Discussions By Condition: I cannot get a diagnosis.

severe left flank pain

Posted In: I cannot get a diagnosis. 33 Replies
  • Posted By: Mimi9568
  • November 20, 2006
  • 08:02 AM

I am a 50+ female currently suffering bouts of excruciating pain for 9 years. The doctors started with "pinched nerve," then moved on to discover diverticulitis, kidney stones, and thyroid/hormone imbalance. I finally had a great doctor who seemed to actually "CARE" about the specific cause of my pain, then 3 weeks ago, he died suddenly... this is not a joke. I have had CT Scans and a colonoscopy. I am currently diagnosing myself as having Pancreatitis, but the pain is in my left back, not my abdomen, and I have constipation, not diarrhea. Does anyone else out there have pain resembling a kidney stone passing, but is NOT a kidney stone?

Reply Flag this Discussion

33 Replies:

  • I have had the same severe left flank pain for the last 6+ months. It started with blood clots in August 2006. I was diagnosed with a Renal Thrombosis of the left kidney and a blood clot near the left ovary. I received tPA for the Renal Thrombosis and was placed on blood thinners until the end of January.After the blood clots I began to experience constant left flank pain. I made several trips to the ER and have had numerous CT scans, MRI's, bloodwork, a colonosopy, sonograms, etcetera. At one point I was told it was ovulation pain. My OBGYN put an Meridian IUD in (the clots were caused by the Nuva Ring, so I can't take any Estrogen based products) to help reduce cramping, bleeding and perhaps stop my periods. That has not worked; the IUD was put in in September 2006 and I continue to bleed and spot contantly. On February 7th I had laproscopic surgery done and endometriosis was found, along with a large amount of scar tissue. The doctors went ahead and removed my appendix as well, since it had embeded itself into my colon.It's been almost 3 weeks since surgery and the surgery pain has subsided but the left flank pain has returned. I was told that there could be deep tissue endometriosis that could not be reached via laproscopic surgery. I'm supposed to receive a Lupron injection this week to aid with any remaining endometriosis that was not removed.If this does not work I'm going to search for a renal specialist, as the pain continues to radiate from the area where my left kidney resides. I've begun to have a bright red/pink mucous discharge that smells horrible. I feel like I keep telling the doctors what is wrong, but no is listening or thinks I'm crazy.You're not alone.
    Anonymous 42,789 Replies
    • February 26, 2007
    • 02:22 AM
    • 0
    Flag this Response
  • I am a 50+ female currently suffering bouts of excruciating pain for 9 years. The doctors started with "pinched nerve," then moved on to discover diverticulitis, kidney stones, and thyroid/hormone imbalance. I finally had a great doctor who seemed to actually "CARE" about the specific cause of my pain, then 3 weeks ago, he died suddenly... this is not a joke. I have had CT Scans and a colonoscopy. I am currently diagnosing myself as having Pancreatitis, but the pain is in my left back, not my abdomen, and I have constipation, not diarrhea. Does anyone else out there have pain resembling a kidney stone passing, but is NOT a kidney stone?i am 48 male (yumaborn@hotmail.com) i have recently been experiencing the same pain in my left side flank area they are checking for possible kidney stones but i dont think thats it i also have constipation but may be due to all the pain medicine im taking..let me know if you get this and please reply back
    Anonymous 42,789 Replies Flag this Response
  • Yumaborn, this is your twin...there is a good chance you have kidney stones due to dehydration...hello, Yuma... and a diet high in protein which would also explain constipation. Found a site that describes your symptoms. I looked into the first site I found on google's list of kidney stones. Check it out. If it were pancreatitis, you would have abdominal pain and nausea.
    Anonymous 42,789 Replies Flag this Response
  • Hi, I just got the bad news that I have some sort of hyperthyroid problem, but have not been told what kind yet. I'm hoping it's something that will go away on it's own (pray). I have a pain in my left side, that is not very sharp...it almost feels like a stich in my side. It's in the front abdomen, and not the back. My mom is a nurse, and she thinks this may be the liver or spleen. My eyes are slightly yellow, but not completely yellow, and some thyroid problems can be triggered by infection or immune responses. They have recommended an ultrasound. It might be a good idea for you to get one too. I hope we all feel better soon.
    Anonymous 42,789 Replies Flag this Response
  • just reading all your stories and guess what im exactly the same, im 25 female, first i was tested for kidney stones, none were found, visited gynae department which is clear also, waiting to see a surgical doctor and dont no what hes going to do, im so fed up, seems no-one is listening to me. my symptoms are severe left side pain in back around kidney area, like spasms and any females may fell like its contractions when having a baby but only in your back. the pain stays in the same spot and doesnt move. one of the doctors thinks i might have adhesions caused by scar tissue, as i had an operation in 2002. oh im so fed up and no exactly how yous all feel. betty_boop81xx@yahoo.co.uk
    Anonymous 42,789 Replies Flag this Response
  • Has anyone mentioned that it may be UPJ obstruction? Not stones? I have been dealing with this on the right side for years. Tests yeilded nothing but because of an almost obscure indentation in my right ureter I had a stint placed and when they put the scope up my ureter it was completely blocked. Just a suggestion, I hope it helps. Kaylene
    kmich888 2 Replies Flag this Response
  • I have had left flank pain for eight months. I had my gall bladder removed 6 months ago, still have the pain. I have had MRI, CT Scan, colonoscopy, upper endoscopy, several blood test, as today, after seen 5 doctors, I don't have a diagnosis yet. My liver enzimes get very elevated when I have acute pain with vomiting. I am scheduled to see a liver specialist at the end of May, I was told it could be:sphyncter of Oddi disfunction. I don't have much hope anymore....in the last week I have muscle pain in my legs, I don't know if this is related or not.
    Anonymous 42,789 Replies Flag this Response
  • go to www.ahummingbirdsguide.com go to L of home page to symptoms page...go to bottom of first paragraph, there is a summary of symptoms...write down as many as you have, honestly, even if they seem unrelated...If there is a significant amount take info to Dr. with you...good luck...mommy cat
    mommy cat 1,654 Replies Flag this Response
  • I've been dealing with left flank pain since Dec, 2006. I had a tubo-ovarian surgery on March 2007 and still have the pain. 3 ER visits, 4 CT, 5 Ultrasounds, one endoscopy... I don't know what it is. I 've navigating on the Internet and sometimes an "Enlatged Spleen" can cause this type of pain.
    Anonymous 42,789 Replies Flag this Response
  • :( I have severe left flank pain. My current diagnosis is osteoarthritis/facet arthritis with nerve compression casing the pain/spasams. I have been to various specialists with no luck - tried accupunture, spinal injects, facet blocks, chiropractor, physical therapy. NOTHING helps. I had to quit my carear because I can not stand or walk in excess of 25 minutes without it going into pain. I can't even pick up my own kids! It has consumed my normal active life. I have had numerous CTs, MRI's and a bone scan which only shows the degeneration in my spine (the arthritis), very mild scoliosis, a 1mm non-obstructing kidney stone, and a very small cyst on my superior liver. All blood and urine tests are normal. It is a mystery to me as well as many of the doctors I have seen? Anyone else have similar problems? HELP!!!
    Susan Miller 1 Replies
    • October 6, 2007
    • 03:24 PM
    • 0
    Flag this Response
  • For several years I had pain in my left flank, lower back and other times it seemed to travel. Eventually, the pain got so bad I passed out, went to ER, had a CT scan and it was a UPJ obstruction. It is now fixed. I was misdiagnosed by several doctors voer the years. Anyway, not to cause a panic, but it a UPJ obstruction is left untreated for too long it could result in loss of kidney function. The CT scan is worth it.
    Anonymous 42,789 Replies
    • December 19, 2007
    • 05:40 AM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Thanks for the info. and I am glad you got it fixed. I have had MRI's, CT's & a bone scan which only show a 1mm non-obstructing kidney stone and mild to moderate degeneration of my spine ( facet arthritis). I still don't have a diagnosis and unfortunately still dealing with the pain everyday. I am now on steroids to see if it could be an inflamation problem since I also have inflamed lymph nodes in the same area.
    Anonymous 42,789 Replies
    • December 20, 2007
    • 02:34 PM
    • 0
    Flag this Response
  • This is so strange, I have had flanking pain on my left side for awhile now, sometimes severe. Pain, difficulty and frequent urinating. Tested negative for infection-took 12 days of cipro antibiotic with no relief, have had moderate to severe pain in my left leg and knee to the point of not being able to walk well. Left side horrible migraines and left pain in my ovary. My doctor thinks I'm depressed wants to put me on anti-depressants. Could all this be related-everything seems to be on the left side. The other month I had severe shaking of my left hand and then I couldn't use my left arm and hand for about an hour as it would not move. I think I'm going insane. Have an appointment with a urologist this week-maybe they have some answers..anyone else have any suggestions?-fed up with doctors in PAI have had left flank pain for eight months. I had my gall bladder removed 6 months ago, still have the pain. I have had MRI, CT Scan, colonoscopy, upper endoscopy, several blood test, as today, after seen 5 doctors, I don't have a diagnosis yet. My liver enzimes get very elevated when I have acute pain with vomiting. I am scheduled to see a liver specialist at the end of May, I was told it could be:sphyncter of Oddi disfunction. I don't have much hope anymore....in the last week I have muscle pain in my legs, I don't know if this is related or not.
    Anonymous 42,789 Replies
    • February 5, 2008
    • 08:05 PM
    • 0
    Flag this Response
  • I have been experiencing left flank pain for several months. I only have it upon wakening in the morning. When I work night shift, I don't have it in the early moring hours. However, when I go to sleep in the morning and wake up in the afternoon, I have it. Help! For all other users, I used to get left flank pain after drinking large volumes of fluids in a short period of time. Being a nurse, I asked for an IVP during an ER visit and lo and behold, I had a blood vessel strangulating a ureter. After surgery and 9 days in the hospital, I was cured. That was 8 years ago. Now the new pain happens after rest. No I am not holding my urine too long. I only need to rest 3 to 4 hours and there it is :(
    Anonymous 42,789 Replies Flag this Response
  • This seems to be a common problem that none of you are gettting help with! I havn't had clients with this specific issue, however even moreso than nutrition, in the last 7-8 years environmental issues have been the cause of more calcium/constipation related issues than not. Home, office, and travel radiation/electromagnetic fields interfere with calcium absorption - faulty calcium handling is indicated in both kidney problems/stones or pain, and digestive stress. The main stress area that we have control of is our sleep area, which are usually highly stressful.. Try clearing your sleep area first because this is where your body needs the chance to heal and regenerate - remove clock radios, "radio" controlled clocks, cell phones etc. If you have a box spring or metal bed frame (picks up electrical fields from internal wall wiring, lamp cords, etc.) pull the bed out 1 ft from the wall if you can and keep cords 1 ft away. Ultimately get a wooden bed with slats, no metal except screws, and a foam or air mattress. All of these environmental factors interfere with the Delta sleep phase and we can't get a healing, refreshing sleep. Also be careful of the kind of water you drink - Bottled water which is high in minerals is not absorbed properly (the earth's natural magnetic field from the water dissipates within days after bottling - this field is necessary to keep the calcium and other minerals ionized and able to be absorbed.) Tap water is "de-ionized" by metal pipes. Personally I use and recommend Pi water which is a safe, "living" water - 2 L/day is ideal (2-3 glasses before food in the morning) - there is a simple filter you can search. Also using a "mag-boy" magnetic roller over the flank area 2 x daily should have a relieving beneficial effect on the pain and help to facilitate the break up of any calcium deposits in the area. I use a few of these things in my practice and they work well.pls keep me posted, Karen
    Kinesiologist 62 Replies Flag this Response
  • There is a vastly underdiagnosed condition called nut-cracker syndrome. It is when the left renal vein is compressed between aorta and the superior mesenteric artery and for each heart beat is “cracked” as a nut in a nut-cracker. With time the vein can react to this compression by producing a sort of scar tissue which leaves even less room for the blood to pass. The symptoms are left flank pain; sometimes there is blood in the urine, sometimes only little which requires a blood test. Since left ovarian vein drains in left renal vein, it can also give pelvic symptoms such as pelvic pain, pelvic venous congestion or pelvic varicose veins.Venography (phlebography) is a way to diagnose it (it demands a skillfull radiologist), ultrasound is less suitable. It is not easy to treat. So far the severe cases have demanded venous surgery, but now the first cases have been treated with stent placement. Sometimes this condition can improve by itself, if collateral veins form around the compression site. Every time a patient develops a DVT in the left renal vein, this condition should be suspected and ruled out.Good luck with your healt, all of you!
    Felsen 510 Replies Flag this Response
  • There is a vastly underdiagnosed condition called nut-cracker syndrome. It is when the left renal vein is compressed between aorta and the superior mesenteric artery and for each heart beat is “cracked” as a nut in a nut-cracker. With time the vein can react to this compression by producing a sort of scar tissue which leaves even less room for the blood to pass. The symptoms are left flank pain; sometimes there is blood in the urine, sometimes only little which requires a blood test. Since left ovarian vein drains in left renal vein, it can also give pelvic symptoms such as pelvic pain, pelvic venous congestion or pelvic varicose veins.Venography (phlebography) is a way to diagnose it (but it requiers a radiologist who knows this condition), ultrasound is less suitable. It is not easy to treat. So far the severe cases have demanded venous surgery, but now the first cases have been treated with stent placement. Sometimes this condition can improve by itself, if collateral veins form around the compression site. Every time a patient develops a DVT in the left renal vein, this condition should be suspected and ruled out.Good luck with your health, all of you!
    Felsen 510 Replies Flag this Response
  • I have been suffering with abdominal pain and painful swallowing for 6 months. I had ulcer surgery in 1983, including a vagatomy as well as surgery for a hietis hernia in 1995. Now the doctors can not find a cause for it. I have all the tests done except an endoscope on a dilated bile duct. It was suggested that the pain was in my head but I have had no stressors which would cause a psychosomatic event. (to my knowledge). Losing hope they will find anything wrong. The pain comes every two to three days and lasts one to two days. At some points I can not even swallow my own spit. Stomach often feels full, bloated and detended. I can not believe I am the only one in the world who has gone or will go through this. I can feel for everyone who has been undiagnosed. It makes you feel alone and questioning of yourself. Thanks
    Anonymous 42,789 Replies Flag this Response
  • just reading all your stories and guess what im exactly the same, im 25 female, first i was tested for kidney stones, none were found, visited gynae department which is clear also, waiting to see a surgical doctor and dont no what hes going to do, im so fed up, seems no-one is listening to me. my symptoms are severe left side pain in back around kidney area, like spasms and any females may fell like its contractions when having a baby but only in your back. the pain stays in the same spot and doesnt move. one of the doctors thinks i might have adhesions caused by scar tissue, as i had an operation in 2002. oh im so fed up and no exactly how yous all feel. betty_boop81xx@yahoo.co.uk I completely understand your position. My daughter is only 14 she has had the same thing for 2yrs now. They say its a neuropathic pain, after her surgery in 2006. But even before that she had pain for 4yrs untill they say she had hydronephrosis. But now i am thinking that was not it but a little thing to be fixed.
    Anonymous 42,789 Replies Flag this Response
  • I'm experiencing left flank pain as well. It is quite severe and lasts anywhere from 5 hours to 20. The pain starts in my back and eventually travels to my abdomen on the left side only. I've been to the Emergency Room many times and have been told it was kidney stones. I've had in excess of 15 attacks in the past 3 months. The last emergency room visit I was also diagnosed with Gallstones also after a CT Scan. The doctor ignored that the pain was on the left side and sent me to a surgeon. I set an appointment with a urologist. The surgeon ruled out Gall Bladder attackes and the Urologist performed a Cysto RPG since he was convinced that I had a blockage and stones that were not calcified therefore not showing on my CT Scan. The day before the procedure I had a very severe attack lasting for 20 hours and stopped just hours before the appointment. After the procedure was performed my urologist told me that I had no stones, no kidney or bladder issues and that my urethra had not matured and therefore was the size of a 10 yr old girl. He dismissed that my left flank pain is kidney related. So now I'm going to see a gastro dr. and obgyn to see if there are other reasons for the pain. I have gone through natural childbirth and this left flank pain far exceeds the pain that I felt having my daughter. There is also no relief without very strong pain killers. The pain is constant and i cannot stay in one position for more than 30 seconds when these attacks hit. The only temporary relief is going into a hot bath. I'm experiencing 1 attack per week usually starting anywhere between 2 a.m. to 4 a.m. Before each attack, I notice that my urine is cloudy and sometimes a day or two before my back starts to burn on the left side. If anyone can offer guidance, I'd be so appreciative. Even direct me with the right questions to ask the doctors. They spend so little time with you and without an advocate present, it is very hard to keep track of everything and also try absorb what the doctor is explaining.
    Anonymous 42,789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.
Advertisement

Safe Sex With Hepatitis C

Prevent the spread of the hepatitis C virus.

Preventing Lung Infections

With COPD, it’s important to protect your lungs.

8 Health Dangers of Depression

Unmanaged depression can take a toll on your physical health.

Food Choices for Diabetes

What, when and how much you eat affects your blood sugar.

6 Exercises for Multiple Sclerosis

Ease your way into these stretching and strengthening moves,

Advertisement