Discussions By Condition: I cannot get a diagnosis.

Abdominal pain, bloating, nausea, muscle twitches, disorientation

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: sterin
  • November 26, 2006
  • 04:08 AM

For the last 7 months I've had a mystery illness that has yet to be diagnosed. It began with extreme abdominal bloating and nausea that led into disorientation and chest pains. I could not read, watch TV without getting nauseous. Also, it feels like there is something underneath my right rib cage in the upper right quadrant area. I also have had more gas than normal and sometimes have to lie down and change positions to pass gas.

The disorientation has mostly gone away and the chest pains have completely gone away. Also for the last 7 months I have been experiencing strange muscle twitches that usually take the form of the area right next to my knee or my hamstring and other locations. Unlike normal muscle twitches, these last for 1 to 48 hours in the same exact location.

I usually have a bowel movement every morning but have notice that some days I do not and I begin to feel horrible towards the evening (abdominal bloating and pain that worsens with movement) and the next day or so. I also have noticed that whenever I drink beer or Orange juice, I feel horrible. I have also had some set backs after eating fried chinese food, buttery pasta, and ice cream.

Currently I still have the feeling that something is in my URQ, feel bloated, have daily bouts with nausea, and still experience muscle twitches.

I have had the following tests: 3 stool tests, urine, abdominal X-ray, abdominal CT scan, MRI of the brain, numerous blood tests, barium swallow, ultrasound, colonoscopy, and recently had gastric emptying test and upper endoscopy (still waiting for biopsy results but otherwise normal). All test have come back normal with the exception of a high bacteria count from a breath test (4 months ago - took xifaxan for 10 days and did not notice a change - repeated treatment a month later - no help). Giardia - negative. Blood test earlier this summer showed an elevated hemoglobin, hemocrit count and a slightly elevated billirubin which my doctors were not concerned with.

If you have any advice or help I would greatly appreciate it. The past 7 months have been horrible and I can't wait to get through this thing.

Thanks for reading.

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15 Replies:

  • Could be gastritis caused by Pylori bacteria.
    Anonymous 42,789 Replies
    • December 15, 2006
    • 10:54 PM
    • 0
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  • H. Pylori was negative and the recent endoscopy I had was normal so gastritis was ruled out. My doc just gave my a prescription for Dicyclomine (antispasmotic) to try for three weeks. Thanks for replying.
    sterin 1 Replies
    • December 16, 2006
    • 00:37 AM
    • 0
    Flag this Response
  • You sound very much like me and I have also not been able to get a diagnosis. Still, I've been researching it. Have the doctors ruled out autoimmune disorders? Women are more likely to get autoimmune disorders. Are there any other things wrong with you that you might not have connected with this problem? Are you on any medications? E.g. prilosec (has side effects that include muscle oddities) Also, there is Celiac Disease and Hepatitis.
    shemeon 7 Replies
    • December 17, 2006
    • 04:28 AM
    • 0
    Flag this Response
  • I too have been in the same condition as you for the past two and a half years.I have had many tests too and they all come back normal. I know what I am going through is not normal.I am tired of feeling sick to my stomach all the time and nobody really understands why.at this point it seems that no matter what I eat it gives forceful gas.Not smell just lots of air, and frequent stools of clay color.
    Anonymous 42,789 Replies Flag this Response
  • I too have been in the same condition as you for the past two and a half years.I have had many tests too and they all come back normal. I know what I am going through is not normal.I am tired of feeling sick to my stomach all the time and nobody really understands why.at this point it seems that no matter what I eat it gives forceful gas.Not smell just lots of air, and frequent stools of clay color.Definately weird, as I have the exact same symptoms as the original poster. Disoriented feeling, bloating, nausea, stomach pains especially right side and under my rib cage. Random muscle twitching, excessive gas, ankle's have swollen and have since resided. Any ideas as to what this could be?
    Anonymous 42,789 Replies Flag this Response
  • Definately weird, as I have the exact same symptoms as the original poster. Disoriented feeling, bloating, nausea, stomach pains especially right side and under my rib cage. Random muscle twitching, excessive gas, ankle's have swollen and have since resided. Any ideas as to what this could be?I have had exactly the same symptoms..nausea,bloating,chest pain,under right rib pain,muscle twitches and slightly swollen ankles for six months. I am no further forward with a diagnosis following gastroscopy,CT scan ,ultrasound,blood tests ect. I can't beleive that there's so many of us out there with the very same symptoms!! Just a thought have any of you had a swine flu vaccine? i had one Dec.2009 and my symptoms started apprx. 3 weeks later.Probably just a coincidence but I mentioned it to my doc and he didn't think that was relevant.Has anyone got a diagnosis yet?
    Anonymous 42,789 Replies Flag this Response
  • Sounds like celiac disease to me. Try cutting out gluten from your diet. May take a while so be patient before you see results.Good luck.
    chelsea girl 10 Replies Flag this Response
  • Sterin, Have you gotten any clues yet as to what your diagnosis is? I suffer severe abdominal pains, both burning and piercing, on my right side just under my ribs. I was diagnosed as having Gall Bladder Attacks and had my surgery in September of 2009. They repaired an Umbiligle Hernia at the same time and I was ordered to bed rest for 4 weeks. After 4 weeks, I began to walk around my neighborhood and was shocked when my excrutiating pain had returned. I was told it was possibly a Gall Stone in my Bile Ducts and was sent to a Specialist in Houston Texas. He asked for other symptoms that I didnt link to this pain. Which were.. severe pain staring as a radiating burn and then turns into a piercing burn pain thru to my back. Other symptoms were Dizziness/disorientation, excessive gas, nausea, twitching muscles in my arms/ hands/feet/legs, burning/itching in feet, slight buzzing in my ears, and bloating. I was then told that it was NOT an internal problem but it was a problem with my nervous system. I was sent to a Pain Management Physician who in turn sent me to a General Practitioner. He then ordered several tests. I had 3 cat scans and 2 cat scans with contrast. I had 3 MRI's, 3 Ultra sounds, an Internal Scope Ultrasound, a P.E.T Scan, about 25 blood tests, and another PET scan. Everything was ruled out until he did a series of Swabs, Urine, Pathology, Lab, and diagnostic tests which revealed a diagnosis of NEUROPATHY. They tell me that there is NO CURE for this condition but there are medications to treat this to help relieve the symptoms. I have been thru a combination of 12 or 15 different medications, and have not found my magical combo yet. The ONLY relief I get is by laying on the FLOOR, or another hard surface, on my right side and as perfectly still as I can with the Air Conditioner pretty cool as it seems to act up alot worse in the summer. The Doctors call this HEAT SENSITIVE. I have been laying on my floor for 10 months now. I can not sit up, drive, stand, walk, or lay on my back ANY LONGER than 45 minutes before the BURNING PAIN gets really bad. I cant fish, hunt, shop, drive, play golf, or anything I am used to doing.. especially working. If the pain gets to the severe burning point, it takes about 2 - 4 hours to get any relief.. but if it goes into the piercing pain into the back, the relief may not come for a day or two. I have had 3 doctors agree with the NEUROPATHY diagnosis and agree that I should keep trying the medications, but not to expect a total relief or cure. Does ANY of this sound like what you are going through? If so, mention NEUROPATHY to your doctors.. but let me know how YOU are finding your relief... if ANy! Levi.Slaughter@gmail.com Levi
    Levi316 3 Replies Flag this Response
  • Sterin,Have you gotten any clues yet as to what your diagnosis is? I suffer severe abdominal pains, both burning and piercing, on my right side just under my ribs. I was diagnosed as having Gall Bladder Attacks and had my surgery in September of 2009. They repaired an Umbiligle Hernia at the same time and I was ordered to bed rest for 4 weeks. After 4 weeks, I began to walk around my neighborhood and was shocked when my excrutiating pain had returned. I was told it was possibly a Gall Stone in my Bile Ducts and was sent to a Specialist in Houston Texas. He asked for other symptoms that I didnt link to this pain. Which were.. severe pain staring as a radiating burn and then turns into a piercing burn pain thru to my back. Other symptoms were Dizziness/disorientation, excessive gas, nausea, twitching muscles in my arms/ hands/feet/legs, burning/itching in feet, slight buzzing in my ears, and bloating. I was then told that it was NOT an internal problem but it was a problem with my nervous system. I was sent to a Pain Management Physician who in turn sent me to a General Practitioner. He then ordered several tests. I had 3 cat scans and 2 cat scans with contrast. I had 3 MRI's, 3 Ultra sounds, an Internal Scope Ultrasound, a P.E.T Scan, about 25 blood tests, and another PET scan. Everything was ruled out until he did a series of Swabs, Urine, Pathology, Lab, and diagnostic tests which revealed a diagnosis of NEUROPATHY. They tell me that there is NO CURE for this condition but there are medications to treat this to help relieve the symptoms. I have been thru a combination of 12 or 15 different medications, and have not found my magical combo yet. The ONLY relief I get is by laying on the FLOOR, or another hard surface, on my right side and as perfectly still as I can with the Air Conditioner pretty cool as it seems to act up alot worse in the summer. The Doctors call this HEAT SENSITIVE. I have been laying on my floor for 10 months now. I can not sit up, drive, stand, walk, or lay on my back ANY LONGER than 45 minutes before the BURNING PAIN gets really bad. I cant fish, hunt, shop, drive, play golf, or anything I am used to doing.. especially working. If the pain gets to the severe burning point, it takes about 2 - 4 hours to get any relief.. but if it goes into the piercing pain into the back, the relief may not come for a day or two.I have had 3 doctors agree with the NEUROPATHY diagnosis and agree that I should keep trying the medications, but not to expect a total relief or cure. Does ANY of this sound like what you are going through? If so, mention NEUROPATHY to your doctors.. but let me know how YOU are finding your relief... if ANy!Levi.Slaughter@gmail.comLevi Hi LeviYou sent me an e-mail and addressed it to Sterin so you sent it to the wrong person. I am chelsea Girl. Just wanted you to know so you can resend it so you don't wait for ever for a repspons from Sterin that you will never get.
    chelsea girl 10 Replies Flag this Response
  • Sterin,Have you gotten any clues yet as to what your diagnosis is? I suffer severe abdominal pains, both burning and piercing, on my right side just under my ribs. I was diagnosed as having Gall Bladder Attacks and had my surgery in September of 2009. They repaired an Umbiligle Hernia at the same time and I was ordered to bed rest for 4 weeks. After 4 weeks, I began to walk around my neighborhood and was shocked when my excrutiating pain had returned. I was told it was possibly a Gall Stone in my Bile Ducts and was sent to a Specialist in Houston Texas. He asked for other symptoms that I didnt link to this pain. Which were.. severe pain staring as a radiating burn and then turns into a piercing burn pain thru to my back. Other symptoms were Dizziness/disorientation, excessive gas, nausea, twitching muscles in my arms/ hands/feet/legs, burning/itching in feet, slight buzzing in my ears, and bloating. I was then told that it was NOT an internal problem but it was a problem with my nervous system. I was sent to a Pain Management Physician who in turn sent me to a General Practitioner. He then ordered several tests. I had 3 cat scans and 2 cat scans with contrast. I had 3 MRI's, 3 Ultra sounds, an Internal Scope Ultrasound, a P.E.T Scan, about 25 blood tests, and another PET scan. Everything was ruled out until he did a series of Swabs, Urine, Pathology, Lab, and diagnostic tests which revealed a diagnosis of NEUROPATHY. They tell me that there is NO CURE for this condition but there are medications to treat this to help relieve the symptoms. I have been thru a combination of 12 or 15 different medications, and have not found my magical combo yet. The ONLY relief I get is by laying on the FLOOR, or another hard surface, on my right side and as perfectly still as I can with the Air Conditioner pretty cool as it seems to act up alot worse in the summer. The Doctors call this HEAT SENSITIVE. I have been laying on my floor for 10 months now. I can not sit up, drive, stand, walk, or lay on my back ANY LONGER than 45 minutes before the BURNING PAIN gets really bad. I cant fish, hunt, shop, drive, play golf, or anything I am used to doing.. especially working. If the pain gets to the severe burning point, it takes about 2 - 4 hours to get any relief.. but if it goes into the piercing pain into the back, the relief may not come for a day or two.I have had 3 doctors agree with the NEUROPATHY diagnosis and agree that I should keep trying the medications, but not to expect a total relief or cure. Does ANY of this sound like what you are going through? If so, mention NEUROPATHY to your doctors.. but let me know how YOU are finding your relief... if ANy!Levi.Slaughter@gmail.comLevi For the last 7 months I've had a mystery illness that has yet to be diagnosed. It began with extreme abdominal bloating and nausea that led into disorientation and chest pains. I could not read, watch TV without getting nauseous. Also, it feels like there is something underneath my right rib cage in the upper right quadrant area. I also have had more gas than normal and sometimes have to lie down and change positions to pass gas. The disorientation has mostly gone away and the chest pains have completely gone away. Also for the last 7 months I have been experiencing strange muscle twitches that usually take the form of the area right next to my knee or my hamstring and other locations. Unlike normal muscle twitches, these last for 1 to 48 hours in the same exact location. I usually have a bowel movement every morning but have notice that some days I do not and I begin to feel horrible towards the evening (abdominal bloating and pain that worsens with movement) and the next day or so. I also have noticed that whenever I drink beer or Orange juice, I feel horrible. I have also had some set backs after eating fried chinese food, buttery pasta, and ice cream. Currently I still have the feeling that something is in my URQ, feel bloated, have daily bouts with nausea, and still experience muscle twitches. I have had the following tests: 3 stool tests, urine, abdominal X-ray, abdominal CT scan, MRI of the brain, numerous blood tests, barium swallow, ultrasound, colonoscopy, and recently had gastric emptying test and upper endoscopy (still waiting for biopsy results but otherwise normal). All test have come back normal with the exception of a high bacteria count from a breath test (4 months ago - took xifaxan for 10 days and did not notice a change - repeated treatment a month later - no help). Giardia - negative. Blood test earlier this summer showed an elevated hemoglobin, hemocrit count and a slightly elevated billirubin which my doctors were not concerned with. If you have any advice or help I would greatly appreciate it. The past 7 months have been horrible and I can't wait to get through this thing. Thanks for reading.
    Levi316 3 Replies Flag this Response
  • Hello,all this happened with me and I was able to find it why....I really did think that I had cancer or a blockage on the intestines until I ran to this article.Not sure if you take this but is worth a try...I have nothing of this any longer.Hope it helps.http://splendasickness.blogspot.com/2006/03/abdominal-pain-cramping.html
    Anonymous 42,789 Replies
    • November 27, 2010
    • 05:53 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

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  • Thank you for replying, although I don't consume anything with Splenda and haven't for Many many years now. I believe in SUGAR, the real thing, ha ha. I drink sweet tea or Lemonade made with Real Sugar and the Regular Soft Drinks. I think the LAST DIET SODA I had was about 10 years ago and even with Splenda it wouldnt have helped the taste. My symptoms aren't even CLOSE to what you would describe as CRAMPS either. Mine start as a radiating BURNING sensation just below the ribs about 2 inches from the middle of your sternum. It feels as if it is burning on the outside of soomething inside you. Then it gets stronger and stronger and if I lie down it will go away within a few hours, if not, it will radiate straight through to the spine as if an arrow was piercing me. Once it gets to that point, it takes about a day or two for it to go away. The doctors have diagnosed this as AcuteThoracic Spinal Neuropathy with Severe Spinal Stenosis and are treating it with Steroids and medications. They are also fitting me with a Turtle-Shell Back-Brace to hopefully allow me to be on my feet for more than 45 minutes at a time before I have to lie down. The Symptoms also include the feeling of SWOLLEN and BURNING of the FEET, they say the FEELINGS of "PINS and NEEDLES" in the FEET, but mine feel more like someone has SANDWICHED my lower legs between two BEDS of NAILS. Shaking and trembling of the hands and feet, feeling of NUMBNESS or TINGLING as if they were ASLEEP in the HANDS.. and Numbness on the outer thighs and pain in the groin area as well as severe trembling or Shaking bouts in the mornings with or without pain. But I do appreciate your posting the SPLENDA post here anyways, because it may be really helpful for someone else who happens across this posting that may not have the exact same thing as I do... So thank you. Levi
    Levi316 3 Replies
    • November 30, 2010
    • 00:39 AM
    • 0
    Flag this Response
  • Everyone of you who has these symptoms should insist that your doctor order an ELISA (enzyme-linked immunosorbent assay) test for the strongyloides antibody IgG. I believe that this parasite is far more widespread than any of us know.
    Anonymous 42,789 Replies
    • November 30, 2010
    • 05:58 PM
    • 0
    Flag this Response
  • I am not sure if this will help u guys but it did help me...I had most of your guys symptoms plus more and I was able to figure it out after more than 7 months in pain and agony...I am not sure if anybody takes it also but will give it a try...Splenda was giving me the massive pain and bloating...please researchgoogle Splenda symptoms also...http://splendasickness.blogspot.com/2006/03/abdominal-pain-cramping.html
    lenealves 8 Replies
    • December 6, 2010
    • 02:52 AM
    • 0
    Flag this Response
  • I've been suffering from very simular symptons. I had an injury in Feb 2009. It was June when the nausea started. I thought it had something to do with my injury. After several diagnostic tests that all came back normal. My gp said I had, IBS... then she said I was having abdominal migrains. Then she wanted me to go on anti depresants. I chose to find another dr. After 2 yrs of chasing these symptoms it's gotten unbearable. I found my hormone levels were extremly low. So now that that has been taken care of I've also had extreme sweating. Muscle twitches started a few days ago. I was told inflamatory bowel disease, high markers for celiac. I've tried the gluten free diets, fat free diets, liquid, vegetarian, It seems like everytime I eat regardless of what it is makes me sick. I've decided its gall bladder, but all the test from 2008 came back normal. I'm doing another hida scan on Monday, and a breath test at the end of the month. I'm wondering if we have anything other than our symtoms in common. I had shingles in Aug of 2008, I've been getting flu shots seasonally since 2007. I travel a lot and also have bouts of diaherra that was dignosed as travelers diaherra. I've seen holistic doctors that said they thought I had a yeast over growth and for a while their treatment seemed to help. I started trying acupunture today and I felt good for about an hour, which is better than nothing. I also have sinus infection and ear problems. I'm in decent shape but have gained 20 lbs from inactivity, hard to excercise when every move make you want to hurl. I assume the sweating and weight gain is from the estrogin my ob/gyn put me on. I'm also getting testrone shots, which seem to give me enought energy to be completly irriatated that I've become this immobile. I haven't worked in 3 months, I'm draining my retirement and I'm only 39. I don't have any kids. If the stupid dr's can't figure this out maybe we can. I get my hopes up with every appointment that finally someone's going to do something, only to be told they can't find anything. Very frustrated. Has anyone gotten any answers yet?
    Anonymous 42,789 Replies Flag this Response
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