I have FTD which was diagnosed in February. FTD or Pick's disease is considered a rare disease but the more research I do, I am starting to believe that it isn't as rare as many doctors think.
I try to explain to people the signs and symptoms in case they could possibly have FTD and then make an appointment with an FTD specialist.
FTD, frontal temporal lobe degeneration/dementia is a terminal brain degenerative disease that can affect people as young as 40. I know a woman who developed it at 38.
Early symptoms include problems with balance, behavioral changes, apathy towards others, unable to deal with finances, "acting out", sleeping a lot, apathy towards activities of daily living and grooming, confusion but memory is usually fairly intact in early stages. Also a change in personality with increasing compulsive behaviors, repeating the same tasks over and over again.
Many people during the early onset of the disease, have trouble managing outings involving social contact. It is especially hard for women who are trying to understand what is going on with their husbands as they may have changed from being responsible, financially compentent, and pleasant to be around to a person who has outbreaks of anger and frustration, starts having trouble at work and has no insight into their disease. The affected person often blames their partner for changes that are happening to them.
I am "atypical" because I do not act out and I am aware of my disease. But, I do have many other FTD symptoms.
If you want any further information then feel free to contact me.
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