Discussions By Condition: Urinary conditions

Chronic Epididymitis?

Posted In: Urinary conditions 40 Replies
  • Posted By: Anonymous
  • January 7, 2007
  • 09:28 PM

My name is Matthew. I am a 17 y/o male from Louisiana. In the beginning of October, I began to have pain in my (L) testicle. I work as a Pedi CNA, so I went and asked our nurse practitioner. She diagnosed me with epididymitis and prostatitis. I was put on Doxycycline once daily for 10 days. It never got any better, so I went to see Dr. J. in Lake Charles. He agreed with the diagnosis of the NP and put me on Bactrim BID x30days. The pain went away, but I was still sore, thinking it would eventually go away. In mid December, the pain came back. I went to see Dr. J once again, so he put me on Doxycycline 100mg twice daily x14days. For the last week, the symptoms have been getting worse. I'm having severe pain in my left testicle, left inguinal pain, and left lower abdomenal pain which radiates to my naval and (L) hip. Ive been having nausea. I went to see Dr. J again on the 4th, he told me my prostatitis looked okay from the UA, but he doesn't know why the epididymitis has not gone away. I have done an IVP and ultrasound, and both are unremarkable. He prescribed Percocet every 6 hr as needed, Bactrim twice daily, and Amitryptiline for 3 weeks. He told me to return to clinic in 3 weeks. The pain is getting worse and I can't get enough sleep. In the last 3 days, I have been sleeping 4-6 hours in the day, and at least 9-10 hours at night, but Im still very lethargic. What would you suggest I do next. Dr. Js office is closed until Monday, so I will call him Monday and ask him to do something. My mother suggests we go to Houston and not see Dr. J any longer since this is my 4th round of antibiotics and no results. Any information will help me.

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40 Replies:

  • I had pain near the left testicle two years ago that also started about October. I went to a Family Practice MD in November and he said that it was likely caused by a virus and the pain will go away in a couple of months. He did not do any tests. That pain did go away eventually, but I believe that I am much much more ill now with many symptoms in nearly all systems of my body. I'm back to seeing that MD and I haven't been diagnosed yet - waiting for blood tests.The only relief that I'm getting right now comes from removing certain ingredient from my diet: sugar, wheat, aspartame, monosodium glutamate, yeast. Nearly everything in a supermarket or restaurant has one of those items in it except for unprocessed vegetables, fresh meat, and water. For myself I suspect it is caused by a fungus like Candida albicans or possibly Lyme Disease which is caused by a spirochete bacterium. Candida can infect the genitals. It uses simple carbs like sugar as a main nutrient.Antibiotics mostly only kill bacteria, not viruses and not fungi. So if you have a fungus that would explain why antibiotics have not helped you.Search for "candidiasis" at Wikipedia.
    Anonymous 42,789 Replies
    • January 26, 2007
    • 02:41 AM
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  • My husband had a round of this from "not having sex"..... long story he was working an extended period of time away from home and we didnt see each other often and when he came home he could barely walk from the discomfort. He is a very faithful man so NO it wasn't from messing around in fact the opposite. I dont know how to say this but here goes... the mds said that even "frequent release" or sex would help along with the antibiotics. I know this sounds like a crazy thing but it may help you get some relief from the discomfort by well you know a "long shower" . My husband is a very faithful man and I am a nurse so all kidding aside, I hope this helps you. Good luck..
    Anonymous 42,789 Replies
    • January 31, 2007
    • 01:31 AM
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  • The last post is quite on the money. I am a 32 years old male and have been having these issues for over 10 years. I have found that even a bit of sexual arousal that does not climax in an ejaculation can cause some pretty severe pain. I have not taken antibiotics in years and generally rough it out when I cannot utilize the method above. And although ejaculation is quite painful, i wake up pain free the next morning. This condition is no picnic, but this has helped me quite a bit.
    Anonymous 42,789 Replies
    • February 13, 2007
    • 00:57 AM
    • 0
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  • well, it looks obvious you are in the chronic state of prostatitis, the infection has invade all the way to the prostate area, the oral antibiotics treatment is useless at the stage, you may have a final try of 2-3 months non-stop antibiotics and see if you can escape from this terrible disease, if not after a few months, then you may consider unconventional treatment for chronic prostatitis, visit http://www.prostatitischina.com for more info
    Anonymous 42,789 Replies Flag this Response
  • You need to get properly diagnosed. You may ask for cultures of urine and fluids from the penis (after massaging the prostate) to be tested. It can help to reveal the bacterial infection and the place where it is located (urinary tract or prostate). In case of chronic bacterial infection the antibiotic that can penetrate prostate tissue (e.g. levofloxacin, ciprofloxacin) can be prescribed for 30-90 days.
    Anonymous 42,789 Replies Flag this Response
  • I'm 34. Following a standard NSU infection aged 22, I started to get this over and over again throughout my mid-late 20's. Same symptoms (pain down inner thigh, testicle ect.) What I could never understand is sometimes the clinic would take a lab sample and come back with 'yes, there is an infection' and give me deoxycycline.....and other times no infection would be evident and they would be at a loss as to what to do for me. My symptoms were exactly the same in all cases. In the end they offered amitryptline(?) and I said no...enough is enough....I don't want tricyclic antidepressants for an aching testicle, even if it does help some people...... I never went back to the clinic. After this, it came back once more then went way and never came back. The only significant thing that changed in my life was quitting smoking weed. It could have been that, or yeast...but I think it was more likely to be my anxiety about the condition and getting it resolved that was actually causing it. Once I released I was was at the end of the 'medical' road and nothing more could be done, it seemed to disappear. I did start to get prostatitus a few years later, sames story , lots of antibiotics , then finally I released it was my anxiety about the condition causing muscles to tense and pain to start. That went away too, once I'd realized ..again! It's like you have a little gremlin in our minds that causes the pain and once you discover , admit he exists, he's gone forever. However much it hurts, you sometimes need to accept that perhaps your doing it to yourself and you have to loose your mental preoccupation with it. Be honest, how many times a day do you think about your problem, try counting....
    Busky65 3 Replies Flag this Response
  • I have a similar problem. I had Epididymitis. Went to the doctor who gave me doxycelin or something, standard anitbiotic for this. Didn't work at all so I went to a urologist who gave me Ciprofloxacin which helped hours after I took the first pill. Two weeks later (which was two days ago and I"m still taking the pills) I woke up with some swelling and minor pain if I sat in a certain way. Went away for the rest of the day after 30 minutes but came back after a hot shower. Same thing happened yesterday and today. I'm worried its coming back and as of this minute I have two antibiotic pills left. I did miss one pill last weekend but made up for later that afternoon so on one day I took the pill at 4pm then 11 pm instead of the morning then night. Is it coming back or is this normal for regular Epididymitis.
    Anonymous 42,789 Replies Flag this Response
  • Hi 'Needs Help'Always difficult to say, I'm not a doctor so all I relay to you is my experience. Cipro is a very powerful antibiotic, but there is always a chance it hasn't worked and you now have a Cipro resistant infection, but unlikley (unless you've done a lot of antibiotics).I did find with my condition that the pain always came back at the end of the course of antibiotics, or shortly after. When I was 're-tested' the Urologist would never find any evidence of infection. So I can tell you that from my experience it's normal for the pain and discomfort to come back even though the infection appears to have gone. The only way to really know is to get tested again. If you have a serious infection your testicle will swell up noticeably and you will feel ill (fever)....so I wouldn't panic . The condition is a misery, but unlikely to present a long term danger to your fertility or general health unless it gets serious. I had it time and time again (only minor swelling ever noticeable, but a lot of pain/discomfort..even in legs) but I still manged to father a daughter many years later. Good thing about this condition is at least it only effects one side!. My advise, do talk to your Urologist as a precaution . Notice I'm not saying "if worried/concerned"...because the point is not to worry or be concerned. I know it's a huge drag, but stressing about it WILL make it worse, trust me.
    Busky65 3 Replies Flag this Response
  • I've had very similar symptoms and I was diagnosed with "chronic epididymitis". I rejected the diagnosis for a long time but after being seen again and again by many different providers, I couldn't believe they were ALL wrong. The thing is, in my case, the symptoms will go away from weeks at a time, but then they come back full force. Antibiotics do not help me, because I do not have an infectious kind. I think that it is important to realize that not all people with epididymitis need antibiotics- as they are not always an infection. This condition has impaired me considerably, both sexually and with my day-to-day living. I've read that in some cases, symptoms just stop for good. Hopefully, this will be the case eventually. Surgery was offered to me but it is often unsuccesful and, personally, I don't want surgery on my testicles! I am 25 and would like to have everything intact.
    cpetersen83 1 Replies
    • November 22, 2008
    • 01:33 PM
    • 0
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  • Hi all-I am 26 year old male who was also diagnosed with chronic epididymitis by my US doctors. I went in and out of pain for 6 months on was put an numerous does of different types of anti-biotics. Then I saw a doctor in the EU about it, and he looked at my kidneys. He found that I had a bunch of micro-crystals in my kidneys- and that they were causing the problem. The remidy was simply to stay hydrated and do kidney flush. If you are being diagnoses with chronic epididymitis and the treatment is not working- have your doctor check your kidneys and drink lots of water!!!!Hope this helps
    Anonymous 42,789 Replies Flag this Response
  • Hi,What is a kidney flush? Did you ever get random sharp attacks of pain in your sides? Im debating on going to a kidney specialist since no urologists seem to be able to find a problem? What tests did you ask for when you had your kidneys checked?thanks for your help
    Anonymous 42,789 Replies
    • August 12, 2009
    • 03:21 AM
    • 0
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  • hi there i have a cyst in the epididymis and a varicocele well thats what ive been told by a number of doctors. any way theres not been a real diagnosis yet untill after i go for cat scan, ive already had two ultra sounds but didnt show anything but the doctors know theres a lump in the left epididimis. im having the same syptoms really testicular ache groin pain and lower to middle back pain and ache, and it does keep me awake at night as well but its the worst in the morning as soon as i get up out of bed. ive been told to wear some supportive underwear but i dont think it helps really. ive been put on amitryptilene also but i dont see how it helps it just makes me tired and the pain is still there. i take it at night before i go to bed it works in a way that you dont have about a million things running through your head when trying to get to sleep but as soon as i wake up the pain is back, so hopefully see what this cat scan showslewis_29 =]
    lewis_29 28 Replies
    • August 14, 2009
    • 01:49 AM
    • 0
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  • Hi guys,I really feel your pain. I was diagnosed with epididymitis 6 years ago and suffered from the inflammations and pain for about 2 and 1/2 years. Several urologists just assumed that I had sexual relationships out of the wedlock (it was not the case!) and prescribed several bouts of antibiotics to no avail... Then, I finally traveled to the hospital of the University of Pennsylvania, and they diagnosed an enlarged prostate that was exerting pressure on an internal nerve. A simple course of alpha-blockers (Flomax), for about two months, took care of the problem! The pain and inflammation totally went away...I was so angry that I had to live with this for almost 3 years given how easy the solution was, just because most doctors are ignorant of the origins of this problem!Please have your doctors try and prescribe you alpha-blockers: I never have had any problems since then...I hope this helps: please post back if you tried alpha blockers and they worked: I would like to know if an enlarged prostate (or similar inflammation of internal muscles) is a common cause of epididymitis and be able to help more people...
    Anonymous 42,789 Replies
    • August 19, 2009
    • 01:51 AM
    • 0
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  • I first started having symptoms last october , and since then ive been to the ER three times the last time was in april and they gave me a direct referrel to a urologist. Now including the ERs ive had all test done i think , from cytoscopy , ultrasound , numerous urine analysis , and bloodwork. The most annoying thing is they treat me like im some careless promiscuous kid ( even tho ive told them im a virgin) they give me doxcycline and usually the symptoms are the worst after the dosage ends then everythings fine , but eventually given two-three months they return. Now the last time i was in was may and he gave me double the dosage (which i was only able to do half of it ) and its three months later at which point he wanted to see me again but i dont wanna go in as im kinda worried about it being diagnosed as chronic and ive read that people have to get surgery to reduce or remove the pain in extreme cases, but the thing that bothers me the most is that my body and mind dont wanna have any sex in anyway due to the fact that im scared that its going to make it progress into something worse or the fact that i might spread it( not sure of). I dont even wanna do masturbation due to the fact that afterwards i get problems urinating , and sometimes inflammation which last 2-3 days then it goes away. The symptoms have not been as bad as they once where back in january but they seem to flucauate and i just want them to go away completly , as well due to the fact i dont masturbate i do have wet dreams and usually afterwards i get very small return of symptoms although inflammation comes and goes no matter what i do. I really dont know what to do at this point with it ive got a very strict diet , i havent drank soda in years , no tea , i dont get caffeine from my diet i dont think , i drink cranberry juice every two three days ( hate the taste) and now recently i started taking cranberry extract pills. Reading these other post is kind of discouraging as it sounds like this area in general can be very difficult to diagnose another thing is if its not more mind over matter , even tho i know i do have burning after urination maybe the pain in the testicles is all in my head( they are sensitive tho)
    Anonymous 42,789 Replies
    • August 20, 2009
    • 09:57 PM
    • 0
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  • HiI have read all the posts here and I have felt your pain, literally!.I had Epididymitis four about 4 years. I had Ciprofaxcin to start with which, as everyone who has had it attests to, did work until the course finished. So that was no good.I left it for a long time and just put up with the burning sensations and the testicular pain that would make me double over. Four years later after the first bout of pain, I started to get pains in my abdomen. I went to a new doctor where I lived who again diagnosed Epididymitis. He put me on a months worth of Doxycycline. Thsi again worked for a bit but then the pain came back.I went back to this doctor. He explained it this way - The Epididymus is a complicated mass of tubes, just like a cave system! The infection finds itself a very good hiding place which can be extremely difficult for the Doxycycline to find and attack. I asked him for more Doxycycline. I was meant to take 1 tablet a day (each tablet was 100g).What I actually did was this: I took 1 tablet first thing in the morning with a banana or apple (you must eat with these as they have a tendency stick and not get digested properly). At night I then took another either at dinner or just before bed. I generally tried to take a tablet every 12 hours.I got repeat prescriptions which meant I was on Doxycycline for 3 months, following the same regime every day. There were some days though that I did purposely not take my medicine to see if any pain came back.Since finishing the course I am happy to say that I now feel no pain and it really is a weird feeling, to feel nothing! I actually feel healthier in the parts that were unhealthy, which is great.For me, it worked. For others I hope it does. But persistency, I believe, is the key and do not lose the belief that it can be cured, because I am an example that it can.Good Luck!
    Anonymous 42,789 Replies
    • September 9, 2009
    • 05:25 AM
    • 0
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  • Hey guys, just wanted to share my story. Im a 27 yr old male who was diagnosed with epididymitis almost 3 months ago now. I have been on different types of antibiotics, doxycycline and ciprofloxin. I have been in and out of pain/swelling the whole time. Sometimes I go for weeks without any pain and then it comes back. (I have read that ppl experience alot of pain, I have only had really bad pain once near the beginning and now its always just an uncomfortable pain, so I'm hoping thats a good sign) At one point (2 months in) I finished a cycle of doxy and didnt feel any pain. Two days later it was back. Now it feels as though it is starting to pass from my left to my right testicle. I have now cut out caffeine from my diet, I am going to see my Dr tomorrow and talk to him about a possible yeast infection as I read this can be an issue as well. I am not quite sure where to go from here, and I'm not too sure my Dr does either but he said if I came back he will send me to a urologist to see what he can do. I have also had an ultrasound which came up with nothing. I'll keep yah posted. And if anyone has any recommendations for treatment, etc. please post back Thanks.
    Anonymous 42,789 Replies
    • October 5, 2009
    • 09:38 PM
    • 0
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  • I suffered for two years with this condition. Many treatments failed, including several rounds of antibiotics, osteopathic treatment, and other palliative methods. Then my doctor prescribed Tramadol and tylenol. After two doses, I felt quite dramatic relief. More importantly, the beneficial effects continued such that, after 3 or 4 doses over several weeks, I found that the pain was almost totally gone. These effects have been sustained for over 5 months. I have come to believe that a chronic pain cycle had developed, and this medication regimen managed to break the cycle and provide lasting relief. I hope this can benefit others.
    Anonymous 42,789 Replies
    • October 23, 2009
    • 06:23 PM
    • 0
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  • I had similar symptoms in my 20's Uroligist gave me a digital rectal exam. serious burning d sensation during procedure told him i had prostatitis. A 2 week course of meds helped a bunch. I first started having symptoms last october , and since then ive been to the ER three times the last time was in april and they gave me a direct referrel to a urologist. Now including the ERs ive had all test done i think , from cytoscopy , ultrasound , numerous urine analysis , and bloodwork. The most annoying thing is they treat me like im some careless promiscuous kid ( even tho ive told them im a virgin) they give me doxcycline and usually the symptoms are the worst after the dosage ends then everythings fine , but eventually given two-three months they return. Now the last time i was in was may and he gave me double the dosage (which i was only able to do half of it ) and its three months later at which point he wanted to see me again but i dont wanna go in as im kinda worried about it being diagnosed as chronic and ive read that people have to get surgery to reduce or remove the pain in extreme cases, but the thing that bothers me the most is that my body and mind dont wanna have any sex in anyway due to the fact that im scared that its going to make it progress into something worse or the fact that i might spread it( not sure of). I dont even wanna do masturbation due to the fact that afterwards i get problems urinating , and sometimes inflammation which last 2-3 days then it goes away. The symptoms have not been as bad as they once where back in january but they seem to flucauate and i just want them to go away completly , as well due to the fact i dont masturbate i do have wet dreams and usually afterwards i get very small return of symptoms although inflammation comes and goes no matter what i do. I really dont know what to do at this point with it ive got a very strict diet , i havent drank soda in years , no tea , i dont get caffeine from my diet i dont think , i drink cranberry juice every two three days ( hate the taste) and now recently i started taking cranberry extract pills. Reading these other post is kind of discouraging as it sounds like this area in general can be very difficult to diagnose another thing is if its not more mind over matter , even tho i know i do have burning after urination maybe the pain in the testicles is
    Anonymous 42,789 Replies
    • December 23, 2009
    • 04:40 AM
    • 0
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  • Matthew, It's been awhile since your post, but My Husband has been struggling with the same issue for the last 5 weeks. Same treatment and results as you. Just wondering if you have resolved the epididymitis or how you were able to help yourself with the pain. We recently got married and want a family, but obviously are very scared right now. Thanks for your help. DGPS My name is Matthew. I am a 17 y/o male from Louisiana. In the beginning of October, I began to have pain in my (L) testicle. I work as a Pedi CNA, so I went and asked our nurse practitioner. She diagnosed me with epididymitis and prostatitis. I was put on Doxycycline once daily for 10 days. It never got any better, so I went to see Dr. J. in Lake Charles. He agreed with the diagnosis of the NP and put me on Bactrim BID x30days. The pain went away, but I was still sore, thinking it would eventually go away. In mid December, the pain came back. I went to see Dr. J once again, so he put me on Doxycycline 100mg twice daily x14days. For the last week, the symptoms have been getting worse. I'm having severe pain in my left testicle, left inguinal pain, and left lower abdomenal pain which radiates to my naval and (L) hip. Ive been having nausea. I went to see Dr. J again on the 4th, he told me my prostatitis looked okay from the UA, but he doesn't know why the epididymitis has not gone away. I have done an IVP and ultrasound, and both are unremarkable. He prescribed Percocet every 6 hr as needed, Bactrim twice daily, and Amitryptiline for 3 weeks. He told me to return to clinic in 3 weeks. The pain is getting worse and I can't get enough sleep. In the last 3 days, I have been sleeping 4-6 hours in the day, and at least 9-10 hours at night, but Im still very lethargic. What would you suggest I do next. Dr. Js office is closed until Monday, so I will call him Monday and ask him to do something. My mother suggests we go to Houston and not see Dr. J any longer since this is my 4th round of antibiotics and no results. Any information will help me.
    Anonymous 42,789 Replies
    • January 13, 2010
    • 08:06 PM
    • 0
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  • hello comradesI have a similar problem. It started as urethritis 16 months ago. I went to the urologist and he prescribed azythromycin 500mg every 12hrs during four days. then vibramycin 100mg twice daily for 10 days. On the tenth day I still had the urethritis and took tinidazole, just in case it was trichonomiasis. About 12 hours afte I began taking this medicine I experienced acute epididymitis on the right side along with fever. I went back to the Dr. and he prescribed 1g ceftriaxone injection daily for 7 days which stopped the pain inthe testicle and ended with the night sweats and fever, however the urethritis remained, plus I started getting this awful sensation of humidity in the anus. I decided not to take more antibiotics and this nightmare continued for a while.. then as the weeks passed it slowly began to diminish. As I proceeded to resume my normal lifestyle, Im 27 and drink alcohol and smoke weed, I noticed that this activities triggered my symptoms - epididymits, hot prostate, humidity in the anus, reactive arthritiss in pelvic joints and knees.. plus a degree of sexual disfunction, not only upon sex but even when I want to masturbate.I managed to deal with this for nearly a year, and decreased dramatically my recreational drug use, to the point that right now I have been clean for 4 months, just to avoid getting back the symptoms. Ive seen 5 or 6 urologist and they find physical explrations to be ok, plus I took 1 test for chlamydia, 1 urethral swab, and 1 urine and semen culture. everything apparently fine, with ¨slight prescence of gram positive bacteria¨which drs say is no problem. Right now Im taking ofloxacin 400mg every 12 hrs.
    Anonymous 42,789 Replies
    • February 5, 2010
    • 08:50 PM
    • 0
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