Discussions By Condition: I cannot get a diagnosis.

Weird thing in urine (pics), sinusitis - fungal infection from mold, or? =/

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Sunflower2464
  • March 26, 2010
  • 00:28 AM

Primary problems: Constant/neary constant ear infection, Recurrent Sinusitis, Urinary problem with blood and strange "things" in urine.

I have been having some issues lately, and am having a very difficult time getting a diagnosis. I was very happy to find this forum, and hope that you can help me figure out what is going on!

Ear issue: I've had ear infections that come and go since I was a child. Then, after years of not having much trouble (other than feeling dizzy/off balance much of the time), I had some ear trouble in 2004. I went to my doctor, and she was concerned because something (Eustachian tubes, I am guessing) wouldn't open. I relocated not long after, across the country, and didn't investigate the issue any further. So, in June 2009, I started to get a lot of pain my right ear. I had some sort of abcess in my ear, it was very painful. It finally popped, and drained.. I kept having trouble with the abcess coming back, several times throughout the Summer.
About 2 months ago, the ear problem got bad, again. I've been having a lot of trouble with pressure in my ears, causing me to feel sleepy, dizzy, nauseas and out of it. The doctor kept telling me my eardrums were "bulging", probably from pressure/fluid. The right eardrum has ruptured 3 times in the past 7 weeks, and the left eardrum ruptured twice. Each time, draining sticky, bloody fluid and relieving a lot of pressure. But then, it returns, within a few days, and I am miserable.

Sinusitis: In July '09, I had the worst Sinusitis in my LIFE!! Horrible pain and pressure, staying sleepy, absolutely miserable. I've had this repeatedly since then, but the past 7-8 weeks, it been pretty much constant. Have had a few days of relief, after taking antibiotics, but it returns soon after I finish the meds. And NOW, the antibiotics are not even helping the Sinusitis, at all! It's so bad, you can hear the "squish" sound when you press in around the sinus area, near the nose. Other people can hear it, not just me! Nasty.

Urinary Tract: Where to begin? First, I recently found out that it's not normal to get up a time or two, or three in the middle of the night to urinate! I honestly thought it was normal. I can remember getting out of bed to urinate as a child, once I stopped urinating "in" the bed, that is. lol
Anyway, in October 2009, I started to have a BAD problem with urgency. I didn't know I had to urinate, until it was almost TOO late! By the time I had to go, I could barely make it to the bathroom. And, it seemed like I was urinating ever 1/2 hour-45 minutes. I've had some urinary issues since.. One thing, is this HORRIBLE pressure/pain in my lower abdominal area, and then in the genital/urethral area, when I have to urinate or during urination. It doesn't happen often, but when it does, it's beyond intense! =(
About 2 months ago, I noticed some white/grayish strands in my urine. Some of them were pinkish. It would come and go, sometimes i'd see it, sometimes not. Then, I started to see pinkish discoloration, especially on the toilet tissue after wiping. The "strands" were appearing more often, and were larger.
I went to see my FNP, and was asked to submit a urine sample. I nearly fainted when I seen the red sample, with 3 blood clots, and two pinkish tissue-like clumps (the strands, but more of a clump than a strand). I was put on Cipro.. No bacteria came back in the sample, just blood.
Two weeks later, had a follow up urinalysis. The sample was still red, but a lighter shade, and I didn't see anything, other than cloudiness. The sample came back with no bacteria, but contained blood. Was put on Erythromycin.
A week or so later, still miserable, went to see another doctor.
Without an examination, and after telling him I just finished a combination of Cipro + Erythromycin, he prescribed Cipro. =/ Which, I am not taking. They also did a urinalysis, and NO bacteria came back, only "large" amount of blood....though, the sample looked normal to me, so that was a surprise.
But... *sigh* I'm lost. don't know what is wrong or what to do.

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5 Replies:

  • ...Continued... I remember a couple years ago, had a urinary tract infection, and the cipro took care of the problem... But they found an abnormal amount of protein and white blood cells. Right now, the worst of it is the back pain. For years, i've had recurrent lower-mid back pain.. And, it's probably the kidneys.Also worth mentioning, have had problems with "dribble"/leaking small amounts of urine, and having to wear a pad. Not all the time, but several times for a few days or so. In the past few months, I have been on Cipro 4 times.. Amox twice.. Bactrim.. and then most recently, Cipro 500 MG 2X daily, for 20 days and Erythromycin 250 4X Daily for 10 days. It did help the Sinusitis and Tonsillitis to an extent, and seemed to help the middle ear infection a little. But, it didn't completely get rid of anything, and it started to come back within a couple days of going off the meds....again. I don't think this is bacterial. Not completely. I don't doubt the the virus/fungus/whatever is turning bacterial, and that would be why the antibiotic takes care of "some" of the symptoms, but not completely. I suspicion a fungal infection. And if it were fungal, wouldn't it makes sense that everytime I go on the antibiotics, it seems to end up coming back worse? Since antibiotics kill the "good" bacteria, too? The reason I think of as fungal infection... I found a HUGE amount of mold and mildew in my bedroom and bedroom closet. I had a water leak, for who knows HOW long, that ended up busting a line that goes to the waterheater. Apparently the dampness turned to mold, and mildew. When the mold/mildew was disturbed, my nose/throat/sinuses area was buring SO bad. Has anyone ever heard of mold/mildew causing a funal sinusitis and/or fungal uti? How do I test for it? How is it treated?
    Sunflower2464 2 Replies Flag this Response
  • (Continued) I remember a couple years ago, had a urinary tract infection, and the cipro took care of the problem... But they found an abnormal amount of protein and white blood cells. Right now, the worst of it is the back pain. For years, i've had recurrent lower-mid back pain.. And, it's probably the kidneys.Also worth mentioning, have had problems with "dribble"/leaking small amounts of urine, and having to wear a pad. Not all the time, but several times for a few days or so. In the past few months, I have been on Cipro 4 times.. Amox twice.. Bactrim.. and then most recently, Cipro 500 MG 2X daily, for 20 days and Erythromycin 250 4X Daily for 10 days. It did help the Sinusitis and Tonsillitis to an extent, and seemed to help the middle ear infection a little. But, it didn't completely get rid of anything, and it started to come back within a couple days of going off the meds....again. I don't think this is bacterial. Not completely. I don't doubt the the virus/fungus/whatever is turning bacterial, and that would be why the antibiotic takes care of "some" of the symptoms, but not completely. I suspicion a fungal infection. And if it were fungal, wouldn't it makes sense that everytime I go on the antibiotics, it seems to end up coming back worse? Since antibiotics kill the "good" bacteria, too? The reason I think of as fungal infection... I found a HUGE amount of mold and mildew in my bedroom and bedroom closet. I had a water leak, for who knows HOW long, that ended up busting a line that goes to the waterheater. Apparently the dampness turned to mold, and mildew. When the mold/mildew was disturbed, my nose/throat/sinuses area was buring SO bad. Has anyone ever heard of mold/mildew causing a funal sinusitis and/or fungal uti? How do I test for it? How is it treated?
    Sunflower2464 2 Replies Flag this Response
  • I am having the same symptoms. Started as sinus infection was prescibed Biaxin. Had a bad reaction to it, so prescribed amoxicillin. A few days later began having burning and pain in bladder, odour from urine and now have blood in urine but no bacteria. This is wearing on me physically and mentally. Symptoms have persisted for 2 1/2 months with no relief. No answers from doctor yet. Have you found anything out and have your symptoms improved? Thank you(Continued) I remember a couple years ago, had a urinary tract infection, and the cipro took care of the problem... But they found an abnormal amount of protein and white blood cells. Right now, the worst of it is the back pain. For years, i've had recurrent lower-mid back pain.. And, it's probably the kidneys.Also worth mentioning, have had problems with "dribble"/leaking small amounts of urine, and having to wear a pad. Not all the time, but several times for a few days or so. In the past few months, I have been on Cipro 4 times.. Amox twice.. Bactrim.. and then most recently, Cipro 500 MG 2X daily, for 20 days and Erythromycin 250 4X Daily for 10 days. It did help the Sinusitis and Tonsillitis to an extent, and seemed to help the middle ear infection a little. But, it didn't completely get rid of anything, and it started to come back within a couple days of going off the meds....again. I don't think this is bacterial. Not completely. I don't doubt the the virus/fungus/whatever is turning bacterial, and that would be why the antibiotic takes care of "some" of the symptoms, but not completely. I suspicion a fungal infection. And if it were fungal, wouldn't it makes sense that everytime I go on the antibiotics, it seems to end up coming back worse? Since antibiotics kill the "good" bacteria, too? The reason I think of as fungal infection... I found a HUGE amount of mold and mildew in my bedroom and bedroom closet. I had a water leak, for who knows HOW long, that ended up busting a line that goes to the waterheater. Apparently the dampness turned to mold, and mildew. When the mold/mildew was disturbed, my nose/throat/sinuses area was buring SO bad. Has anyone ever heard of mold/mildew causing a funal sinusitis and/or fungal uti? How do I test for it? How is it treated?
    Anonymous 42,789 Replies Flag this Response
  • ...Continued... I remember a couple years ago, had a urinary tract infection, and the cipro took care of the problem... But they found an abnormal amount of protein and white blood cells. Right now, the worst of it is the back pain. For years, i've had recurrent lower-mid back pain.. And, it's probably the kidneys.Also worth mentioning, have had problems with "dribble"/leaking small amounts of urine, and having to wear a pad. Not all the time, but several times for a few days or so. In the past few months, I have been on Cipro 4 times.. Amox twice.. Bactrim.. and then most recently, Cipro 500 MG 2X daily, for 20 days and Erythromycin 250 4X Daily for 10 days. It did help the Sinusitis and Tonsillitis to an extent, and seemed to help the middle ear infection a little. But, it didn't completely get rid of anything, and it started to come back within a couple days of going off the meds....again. I don't think this is bacterial. Not completely. I don't doubt the the virus/fungus/whatever is turning bacterial, and that would be why the antibiotic takes care of "some" of the symptoms, but not completely. I suspicion a fungal infection. And if it were fungal, wouldn't it makes sense that everytime I go on the antibiotics, it seems to end up coming back worse? Since antibiotics kill the "good" bacteria, too? The reason I think of as fungal infection... I found a HUGE amount of mold and mildew in my bedroom and bedroom closet. I had a water leak, for who knows HOW long, that ended up busting a line that goes to the waterheater. Apparently the dampness turned to mold, and mildew. When the mold/mildew was disturbed, my nose/throat/sinuses area was buring SO bad. Has anyone ever heard of mold/mildew causing a funal sinusitis and/or fungal uti? How do I test for it? How is it treated?Go see a urologist and get a kidney and bladder ultrasound
    Anonymous 42,789 Replies Flag this Response
  • I am not a doctor, but I do believe I have a pretty good guess as to what is actually going on. Because of the chronic ear infections and now sinusitis it is possible you have Ciliary Dyskinesia (and since you said that the ear infections had stopped for a few years it makes me think that it's probably Acquired Ciliary Dyskinesia; likely you got an ear infection from a virus and since it isn't possible for it to completely clear up that's why the infections keep coming back and why sinusitis is now added on to that. And yes, a fungal infection does seem like a very likely cause as well, and that could be what set off the sinusitis specifically. It is possible that it could be from a disease/syndrome but I wouldn't worry that it might be due to that.)As for the urinary problems, your symptoms seem to be pointing to IgA nephropathy; explains the bleeding, the pressure/pain, and also the elevated protein and white blood cells in your urine samples without there being any sign of bacteria. IgAN is when a certain antibody goes and attaches to the virus that is attacking your body (in this case it is probably the virus antigen that keeps lingering in your middle ear fluids), but basically ends up getting stuck in the kidneys while still sending out signals for more antibodies to come kill the virus which just ends up in a vicious cycle of a bunch of immune complexes getting stuck. Here's a website that can better explain it if you want to take a look: http://www.igansupport.org/faqs.htmlThere could be more serious underlying causes for both, but hopefully it is not some sort of genetic defect or anything. I hope this at least helps you in the right direction to figuring out what's wrong!
    Anonymous 42,789 Replies Flag this Response
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