Discussions By Condition: I cannot get a diagnosis.

Constant back discomfort & tight muscles

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Stephanie953
  • August 23, 2008
  • 08:37 AM

Hello. I am 21 years old and have had a back problem since I was 15 years old. It started one day when I woke up and I did not want to move because I felt such intense pain in my back. I went to the ER and they gave me muscle relaxers. I have seen several doctors and had many tests. I was told I might have arthritis and ankylosing spondylitis. I have a slight curve in my spine, I constantly feel discomfort in my back, neck, and shoulders, my muscles in those areas are very tight, and often my neck feels like a toothpick with a bowling ball on top of it. I am desperate to find out what is wrong. Can anyone help?

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8 Replies:

  • I have many issues with my muscles tensing up and burning like pain. I was diagnosed with Fibromyalgia and Myofasial Pain Syndrome. I also have Scolosis. ankylosing spondylitis should show up in your bloodwork if they are testing you for Arthritis. They have a special bloodtest for it. I would try moist heat when it gets really bad. Try to avoid narcotic pain medications because they are addictive and hard to get off of. Talk to your Dr about the newer antidepressants which help with pain receptors and serotonin,something like Cymbalta or Lyrica see if these help over time...they take 4-6weeks to feel full affect. Another thing I take is Melatonin @ nite to help me sleep which since I started taking it, I dont wake up in so much pain cus Im having a better nites sleep
    kitcat48 80 Replies
    • August 24, 2008
    • 03:30 PM
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  • I have many issues with my muscles tensing up and burning like pain. I was diagnosed with Fibromyalgia and Myofasial Pain Syndrome. I also have Scolosis. ankylosing spondylitis should show up in your bloodwork if they are testing you for Arthritis. They have a special bloodtest for it. I would try moist heat when it gets really bad. Try to avoid narcotic pain medications because they are addictive and hard to get off of. Talk to your Dr about the newer antidepressants which help with pain receptors and serotonin,something like Cymbalta or Lyrica see if these help over time...they take 4-6weeks to feel full affect. Another thing I take is Melatonin @ nite to help me sleep which since I started taking it, I dont wake up in so much pain cus Im having a better nites sleepThanks for the reply. I never had the blood test for ankylosing spondylitis. It is an addition test looking for a gene. I was 16 years old and very soon after got fed up with doctors to the point where I decided to just deal. The arthritis doctor I was seeing put me on an extremely high dose of an anti inflammatory too often. I was so sick for about a week and a half. I had migraines so bad that I piled blankets on my head because if I saw one bit of light or a loud sound I would get sick. Then I told my primary care doctor what I was taking and he said this is way too strong. This dosage is for someone much bigger your body couldn't handle it. Then he proceeded to tell me that he had several complaints about this doctor. I dumbfounded at why he would send me to someone he had so many complaints about and just that was the last straw. Yeah pain killers are a big no for me. They are not sure what's wrong and I am rather young so I don't want to depend on them.
    Stephanie953 1 Replies
    • August 26, 2008
    • 01:22 AM
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  • I dont know where U live but where I am in Ontario,Canada, we have a limited amount of Dr's specializing in Arthritis conditions in our area, and this is probably why your Dr sent U to the one U saw.When my husband was diagnosed with Rheumatoid Arthritis, we only had one specialist he could see in his area & this Dr refused to accept fact that my husband needed 2 total knee replacements cus he was only 44 yrs old, wanted him to take medications with many side effects basically for until he was in his 50's, before even considering surgery. Ended up hubbie seen orthosurgeon for a cyst in back of knee for removal seen the damages to both his knees, and he has had 2 total knee replacements. Inregards to your hesitation of Dr's in general, Its important for your family dr to be sure U have all necessary tests to find out cause of whatever is making you so sore. He needs to check the rheumatoid factor in your blood to see if the levels are high and hopefully find you a better specialist in your area to treat it. Good luck hon As EvErCat
    kitcat48 80 Replies
    • August 27, 2008
    • 01:08 AM
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  • You need to see a physician. Maybe you should ask for a referral to a Rheumatologist. A Rheumatologist would be able to tell you if you have arthritis, Fibromyalgia, RSD, etc. and could help get your pain in control. Your primary physician might also send you for physical therapy. One of the worst things you can let happen to your body is deconditioning - that alone can cause you an unbelievable amount of pain. You need to work with your doctor to get some answers. If your doctor isn't treating you like a "partner" in your healthcare - then maybe you need to find a new one. I am an RN, and I have Fibromyalgia. I understand your plight from both sides of the fence, so-to-speak. Take Care & keep your chin up ;)
    Dreamweaver 1 Replies
    • August 27, 2008
    • 09:44 PM
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  • I recommend trying acupuncture for your pain. it can be very helpful!Best wishesDOM
    acuann 3,080 Replies
    • August 27, 2008
    • 10:16 PM
    • 0
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  • Oh boy deconditioning is so true lol. Due to the spasm I gave up walking long distances..or standing for long periods of time which make pain worse cus you have become outta shape. and your muscles become weakened also. This is why I also keep injuring myself or a small ache to others is absolute horrible pain for me. With the fibromyalgia, our bodies dont heal like normal ppl's do. Our sleep is greatly disturbed..non-restorative, hence normal ppls bodies heal while sleeping, ours dont. The problem with physiotherapy here in Canada and also chiropractic health & accupunture, is that you have to have separate health coverage or its paid outta pocket if you dont. Only way you can get physiotherpy here covered is if you are admitted into hospital and it is recommended you have physiotherapy for recouperation of surgery etc. So although Canada has free healthcare...it has restrictions also. As EvErCat
    kitcat48 80 Replies
    • August 27, 2008
    • 11:14 PM
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  • Oh boy deconditioning is so true lol. Due to the spasm I gave up walking long distances..or standing for long periods of time which make pain worse cus you have become outta shape. and your muscles become weakened also. This is why I also keep injuring myself or a small ache to others is absolute horrible pain for me. With the fibromyalgia, our bodies dont heal like normal ppl's do. Our sleep is greatly disturbed..non-restorative, hence normal ppls bodies heal while sleeping, ours dont. The problem with physiotherapy here in Canada and also chiropractic health & accupunture, is that you have to have separate health coverage or its paid outta pocket if you dont. Only way you can get physiotherpy here covered is if you are admitted into hospital and it is recommended you have physiotherapy for recouperation of surgery etc. So although Canada has free healthcare...it has restrictions also. As EvErCat Well, everywhere is different...I am lucky that in NM most insurance companies cover acupuncture treatments. It is true that most other states don't cover, and sounds like they don't in Canada either. Still, if you do your research you may find a practitioner who offers a sliding scale fee or reduced rate. It is worth checking out, and even if it costs you some money, it is well worth it IMO. Hopefully in the future acupuncture will be better covered and even covered by medicare/medicaid. Acupuncture works! Best wishesDOM
    acuann 3,080 Replies
    • August 28, 2008
    • 00:04 AM
    • 0
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  • your problem sounds EXACTLY the way mu back feels , especially my neck!!! i was diagnosed with scheurmanns disease last year which is what causes the pain. look into it! :) ..
    Anonymous 42,789 Replies
    • September 2, 2010
    • 07:23 PM
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