Discussion

9 Replies:

  • Is the pain in your teeth or jaw? Did you have any dental procedures done before this occurred? Go see a maxofacial surgeon or orthodontics and they can help determine rather or not its TMJ or another problem. Try taking some muscle relaxers if you have any around and see if that eases your pain some. You might be grinding your teeth at night which is causing jaw pain as well, try using a nightguard when you sleep if possible to elminate jaw stress.
    Anonymous 42,789 Replies Flag this Response
  • Basic background info: Male, early 40s, in perfect health, almost never got sick, excellent dental health, normal weight-high ratio, regularly exercises, daily vitamins, health-conscious, mostly vegetable-eater. Crisis: DAY-1: Excruciating pain in back teeth, both sides, upper and lower started 3-19-2010 (FRI), minor "tooth-pain" started about 6-8 weeks ago, they were fairly minor and insignificant but got progressively worse, leading to the 3-19 melt-down. Pain is truly "Excruciating"! 4 pills of Advil every 6 hors but it has virtually no effect on the pain. ]DAY-4: Went to dentist for x-ray and diagnose on Monday morning (3-22), dentist could not found anything wrong dentally. DAY-5: Went to NYU Dental School for comprehensive evaluation on 3-23, took full mouth x-ray and undergone 3 hours of examination, was told by the supervising faculty that the teeth and gum and everything dentally are in perfect order, that the pain is not caused by tooth even though it feels like it is, possible causes are sinus disorder or TMJ, they gave me a referral to TMJ specialist but the earliest appointment is May 13. DAY-6: Pain increase in durations and severity, nothing can stop the pain, each wave of attacks lasted hours and the only relief was when I passed out from the suffering. DAY-7: Went to medical doctor (3-25) for emergency visit for the pain and check out the sinus, was told sinus was no problem at all and must be TMJ, ever though I told the doctor the Advil has no effect, she won't prescribe pain killer, told me to take Motrin, what a joke! I didn't know that Motrin and Advil are the same! She knew but she played the joke on me! Can you believe that? the visit cost me $150, I am in unemployment without insurance.Used ice pack last night for about one hour and continued to took 4 Advil, the ice had greatly reduced the pain and was able to sleep without suffering the pain until passed out. Day-8: 3-26, today, woke out with only minor pain, first time in 8 days, but soon the pain came back, stronger than ever, ice pack did help this time, nether did 4 Advil. What can I do? How can I stop the pain? The dentist said he can't help go see a doctor, Doctor said she can't help to see TMJ, with no job and no savings I can't afford the specialist and they won't do the x-ray, CT, or MRI because these are extremely expensive tests. I don't qualify the medicaid because I am on unemployment insurance. Any advice will be greatly appreciated! Thanks so much. You really need to check out this diagnosis, Trigeminal Neuralgia, it is just like you describe and many people with this go thru many dentists, teeth extractions, dr.s, etc.....then they find out about this and it could have all been prevented, look it up.
    skerrie1 1 Replies Flag this Response
  • Is the pain in your teeth or jaw? Did you have any dental procedures done before this occurred? Go see a maxofacial surgeon or orthodontics and they can help determine rather or not its TMJ or another problem. Try taking some muscle relaxers if you have any around and see if that eases your pain some. You might be grinding your teeth at night which is causing jaw pain as well, try using a nightguard when you sleep if possible to elminate jaw stress.Thanks for your reply. I was told by both dentist and doctor who examined my condition, that it appeared to them that I have the TMJ disorder, both told me that the accurate diagnose required CT scan or MRI scan, and without insurance such procedure is really out of my reach. Further research indicates that even if it is TMJD, there is little the specialist can do effectively to cure it. The dental splint to correct the byte is the most common and effective solution, which unfortunately is also expensive and out of my reach now as I am unemployed and had depleted my savings.Prescription pain killer may provide temporary relief but it's not a solution.Nightguard seemed to have been helping a bit, but I don't expect it to be a solution to TMJD.What's left is what I can do myself, to save myself, that includes but not limited to:1. reduce the stress2. improve the posture3. meditation4. change diet5. sleep, rest, relax the muscles 6. specific exercises and massage to relief the TMJDI have been doing all of the about, these are the only treatment that within my control, that are available to me, I must take on the responsibility myself and not place myself at the mercy of the doctors and health professionals whose objective are different than mine: profit, mine is "save myself".After massive research and studies in TMJD literatures, textbooks, articles, and public resources online, I have adapted some exercise routines that helped to stretch, relax, and massage the masseter muscle and surrounding muscles, and by trial and error, "perfected" my own masseter muscle massage routines, which has enabled me to gradually brought down the pain from sacle of 10 to about 7 to 5, then down to about 2 to 3, and on the third day of the self massage treatment, I am now able to bring the pain down to about 1 most of the time, sometimes 0. The most painful time is around 3 AM to 9 AM, but I am continue to improve and tonight I fully anticipate the treatment will greatly reduce the pain during those painful hours.It has been ***l for the past 2 weeks, but I am grateful for the success of my self help treatment, and am confident that I will be able to ride myself out of the ***l. I read so many horrible stories from the Internet from people who suffered TMJD pains for years, I feel bad for them, I don't know how anyone can live in such painful condition for so long, I cannot describe how painful this had been, never in my life I would think something like this will happen to me, what a lesson! I encourage anyone who is suffering from the pains to take control of their own life, YES WE CAN! don't rely on doctors and medical professionals to save you, they have different interests and agenda than ours, only we can save ourselves.
    Traveler123 1 Replies Flag this Response
  • Thanks for your reply. I was told by both dentist and doctor who examined my condition, that it appeared to them that I have the TMJ disorder, both told me that the accurate diagnose required CT scan or MRI scan, and without insurance such procedure is really out of my reach. Further research indicates that even if it is TMJD, there is little the specialist can do effectively to cure it. The dental splint to correct the byte is the most common and effective solution, which unfortunately is also expensive and out of my reach now as I am unemployed and had depleted my savings.Prescription pain killer may provide temporary relief but it's not a solution.Nightguard seemed to have been helping a bit, but I don't expect it to be a solution to TMJD.What's left is what I can do myself, to save myself, that includes but not limited to:1. reduce the stress2. improve the posture3. meditation4. change diet5. sleep, rest, relax the muscles 6. specific exercises and massage to relief the TMJDI have been doing all of the about, these are the only treatment that within my control, that are available to me, I must take on the responsibility myself and not place myself at the mercy of the doctors and health professionals whose objective are different than mine: profit, mine is "save myself".After massive research and studies in TMJD literatures, textbooks, articles, and public resources online, I have adapted some exercise routines that helped to stretch, relax, and massage the masseter muscle and surrounding muscles, and by trial and error, "perfected" my own masseter muscle massage routines, which has enabled me to gradually brought down the pain from sacle of 10 to about 7 to 5, then down to about 2 to 3, and on the third day of the self massage treatment, I am now able to bring the pain down to about 1 most of the time, sometimes 0. The most painful time is around 3 AM to 9 AM, but I am continue to improve and tonight I fully anticipate the treatment will greatly reduce the pain during those painful hours.It has been ***l for the past 2 weeks, but I am grateful for the success of my self help treatment, and am confident that I will be able to ride myself out of the ***l. I read so many horrible stories from the Internet from people who suffered TMJD pains for years, I feel bad for them, I don't know how anyone can live in such painful condition for so long, I cannot describe how painful this had been, never in my life I would think something like this will happen to me, what a lesson! I encourage anyone who is suffering from the pains to take control of their own life, YES WE CAN! don't rely on doctors and medical professionals to save you, they have different interests and agenda than ours, only we can save ourselves.I am glad you have found some relief. It is a very painful experience. I have been going through mine for around 6-7 weeks now. Everytime I have went to a doctor they have diagnosised me with other things. Been to a dental clinic ER and they told me I had to many symptoms for them to help me in the dental ER to schedule a screening which I did and they then proceeded to tell me they were backed up and I wouldn't get a call for months. So went to another dentist, one that I have went to in the past for several extractions and they weren't of much help besides pulling the remainder top two teeth I have had. In that lies my problem. I currently have no upper teeth which is causing my TMJ its called maloccusion. They told me right after I had them pulled to come in two weeks and be fitted for dentures, well I was apparently lied to cuz last time I was there to get stitches taken out and to schedule a fitting apointment, a dentist told the receptionist that I couldn't be fitted for at least 4 weeks as to let my extractions heal. So now here I am in pain and can't even get fitted for 4 weeks, then it will take at least another week or two to get the dentures as this is a sliding scale clinic or "free" clinic as I cannot afford a normal dentist nor have any insurance at this time. So anyhow I am in a bind as I can only temporarily help my TMJ pain until I can get dentures. Also pain relievers for me actually didn't help me, it caused me to get worse. Reason being is that after I took the pain medication I was feeling pretty good but since I couldn't feel the pain or tension to much of my TMJ from the pain relievers, I got worse because I didn't realize I was adding more tension and stress to the joints and ended up having to take off work within the first hour. Don't forget ice and heat as they will help you as well. I am guessing since you mentioned massage you learned about trigerr point therapy? If so thats great as it does help. There is a book I keep running into about cure your TMJ(get the feeling its just a money gimic) but who knows might be helpful. As far as the nightguards I have read where people have felt 100% after leaving them in for a while and doing other techinques such as massage and etc. So you never know. Anyhow hope you end up 100% and sorry you had to deal with this pain as from my standpoint this is the worst physical pain I have ever felt which isn't good considering all the things I have been through previously.
    Anonymous 42,789 Replies Flag this Response
  • Time for er visitbasic background info:Male, early 40s, in perfect health, almost never got sick, excellent dental health, normal weight-high ratio, regularly exercises, daily vitamins, health-conscious, mostly vegetable-eater.Crisis:Day-1: Excruciating pain in back teeth, both sides, upper and lower started 3-19-2010 (fri), minor "tooth-pain" started about 6-8 weeks ago, they were fairly minor and insignificant but got progressively worse, leading to the 3-19 melt-down.Pain is truly "excruciating"! 4 pills of advil every 6 hors but it has virtually no effect on the pain.]day-4: Went to dentist for x-ray and diagnose on monday morning (3-22), dentist could not found anything wrong dentally.Day-5: Went to nyu dental school for comprehensive evaluation on 3-23, took full mouth x-ray and undergone 3 hours of examination, was told by the supervising faculty that the teeth and gum and everything dentally are in perfect order, that the pain is not caused by tooth even though it feels like it is, possible causes are sinus disorder or tmj, they gave me a referral to tmj specialist but the earliest appointment is may 13. Day-6: Pain increase in durations and severity, nothing can stop the pain, each wave of attacks lasted hours and the only relief was when i passed out from the suffering.Day-7: Went to medical doctor (3-25) for emergency visit for the pain and check out the sinus, was told sinus was no problem at all and must be tmj, ever though i told the doctor the advil has no effect, she won't prescribe pain killer, told me to take motrin, what a joke! I didn't know that motrin and advil are the same! She knew but she played the joke on me! Can you believe that? The visit cost me $150, i am in unemployment without insurance.used ice pack last night for about one hour and continued to took 4 advil, the ice had greatly reduced the pain and was able to sleep without suffering the pain until passed out.Day-8: 3-26, today, woke out with only minor pain, first time in 8 days, but soon the pain came back, stronger than ever, ice pack did help this time, nether did 4 advil.What can i do? How can i stop the pain? The dentist said he can't help go see a doctor, doctor said she can't help to see tmj, with no job and no savings i can't afford the specialist and they won't do the x-ray, ct, or mri because these are extremely expensive tests. I don't qualify the medicaid because i am on unemployment insurance.Any advice will be greatly appreciated! Thanks so much.
    Anonymous 42,789 Replies Flag this Response
  • Time for er visitrobaxacet may help a bit because it has a muscle relaxent in it that will help relax the jaw muscle...anther treatment is to take a coffee mug, stuff a folded up dishcloth in it...fill it with boiling water... pour out the water into the sink squezing out the cloth with a spoon until no water drips out..place the mouth of the mug on your ear like a great big headphone...the steam will give instant relief to any ear pain and will relax the muscles in that area...after the steam is gone i just place the side of the mug on my jaw and roll it up and down the neck...a chiropracter might be able to help give long term help..obviosly this is not caused by a deformed jaw or anything, something has changed and it could be a neck strain or injury..the nerves for the face come out from between the neck verabrae..if they are even a llttle out of alignment you can have neck or jaw pain and pinched facial nerves
    Anonymous 42,789 Replies Flag this Response
  • Basic background info:Male, early 40s, in perfect health, almost never got sick, excellent dental health, normal weight-high ratio, regularly exercises, daily vitamins, health-conscious, mostly vegetable-eater.Crisis:DAY-1: Excruciating pain in back teeth, both sides, upper and lower started 3-19-2010 (FRI), minor "tooth-pain" started about 6-8 weeks ago, they were fairly minor and insignificant but got progressively worse, leading to the 3-19 melt-down.Pain is truly "Excruciating"! 4 pills of Advil every 6 hors but it has virtually no effect on the pain.]DAY-4: Went to dentist for x-ray and diagnose on Monday morning (3-22), dentist could not found anything wrong dentally.DAY-5: Went to NYU Dental School for comprehensive evaluation on 3-23, took full mouth x-ray and undergone 3 hours of examination, was told by the supervising faculty that the teeth and gum and everything dentally are in perfect order, that the pain is not caused by tooth even though it feels like it is, possible causes are sinus disorder or TMJ, they gave me a referral to TMJ specialist but the earliest appointment is May 13. DAY-6: Pain increase in durations and severity, nothing can stop the pain, each wave of attacks lasted hours and the only relief was when I passed out from the suffering.DAY-7: Went to medical doctor (3-25) for emergency visit for the pain and check out the sinus, was told sinus was no problem at all and must be TMJ, ever though I told the doctor the Advil has no effect, she won't prescribe pain killer, told me to take Motrin, what a joke! I didn't know that Motrin and Advil are the same! She knew but she played the joke on me! Can you believe that? the visit cost me $150, I am in unemployment without insurance.Used ice pack last night for about one hour and continued to took 4 Advil, the ice had greatly reduced the pain and was able to sleep without suffering the pain until passed out.Day-8: 3-26, today, woke out with only minor pain, first time in 8 days, but soon the pain came back, stronger than ever, ice pack did help this time, nether did 4 Advil.What can I do? How can I stop the pain? The dentist said he can't help go see a doctor, Doctor said she can't help to see TMJ, with no job and no savings I can't afford the specialist and they won't do the x-ray, CT, or MRI because these are extremely expensive tests. I don't qualify the medicaid because I am on unemployment insurance.Any advice will be greatly appreciated! Thanks so much.Hello,I FEEL YOUR PAIN. I have had major issues with my teeth for years,. Going from my dentist for root canals, then a specialist for APICO's and eventually extractions...to only be in more pain then I started with. Thank GOD the specialist took me seriously and did a CAT scan which showed a (what X-RAYs will not) bone deterioration. He then did a bone biopsy and I have osteomylitis..a rare infection in my jaw. You need to instist on a CAT Scan. I had a PICC line with IV antibiotics and many procedures but the pain has presisted.
    Anonymous 42,789 Replies
    • August 16, 2011
    • 05:07 PM
    • 0
    Flag this Response
  • hi, my name is sonja. im a 41yr old woman in virginia and i know all too well the pain you describe. no one believes when your hurting until they watch you having an attack. i was recently diagnosed with trigeminal neuralgia. i have been referred to a neurologist. the pain is indescribable. how do you put into words pain so intense you cant do anything by sit there and shake and cry? and you cant prepare for it, theres never any warning that your gunna have what i call an "attack". which as anyone with this knows can last a few seconds to hours of agony.the worst part of it all, every patient 1st clinic ive gone to, and even ERs , they dont want to listen. they dont care. the second you mention pain, and a prescription. suddenly they assume your a junkie looking for a fix. why cant they just understand im just trying to have one day of my life where im not in pain, where i dont lie in bed for hours with attacks crying till i run out of tears. if drs are supposed to help people, why wont they?? what ever happened the HIPPOCRATIC OATH they take where they say they will do no harm and help all those in need. and when youve been hurting for days on end, and NOTHING is working to ease the pain, they give you a 2 maybe 3 day supply of the weakest pain killer they can think of to prescribe. who are they kidding?. they know that wont take my pain away. is it so wrong to want your body to not feel pain? isnt pain the body's way of telling you something is wrong? well, dammit dr's, FIX IT!. or learn some compassion and not treat everyone like a junkie. if theres any one else out there who agrees with this, give a shout out!!
    sonja w. 2 Replies
    • November 12, 2011
    • 00:08 AM
    • 0
    Flag this Response
  • hi, im a woman in my early 40's. i have been experiencing the exact same pain you are describing. people think your making things up to get attention, but this is a pain i wouldnt wish on my worst enemy. the condition is called TRIGEMINAL NEURALGIA. theres days when i cant get anything done, i lay in bed shaking and crying, the pain is so intense. like someone trying to use a chisel and hammer to break my skull open as if it were a rock, and thats not even close to describing the pain from the electric like shocks. feels like someone is touching my fillings will a live wire. try to get on medicaid thru social services, from there you can go to a neurologist (who can help you get on disablity). hopefully that dr will be able to help you. but as far as what you said about doc in a box clinics and ER'S. a waste of time. everytime you mention pain thats not from a visible injury they assume your a junkie looking for a fix. well, excuse the **** out of us for suffering from a disease you cant see, but is every bit as real as diabetes or high blood pressure. if you ever need anyone to talk to you when your having a bad day, my email address is ib4starchef@yahoo.comby the way. my name is SonjaBasic background info:Male, early 40s, in perfect health, almost never got sick, excellent dental health, normal weight-high ratio, regularly exercises, daily vitamins, health-conscious, mostly vegetable-eater.Crisis:DAY-1: Excruciating pain in back teeth, both sides, upper and lower started 3-19-2010 (FRI), minor "tooth-pain" started about 6-8 weeks ago, they were fairly minor and insignificant but got progressively worse, leading to the 3-19 melt-down.Pain is truly "Excruciating"! 4 pills of Advil every 6 hors but it has virtually no effect on the pain.]DAY-4: Went to dentist for x-ray and diagnose on Monday morning (3-22), dentist could not found anything wrong dentally.DAY-5: Went to NYU Dental School for comprehensive evaluation on 3-23, took full mouth x-ray and undergone 3 hours of examination, was told by the supervising faculty that the teeth and gum and everything dentally are in perfect order, that the pain is not caused by tooth even though it feels like it is, possible causes are sinus disorder or TMJ, they gave me a referral to TMJ specialist but the earliest appointment is May 13. DAY-6: Pain increase in durations and severity, nothing can stop the pain, each wave of attacks lasted hours and the only relief was when I passed out from the suffering.DAY-7: Went to medical doctor (3-25) for emergency visit for the pain and check out the sinus, was told sinus was no problem at all and must be TMJ, ever though I told the doctor the Advil has no effect, she won't prescribe pain killer, told me to take Motrin, what a joke! I didn't know that Motrin and Advil are the same! She knew but she played the joke on me! Can you believe that? the visit cost me $150, I am in unemployment without insurance.Used ice pack last night for about one hour and continued to took 4 Advil, the ice had greatly reduced the pain and was able to sleep without suffering the pain until passed out.Day-8: 3-26, today, woke out with only minor pain, first time in 8 days, but soon the pain came back, stronger than ever, ice pack did help this time, nether did 4 Advil.What can I do? How can I stop the pain? The dentist said he can't help go see a doctor, Doctor said she can't help to see TMJ, with no job and no savings I can't afford the specialist and they won't do the x-ray, CT, or MRI because these are extremely expensive tests. I don't qualify the medicaid because I am on unemployment insurance.Any advice will be greatly appreciated! Thanks so much.
    sonja w. 2 Replies
    • November 12, 2011
    • 00:20 AM
    • 0
    Flag this Response
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