Discussions By Condition: I cannot get a diagnosis.

Help: Persistent low-grade fever w/multiple symptoms

Posted In: I cannot get a diagnosis. 18 Replies
  • Posted By: Anonymous
  • November 8, 2006
  • 09:26 PM

I have been ill for several weeks now, and the doctors have been unable to determine the cause of my symptoms. I have the following symptoms:
-- Persistent low grade fever (between 99 and 100 degrees)
-- Chills
-- Hot Flashes
-- Night Sweats
-- Body Aches (particularly in neck and back)
-- A few unexplained bruises
-- Loss of appetite

I don't know if these symptoms are related or not. I have Hashimoto's disease and mitral valve prolapse. Both of these conditions have been regulated for years. I don't believe these are related to the issue and all of the test show that these conditions are under control.

I have had blood work done several times. My white blood cell count has been normal. In fact, every test result has been normal. They have tested for HIV, lupus, leukemia, thyroid irregularities, etc.

Please help!!!

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18 Replies:

  • I have to. I am under the impression that I am exposed to a virus here at work and that I cannot get over it nor can my co-workers as I am not alone (here in Wash, DC). All my blood tests come outalright. but I feel like I am not functioning at a normal level long term nor can I enjoy life as I used to.
    Anonymous 42,789 Replies
    • November 8, 2006
    • 09:31 PM
    • 0
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  • Usually your white blood cell counts will be higher with a viral infection. I haven't "caught" anything in years. I tend to get genetic chronic conditions, which many of these symptoms mimic.
    Anonymous 42,789 Replies
    • November 8, 2006
    • 10:25 PM
    • 0
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  • Hi, Your symptoms sound fairly close to mine, though I'll be hitting the four year mark this January. Joint pain/body aches is my number one complaint, and I often run a low-grade fever (between 99 and 100) as well (though often my temp is normal, between 98.4 and 98.6). I get chills quite often (which seem to have no correlation to the fevers), and have had night sweats off and on. I really can't say if I have any loss of appetite, since after nearly four years this is just what's normal for me. My symptoms have gone into remission and then relapsed, and if I catch a virus, my symptoms will flare badly for several months. All of which (along with the rest of my medical history) makes my doctors think this is an autoimmune disease. I don't have a diagnosis yet, though. The other thing that caught my attention about your post is that I have Hashimoto's as well, and mitral valve regurgitation. The Hashimoto's is supposedly well-controlled, and while the heart murmur was only found recently (in the course of trying to get a diagnosis for the rest of this), my doctors don't think it should be causing me any problems. I've had a ton of blood work done over the past year, and all my thyroid numbers came back more or less normal (TSH is under 1.0, and T4 and T3 are only barely out of range), and every test they've run has come back normal, except my thyroid antibodies. My thyroid antibodies were literally off the chart, but blood taken at the same time showed my white count as normal. That seriously puzzled me -- if I have an active autoimmune attack against my thyroid, shouldn't my white count be elevated? So if it's coming back normal, doesn't that mean that something else is depressing my white count? Anyway, that's one of the questions I'm trying to get answered right now. It might be something to look into for you as well: have them run your blood count and your thyroid antibodies at the same time. If you register here so you have a consistent posting name, I can let you know if I get anywhere with a diagnosis, as it does seem that we have a few interesting things in common. Btw, I did go to an endocrinologist (unfortunately a different one than the one who diagnosed me with Hashimoto's) and asked if my thyroid antibodies being so high could cause the joint pain, and he said no, but I still have my suspicions. That's another lead that I plan to follow up on this next year. Let me know if you register a forum name here, so that I can let you know if I get any answers. ~Ryot
    Anonymous 42,789 Replies
    • November 9, 2006
    • 01:39 AM
    • 0
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  • Four years? Oh please don't tell me that. Maybe we should put this post in the thyroid folder. If we both have the same issue, maybe other people with Hashimoto and MVP do too. I feel sore all the time. The doctors have checked, double checked, and triple checked my thyroid. Everything is normal.
    Akumal 5 Replies
    • November 9, 2006
    • 11:46 PM
    • 0
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  • If anyone else comes along and sees this, and goes "hey, that sounds just like me!", here's the link to thread about it on the Thyroid board: http://forums.wrongdiagnosis.com/showthread.php?t=4015 Akumal, I'm really curious to see if this will be a clue towards the right diagnosis. Over the next few months I'm going to follow up on this with my doctors, and ask them specifically about: - High thyroid antibodies but normal white count- The low grade fevers- Hashimoto's and MVP together- Autoimmune diseases that cause MVP According to the Mayo Clinic's webpage, http://www.mayoclinic.com/health/mitral-valve-regurgitation/DS00421/DSECTION=4 , "Infections, such as endocarditis or rheumatic fever" can put you at higher risk for mitral valve regurgitation (MVP with regurgitation), so I'm wondering if one or several autoimmune diseases could be involved here... ~Ryot
    Anonymous 42,789 Replies
    • November 10, 2006
    • 02:27 AM
    • 0
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  • To be honest, I don't really know anything about the higher antibodies. What I do know if that there is a relationship between thyroid conditions and MVP. See http://www.mitralvalveprolapse.com/index14.htmThere are multiple sources that can back this up.
    Anonymous 42,789 Replies
    • November 10, 2006
    • 02:45 AM
    • 0
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  • If anyone else comes along and sees this, and goes "hey, that sounds just like me!", here's the link to thread about it on the Thyroid board: http://forums.wrongdiagnosis.com/showthread.php?t=4015 Akumal, I'm really curious to see if this will be a clue towards the right diagnosis. Over the next few months I'm going to follow up on this with my doctors, and ask them specifically about: - High thyroid antibodies but normal white count- The low grade fevers- Hashimoto's and MVP together- Autoimmune diseases that cause MVP According to the Mayo Clinic's webpage, http://www.mayoclinic.com/health/mitral-valve-regurgitation/DS00421/DSECTION=4 , "Infections, such as endocarditis or rheumatic fever" can put you at higher risk for mitral valve regurgitation (MVP with regurgitation), so I'm wondering if one or several autoimmune diseases could be involved here... ~RyotI have had low grade fevers for 8 yrs and body ache's I had hep c but they say I have fought it off. My body aches so bad. I feel just like I have the flue. I think its the hep c because it seems to evident. I dont know what to do. Have you been checked for hep c?
    skyhighangel 3 Replies
    • November 10, 2006
    • 08:02 PM
    • 0
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  • I have low grade fevers and bad body aches esp. at night. I have for 8 yrs. I had hep c but they say the tests show I have fought it off but I dont understand why I have these symptoms. I just wanted to let you know that if you havent been tested for hep c you should. Hope you feel better soon and me to.:rolleyes:
    skyhighangel 3 Replies
    • November 10, 2006
    • 08:06 PM
    • 0
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  • I have so many of the symptoms I have seen mentioned by several people. My symptoms have been present for about 4 months and include: body pain esp in neck and back and worse at night, high Thyroid peroxidase antibodies, which have increased in the past few months. TSH is 3.3- this has also steadily increased over the past few months. I have been prescribed a thyroid medication, but so far the numbers continue to go the wrong directions. I have also been having frequent headaches and today started running a low grade fever (my normal temp is 97.6 and it is running 99.5). Blood counts come back normal. Hashimoto's has been mentioned to me, and I plan to make an appointment with an endocrinologist. Has anyone received a diagnosis for all these symptoms? I noticed that most people posting have been diagnosed with Hashomoto's. Does that explain all these symptoms?
    Anonymous 42,789 Replies Flag this Response
  • To be honest, I don't really know anything about the higher antibodies. What I do know if that there is a relationship between thyroid conditions and MVP. See http://www.mitralvalveprolapse.com/index14.htm There are multiple sources that can back this up. i would of loved to have read that link.. but it dont work..
    taniaaust1 2,267 Replies Flag this Response
  • If anyone else comes along and sees this, and goes "hey, that sounds just like me!", here's the link to thread about it on the Thyroid board: http://forums.wrongdiagnosis.com/showthread.php?t=4015 Akumal, I'm really curious to see if this will be a clue towards the right diagnosis. Over the next few months I'm going to follow up on this with my doctors, and ask them specifically about: - High thyroid antibodies but normal white count- The low grade fevers- Hashimoto's and MVP together- Autoimmune diseases that cause MVP According to the Mayo Clinic's webpage, http://www.mayoclinic.com/health/mitral-valve-regurgitation/DS00421/DSECTION=4 , "Infections, such as endocarditis or rheumatic fever" can put you at higher risk for mitral valve regurgitation (MVP with regurgitation), so I'm wondering if one or several autoimmune diseases could be involved here... ~Ryot i dont know if this is your issue but it may be worth mentioning as classically it causes on and off relapses of flu like symptoms esp in the first few years of the illness (most commonly low grade fever, sore throat, headaches).. chronic fatigue immunity dysfunction syndrome. CFIDS . Mitral valve prolapses are extremely common with CFIDS and thyriod conditions esp Hashimoto's can often be a coexisting condition. If your thyriod problem is being properly treated and you still have issues... it may be worth while to try to find a CFIDS specialist for an opinion on this. (95% of doctors dont know much at all about CFIDS as they arent up to date).
    taniaaust1 2,267 Replies Flag this Response
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  • All those who've posted about joint pain, thyroid issues and fatigue should get checked for celiac disease. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
    aquila 1,263 Replies Flag this Response
  • Sounds exactly what I have been dealing with for at least a year. Every test available has yielded no results. Often an antiobiotic will eliminate the symptoms but they always return within a few weeks.I give up.
    Anonymous 42,789 Replies
    • January 25, 2009
    • 03:04 PM
    • 0
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  • For three and a half years I have suffered with recurring "spells" of swollen glands in my neck, followed by fatigue, body aches all over, irritability, low grade fever and then eventually a sore throat. About half the time I also have one or two canker sores in my mouth. The spells last about 5 days and occur about every eight weeks or so. On the 3rd and 4th day I usually end up in bed all day, too tired and sore to move around. I have seen a rheumatologist, infectious disease dr, allergist, tested neg for HIV http://kona.kontera.com/javascript/lib/imgs/grey_loader.gif, tons of blood work. I only show inflammation when I'm having the spells and all other tests are normal except for low iron. Any ideas? My son has been diagnosed with PFAPA, periodic fever syndrome and takes Cimetidine daily which suppresses his symptoms which are excatly the same as mine. It however does not work for me. I've also been tested for TRAPS and Familial Mediterranean Fever and they were negative as well.
    lwebberjj 3 Replies
    • January 29, 2009
    • 09:01 PM
    • 0
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  • Those are all symptoms of lymes disease; I would know as I had all the similar things going on for couple months until i was diagnosed correctly by my new physician. I had an extreme amount of night sweats, high temperatures and joint pain. In some cases it can cause bell's paulsy in extreme cases where you can't move a side of your face, an example. So its worth getting checked out before these symptoms occur.Although rare to have for many years without the more obvious rings (which in my case were non-existent) it is possible.
    Anonymous 42,789 Replies Flag this Response
  • I recommend anyone with persistent or periodic low grade fever get test for the tick borne bacteria if you have EVER been bitten by a tick or been in a tick infested area even if you don't think you were bitten. Some of them are so small, you may not have been aware of the bite. Many people do not get the warning signs of a rash for Rocky Mountain spotted fever or the bulls-eye for Lyme disease. These bacterial infections can cause many different symptoms including low grade fever, body aches and pains, headache, mental fog or confusion, I don't have night sweats but some people report this. Increased light and sound sensitivity, twitches, loss of appetite, etc. It is a blood test to have this checked out. Ask to be tested for all 3 tick borne infections.
    outdoor 4 Replies
    • August 23, 2011
    • 07:29 PM
    • 0
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  • Hi,I keep having bodyache especially in the neck and arms,short duration chill sensation and low grade fever.This has been for 1 year now.Taking paracetamol and antibiotic it helps for somethime but it keep re occur again and again.Especially when exposed to wind or cold weather i'l be prone to fall ill and worse.I keep the habits of wearing thick cloths covering the mouth and neck region,doing this it somehow me feel little better.I lose appetite as well.I was diagnosed as Viral and enteric fever on may 2011 and since then the symptoms keeps recurring again and again tii now..if there amongs you with this kind of experience,kindly share your feedbacks.
    venture 1 Replies Flag this Response
  • I have a few ideas of what I might be, but please be aware that sometimes, people have combinations of conditions so you may have more than just one besides the ones you already know about.Chronic Fatigue Syndromehttp://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002224/Idiopathic Thrombocytopenia (often referred to as Idiothrombocytopenia or ITP for short) (short-term condition) / Thrombocytopenia (TP)(longterm condition) - from low platelets in blood and protein deficiencyhttp://www.mayoclinic.com/health/thrombocytopenia/DS00691http://www.mayoclinic.com/health/idiopathic-thrombocytopenic-purpura/DS00844I can definitely see how CFS might cause ITP/TP. Being tired all of the time, having appetite fluctuations in combination with low quality sleep can cause ITP/TP. If you're excessively tired, you could miss meals and thus the nutrition you need to ward off ITP/TP.I had ITP before just from being depressed for like 2 weeks and being on a crappy work/school schedule that left time for little sleep. The depression left me with a very low appetite. I had chills and fever episodes, lack of energy, unexplained bruising, etc.Do you have any small red pin-sized dots that might look like a rash around the bruising? Do you have episodes of prolonged itching that can't be relieved? These are also symptoms of ITP. The red dots and itching are from the ends of your capillary vessels bleeding. Your blood is basically breaking down. Course of treatment is usually prednisone with high-protein diet and possibly mood-regulating medication to help you regain the energy to eat and stay healthy. Sometimes you're given medication to help your blood clot.Definitely discuss these possibilities with all of your doctors and don't just rely on 1 doctor to give a diagnosis. ITP/TP is considered a life-threatening condition by the way where you need immediate attention because you're basically bleeding from the inside and if you bruise yourself, you could be bleeding to death internally. You're usually required to stay in the hospital for at least a 24-hour sometimes 48-hour observation. You have to continue to monitor your diet and make sure you get sufficent protein (eggs, nuts, meat, etc).
    Anonymous 42,789 Replies Flag this Response
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