Discussions By Condition: I cannot get a diagnosis.

Numbness, hot sensations spreading through body

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: KangaStu
  • November 19, 2008
  • 10:20 PM

Hi

Two years ago I woke up one morning and the left side of my tongue was completely slack. I had MRI, CT Scan, lots of blood tests, two lumbar punctures, many physical exams. I was admitted to a specialist Neurology ward at the Austin Hospital in Melbourne. Over that week, numbness spread from the left corner of my mouth, gradually spreading over the left side of my head. I had about 60% numbness, and the vision in my left eye was effected. No muscle strength changes, other than in my tongue were experienced.

After a week, I was sent home. They said I may have had a virus, but they didn't know,.'Hopefully it will get better'.

about a year ago I was concerned that my memory was being effected. The numbness in the left of my head reduced to about20%, and the use of my tongue improved, but was still not back no normal. I spent several hours with a Clinical Neuropsycologist having cognitive testing. She said that all was OK, but that she thought that I was suffering from depression.

I carried on ...

About 7 weeks ago at work, I suddenly felt a very hot sensation in a patch on the right side of the shin of my right leg. I thought that I had lent on a hot motor. There was nothing there. Over a week, the sensations spread down to the right side of my right foot, and up to my knee. The initial patch feels very hot, as hot as if a hot water bottle was held against my leg, but in the rest of my leg it feels like the heat from a massage oil like tiger balm of eucalyptus oil.

The numbness in my face got worse again too. Some times I can't feel my left eye blink. My tongue has also lost some strength.

In the few weeks since, the numbness in my right leg has spread halfway up my thigh. Then, very quickly, hot/cold sensations and numbness appeared in my left leg. In 3 days, it went from a numb patch about 10 inches across above my knee, to effecting my whole left leg up to my hip joint. I also think that my left arm is effected.

I was tested for heavy metal poisoning a couple of days ago. A urine test. It showed that my zinc levels are very high in my urine.

Three days ago I noticed that the sensation inside my mouth, on the left side, was reduced, and also in my throat. I left work and went up to the Emergency Department at my local hospital. I had a full exam and they took full bloods. They are also testing heavy metal levels in my blood. They have already ruled out MS. I have also had another MRI of my head and upper spine,which showed nothing abnormal. I am still waiting for the blood results.

I have been examined by nearly 30 doctors in the last two years, and none of them have been able to give me a diagnosis. Can you suggest anything else that I could get them to look at? I am obviously getting pretty stressed as more of my body is effected.

Thankyou :confused:

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13 Replies:

  • I think that I have been checked for Lyme Disease. I'll find out. I do have a lot of the symptoms. I'll read up on the other. Thanks for your reply.My strange numbness is progressing quite quickly. :( Since yesterday, it has spread from my left thigh into my hip area, and has started on my left forearm and shoulder. I have also started getting strange feelings (numbness and heat) on the right side of my face, near my lips and nose.I am getting pretty freaked out and don't really know what to do. It's hard to sit and wait for results. I feel like going back to casualty and yelling at people.
    KangaStu 6 Replies
    • November 20, 2008
    • 09:51 AM
    • 0
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  • This is an article on zinc poisoning. http://books.google.com/books?id=OcKLzW0ghbwC&pg=PA220&lpg=PA220&dq=zinc+poisoning+numbness&source=bl&ots=FyrG2YjiLh&sig=S-1u9J4pldQ5cF6jlSnJMXmSHSk&hl=en&sa=X&oi=book_result&resnum=1&ct=result Do you wear dentures? http://www.forthepeople.com/denture_cream_zinc_poisoning.htm
    aquila 1,263 Replies
    • November 20, 2008
    • 08:31 PM
    • 0
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  • Hello, Just in case you missed this one.... Have you had an Electromyography (EMG)? This test can confirm the presence of nerve damage and determine its severity. An EMG measures the electrical activity of a muscle in response to stimulation and the nature and speed of the conduction of electrical impulses along a nerve. It can be quite shocking...just a pun. It is to my experience that some physicians take a "one course" in EMG. It is best to find a doctor that ONLY specializes with EMG. This may make a huge difference. This may solve your issue. Because if they do not know what they are doing, the entire test can be messed up and your results not valid. Therefore leaving you with no answers. I hope this was helpful Just a thought..... Take Care
    happyface 4 Replies
    • November 21, 2008
    • 00:17 AM
    • 0
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  • Hi againYou know things are serious when you have three missed calls in half an hour from the same number, and when you call it back, it's the Hospital Emergency Department.... and when you say your name, they know who you are!! :eek:My numbness has spread to most of the right side of my face in the last 24 hours. My abdomen on the left side, back of shoulders, and left arm are now effected too. Hot/cold and some numbness. I spoke to the Doctor in casualty. Asked about Lyme Disease. He said it's very rare here but he'll look into it. He is concerned that my breathing may be effected because my throat has some numbness. I also have an emergency appointment with Neurology on Monday (It's Friday today). My GP rang me too. Checking up on me.I thought that I would ask for a full Tox Screen, like they do on CSI. The only muscle that has been effected is my tongue. I'll ask the Neurologist about an EMG.Thanks again for your suggestions. The doctors are being very nice when I suggest things. I suppose that as they don't really have any idea what's going on, they are happy for any ideas. LOL:oStu
    KangaStu 6 Replies
    • November 21, 2008
    • 09:55 AM
    • 0
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  • A couple of weeks have now passed, and I have had more blood tests - heavy metals, full bloods, etc. All came back OK. I am waiting for Lyme disease antibody results, and hair mineral analysis results.I now have quite a lot of muscle and joint pain as well. Nearly all of my body is effected by numbness, hot or cold patches. The city that I live in has no neurologists, so I am expecting to have to travel the 100miles to the Capital soon. Don't know how much longer I'll be able to drive and work.:confused:
    KangaStu 6 Replies
    • December 1, 2008
    • 04:15 AM
    • 0
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  • I have a question for you, have you travelled anywhere lately outside of the US? if so you may have something that is not known in the US. Sorry I just wanted to check whether you have been anywhere. fabie2t:confused:
    fabie2t 18 Replies
    • December 1, 2008
    • 08:07 AM
    • 0
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  • HiI live in South East Australia. I traveled to the UK and Europe for 2 years, 10 years ago. I stopped off in Bali and Singapore on the way there and back. I have lived all over Australia.:rolleyes:
    KangaStu 6 Replies
    • December 1, 2008
    • 08:57 AM
    • 0
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  • A sensory neuropathy spreading to various regions could be a cause. An ENG study can diagnose this.If it is a sensory neuropathy, you need further neurological and non-neuro exams (including lumbar puncture) to find the cause for this.
    tsoukase 18 Replies
    • December 1, 2008
    • 11:00 PM
    • 0
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  • I hate to tell you I unfortunately also live in Australia and as a registered nurse, I can assure you that you will not find your answer in this country as 99.9% of doctors are incompetent. There is a remote possibility that you may have contracted some tropical disease, I am not sure. My advice to you is that you should go to Belgium and be seen by my best friend who is a GP or alternatively come to Sydney and see Dr Lyn McKenzie in Coogee/Sydney. I do not wish to put any other information about this doctor as I do not have her authority to publish online her details but you will have no problems finding it in the Sydney yellow pages. If you decide to go to Belgium, which I must say is approximately 40 years ahead in medicine than Australia, I will give you the name of the doctor you need to see. She speaks English fluently. But beware of other doctors in Australia as they are hopeless. Only Dr McKenzie will listen to you and she will search until she finds out what it is you have and she bulk bills. You must take all your medical history with you. You can contact her between 5-6 pm at her surgery but I prefer not to publish her number with no authority to do so.Furthermore you must mention all your traveling experiences and give her a detailed list of all the medical conditions you have had since birth and all symptoms you have had and currently have. fabie2t;)
    fabie2t 18 Replies
    • December 2, 2008
    • 01:00 AM
    • 0
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  • HiI live in South East Australia. I traveled to the UK and Europe for 2 years, 10 years ago. I stopped off in Bali and Singapore on the way there and back. I have lived all over Australia.:rolleyes:I unfortunately also live in Australia for a while and I can assure you that this country is about 40 years backwards from Belgium. I would recommend 1 of 2 things:go to Belgium and i will send you to a doctor there who will work out your problem and she speaks fluent English; or alternativelycome to Sydney and go and see Dr Lyn McKenzie in Coogee. She will listen to you and find out what is going on. You must bring all your pathology, x-rays etc with you and your entire medical history. She also bulk bills. You will find her in the yellow pages for Sydney or ring Telstra to get her phone number. She is in her office Monday, Wednesday, Thursday and Friday between 5-6 pm but I am unsure of her morning times. You do not need an appointment, just show up. She is the only doctor in this country that will listen to you and search till she finds and she does not look at you like a textbook. I am a registered nurse and frankly I have witnessed a lot of medical negligence and I don´t trust doctors in this country except for Lyn. Do not be put off by her office, it is a bit messy and there is no secretary and no computer but she is the most competent GP that you will find here. Otherwise you will need to go to Belgium and that will cost you a packet as you don´t have the right to health care there unless you pay as a non-Belgian.;)
    fabie2t 18 Replies
    • December 2, 2008
    • 02:21 AM
    • 0
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  • Hi againYou know things are serious when you have three missed calls in half an hour from the same number, and when you call it back, it's the Hospital Emergency Department.... and when you say your name, they know who you are!! :eek:My numbness has spread to most of the right side of my face in the last 24 hours. My abdomen on the left side, back of shoulders, and left arm are now effected too. Hot/cold and some numbness. I spoke to the Doctor in casualty. Asked about Lyme Disease. He said it's very rare here but he'll look into it. He is concerned that my breathing may be effected because my throat has some numbness. I also have an emergency appointment with Neurology on Monday (It's Friday today). My GP rang me too. Checking up on me.I thought that I would ask for a full Tox Screen, like they do on CSI. The only muscle that has been effected is my tongue. I'll ask the Neurologist about an EMG.Thanks again for your suggestions. The doctors are being very nice when I suggest things. I suppose that as they don't really have any idea what's going on, they are happy for any ideas. LOL:oStuI have posted a reply to you that Australia is full of incompetent doctors but it does not seem to appear. I have suggested to you that you come to Sydney and see Dr Lyn McKenzie in Coogee as she will listen to you and find out what the problem is. You will find her in the yellow pages. you can email me at fmjnt@yahoo.fr
    fabie2t 18 Replies
    • December 4, 2008
    • 02:14 AM
    • 0
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  • Thanks fabie2tI like Belgium! Would love to go back for a visit. Brugge is one of my favourite places in the world. . I don't have the money at the moment though :rolleyes: LOL. I'll keep your Sydney doctor in mind. I am in Victoria.I am about to go back to my GP and hassle her for some action. She really is very good, but I don't think that she is getting much help from the system. I'll post if anything happens. My numbness/hotness/ coldness is now over my whole body. The muscle and joint pain is worsening every day, and my legs are getting weaker. I am getting very depressed. Bad tempered at times too :mad:. My wife has just asked me if it could all be down to depression. Something like psychosomatic. I don't think it is. I have asked doctors if it could be but they said no. If anyone else has any suggestions I'd be very appreciative...Stu
    KangaStu 6 Replies
    • December 4, 2008
    • 03:05 AM
    • 0
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  • I now have a diagnosis. Fibromyalgia! Two years and 38 doctors later. Not fatal, but bloody awful. At least I know what it is. See my blog. Kangastu.blogger.com :(
    KangaStu 6 Replies Flag this Response
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