Discussions By Condition: I cannot get a diagnosis.

1 Swollen Foot for 1 Year-Can't Find Out What's Wrong

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: bigfoot
  • November 10, 2006
  • 11:21 PM

Hi all,

Please let me know if any of you have experienced this. My Right foot has been swollen for nearly a year. Left foot is perfectly normal. I have gone to 5 drs: orthopedic, a chief orthopedist at a hospital in NYC, my regular physician, a vascular dr., and a rheumatologist. My dr. and the rheumatologist have done bloodwork--all negative. Vascular dr. has tested for DVT (deep vein thrombosis ie: a bloodclot)--Negative. Orthopedists have done x-rays, MRI, and a 3-phase bone scan with injected radioactive dye--all negative. So, orthopedist says it's not a mechanical (torn muscles/tendons) or bone prob. with the foot. And I've tried anti-inflammitories, and done physical therapy for a few months with ultrasound, electric stimulation, ice/heat, massage, and strengthening exercises. The only things that have worked temporarily are: elevation overnight (but then next day foot swells up again), and massage to push fluid out (but again, foot swells up again). There is no pain to speak of, except if I push on the top of my foot just below the 2nd & 3rd toes or if I push deeply near the ankle there is tenderness. Other than that, I never notice it until I look at it, or I feel the fluid in the foot, or can't fit into a shoe. I'm worried that it may signify something else though, and I'd really love to have my normal foot back!

I'm going to try to get an appt. at a major teaching hospital, but all my drs. are at a loss for what to tell me. And the frustration of not knowing is getting old.

Please help if you have any ideas!
Thanks,
Bigfoot

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2 Replies:

  • Sounds like lymphedema to me. Has that been ruled out?
    Anonymous 42,789 Replies
    • November 11, 2006
    • 01:51 PM
    • 0
    Flag this Response
  • Thank you so much for this suggestion. After your suggestion, I took the thought to my Dr. and he said to go to John's Hopkins Hospital. They sent my tests, etc. to some drs. to look at, a vascular surgeon determined it was not vascular, thought it in fact might be lymphedema. Put me in touch with their lymphedema ctr. at John's Hopkins Hospital (Baltimore, MD), who suggested I get into some therapy ASAP. Working on getting an appt. with a lymphedema specialist where I live. Checked out the National Lymphedema Network's website, and they're a great resource. www.lymphnet.org From my symptoms she said I was a classic case of primary lymphedema with a late onset. Thanks so much again for your suggestion. I had never hear of this before, and now I can actually take measures to help improve it!
    bigfoot 3 Replies
    • November 30, 2006
    • 10:40 PM
    • 0
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