Discussions By Condition: I cannot get a diagnosis.

Pain: hips, top of pelvis, waist, outer thighs, etc

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: jsmile266
  • November 16, 2009
  • 06:49 PM

I have ongoing pain and achiness in my hips, and all around my pelvis. The following areas hurt to touch, my waist, sides of my breasts, bottom of my rib cage, sacrol iliac joints, outsides of knees and simply running your fingers down my thighs. Initially tested for rheumotoid with some elevated results but then did a "richie block" which all came back negative and Rhematoid Doc did not want to see me.
Now 6 months later and worse. Always tired, can't squat without a lot of pain, it hurts to sleep on my sides. Doctor is sending me to a pain clinic which has a 3 month wait. I want a DIAGNOSIS not pain control to mask the symptoms. I currently take Vicodin daily just to get by. Any ideas?? Who do you all think I should see for a specialist? My doc will send me where I want but I think he is at a loss.

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5 Replies:

  • I have ongoing pain and achiness in my hips, and all around my pelvis. The following areas hurt to touch, my waist, sides of my breasts, bottom of my rib cage, sacrol iliac joints, outsides of knees and simply running your fingers down my thighs. Initially tested for rheumotoid with some elevated results but then did a "richie block" which all came back negative and Rhematoid Doc did not want to see me. Now 6 months later and worse. Always tired, can't squat without a lot of pain, it hurts to sleep on my sides. Doctor is sending me to a pain clinic which has a 3 month wait. I want a DIAGNOSIS not pain control to mask the symptoms. I currently take Vicodin daily just to get by. Any ideas?? Who do you all think I should see for a specialist? My doc will send me where I want but I think he is at a loss. try a chiropractor. something in your spine could be off or out of place...I've had the same type of thing and if I get my lower back cracked it feels a 1000% better.
    Missa995 38 Replies
    • November 17, 2009
    • 10:40 PM
    • 0
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  • Look up the symptoms of fibromyalgia.
    Anonymous 42,789 Replies
    • November 19, 2009
    • 00:01 AM
    • 0
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  • Could be shingles like without the rash--something like that in the herpes family. You can get a blood test to rule out herpes 2 specific, but the shingles blood test is a waste of money.
    Monsterlove 2,921 Replies
    • November 19, 2009
    • 02:55 AM
    • 0
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  • I have ongoing pain and achiness in my hips, and all around my pelvis. The following areas hurt to touch, my waist, sides of my breasts, bottom of my rib cage, sacrol iliac joints, outsides of knees and simply running your fingers down my thighs. Initially tested for rheumotoid with some elevated results but then did a "richie block" which all came back negative and Rhematoid Doc did not want to see me. Now 6 months later and worse. Always tired, can't squat without a lot of pain, it hurts to sleep on my sides. Doctor is sending me to a pain clinic which has a 3 month wait. I want a DIAGNOSIS not pain control to mask the symptoms. I currently take Vicodin daily just to get by. Any ideas?? Who do you all think I should see for a specialist? My doc will send me where I want but I think he is at a loss.I have been dealing with unbearable pain in the hips, lower back, and thighs for almost 3 years now. Have your B12 levels checked (and buy the book "Could It Be B12"), and your thyroid checked. My great grandmother died of Pernicious Anemia (B12 deficiency) and I now have it along with hyperthyroidism. I also have fibromyalgia. I am now taking injections of B12 and will be having my thyroid removed soon. All of these thing have pain as symptoms. I do have fairly good days and some really horrendous days with pain, but I am trying to eliminate the diseases (or, at least, slow the progression) rather than just treat the symptoms.
    Anonymous 42,789 Replies Flag this Response
  • I have two ideas. First let me say that like you I have had horrible pain in my legs and thighs that has not been treated with pain medications coupled with prescription strength anti-inflammatories, and neuralgesics and other stuff as well. Then out of the blue I read on a discussion board about the impact of a deficiency in vitamin D on pain. So last week I asked my doctor to check my vitamin D level and low and behold it is not just low but incredibly low. The symptoms of low vitamin D are pain in the legs, thighs, lower back, fatigue, etc. You could ask your doctor to check this. I am now on a huge dose like 50,000 units to bring me up to a normal level which may take several weeks. My doctor is hopeful this may help my pain level dramatically. I have had pain for many years. (I may be disgusted if I find out it was a vitamin deficiency all this time) Last year I was hospitalized with pain that had escalated out of control and was worse than what you were describing because I had swollen as well but the pain you talk about in your skin and laying your sides I had and it was from cellulitis which is an infection that starts deep in your cells. It moves inside out. You could just check it out. It is probably unrelated to you. Good Luck ! I hope you get your Vitamin D level checked.
    Anonymous 42,789 Replies Flag this Response
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