Discussions By Condition: I cannot get a diagnosis.

Swelling across bridge of nose and corners of the eyes

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Calif_Jet
  • October 31, 2008
  • 03:17 PM

My grandson had a seizure and was put on phenytoin generic for dilantin. He has not had a seizure since, the pills caused acne so he is taking antibiotics and using creams for it, which is helping some. Now a new problem as arisen, across the top of his nose it swells up and also swells up the corners of both eyes by the nose, and between his eyebrows there is a round swollen section. His neurologist thought it could be angio edema, but he has never seen this happen to anyone on this medication, he wants him to go to Stanford Medical Center. We took him to his allergist and he ran all kinds of blood tests and found nothing, he suggested to stop the antibiotics for the acne, but that did not help the problem. We took him to a ear nose and throat doctor and he did xrays and could find nothing. Does anyone know what kind of doctor we should go see, or has anyone ever known this to happen to anyone.

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3 Replies:

  • He may still have angioedema. There is a type of this disease that does not show up in normal blood testing, called HAE Type III. You need a very good immunologist. I would also have your grandchild tested for celiac disease if the allergist didn't already do so as seizures can be caused by gluten (i.e. wheat product) intolerance. More on HAE here: www.haea.org
    aquila 1,263 Replies
    • October 31, 2008
    • 07:49 PM
    • 0
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  • Does he have any kind of sinus problems at all? The sinuses can cause the kind of swelling you mention. Kiera
    Anonymous 42,789 Replies
    • October 31, 2008
    • 07:51 PM
    • 0
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  • Thanks to both of you. We are taking him to get that blood test, and I also printed out all the info on the link you sent me for it...Thank you so much.
    Calif_Jet 2 Replies
    • November 1, 2008
    • 00:18 PM
    • 0
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