Discussions By Condition: I cannot get a diagnosis.

I AM DOOMED !!! Constant Overheating & Neurological Damage after Drug Overdose

Posted In: I cannot get a diagnosis. 28 Replies
  • Posted By: Unlucky
  • January 15, 2009
  • 04:36 PM

I seem to be one of the few people on this planet if not the only person on earth who has developed this extremely rare condition following a recreational drug overdose which has left me with very unusual neurological damage and symptoms that are so odd and twisted that I may never find a full diagnosis for and also face further complications with scepticism due to the rarity and unexplainable nature of my condition.

What is one to do when they are absoloutely certain without a doubt that they dont have any psychological related, anxiety, depression or any psychosamatic issues yet their neurological damage has activated parts of their autonomic nervous system as a result of "Autonomic Dysfunction" (Dysautonomia) and because of this they share some of the physical common traits with psychosamatic illneses although they lack the emotional component found in anxiety related illneses. Furthermore my attempts to find a diagnosis are further overshadowed by the fact that my condition is so rare that the symptoms that cant be explained get quickly labeled as "Post Traumatic Stress Disorder or Conversion and Somatization Disorders".

The only way I can get help is to prove myself but I am not sure how to do this, especially to new doctors. Ironically the only psychological stress and anxiety related problem I am now begining to develop is due to the stress from dealing with sceptical people and years of frustration they have caused me by prolonging my diagnosis and the feeling of helplesness faced with such a rare cruel illness.

My problem is so complicated that I fear if I didnt explain it properly I would be greatly misunderstood yet the complexity of it all is so intense that I cannot sum it up in a few words but I will attempt to do so and I hope you guys can overlook any vague explanations.....

THE ILLNESS
------------
It all started suddenly overnight 9 years ago when I overdosed on a combination of the party drugs Meth and Ecstacy during sexual activity, previously I had been using these drugs at rave party's without any previous problem or side effects. The Overdose resulted in severe life threatening hyperthermia where I only survived after being treated with cooling measures in hospital. The very first thing I noticed after my recovery from hospital was that I was now left with unusal symptoms from the overdose which were...a constant daily overheating / fevers, inability to engage in sexual activity due to severe involuntary muscle spasms from arousal and hyperthermia and irregularity in heart from further sexual activity, and also an allergic type reaction to all recreational drugs which later made any further attempts to use these drugs impossible as any attempt resulted in hyperthermia.

It seemed the overdose had somehow triggered this and the hyperthermia had damaged my hypothalamus responsible for my body's temperature control causing me to overheat constantly everyday for the past 9 years and I believe the fact that it happened during sex initially whilst the brain was flooded with certain hormones only complicated the damage further.

Despite my newfound allergy to recreational drugs I idiotically and wrecklessly perceeded to trial them in the following weeks after my release from hospital, I would take the smallest amount and then spend the entitre night under a cold shower due to the intense hyperthermia I would develop, wasnt long before things went from bad to worse during what was to be my last trial with drugs I found myself with severe chest pains unable to move along with hyperthermia. This time it was permanent as the symptoms become chronic and persisted everyday in the months to follow and I had now developed a full blown condition which soon after became diagnosed for as being "Autonomic Neuropathy / Dysfunction and P.O.T.S. (Postural Orthastatic Tachycardia Syndrome). But this was only a partial disagnosis as for most of my symptoms still remain undiagnosed.

Most people with P.O.T.S and Multiple Sclerosis have heat intolerance but with me its actual severe overheating mainly because my Dysautonomia dveloped after a drug overdose which is not documented in literature othe rthan myself. For the first 10 months I was unable to go out into the sun and spent everyday indoors trying to cool down infront of a cooling air conditioner, even now in winter I require additional cooling, I carry a water bottle spray everywhere and wear a cooling vest, any sexual activity further distrupts my body temperature and results in hyperthermia, I have emberasingly been to ER several times after sexual activity where they found abnormally high temperatures above 38c due to my overheating.

Furthermore I have also developed a major chemical sensitivity following the overdose 9 years ago which makes it impossible even today when I try to take painkillers for chronic pain. I have tried every painkiller out there and had adverse reactions for each one ranging from respiratory depression, difficulty swallowing, rash, irregular heart, increased high blood pressure and hyperthermia. Ive seen many specialists but no one knows why Ive developed a reaction to such a broad spectrum range of anelgesics and stimulants. This is uncommon and again very rare even within Dysautonomia even though most have chemical sensitivity its not as broad as mine.

I've really messed myself up and I cant find anyone to help me or work out what areas I've exactly damaged, they only been able to diagnose the Dysautonomia but everything else remains a mystery. I find it so difficult trying to convince new doctors that none of its in my head and telling them that I'm calm, relaxed and that there is no emotional thoughts in my head whatsoever even when my symptoms become exteremely severe just dosent seem to be enough for them. What do I do? Please someone help me.

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28 Replies:

  • Hi !My name is Pam and I have POTS. I have extreme sensitivities to all chemicals, including OTC drugs, fragrances, etc...so I don't think that you are that unusual in that respect. I too am very sensitive to heat and can not be in the heat, hot tubs, hot showers, etc...again, not that unusual...Good luck getting a DR. to help. I was misdiagnosed for 15 years as anxiety, depression, etc..even tho my main symptom was heart palps, tachycardia, and bradycardia. Wishing you all the luck !Pamela
    pamelasmc 82 Replies
    • January 16, 2009
    • 02:51 AM
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  • Hi.. i too are going to say similar to what Pam has just told you. I have a condition which has given me POTS, (I have sympathetic nervous dysfunction due to this condition so my body cant regulate it's BP properly either, POTS etc) and cause of the condition I have (CFIDS.. Ive read that 50% of those with POTS have the POTS as part of CFIDS, these can be overlapping disorders). I have multiple chemical sensitivity too eg react to perfumes, many drugs etc along with being sensitive to many foods (many food intollerances). My body is sensitive to so many things, Ive even reacted to some brands of vitamins!. With my issues Ive also had heart symptoms (as part of the CFIDS.. i dont know if heart issues are a POTS thingy too or not other than that fast heartbeat of beats.. umm i guess other heart issues would feature too???). Sexual activity is a kind of exertion.. and it sounds as if you get a fever from it (over heating). That kind of thing can happen in CFIDS but as you dont get fevers with other forms of exertion (or maybe you just didnt mention it??) i doubt if this over heating thing is from the exertion itself so it dont really sound like CFIDS. (You also dont mention other very common symptom of CFIDS so i dont think you have CFIDS). Ones with POTS can overheat very easily (this has lead me at times into going completely unconscious). To me it does sound as if you have damaged your system and hence now getting these symptoms.
    taniaaust1 2,267 Replies
    • January 16, 2009
    • 03:36 AM
    • 0
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  • even today when I try to take painkillers for chronic pain. The more ive looked at your post, the more Im wondering if you have left out symptoms you are getting. Do you get chronic pain too?? if so explain the pain?? Also are you getting other symptoms you didnt mention in your post eg sleeping issues? eg hypersomina, insomina etc . Do you get the over heating after other activities, not just sex? Do you suffer from exhaustion??? if so is this restricting your life? any other symptoms you didnt mention .. immune like symptoms???
    taniaaust1 2,267 Replies
    • January 16, 2009
    • 03:43 AM
    • 0
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  • Thank you all for your response, It is reassuring that I am not entirely alone in my symptoms but I guess what sets me apart is the fact that my symptoms are an amplified version found in other POTS and Dysautonomia patients and for that I blame the actual drug overdose because thats what complicated my condition into what it is today, if i just had a common version of POTS or Dysautonomia it would not be as bad. Most of you guys have heat intolerance right? well mine goes beyond that because I actully generate excessive heat regardless of the weather, it could be freezing cold in the dead of winter and I still sit in front of my air conditioner either topleess or in a t-shirt still trying to cool down whilst my folks have the heater on in the other room. That makes no sense even for Dysautonomia :confused: You guys have asked some great question, ones I've actually thought about myself, As for sex its not just the exertion because I get a massive heat rush upon climaxing where I feel like suddenly a furnace was switched on in my body and then I get severely ill from the heat for the next 30 mins or so but if I stop right before climaxing im not effected so to me this indicates that the actual mechanics in the brain that trigger during an orgasm are actually the cause not the exertion. I understand often in Dysautonomia people also have chemical sensitivities but if they cant take one anelgesic they can take another, theres always alternatives but in me its a massive wide spectrum chemical sensitivity towards all sedatives, anelgesics and stimulants including diazapems, alcohol, morphine, tramadol (Ultram), oxycodone, hydromorphone, codene, fentayl, buprenorphine, digesic, etc.... and beacuse of this I get looked upon with even more scepticism by the medical world.... As for pain its throughout all my joints and connective areas in my body along with detreoration and abnormalities showing torn ligaments and cartlige inboth knees. both ankles, both shoulders again of unknow origin and not related to arthritis. Something really messed up in my body and Im afraid it may never get diagnosed.
    Unlucky 15 Replies
    • January 16, 2009
    • 07:04 AM
    • 0
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  • Do you get chronic pain too?? if so explain the pain?? - the pain is in all my joints ranging from a raw open flesh wound type feeling to sharp to dull ache and worse when I move or walk, the longer I walk the worse it gets and after about a 10 min walk I findmyself limping and staggering. Also are you getting other symptoms you didnt mention in your post eg sleeping issues? eg hypersomina, insomina etc . -My sleep is great, I get from about 6 - 10 hours sleep, my mood is great, I'm cheerful and motivated, I've accepted my illness and keep positive about it although I would like to find a diagnosis I try not to let it get me down. Do you get the over heating after other activities, not just sex? - I get overheated no matter what I do, I could be sitting down watching a movie or sleeping and suddenly waking up overcooked but it certainly gets worse when I exert myself but the overheating I get from sex or an adverse drug reaction is different and a lot more severe and intense its more like hyperthermia than just overheating. Do you suffer from exhaustion??? if so is this restricting your life? - Luckily and thankfully I dont get exhausted easily, I've often heard bout CFS and CFIDS and during a few of my adverse reactions I've ended up in bed the next day fatigued and imagined thats what CFS would feel like but usually im quite motivated and energetic. any other symptoms you didnt mention .. immune like symptoms??? - No just the Dysautonomia or POTS related symptoms, which effect all my body's automatic functions.- the Chronic pain symptoms effecting all my joints.- the unknow symptoms of constant overheating which do worsen with exertion and warm external factors. - the severe adverse reactions and hypersensitivity mainly to all psychoactive drugs.-the worsening of my tempearture everytime I have an adverse reaction - problems with sexual activity resulting in high fevers and feeling ill and muscle spasms from arousal.
    Unlucky 15 Replies
    • January 16, 2009
    • 07:37 AM
    • 0
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  • You`re right,somehow you`ve managed to mess up your hypothalamus the area of our brains responsable with the temperature control;i`m afraid you`ll have to put up with your condition the rest of your life...
    Anonymous 42,789 Replies
    • January 16, 2009
    • 09:21 AM
    • 0
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  • Our bodies regulate heat by sweating.Do you sweat?
    richard wayne2b 1,232 Replies
    • January 16, 2009
    • 02:58 PM
    • 0
    Flag this Response
  • Thank you all for your response, It is reassuring that I am not entirely alone in my symptoms but I guess what sets me apart is the fact that my symptoms are an amplified version found in other POTS and Dysautonomia patients and for that I blame the actual drug overdose because thats what complicated my condition into what it is today, if i just had a common version of POTS or Dysautonomia it would not be as bad. Most of you guys have heat intolerance right? well mine goes beyond that because I actully generate excessive heat regardless of the weather, it could be freezing cold in the dead of winter and I still sit in front of my air conditioner either topleess or in a t-shirt still trying to cool down whilst my folks have the heater on in the other room. That makes no sense even for Dysautonomia . You guys have asked some great question, ones I've actually thought about myself, As for sex its not just the exertion because I get a massive heat rush upon climaxing where I feel like suddenly a furnace was switched on in my body and then I get severely ill from the heat for the next 30 mins or so but if I stop right before climaxing im not effected so to me this indicates that the actual mechanics in the brain that trigger during an orgasm are actually the cause not the exertion. I understand often in Dysautonomia people also have chemical sensitivities but if they cant take one anelgesic they can take another, theres always alternatives but in me its a massive wide spectrum chemical sensitivity towards all sedatives, anelgesics and stimulants including diazapems, alcohol, morphine, tramadol (Ultram), oxycodone, hydromorphone, codene, fentayl, buprenorphine, digesic, etc.... and beacuse of this I get looked upon with even more scepticism by the medical world.... As for pain its throughout all my joints and connective areas in my body along with detreoration and abnormalities showing torn ligaments and cartlige inboth knees. both ankles, both shoulders again of unknow origin and not related to arthritis. Something really messed up in my body and Im afraid it may never get diagnosed. Richard Wayne..... No I've lost the ability to sweat which is quite common with Dysautonomia, the lack of sweat accounts for the heat intolerance and overheating in summer but how does it explain the constant overheating even in very cold weather or the hyperthermia during adverse drug reactions?
    Unlucky 15 Replies
    • January 16, 2009
    • 03:52 PM
    • 0
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  • Thank you all very much for your response, and attempts to help me, It is reassuring that I am not entirely alone in my symptoms but I guess what sets me apart is the fact that my symptoms are an amplified version found in other POTS and Dysautonomia patients and for that I blame the actual drug overdose because thats what complicated my condition into what it is today, if i just had a common version of POTS or Dysautonomia it would not be as bad. Most of you guys have heat intolerance right? well mine goes beyond that because I actully generate excessive heat regardless of the weather, it could be freezing cold in the dead of winter and I still sit in front of my air conditioner either topleess or in a t-shirt still trying to cool down whilst my folks have the heater on in the other room. That makes no sense even for Dysautonomia You guys have asked some great question, ones I've actually thought about myself, As for sex its not just the exertion because I get a massive heat rush upon climaxing where I feel like suddenly a furnace was switched on in my body and then I get severely ill from the heat for the next 30 mins or so but if I stop right before climaxing im not effected so to me this indicates that the actual mechanics in the brain that trigger during an orgasm are actually the cause not the exertion. I understand often in Dysautonomia people also have chemical sensitivities but if they cant take one anelgesic they can take another, theres always alternatives but in me its a massive wide spectrum chemical sensitivity towards all sedatives, anelgesics and stimulants including diazapems, alcohol, morphine, tramadol (Ultram), oxycodone, hydromorphone, codene, fentayl, buprenorphine, digesic, etc.... and beacuse of this I get looked upon with even more scepticism by the medical world.... As for pain its throughout all my joints and connective areas in my body along with detreoration and abnormalities showing torn ligaments and cartlige inboth knees. both ankles, both shoulders again of unknow origin and not related to arthritis. Something really messed up in my body and Im afraid it may never get diagnosed.
    Unlucky 15 Replies
    • January 16, 2009
    • 03:53 PM
    • 0
    Flag this Response
  • Our bodies regulate heat by sweating.Do you sweat? No I've lost the ability to sweat which is quite common with Dysautonomia, the lack of sweat accounts for the heat intolerance and overheating in summer but how does it explain the constant overheating even in very cold weather or the hyperthermia during adverse drug reactions?
    Unlucky 15 Replies
    • January 16, 2009
    • 03:57 PM
    • 0
    Flag this Response
  • I suspect it's because our bodies are constantly heating up so that even in cold weather you have a degree of hyperthermia.
    richard wayne2b 1,232 Replies
    • January 16, 2009
    • 04:50 PM
    • 0
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  • I'm not certain where you formed the notion that Ecstasy use has damaged your anterior hypothalamus, but I would characterize it more as absurd rather than rare. The anterior hypothalamus is responsible for far more functions than body temperature regulation and I'm constrained to point out that the effects of the drug could not target a specific function of the gland, but rather the tissues themselves that would produce a myriad of symptoms that aren't being mentioned. You actually suffer from sympathomimetic poisoning and agitiation-induced hyperthermia in my opinion. It is not uncommon and I would question whether your choice to terminate use of sympathomimetic agents in general is past-tense. You should realize that MDMA can cause long-term dysfunction of serotonergic axon activity that can be quite debilitating and I would caution you that in some cases, it is irreversible. Decreased sweating is also a sympathomimetic response. I do not believe there is any damage to your anterior hypothalamus, but would conclude that you could indeed be "doomed" if you continue to throw caution to the wind. Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • January 17, 2009
    • 01:47 AM
    • 0
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  • I'm not certain where you formed the notion that Ecstasy use has damaged your anterior hypothalamus, but I would characterize it more as absurd rather than rare. That notion was formed by my neurologist suggesting that perhaps something as small as an axon or neuron within the hypothalamus may have been effected. He also also suggested that something very smal like a misfiring axon could have rippled larger effects throughout the body, he based it on the notion the larger parts of the brain responsible for my motor skills, reflexes and other skills were in excellent condition and that the damage was isolated to the the mid area of the brain around the preoptic or hypothalamus which coresponded with the symptoms im having. I would question whether your choice to terminate use of sympathomimetic agents in general is past-tense. Whilst I really apreciate your help and will mention your suggestions to my Autonomic specialists and Neurologist, I am somewhat offended by your mistrustful response about wether I still use sympathomimetic drugs. Im not going to get the help I need by lying or holding back, cause ultimately false or wrong information only further hinders my own diagnosi, 've layed all my cards on the table without hesitation. Furthermore when you make a statement like that it makes me realise that you really dont understand the extent of my chemical sensitivity and adverse reaction and how severe the whole experince is. For me to try any recreational drug now would mean suicide because I have a hard enough time with my body whilst im sober let alone dealing with the adverse effects of any stimulant. Im not overplaying anything when I say I have a very severe chemical hypersensitivity to all psychoactive subtances. Thats part of the reason why I'm so troubled and why I'm here because a its just not righ that my body should be this sensitive. A chemical sensitivity like this puts me at risk for when I need emergency treatment or surgery due to the use of anelgesics, I've avoided my knee surgery because of this and I've opted to have my upcoming gastroscopy and colonoscopy without being sedated. I feel like I'm walking a tightrope without a net simply because my body is not functioning in a normal way. The last time I ever took any recreational drugs was 9 years ago upon which I immideately developed full blown Autonomic Dysfunction as a result, since then its been downhill, sure a part of me wishes I could get high again ocassionally but its simply impossible in my current state and not an option anymore.
    Unlucky 15 Replies
    • January 17, 2009
    • 10:32 AM
    • 0
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  • I'm not certain where you formed the notion that Ecstasy use has damaged your anterior hypothalamus, but I would characterize it more as absurd rather than rare. That notion was formed by my neurologist suggesting that perhaps something as small as an axon or neuron within the hypothalamus may have been effected. He also also suggested that something very smal like a misfiring axon could have rippled larger effects throughout the body, he based it on the notion the larger parts of the brain responsible for my motor skills, reflexes and other skills were in excellent condition and that the damage was isolated to the the mid area of the brain around the preoptic or hypothalamus which coresponded with the symptoms im having. I would question whether your choice to terminate use of sympathomimetic agents in general is past-tense. Whilst I really apreciate your help and will mention your suggestions to my Autonomic specialists and Neurologist, I am somewhat offended by your mistrustful response about wether I still use sympathomimetic drugs. Im not going to get the help I need by lying or holding back, cause ultimately false or wrong information only further hinders my own diagnosi, 've layed all my cards on the table without hesitation. Furthermore when you make a statement like that it makes me realise that you really dont understand the extent of my chemical sensitivity and adverse reaction and how severe the whole experince is. For me to try any recreational drug now would mean suicide because I have a hard enough time with my body whilst im sober let alone dealing with the adverse effects of any stimulant. Im not overplaying anything when I say I have a very severe chemical hypersensitivity to all psychoactive subtances. Thats part of the reason why I'm so troubled and why I'm here because a its just not righ that my body should be this sensitive. A chemical sensitivity like this puts me at risk for when I need emergency treatment or surgery due to the use of anelgesics, I've avoided my knee surgery because of this and I've opted to have my upcoming gastroscopy and colonoscopy without being sedated. I feel like I'm walking a tightrope without a net simply because my body is not functioning in a normal way. The last time I ever took any recreational drugs was 9 years ago upon which I immideately developed full blown Autonomic Dysfunction as a result, since then its been downhill, sure a part of me wishes I could get high again ocassionally but its simply impossible in my current state and not an option anymore.
    Unlucky 15 Replies
    • January 17, 2009
    • 01:24 PM
    • 0
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  • I'm not certain where you formed the notion that Ecstasy use has damaged your anterior hypothalamus, but I would characterize it more as absurd rather than rare. That notion was formed by my neurologist suggesting that perhaps something as small as an axon or neuron within the hypothalamus may have been effected. He also also suggested that something very smal like a misfiring axon could have rippled larger effects throughout the body, he based it on the notion the larger parts of the brain responsible for my motor skills, reflexes and other skills were in excellent condition and that the damage was isolated to the the mid area of the brain around the preoptic or hypothalamus which coresponded with the symptoms im having. I would question whether your choice to terminate use of sympathomimetic agents in general is past-tense. Whilst I really apreciate your help and will mention your suggestions to my Autonomic specialists and Neurologist, I am somewhat offended by your mistrustful response about wether I still use sympathomimetic drugs. Im not going to get the help I need by lying or holding back, cause ultimately false or wrong information only further hinders my own diagnosis, I've layed all my cards on the table without hesitation. Furthermore when you make a statement like that it makes me realise that you really dont understand the extent of my chemical sensitivity and adverse reaction and how severe the whole experince is. For me to try any recreational drug now would mean suicide because I have a hard enough time with my body whilst im sober let alone dealing with the adverse effects of any stimulant. Im not overplaying anything when I say I have a very severe chemical hypersensitivity to all psychoactive subtances. Thats part of the reason why I'm so troubled and why I'm here because a its just not righ that my body should be this sensitive. A chemical sensitivity like this puts me at risk for when I need emergency treatment or surgery due to the use of anelgesics, I've avoided my knee surgery because of this and I've opted to have my upcoming gastroscopy and colonoscopy without being sedated. I feel like I'm walking a tightrope without a net simply because my body is not functioning in a normal way. The last time I ever took any recreational drugs was 9 years ago upon which I immideately developed full blown Autonomic Dysfunction as a result, since then its been downhill, sure a part of me wishes I could get high again ocassionally but its simply impossible in my current state and not an option anymore. You sound like an intelligent person as your suggestiong about sympathomimetic poisoning symptoms after looking them up on the web sound exactly like what I'm experiencing however its occuring with the opioid painkillers I'm using for chronic pain nowdays, as I dont take any sympathomimetic agents anymore, I'm certain if I tried any stimulant or recreational drug the response would be much worse than the opiods im taking in small doses for pain. So unless there is some sort of sympathomimetic poisoning that also occurs with opioids then this still remains a mystery.
    Unlucky 15 Replies
    • January 18, 2009
    • 00:50 AM
    • 0
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  • sorry about the triple identical posts its just that I replied over 12 hours ago yesterday and when I woke up this morning my responses had not appeared yet so I though maybe there was an error so I reposted, and this time the comments came up immideately later followed my the previous trials hence the 3 same responses :o please moderator can you delete the other two comments #14 and #15, thanks
    Unlucky 15 Replies
    • January 18, 2009
    • 05:04 AM
    • 0
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  • I would also like to add that the adverse reactions I have differ for every pain killer I've trialled, whilst medications like morphine, fentanyl and codene cause me adverse reactions which are more sedative and supress my vitals and breathing and drop my blood pressure, other painkiller like tramadol, hydromorphone and oxycodone have adverse reactions that are more neuroexcitory and cause confusion, agitatition and increased blood pressure. Lately Ive been using oxycodone through the preocess of desensitisation by taking small amounts everyday but when I increase it to to a level enough to start pain relief which is around 5 mg then it causes my blood pressure to rise above 150/80 and my heart rate drops below 50 and I experience extereme pressure and compressions sensation in my head and in my bilateral temples and a afeeling like my ears and head is going to burst from the pressure. The pressure in my head always coincides with actual high blood pressure and a very low heart rate, this never happens with other pain meds like morphine which seem to do the opposite and drop my blood pressure. Why am I having such varied response to different medications?
    Unlucky 15 Replies
    • January 18, 2009
    • 10:37 PM
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  • Still seeking help
    Unlucky 15 Replies
    • January 21, 2009
    • 00:44 AM
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  • I would also like to add that the adverse reactions I have differ for every pain killer I've trialled, whilst medications like morphine, fentanyl and codene cause me adverse reactions which are more sedative and supress my vitals and breathing and drop my blood pressure, other painkiller like tramadol, hydromorphone and oxycodone have adverse reactions that are more neuroexcitory and cause confusion, agitatition and increased blood pressure. Lately Ive been using oxycodone through the preocess of desensitisation by taking small amounts everyday but when I increase it to to a level enough to start pain relief which is around 5 mg then it causes my blood pressure to rise above 150/80 and my heart rate drops below 50 and I experience extereme pressure and compressions sensation in my head and in my bilateral temples and a afeeling like my ears and head is going to burst from the pressure. The pressure in my head always coincides with actual high blood pressure and a very low heart rate, this never happens with other pain meds like morphine which seem to do the opposite and drop my blood pressure. Why am I having such varied response to different medications? Ive been thinking about your case more and wonder if you have any other undiagnosed issue with your BP going on on top of the POTS. i ask that as i know if one has POTS it is possible to have other very uncommon BP issues as well which are even more missed or ignored than POTS is. Im my own case I have POTS as well as I have orthostatic dystolic hypertension too. (im not saying that's your problem but just wanted to point out that one can have other unusual BP issues on top of the POTS). Once the body starts malfunction in these kinds of ways.. all kinds of other issues due to the malfunctioning can come in. While researching my orthostatic dystolic hypertension, i came across another illness which unfortunately i cant remember the name of now. But it was some kind of autonomic failure in which ones got BP issues.. with BP not acting as it should do. Those with this issue had to be extremely careful with meds due to the way they could react dramatically on the BP. Many who had this issue didnt even know about it until something life threatening had happened with thier BP in which it went too high or too low. Due to all this Im wondering if you have had any 24 hr BP monitoring done? and if you havent had so. That could be a good idea.
    taniaaust1 2,267 Replies
    • January 21, 2009
    • 05:20 AM
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  • hey!! this is gears i had exactly similar problem like you experiencing the ***l daily is really frustrating to me trust me you and i have hypothalmus failure that result in overheating of body the body negative temperature feedback fails due to hypothalmus malfunction which leads to constant overheating irrespective of the climatic temperature variations even in winter season or the rainy season the body overheats too!! first of all listen carefully to me i can help you trust me check the thyroid levels i.e t3 t4 tsh by taking a blood test detect any abnormal changes in levels if the tsh levels are low indicates a hyperthyroidism if the tsh levels are normal or high and also the t4 levels are high you have a secondary hyperthyroidism that sets the control point of hypothalmus thermostat too high which results in body overheating...there is absolutely no doubt in that you have either hypothalmus malfunction or the hypothalmus failure takes place in you brain. i really experienced the ***l even the hiv is better than hyperthyroidism if you feel any intense in overheating take paracetomal tablets such as fedoral that cools the body down at high temperatures you may feel better what you need to do is report the thyroid levels t3 t4 tsh and reply to me!! so i can examine your levels..
    Anonymous 42,789 Replies Flag this Response
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