Discussions By Condition: Skin conditions

Leukocytoclastic vasculitis - Does it every go away?

Posted In: Skin conditions 17 Replies
  • Posted By: cbonner
  • May 8, 2009
  • 07:00 PM

I am a 32 year old male.
Recently I was diagnosed with "Leukocytoclastic vasculitis".

As I have been reading, 50% of the patients diagnosed with this never find the cause of it. Currently my Dermatologists thinks it might have been a reaction to my old blood pressure medication - Amplodipine/Benzapryl.

I have been suffering this for about 5 weeks.
It started out with the usual red spots/rash that are common with Leukocytoclastic vasculitis. After a few days I ended up getting the extremely painful lesions on the feet and ankles. (Any google image search for Purpura lesions will show you what I am talking about).

The Dermatologist sent me to see the Hemotologist. After about two weeks they started me on 150mg of Lovenox (blood thinner). Within three days the lesions started to dry up and heal.
The hemotologist also thinks that I have a blood clotting disorder called "Antiphosphlipid Antibody Syndrome". So they now also have me on 10mg/day of Warfarin.

It has been weeks now, and while my lesions are healing, the red rash continues to fade, and come back. Almost on a daily/bi-daily basis.
Is there anyone else that has had this sort of thing happen, and have it go away completely or at least for a good length of time?
I am getting a little beat down by the fact that some days its almost all gone, and I wake up the next morning and my whole body is covered again in the red rash.

I also will see a Rheumatologist next week, just because both the Hemo, and the Derma think they might have an opinion as well.

Medical bills are starting to pile up, and it seems like no one really knows if this will ever go away.

Thanks!

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17 Replies:

  • I am a 32 year old male.Recently I was diagnosed with "Leukocytoclastic vasculitis".As I have been reading, 50% of the patients diagnosed with this never find the cause of it. Currently my Dermatologists thinks it might have been a reaction to my old blood pressure medication - Amplodipine/Benzapryl.I have been suffering this for about 5 weeks.It started out with the usual red spots/rash that are common with Leukocytoclastic vasculitis. After a few days I ended up getting the extremely painful lesions on the feet and ankles. (Any google image search for Purpura lesions will show you what I am talking about).The Dermatologist sent me to see the Hemotologist. After about two weeks they started me on 150mg of Lovenox (blood thinner). Within three days the lesions started to dry up and heal.The hemotologist also thinks that I have a blood clotting disorder called "Antiphosphlipid Antibody Syndrome". So they now also have me on 10mg/day of Warfarin. It has been weeks now, and while my lesions are healing, the red rash continues to fade, and come back. Almost on a daily/bi-daily basis.Is there anyone else that has had this sort of thing happen, and have it go away completely or at least for a good length of time?I am getting a little beat down by the fact that some days its almost all gone, and I wake up the next morning and my whole body is covered again in the red rash.I also will see a Rheumatologist next week, just because both the Hemo, and the Derma think they might have an opinion as well.Medical bills are starting to pile up, and it seems like no one really knows if this will ever go away.Thanks!Hi, heres my experience with leukocytoclastic vasculitis.......I was diagnosed when I was 15. symptoms started when I was 13. The Dr.s think it started when I was sick with strep and pnuemonia at the same time. Rash started shortly after. The worse symptoms happened when I was 17. It would come and go. get better and worse at times. I am now 37, I still have my battles with it. I usually have to tell drs what I have, symptoms, medicines. For me it hasnt gone away. Although I know better what makes it worse or what can cause a flare up. Hope things get better for you.
    Anonymous 42,789 Replies Flag this Response
  • Hi, heres my experience with leukocytoclastic vasculitis.......I was diagnosed when I was 15. symptoms started when I was 13. The Dr.s think it started when I was sick with strep and pnuemonia at the same time. Rash started shortly after. The worse symptoms happened when I was 17. It would come and go. get better and worse at times. I am now 37, I still have my battles with it. I usually have to tell drs what I have, symptoms, medicines. For me it hasnt gone away. Although I know better what makes it worse or what can cause a flare up. Hope things get better for you.I honestly can't imagine what it must be like to have it for 20 years now. I have it for four years and it messes with my life constantly. There are sometimes that I can't even walk or use my hands and it's impossible to manage your life with it. I tried medication and have been tested for basically all diseases that there is out there. Truly, I spent literally two years going in and out of the hospital to take blood exams and even did three biopsies. The latter accused it every time and the former showed as if I was perfectly fine. Every time.They never found a cause and I'm starting to give up because every doctor says that this is a disease that sometimes you just can't find the cure. The "good" thing is, like you, I know what i can do to have a manifestation or crisis, as I like to call it. And the other thing that i'm "grateful" is that I only had tissue damage once -which scared me a lot because at the time I didn't know what it was- and it never happened again. I still have a lot of round shape scars in my ankles. Anyway, good luck with it, and no, I don't think it goes away,
    Anonymous 42,789 Replies
    • November 29, 2010
    • 10:52 AM
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  • I too suffer with this disease, mine started back in September with what I thought were bites around my ankles, they went into major open sores that were very painful. I was diagnosed with Vasculitis, they eventually healed up after many weeks leaving horrible scars. they are very dark and get darker as the day goes on depending on how much activity I do for the day. Recently I had a upper respiratory infection and I am now covered with them all over my arms legs and belly. i think I have so much anxiety because I'm not sure what they are going to do, meaning are they going to blister and be open sores again? I can almost live with the rash if it doesn't do any more than that. Noone has any answers. I go to a Rheumatologist in NYC who has put me on prednisone, started pretty high and am now down to 6mg. I feel fine just look horrible. I hope your doing better. Any suggestions? I see you know what causes your flare ups could you fill me in. I know that sitting for long periods of time causes my feet to break out.
    Anonymous 42,789 Replies
    • December 17, 2010
    • 11:11 AM
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  • I too suffer with this disease, mine started back in September with what I thought were bites around my ankles, they went into major open sores that were very painful. I was diagnosed with Vasculitis, they eventually healed up after many weeks leaving horrible scars. they are very dark and get darker as the day goes on depending on how much activity I do for the day. Recently I had a upper respiratory infection and I am now covered with them all over my arms legs and belly. i think I have so much anxiety because I'm not sure what they are going to do, meaning are they going to blister and be open sores again? I can almost live with the rash if it doesn't do any more than that. Noone has any answers. I go to a Rheumatologist in NYC who has put me on prednisone, started pretty high and am now down to 6mg. I feel fine just look horrible. I hope your doing better. Any suggestions? I see you know what causes your flare ups could you fill me in. I know that sitting for long periods of time causes my feet to break out.I too was diagnosed with this disease. That was in Oct. of 2009. At first the doctor thought I had chicken pox (which I had as a child). When I didn't respond to the antivirals they put me on, and I continued to break out in spots for weeks, I was sent to a dermatologist for a biopsy - which confirmed a diagnosis of Leukocytoclastic Vasculitis. Funny thing was while I was waiting for the biopsy results, I went to a specialist who looked at them and after hearing my story knew right away what they were; it was nice to have the biopsy for confirmation. I had recurrent issues with the spots for almost 6 months, and they were over most of my body (stomach, legs, butt, upper arms) they were both intolerably itchy and painful. I've been fortunate that since they have gone away, I've not had another flare up that severe. I can always tell when they are coming on, I'll get a few spots and I'll try and figure out if there is something going on that perhaps triggered the flare up and see if I can alter my lifestyle a bit to decrease my stress etc. So far it's working for me and as far as I know I've not had any internal issues related to the diagnosis. Best of luck to all of you as well
    Anonymous 42,789 Replies Flag this Response
  • I too suffer with this disease, mine started back in September with what I thought were bites around my ankles, they went into major open sores that were very painful. I was diagnosed with Vasculitis, they eventually healed up after many weeks leaving horrible scars. they are very dark and get darker as the day goes on depending on how much activity I do for the day. Recently I had a upper respiratory infection and I am now covered with them all over my arms legs and belly. i think I have so much anxiety because I'm not sure what they are going to do, meaning are they going to blister and be open sores again? I can almost live with the rash if it doesn't do any more than that. Noone has any answers. I go to a Rheumatologist in NYC who has put me on prednisone, started pretty high and am now down to 6mg. I feel fine just look horrible. I hope your doing better. Any suggestions? I see you know what causes your flare ups could you fill me in. I know that sitting for long periods of time causes my feet to break out.I've been dealing with this for about 4 years now. I am currently being treated with Plaquenil, Myfortic, and Dapsone. I have seen a lot of success when it comes to the decrease in flares and decrease in joint pain. I am not in remission, but life is a lot easier. The Myfortic comes with its own side effects, but I am trying to work through them.
    Anonymous 42,789 Replies Flag this Response
  • Ok, so I had a mass of these little red spots all over my upper torso, back and arms in 2001 and when they biopsied them they said it was "Most Likely Luekocytoclastic Vasculitis that has reached a more chronic stage" They sent me to a derm who hopped me up on Steroids for 2 months and things calmed down and since then I have random "spots" that show up from time to time. I now get one here or there, however these do not do anything more than show up they may raise the skin or not they may dry out and crack and peal or they may not but they do however leave a dark bruise looking scar that last for months, they do not hurt or itch or bleed like many of you describe. Now in 2005, I also went through a 2 month stint with discoid type rashes that roamed my body and came and went, violent vomiting, crippling feelings (joints hurting horrifically causing me to cripple up and barely move), skin felt on fire (to the point that all things that touched me felt like they were burning me) and was eventually hospitalized. After a week in the hospital and a million doctors and test most all the rash was gone and I felt pretty good. I was told that I was a mystery and that from what they could see and tell for all intents and purposes I was a perfectly health woman. Anyone able to relate or got any insight to this in comparison to having what we are discussing. I have also been told there is no treatment for thr Leukocytoclastic Vasculitis but you all discuss treatment option???
    Anonymous 42,789 Replies Flag this Response
  • I am a 64 year old woman who happened to get this the beginning of this year and have had on and off bouts of it for 8 months now. I was on a small dose of predinsone which didn't do very much so I decided to live with it and see if it would go away. In the beginning it didn't itch....only red spots. If I would walk, it would get itchy. I did get a very bad bout of it the end of June/beginning of July - went to a second dermatologist for 2nd opinion (had biopsy done with the first Dr and was diagnosed with LV) - told him I would prefer not to go on steroids so I've been on high doses of Ibuprofen and a medicine similar to Cochocine (normally used for gout flare-ups) - my legs which were the worst have cleared up except for some spots which you identified earlier - round dark and they last forever. I wondered if anyone has tried to call one of the larger groups i.e. John Hopkins or one of the Mayo Clinics or Sloan Kettering.?? I do know that if I have a glass of wine or any kind of alcohol at all it flares up. I'm off all of my medicines as the doctors think it could be one of them causing it i.e. Crestor, Nexium (I'm not sure of this yet). Wondering if foods are causing it to flare - would like other ideas if any foods are bothering any of you? Written 8/13/2011 - Very frustrating situation.
    Anonymous 42,789 Replies
    • August 13, 2011
    • 09:13 PM
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  • I am 59 and this recently occurred to me from both feet up both thighs. I thought I was going to die because it was so ugly and happened very quickly. I had had a bad sore throat a few weeks before this came out. But, I don't think anybody really knows what brings this on with the exception of a couple explanations. One was a bad reaction from taking several different antibiotics from when I was sick with a sore throat as wellas bronchitis mixed with lots of stress. So, who knows. I honestly believe stress helped to intensify this. I was in the hospital for several days treated with intavenous steroids along with a strong cocktail of antibiotics. I had a severe huge ulcer develop under my foot in which I am still being treated. My legs are terribly scarred and so far,I think this is on its' way out. My immune system was very low and stress was through the roof. I just feel this played a huge part in this. I can only pray this does not occur again. My scars are sickening and although most have cleared; some areas are really ugly..I can only confirm that lots of steroids helped tremendously. I guess I will know soon enough if this pops up again. wishing all of you the very best. Stay away from the stress in your life.Take care and God Bless gnd god Bless
    Anonymous 42,789 Replies
    • December 13, 2011
    • 07:04 AM
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  • I too, was diagnosed about 4 years ago. It came on fast and furious and painful (feet, legs, and kept creeping upward to belly and arms). It took about 6 months and various doctors to come to the leukosytoclastic vasculitis diagnosis. Second medication that i tried did the trick. I've been on Dapsone for 4 years. As long as i remember to take it every day, there is no flare ups. Miss a day or two, and it starts to show up. The hope for me is to wean myself off the Dapsone by shifting to lower dosages. But the other option is to just recognize that the Dapsone controls it and i stay on it.
    Marie0000 1 Replies
    • February 18, 2012
    • 01:06 PM
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  • I've had this for about 8 years, when i first broke out into this terrible rash all over my legs, ankles, and feet, i wen't to my then Primary care Dr. at Kaiser and they couldn't figure out what it was. I became frustrated and contacted a cousin in Mexico that is a Doctor and after faxing him all of my lab test results he thought it could be Wegner's but he contacted a friend of his that was a Rheumatalogist and they perscribed methotrexate and Prednisone, I took it and it went away until Sept. of 2010, it came back after i had a very bad cold and strep- throat. I went to my new primary and he reffered me to a Rheumatalogist who sent me to go get lab tests done and to get a Biopsy done that didn't heal for about eight months because of the high dose of prednisone he had me on which never really helped me it just made me gain weight like crazy, I started doing research and eventually decided to come off of the pills and i found a medication called Digestaqure it's all natural and it did help me, I don't think this goes away completely, I've noticed, dairy, mushrooms, shrimp, red meats, snow pea pods,cabbage, and some other foods cause flare-ups, but the main thing is maintaining your stress levels low because that's the main factor in my flare-ups, I've started walking and yoga and it seems to help. I'm also taking Rescue Remedy for natural stress relief. I've been ok for about a month now. Good luck to all of you out there with this problem.
    lbubanja5971 1 Replies Flag this Response
  • Hello. I was SO glad to find this forum and these messages. I had been told for over 5 years now that all the symptions that I have did not make any sense and doctors would just look at me funny when I would describe. Especially the food connection. I do have one doctor now that at least is working along with me to help try to figure it out.I can confirm, yes certain foods effect you, yes drinking strong drink effects you, stress effects you, sitting effects you. Whats really so bad about all this is no doctor has a totally solution. Its sad in the modern world we have today that something is not available for this.My main problem right not is the 2 skin breaks I have. One on each ankle. Been there for months Any suggests o getting rid of them and proper way to dress would greatly be appreciated. I was told by one doctor that Richard Nixon had this when he was president. They took out veins in one part of his body and replaced the veins in his lower legs where he was having the trouble. This corrected his problem. Something to do with the blood not traveling back to the heart once it traveled to the lower legs. This makes sense, because if i dont get my legs up above my heart every 4 hours or so, i have great pain. I am eager to hear from you all.Larry
    lbawcom 1 Replies Flag this Response
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  • I was diagnosed with Leukocytoclastic Vasculitis a few years ago. It first started with some spots on my feet after a head cold and went away after a few days. I had another flare up about 6 months later, at which point the flares started to become more and more frequent, first starting on my feet then spreading to my arms, legs, and lower torso. After many trips to my doctor, a dermatologist, a rheumatologist, a nephrologist, a few biopsies, a trip to the ER, a couple CT scans and X-rays, and put through grand rounds (15-20 dermatologists took a look at me and discussed various options), I now have it somewhat contained. The specialists first put me on prednisone, which didn't seem to do anything. They then put me on colchicine (Colcrys), which seems to contain the flares. Pretty much now I always have some spots on my feet, old spots fade away in a day or two and new spots show up and so on. Luckily all this testing has shown that nothing has affected my internal organs and it is solely in the skin. So now, I continue to take the colchicine to contain the flares while getting regular checkups to ensure it hasn't spread to anything else internally. I am still told that the cause is unknown and no one knows when, if ever this will go away permanently. The doctors are hoping eventually that the colchicine may eventually push it away forever
    Ballzmage 1 Replies
    • August 22, 2012
    • 01:01 PM
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  • Does it ever go away... I doubt it. I’m a 32 your old male. In 2011 I had a chest infection that lasted 4 months. During all of 2011 I had foot pain issues caused by attending karate lessons. Mum has the auto-immune illness known as Lupus (the internal type that affects your organs). Here is my account of what I've experienced since being diagnosed with Leukocytoclastic Vasculitis. 28th April 2012 - red spots appeared on right leg around the ankle area, only a few 10 - 20, thought it to be nothing more than a reaction to food, environment, pets etc.. dismissed it, it'll go away. 29th April 2012 - by the time I woke up the next morning (9ish) I noticed that the number of red spots increased but again dismissed it, if it's not itchy then how bad could it be? By 3pm in the afternoon the spots were super itchy, showed my partner and mum during afternoon tea we were all concerned and the red spots had now increased all the way up to my knees and starting to appear on my left leg. After my night time shower around 8pm my legs we still super itchy and the rash increased on my left leg I decided to put some antiseptic cream on to try and deal with it, till I could get to the doctors the next day. The cream ended up burning my skin within minutes and I had to get back in the shower to try and wash it off. A little later I tried going to bed but the weight of the bed sheet (yes just the bed sheet no blankets coz it was a warm night and no pants) was to "heavy" and was irritating my legs which now felt were on fire and stinging like crazy. At this point my partner knowing that I have a very high pain threshold seeing my crying from the pain I was in and seeing I couldn't even stand to have a bed sheet touch my legs sent me to the hospital emergency dept. At Emergency, since it was an unknown rash and fast spreading they admitted me straight away to an isolation room, then a barrage of questions and needles etc.. followed and finally around 4am they sent me home because my bloods we clear as far as hey were concerned. 30th April 2012 - The red spots were now higher around mid thigh on both legs and still super painful. made doctors appointment for next day. 1st May 2012 - The spots now covered all of my legs, buttocks and groin but nothing on my genitals thank god. The doc prescribe a cream, which ended up causing a burning sensation on top of the pain I was already in (unfortunately I cant remember its name) so I stopped taking it and made another appointment for later in the week. 3rd May 2012 - the spots by now were developing into sores around my ankles and the doc called it a form of necrosis and she referred me to a dermatologist straight away. took a bit of calling but she eventually found one that would see me the following week instead of the 6 month wait time a lot of them had and I was to continue with the steroids until I saw him. I saw the dermo around the 9\10th of May and by now the sores around my ankles had developed into huge pits of decaying skins and more were forming on the shins. The whole time I was in excrutiating pain and it near killed me to wear shoes and socks and long pants to for work, by then I had even resorted to changing my black lace ups to loose fitting black slips for work (shoes) as I couldn't stand to have anything touching the gooey sores. The dermo did a biopsy on the first day and even though he numbed the area when he stuck the knife in to cut out some flesh, I nearly screamed and I bucked my legs so badly I nearly kicked the poor guy while he was leaning over me. I was told to take more steroids up to 75mg per day and use a cream called Bactroban and another cream called Diprosone. The Bactroban was to be used on all the red spots to prevent them from turning into sores and the Diprosone was to be used on all the gooey sores. I was to come back in 2 weeks to see what the results were from the biopsy etc... and in the mean time to get a full set of bloods and urine test to see if it had gotten into my kidneys. 23rd May 2012 (during that week) - I saw the dermo again and there was no change to my spots or sores. He confirmed the biopsy results were Leukocytoclastic Vasculitis and that these creams should be working. So we went right through my daily diet, do I smoke - no, do I drink - couple of beers\wine on the weekend or if out for a meal, do I take any drugs - no, are there any other medications or vitamin supplements of any sort.... and there it was... a weightloss management product called Herba-Life, which by this time I had been using for about 8 weeks. I was also told the results of my blood test which was all clean and nothing abnormal although I now had traces of blood in my urine. So I was to stop taking it immediately and continue with all the creams and steroids and again come back in 2 weeks. over the next 2 weeks the red spots started decreasing, the gooey welting sores over my lower legs started healing, the pain my legs were in started decreasing, Although now I had noticed that my ankles were swelling up to a massive size by the end of the night before laying down to bed, but when I wake up in the morning they were normal size again. (I spend 70% of my day from wake up to sleep on my feet standing). 6th June 2012 - so the red spots were still present but well on their way to going away permanently. the sores were dry with only 1 huge one remaining gooey, but now the skins had dried out it was itchy. and my ankles still swell to a huge size. The dermo was extremely happy with my progress and told me to start using a moisturizer cream on the dry itchy sores and to elevate my feet as much as possible even if that meant sitting at my desk at work in a reclined position with my feet up on my desk. My steroids were now decreased and I had to now take 5 days of 50mg, 5 days of 25mg, 5 days of 12.5mg (1/2 tablet) then 5 days of 6mg (1/4 tablet) although there were no changes to the creams. keep using the Bactroban on all red spots and the Diprosone on the 1 remaining sore. And again I had to do another urine test to monitor the blood situation. The dermo called me a few days later and gave me the news that there was still traces and he would check again at my next appointment as I would have to have another test a few days before. 6th July 2012 - When I saw the dermo on this day and all the sores had cleared up the red spots were gone and the dermo finally said it, something which still haunts me. If we didn't get it all cleared up like it had the alternative would likely have ended up being having to amputate your legs, your just lucky you got on it as quick as you did. The blood was apparently clear from my urine by this time and the dermo was happy. So from here, just continue with your creams and come back to see me if you need to but you don't need to come back to see me for regular visits. Now it’s important to say that between June & July my red spots were gone but then they came back and went and came back a number of times and it was very scary and extremely depressing. I was lucky enough to have found the major catalyst of my problems but I suspect that with the previous foot trouble it was only a matter of time until I suffered some sort of debilitating event like Leukocytoclastic Vasculitis. Now a few months on my long term side effects are: sore feet after a couple hours of walking around extremely sore after 5mins on roller blades or ice skates scares & discoloured skin all over my legs poor circulation and I get pins & needles all the time feel cold a lot ankles still puff up to double the size by bedtime each day no further break out of red spots so far In early September, I went to apply for a Mining related company and a full physical & medical was required for the application and it cam back that I still have urine in my blood and my GP & I are working on resolving this. **NOTE - this is my account of my specific experience but I thought listing my account in detail and listing the meds that worked for me may help others to overcome their issues** Good luck to anyone that reads this post I sincerely wish you well.
    darkrayne 1 Replies
    • September 22, 2012
    • 04:08 PM
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  • Hi. I thought I would add my story to this. I am a 43 year old male and apart from being overweight, previously in good health and not had much need of doctor or hospital. About 4 weeks ago my legs started to develop sores and I sought medical attention. I was fortunate to see an NHS doctor who took time to ask questions (I have had no side effects, apart from the excruciating arthritic pains which developed a week or so after the first signs). With the aid of Wikipedia in the first instance and backed by other medical sites, I was diagnosed with HSP. A biopsy has since indicated that it is Leukocytoclastic vasculitis. Further monitoring (blood tests almost daily at first, have not shown any internal issues). I have been prescribed 40mg of steroids daily as well as something to counteract the calcium eroding effect of the steroids. The main blistering and sores appear to be going but the large blisters on my ankles have burst and the dead skin has come off leaving raw flesh underneath which means I am unable to wear shoes. Nurses have dressed my wounds as though I am a burns victim and I am able to wear hard soled, open back slippers. Throughout, I am considering myself fortunate in some ways that I do not have any of the internal issues and the sores do not itch. I have been told that it does not reoccur in about half the cases and j may never know the underlying cause. I am off to Rheumatology tomorrow and dermatology in a couple of days. I may post further update after this.
    UKRedWing88 1 Replies Flag this Response
  • Hello lovelies! I'm a 24 year old female from Australia with a Turkish background. I've just read/skimmed through your thread...After reading a large number of these forums on numerous websites I suddenly feel a little lonely.Surely I can't be the only person in the world to have gotten over my leukocytoclastic vasculitis?And yes for your information, it does go away you fuddy duddy.And I'm sure I'm not the only person to recover either, after a quick peek at medical records.Here's a quick history lesson on moi:First noticed red spots at age ten on my ankles.Slowly red spots increased in number and spread further to my feet and above my ankles. No pain at this stage.Painful lesions make appearance at age 12. Dermatologist attempted to treat me for a year, prescribed millions of ointments, pills performed many tests. All treatment was utterly futile. Completely lost faith in medicine. Which turned out to be a glorious advantage later and will be forever more.Age 13: Pain. Pain. Pain. Much more spots. Many more lesions. Lesions getting infected. Constant insufferable pain.At age 14: my mum was fed up with my pitiful condition, ie me constantly writhing in pain, so she came up with the brilliant idea of taking me to the children's hospital. Admitted as rheumatology outpatient. Bleh.Spent the next year desperately trying to find a cure for leukocytoclastic vasculitis fueled by my hatred for being treated as a pill bottle.Eventually thanks to the wonderful internet, my classic I must know it all ness and ability to retrieve information from anywhere on the web I finally found a cure.And the cure is Vitamin C!And if at this stage of reading my reply to this thread you have now lost interest because how could an insignificant, lamely common, itty bitty essential human nutrient cure my poor little self from my horrible mean vasculitis?! If that's what you're thinking then I bid you adieu and good luck probably never getting better and accumulating more and more scars and continue existing in a sea of God awful pain.To those of you clever cherubs who have perfectly functioning pineal glands: Vitamin c is the most wonderfully versatile nutrient in the world. Some of you may already cleverly take it when your nose is unleashing a fountain of boogers and find it to be quite helpful.At age 15 when I set out to experiment with this clinical nutrition type method, I didn't go to the vitamin supplement section of my local pharmacy or super market because then what was the point of not actually taking any meds? I told my dad to buy me a crate of organic mandarins. He bought me a crate a week each containing about 10 kilograms of mandarins. I would gobble these up easily because they were so curiously delectable to me approximately at a rate of 5 mandarins at a time about 5 times a day. For several weeks I did this while I was still a 'rheumatology outpatient' at the hospital and I got better super duper quickly from that point onwards . Maybe even a little too quickly for a girl who had had leukocytoclastic vasculitis symptoms for over five years and was only supposed to be taking some horrid thing called plaquenil . Point is, I was completely cured by age 15. In addition, the scars remaining from the many lesions I had had also completely healed.As I've mentioned before I am 24 years old and thank God I have not seen a single red dot on my ankles or feet for almost ten years and I hope that my response has answered the question that is the title of this thread. Do not lose hope munchkins and don't listen to everything your well meaning but in the end only human doctor tells you to do or take. That there is your body and you have the valuable intrinsic motivation to treat it with better care than anyone else.If you would like to contact me for further clarification or proof do let me know.Warm regards,Derya O
    Anonymous 42,789 Replies
    • September 26, 2013
    • 02:57 PM
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  • Hello lovelies! I'm a 24 year old female from Australia with a Turkish background. I've just read/skimmed through your thread...After reading a large number of these forums on numerous websites I suddenly feel a little lonely.Surely I can't be the only person in the world to have gotten over my leukocytoclastic vasculitis?And yes for your information, it does go away you fuddy duddy.And I'm sure I'm not the only person to recover either, after a quick peek at medical records.Here's a quick history lesson on moi:First noticed red spots at age ten on my ankles.Slowly red spots increased in number and spread further to my feet and above my ankles. No pain at this stage.Painful lesions make appearance at age 12. Dermatologist attempted to treat me for a year, prescribed millions of ointments, pills performed many tests. All treatment was utterly futile. Completely lost faith in medicine. Which turned out to be a glorious advantage later and will be forever more.Age 13: Pain. Pain. Pain. Much more spots. Many more lesions. Lesions getting infected. Constant insufferable pain.At age 14: my mum was fed up with my pitiful condition, ie me constantly writhing in pain, so she came up with the brilliant idea of taking me to the children's hospital. Admitted as rheumatology outpatient. Bleh.Spent the next year desperately trying to find a cure for leukocytoclastic vasculitis fueled by my hatred for being treated as a pill bottle.Eventually thanks to the wonderful internet, my classic I must know it all ness and ability to retrieve information from anywhere on the web I finally found a cure.And the cure is Vitamin C!And if at this stage of reading my reply to this thread you have now lost interest because how could an insignificant, lamely common, itty bitty essential human nutrient cure my poor little self from my horrible mean vasculitis?! If that's what you're thinking then I bid you adieu and good luck probably never getting better and accumulating more and more scars and continue existing in a sea of God awful pain.To those of you clever cherubs who have perfectly functioning pineal glands: Vitamin c is the most wonderfully versatile nutrient in the world. Some of you may already cleverly take it when your nose is unleashing a fountain of boogers and find it to be quite helpful.At age 15 when I set out to experiment with this clinical nutrition type method, I didn't go to the vitamin supplement section of my local pharmacy or super market because then what was the point of not actually taking any meds? I told my dad to buy me a crate of organic mandarins. He bought me a crate a week each containing about 10 kilograms of mandarins. I would gobble these up easily because they were so curiously delectable to me approximately at a rate of 5 mandarins at a time about 5 times a day. For several weeks I did this while I was still a 'rheumatology outpatient' at the hospital and I got better super duper quickly from that point onwards . Maybe even a little too quickly for a girl who had had leukocytoclastic vasculitis symptoms for over five years and was only supposed to be taking some horrid thing called plaquenil . Point is, I was completely cured by age 15. In addition, the scars remaining from the many lesions I had had also almost completely healed.As I've mentioned before I am 24 years old and thank God I have not seen a single red dot on my ankles or feet for almost ten years and I hope that my response has answered the question that is the title of this thread. Do not lose hope munchkins and don't listen to everything your well meaning but in the end only human doctor tells you to do or take. That there is your body and you have the valuable intrinsic motivation to treat it with better care than anyone else.If you would like to contact me for further clarification or proof do let me know.Warm regards,Derya O
    Anonymous 42,789 Replies
    • September 26, 2013
    • 09:30 PM
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  • Hi, I cannot explain how good I feel to hear others with the same problem talk about their experiences, I feel I am not alone. I am a 30 yr old male and red spots started to break out about 3 yrs ago. I thought it was an allergic reaction at first, it then started coming back on and off, the spots usually clear after 1 wk. I went to the dermatologist after my 2nd break out, the Dr. did a biopsy and confirmed it was Leukocytoclastic Vasculitis. I get it primarily on my feet, ankles and legs
    Anonymous 1 Replies Flag this Response
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