Discussions By Condition: I cannot get a diagnosis.

Severe pain around right ear, jaw, neck temple.

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: pxgq55
  • February 4, 2010
  • 03:41 PM

Tried posting this earlier. If it duplicates, I apologize. Anyway...

Firstly, I'm creating this topic to hopefully get some info for a friend of mine. She was awakened by what she thought was jaw pain several nights ago. Thinking it was due to sleeping on the side of her face wrong, she adjusted and went back to sleep. Once waking up, she realized that the pain was still present and was not isolated in the jaw, but seemed to stem from around the ear and up into the temple as well. She then scheduled an appointment with her primary care physician who diagnosed her with an ear infection. The next day, the pain was worse. And by day three, she described it as blinding pain. She was now running a fever along with being nauseous and having diarrhea. She then visited her doctor again. This time, he said that it was mastoiditis and gave her some anti-inflammatories and medication for pain. When she returned home, the pain was worsening. She couldn't sleep because of it and the pain medication had no effect. The next evening, the fever persisted so she decided to go to the E.R. The doctor there said that it surely wasn't an ear infection or mastoiditis, but said it was probably a cholesteaoma. They did a cat scan at the hospital and didn't detect anything abnormal. The following day, the pan was worsening still, fever persisting, so she mad an appointment with an ear, nose, throat specialist who took a look and said that it was definitely not an ear infection, mastoiditis, or a cholesteaoma. He said it was most likely TMJ and said that she should get to the dentist to rule out that and/or a possible tooth problem. She went to the dentist yesterday and all x-rays came back clear. there were no jaw or tooth issues whatsoever. She's at a loss and the pain, at this point, is keeping her from sleep, work, and daily activities. The pain is worsening by the day but she doesn't know what to do at this point. Every appointment has debunked the former diagnosis and now she's back at square one. Are there any conditions that could cause a referred pain to this area? if anyone has any suggestions as to what kind of specialist she should see, at this point, or what kinds of questions she should be asking, please feel free to share. I'm just trying to find out a little info so that she can get this obviously worsening condition fixed. Thank you.

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13 Replies:

  • Try acupuncture and maybe another dentist (take the x-rays)...maybe she needs her bite adjusted...I was thinking dental, too..wisdom teeth or something like that...but check out at least one very good Chinese doctor/acupuncturist if she really wants to get some help.
    Monsterlove 2,921 Replies
    • February 5, 2010
    • 04:01 AM
    • 0
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  • could it be temporal arteritis? jaw pain is one symptom.see http://www.nlm.nih.gov/medlineplus/ency/article/000448.htm it is important to get diagnosed and treated promptly to avoid complications.
    Anonymous 42,789 Replies
    • February 5, 2010
    • 04:21 AM
    • 0
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  • TMJ will not show on an X-ray unless it has been going on a long time... Most folks know when they grind their teeth at night. My girlfriend does this, and knows it happens. I think your friend should look into this further... They make little rubber tooth guards you can put between your teeth to help stop grinding. This sounds like an inexpensive thing to try.
    synesthesia 87 Replies
    • February 6, 2010
    • 01:10 AM
    • 0
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  • Sounds like she needs a neurologist.
    Med Student 64 Replies
    • February 7, 2010
    • 06:44 AM
    • 0
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  • Tried posting this earlier. If it duplicates, I apologize. Anyway... Firstly, I'm creating this topic to hopefully get some info for a friend of mine. She was awakened by what she thought was jaw pain several nights ago. Thinking it was due to sleeping on the side of her face wrong, she adjusted and went back to sleep. Once waking up, she realized that the pain was still present and was not isolated in the jaw, but seemed to stem from around the ear and up into the temple as well. She then scheduled an appointment with her primary care physician who diagnosed her with an ear infection. The next day, the pain was worse. And by day three, she described it as blinding pain. She was now running a fever along with being nauseous and having diarrhea. She then visited her doctor again. This time, he said that it was mastoiditis and gave her some anti-inflammatories and medication for pain. When she returned home, the pain was worsening. She couldn't sleep because of it and the pain medication had no effect. The next evening, the fever persisted so she decided to go to the E.R. The doctor there said that it surely wasn't an ear infection or mastoiditis, but said it was probably a cholesteaoma. They did a cat scan at the hospital and didn't detect anything abnormal. The following day, the pan was worsening still, fever persisting, so she mad an appointment with an ear, nose, throat specialist who took a look and said that it was definitely not an ear infection, mastoiditis, or a cholesteaoma. He said it was most likely TMJ and said that she should get to the dentist to rule out that and/or a possible tooth problem. She went to the dentist yesterday and all x-rays came back clear. there were no jaw or tooth issues whatsoever. She's at a loss and the pain, at this point, is keeping her from sleep, work, and daily activities. The pain is worsening by the day but she doesn't know what to do at this point. Every appointment has debunked the former diagnosis and now she's back at square one. Are there any conditions that could cause a referred pain to this area? if anyone has any suggestions as to what kind of specialist she should see, at this point, or what kinds of questions she should be asking, please feel free to share. I'm just trying to find out a little info so that she can get this obviously worsening condition fixed. Thank you. i have a similar problem that reocurres and have yet to find a good diagnosis,however i was told i have a unique ear canal and i am susseptable to airborn bacteria,i have to take antibiotics often and take large (800 mg) ibuprofin regularly to keep the swelling down,but i must say my ear itches also so maybe its not the same,but if mine swells it gets out of control and pushes my jaw out of place
    Anonymous 42,789 Replies
    • February 8, 2010
    • 00:38 AM
    • 0
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  • Hey i saw your msg and maybe i can help.I have the same problem and have been thru similiar course of actions and meds.It doesnt help.Firstly the main reason is stress or tension.......which can be elevated by the clenching of teeth.She may nt be aware dat shez tensed because neither was i,apparently sumthin at a subconsious level can trigger it off.So keepin cal or taking a breakk helps.Secondly applying heat help the area,this is for sure. Also sleeping with your head in an elevated position helps. There is am afrraid no permanent sol to this but i've noticed that if i mentally tell myself to not get tensed up(esp during my exams since i m a student)it helps and frequently taking precautions like not biting into sumthin hard or large prevents the jaw from getting worked up.Dats all i can think of.....i sincerely hope i helped!:)Firstly, I'm creating this topic to hopefully get some info for a friend of mine. She was awakened by what she thought was jaw pain several nights ago. Thinking it was due to sleeping on the side of her face wrong, she adjusted and went back to sleep. Once waking up, she realized that the pain was still present and was not isolated in the jaw, but seemed to stem from around the ear and up into the temple as well. She then scheduled an appointment with her primary care physician who diagnosed her with an ear infection. The next day, the pain was worse. And by day three, she described it as blinding pain. She was now running a fever along with being nauseous and having diarrhea. She then visited her doctor again. This time, he said that it was mastoiditis and gave her some anti-inflammatories and medication for pain. When she returned home, the pain was worsening. She couldn't sleep because of it and the pain medication had no effect. The next evening, the fever persisted so she decided to go to the E.R. The doctor there said that it surely wasn't an ear infection or mastoiditis, but said it was probably a cholesteaoma. They did a cat scan at the hospital and didn't detect anything abnormal. The following day, the pan was worsening still, fever persisting, so she mad an appointment with an ear, nose, throat specialist who took a look and said that it was definitely not an ear infection, mastoiditis, or a cholesteaoma. He said it was most likely TMJ and said that she should get to the dentist to rule out that and/or a possible tooth problem. She went to the dentist yesterday and all x-rays came back clear. there were no jaw or tooth issues whatsoever. She's at a loss and the pain, at this point, is keeping her from sleep, work, and daily activities. The pain is worsening by the day but she doesn't know what to do at this point. Every appointment has debunked the former diagnosis and now she's back at square one. Are there any conditions that could cause a referred pain to this area? if anyone has any suggestions as to what kind of specialist she should see, at this point, or what kinds of questions she should be asking, please feel free to share. I'm just trying to find out a little info so that she can get this obviously worsening condition fixed. Thank you.
    Anonymous 42,789 Replies
    • February 19, 2010
    • 06:47 PM
    • 0
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  • Seriously try Atlas Profilax. Don't know where you are, but there aren't that many practitioners in the US. Mostly Europe. DO NOT do the chiropractic version. I can attest to this.
    Anonymous 42,789 Replies
    • December 4, 2010
    • 05:35 PM
    • 0
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  • ....and found out that the cause may be Exostosis. I went to the dentist thinking that the head, neck, temple and ear aches where caused by my wisdom teeth; the cause was Exostosis. Exostosis is the over growth of bone in the upper jaw (it can also be in the lower jaw and roof of the mouth). People that have severe exostosis can get the bony projections "filed" down with a tiny dental instrument to make the projections smaller. Just thought I would share this information I hope that it helps.
    Anonymous 42,789 Replies
    • February 20, 2011
    • 02:14 AM
    • 0
    Flag this Response
  • Tried posting this earlier. If it duplicates, I apologize. Anyway... Firstly, I'm creating this topic to hopefully get some info for a friend of mine. She was awakened by what she thought was jaw pain several nights ago. Thinking it was due to sleeping on the side of her face wrong, she adjusted and went back to sleep. Once waking up, she realized that the pain was still present and was not isolated in the jaw, but seemed to stem from around the ear and up into the temple as well. She then scheduled an appointment with her primary care physician who diagnosed her with an ear infection. The next day, the pain was worse. And by day three, she described it as blinding pain. She was now running a fever along with being nauseous and having diarrhea. She then visited her doctor again. This time, he said that it was mastoiditis and gave her some anti-inflammatories and medication for pain. When she returned home, the pain was worsening. She couldn't sleep because of it and the pain medication had no effect. The next evening, the fever persisted so she decided to go to the E.R. The doctor there said that it surely wasn't an ear infection or mastoiditis, but said it was probably a cholesteaoma. They did a cat scan at the hospital and didn't detect anything abnormal. The following day, the pan was worsening still, fever persisting, so she mad an appointment with an ear, nose, throat specialist who took a look and said that it was definitely not an ear infection, mastoiditis, or a cholesteaoma. He said it was most likely TMJ and said that she should get to the dentist to rule out that and/or a possible tooth problem. She went to the dentist yesterday and all x-rays came back clear. there were no jaw or tooth issues whatsoever. She's at a loss and the pain, at this point, is keeping her from sleep, work, and daily activities. The pain is worsening by the day but she doesn't know what to do at this point. Every appointment has debunked the former diagnosis and now she's back at square one. Are there any conditions that could cause a referred pain to this area? if anyone has any suggestions as to what kind of specialist she should see, at this point, or what kinds of questions she should be asking, please feel free to share. I'm just trying to find out a little info so that she can get this obviously worsening condition fixed. Thank you. I purchased some new dental floss and with in 24 hours these same conditions started. I am 47 years old and never had TMJ or jaw problems. I have been to the dentist 2 month's ago for a cleaning and x-rays and everything came up good. I will stop flossing for the next few days to see if it helps.
    Anonymous 42,789 Replies Flag this Response
  • not a doctor tut have suffered the same symptoms-jaw pain, weird, unusual headaches,, etc, then i realized it might be poor circulation due to eating greasy ,oily,fattening stuff....fried stuff,etc, because,think about it, put it in your body(crisco) it's **** well gonna end up io your body=building up inside the veins and arteries,causing occassional numbness in the toes and fingers....poor blood flow will manifest in pain in particularly vascular areas (like the gums,teeth,anus,lips, *****,etc,.I would suggest, not being a medical doctor, to eat-for the next couple months, notyhing but fresh fruits and vegetables and all the supplements you can stand(CoQ10,B12,Biotin;etc)...and....i know it's a cliche but-for good reason- FRESH AIR AND EXERCISE....especially cardio-the hearts a muscle after all. best of lucc
    jerflm 3 Replies
    • August 24, 2012
    • 00:45 PM
    • 0
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  • hang in there, honey. theres not much worse than a toothache. that is a glib interpretation of your situation -its about poor circulation- the gums,tongue,*****,etc,are extremely vascular areas- elsewhere, it manifests in weird ways....like you wouldnt get blood there,know but- a solid three dsy fast-nothing but liquid(no sugar)AT LEAST. then nothing but a meal of fresh fruits and veggies for a month,,,,no salt, grease,oil,sugar, and all the supplemennts you can stand-CoQ10,Omega3,etc,,,Biotin(nasty,yes,but,the greater good,etc)...Flush it , man, flush that body - like porcelain, ,,,,then get get back to tour normal loife, its what its all about, right
    jerflm 3 Replies
    • August 24, 2012
    • 05:54 PM
    • 0
    Flag this Response
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  • I know this posting was from several years ago but I was wondering if your friend ever got a diagnosis? I am suffering from the same symptoms. I went to the Doctor several weeks ago and she ruled out ear infection but said I had a bad sinus infection and put me on 2 weeks of antibiotics. It's been 2 weeks, the pain is still there and now I have a low grade fever, nausea and diahreea. She also suggested that I see a dentist, which I did. He took xrays and said I had no gum or teeth issues. Have set up another Doctor appt. I haven't been able to work and am really frustrated. Please let me know your friends outcome so I can at least pose the posibility to my Doctor. Thanks!
    jane529 1 Replies
    • January 30, 2013
    • 07:59 PM
    • 0
    Flag this Response
  • I know this posting was from several years ago but I was wondering if your friend ever got a diagnosis? I am suffering from the same symptoms. I went to the Doctor several weeks ago and she ruled out ear infection but said I had a bad sinus infection and put me on 2 weeks of antibiotics. It's been 2 weeks, the pain is still there and now I have a low grade fever, nausea and diahreea. She also suggested that I see a dentist, which I did. He took xrays and said I had no gum or teeth issues. Have set up another Doctor appt. I haven't been able to work and am really frustrated. Please let me know your friends outcome so I can at least pose the posibility to my Doctor. Thanks!Have you had back pain?  Have you ever had a back injury or scoliosis?  Are you overweight?  Do you do heavy lifting/bending?  Is it possible that you have referred pain from a pressed disc in your spine and that being in a certain position (does laying down or sitting or standing/walking make it hurt more than usual or less that usual?) can increase or decrease the pressure.  It is also possible that neck tension can put pressure on a more local nerve in your neck/shoulder region to cause the pain (does the pain radiate, shift, increase when your blood pressure/pulse increases? is is sometimes in your ear and then upper jaw and then lower jaw and then neck/inner ear?)  An MRI is expensive, but a consultation with a nerve specialist or back doctor might help--or start smaller, with a physical therapist, perhaps?
    dcmcmurtry 1 Replies Flag this Response
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