I have been seen by my primary, dermatologists, endocrinologists, allergists, and cardiologists. Thus far the only diagnosis I have is postural tachycardia (postural orthostatic tachycardia syndrome), which means my heart rate increases significantly when I stand (as in my body has trouble fighting the effects of gravity). Prior to the onset of my health issues, I was an active 20 year old male-exercise, etc.
The primary symptoms that I am concerned with are the extreme flushing responses I get to: concentration, talking, sun, exercise, and sometimes spontaneous. I did not used to flush as I do now. The other primary concern is my fast heart rate, which can not really be explained (when I am laying down my heart rate is in 60-70s, and when I stand it jumps to the 110-120s). I have a constant blood pressure of about 130/85, which is a bit high, but does not change much when I stand. I am also extremely tired, and doctors typically attribute this to the tachycardia (my heart is like its constantly exercising when I stand).
Thus far the doctors have ruled out mastocytosis, pheochromocytoma, carcinoid syndrome, sjorgen's syndrome, and a few other diseases that could cause these reactions. Despite negative test results, I have also trialed H1/H2 antihistamines. I have also tried 4 beta blockers: metoprolol, propranolol, carvedilol (which actually induced flushning), and nebivolol (which also induced flushing). Unfortunately, 2 of the beta blockers (above) induce a flush on my upper body, and the other 2 make me tired to the point I can not function without 15+ hours of sleep (and I feel groggy the rest of the day).
The flushing occurs on my upper body: face (a little bit), neck (a lot), chest (a lot), and shoulders (a lot). If any one has any ideas on what could cause this flushing and tachycardia, I would appreciate it. I had an exercise stress test, and it came back as a normal heart rate increase to exercise, but I also had a peak HR of 220- which is high. Thanks again for any advice.
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