Hello, everybody- this is my first post, but I frequent this website and webmd more often than I wish I had to. Unfortunately, I have been having just very unpleasant symptoms that have lasted over 2 months now.
First off: I am 25 years old, female. I have always been very active- this past summer I was running 3-4 miles 3 times a week. My bmi is 21 (not underweight or overweight). I am a nursing student, about to graduate and work as an RN, and what I am experiencing is nowhere to be found in my med-surg books! My father-in-law is a family practitioner and he is stumped. So, I will now ask for any input here on the internet, where all knowledge and experience and advice is free and welcome!
Also, some more history: I have had some IBS-type problems for 4 years; no diagnosis but MRI was negative and the symptoms come and go and have become easier for me to manage. Around the time I began experiencing the IBS symptoms, I had some major panic attacks. However, these have been well-managed for 3 years now. I also have slight asthma.
Neck pain- the very top of the back of the neck, where it meets my skull. The pain feels like sensitive tendons, and there are "pressure points" where it just feels extremely tender. The pain radiates up under my skull and below my right ear.
Sour/bitter taste- intermittent. it sneaks up on me, and I begin to taste it slightly, and then becomes very strong. I taste it on my mucosa, particularly in between my gums and cheeks. It is worse on the right side. I can taste it when my nose is pinched shut. It does not change the taste of food or drink. It goes away after about 45 minutes to an hour and a half. It seems to have similar attributes to burning mouth syndrome, but it's not burning. just an odd taste.
Shoulder pain- seems to happen in relation to the sour taste. the pain starts usually above my clavicles and then radiates to the shoulder joint and goes down my arms a bit. The pain goes away in a similar fashion to the sour taste. Then my arms feel slightly weak for another hour, like I have difficulty lifting my arms up above my head. I can do it, they just feel weaker.
Noise sensitivity- I am now very sensitive to "sharp' noises. at night in particular. My husband pulls a fork out of the drawer while I'm in the living room and it makes me have a 'jolt' or a "buzz" feeling in my head. It is so bizarre!
Vision changes/disturbance- I have "tracers" behind lights and a slight halo around lights at night. I sometimes feel like there's a slight haze in the room. kind of like if somebody lit an incense in another room and the smoke moved into the other room... hah. I have always had the clear stringy floaters.
One swollen lymph node/salivary gland-- I have a painless, fixed node behind my left earlobe. It is very small. probably not even 2 cm in diameter. it popped up 4 weeks ago and does shrink a bit every few days. i suppose this may be related to the sour taste.
General strange feeling- I feel light headed, woozy, dizzy, and just icky feeling about once or twice a day. Sometimes I feel so extremely sleepy, and I just absolutely have to sleep. even if i'm in class. I get 8 hrs of sleep a night.
Anxiety-- I have had feelings of anxiety (although not really panic attacks) come and go with these symptoms as well, but I truly feel that the anxiety is because of these strange, vague symptoms. I feel afraid that it's something serious or that if it isn't, I will be stuck feeling these symptoms for the rest of my life. I don't feel that the anxiety is bringing on these symptoms, as I experienced the symptoms first. Also, I often have no anxiety when experiencing the "attacks.'
I have seen my general practitioner twice now. He gave me a z-pack the first time, thinking maybe it was some slight infection in my neck causing the pain. i also was prescribed a butalbital-tylenol-caffeine medication (Fioricet) for possible migraines. It didn't do anything to help. Second time, he gave my cipro particularly for the small node, which I am about to finish up.
I have had blood tests-- CBC, sed rate, thyroid, liver, and kidney. My sed rate is 14, which is a bit high for a 25 year-old but still not exactly out-of-range. My thyroid, liver, and kidney levels are excellent. I actually did not receive word on my CBC, as my letter didn't include those values.. I just realized. I guess I assumed since it didn't tell me anything about abnormal results, I assumed they were fine. But, I think I will call tomorrow to ask about the CBC.
I am going to see my Dr. in a little less than 2 weeks to get re-evaluated, and then he's going to set me up with a ct scan.
My fear is that my symptoms are related to something ( ie a tumor) pressing up against nerves... specifically a cranial nerve and brachial nerve. I guess I could also just have some kind of strained neck injury... It's just so strange that these things happen kind of as a cluster, and I feel quite bad, but then it resolves and I feel about 95% until the next "attack."
I guess I will find out in a few weeks if anything shows up on a ct. If not, I guess fibromyalgia or chronic fatigue syndrome is something to think about... or Lyme Disease...
Anyone have any similar experiences??? or know of what could be causing my mystery illness? I hate it so much and wish it would go away!!
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