Discussions By Condition: I cannot get a diagnosis.

Fatigue & Low Platelets

Posted In: I cannot get a diagnosis. 18 Replies
  • Posted By: ceejo13
  • July 22, 2008
  • 06:35 PM

Hello,

Last summer I went in to get blood work done, and was told that I had a low platelet count. Over the entire summer, I went in approx. every 4 weeks and my count continued to drop. They told me that I would be referred to a specialist if it continued, but eventually I gave up and stopped going in to get work done. Now this summer, I am experiencing severe fatigue to the point where I would sleep all day if I could! I was tested for hemoglobin, iron deficiency, and thyroid problems, and everything came back fine. I bruise easily and sometimes have light pain throughout my body, but that has always been the case. I am just wondering if anybody has any ideas of what could be possible... I am going back to the doctor soon and would like to suggest a few tests in case they don't think of them!!

Thank you!

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18 Replies:

  • U could be deficient in B12.Try taking multivitamins everyday and see how it goes.U could also be suffering from chronic fatigue syndrome.Eat a variety of healthy foods.Bruising can be caused by a deficiency of Vitamin C.Good luckS.B.B
    Anonymous 42,789 Replies Flag this Response
  • I'm sorry I don't know what could be wrong with you, but strongly suggest you find a new doctor. Plus research as much as possible online. (I use ask.com instead of google.com, but that is up to you.) Search on NIH web page too. Maybe even call them or Johns Hopkins for advise or the Mayo Clinic.Don't give up - there is a doctor out there that can help you!
    Anonymous 42,789 Replies Flag this Response
  • You definitely need to see a doctor. Many things can cause low platelets, including purpura and hepatitis.
    aquila 1,263 Replies Flag this Response
  • You may have Idiopathic Thrombocytopenia Purpura. You really shouldn't just ignore your blood work.If my doctor hadn't sent me straight to the hospital after I was diagnosed, I could have died just on the car ride home. My platelet count was 2,000 and normal is between 150,000-400,000. My symptoms included: thousands of tiny red dots on my legs (can be arms and chest too) that resemble a rash but don't itch (which I found out later are petichiae), bruise extremely easily and the bruises don't heal, bleeding gums when brushing your teeth, and petichiae in your mouth which sort of feel like canker sores but are dark red and full of blood (DO NOT POP).After 3 treatments, I developed a brain bleed and nearly died. Please don't ignore it. Even if it isn't that serious, there could still be a problem.Plus, ITP is completely curable if you catch it.
    Anonymous 42,789 Replies
    • December 17, 2008
    • 01:57 AM
    • 0
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  • hi. my platelet level is dropping too i found out since i was experiencing extreme fatigue and tiredness to the point that i can't spend my whole day at my uni and wud go home. i wake up in the morning and i feel lik ive been up for a while if i just go outside the house. :-( i dun have a previous history of any conditions. Ive had MRI,CAT scans, lots of blood tests, seen an ENT and a dentist. nothing was wrong only platelets are low.. I'm going to see a hematologist soon and another ENT. Have u figured out what's wrong with you ? please let me know i'm desperate for some help
    rmk_1987 20 Replies
    • January 30, 2009
    • 11:15 AM
    • 0
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  • Do you know what your platelet count was?Are you on any meds?Of causes for thrombocytopenia one that I would want ruled out is an autoimmune illness like lupus.
    richard wayne2b 1,232 Replies
    • January 30, 2009
    • 01:19 PM
    • 0
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  • my plat level was 130 abt 4 months ago i found a paper but it has continued to drop i dunno the latest number but my GP recently referred me to a hematologist and my appointment is on MARCH 1st I will try to make it earlier . Im only 21 and i have no previous medical history. the only thing i was on was LOSEC for heartburn and my symptoms started a week after i finished the dosage. that was abt 4 months ago.. i was feeling so dizzy and unable to stand i had to remain lying down to feel better. now im just extremely fatigued most of the time and muscles a little sore and i get nausea that comes suddenly but no vomiting. there is like a purple spot like a bit on my groin it looks like a bite or sumthing it's been there for months now. I didnt show it to any doctor it's very small now i dunno if it cud be a sign for something.. it doesnt look lik the one for lime disease but i dunno how cud anything get there cuz it's always covered but it looks lik an insect bite.. I live near toronto so i don't think there is lyme disease cases here at all. Is there a cure if this is lupus if it is ? and how serious is it ?
    rmk_1987 20 Replies
    • January 30, 2009
    • 08:26 PM
    • 0
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  • Lupus is very unlikely in a young male.
    richard wayne2b 1,232 Replies
    • January 30, 2009
    • 09:32 PM
    • 0
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  • Hai my cousin also in same condition....She has less than 20,000...Please let me know the treatment which they given to you to bring back normal count...Mail me to go.kamalakannan@gmail.com
    Anonymous 42,789 Replies
    • October 14, 2009
    • 00:01 PM
    • 0
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  • Well I have a blood disorder called ITP (idiopathic thrombocytopenic purpura), I was diagnosed with it when I was 14, I am now 18. You can look it up and find out all the information about it. It is a long name for having low platelets. I have probably done EVERY test possible lol and everything has been fine. They have tested me for caner, leukemia, lupus, any other blood or any other problems can can relate or make me have low platlets.. I did about two years of tests, even a bone marrow biopsy&exam. There is still no explanation for why I have low platlets. They say I may grow out of it or I may not. Good luck to you!
    Anonymous 42,789 Replies
    • October 26, 2009
    • 01:08 AM
    • 0
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  • Hello, Last summer I went in to get blood work done, and was told that I had a low platelet count. Over the entire summer, I went in approx. every 4 weeks and my count continued to drop. They told me that I would be referred to a specialist if it continued, but eventually I gave up and stopped going in to get work done. Now this summer, I am experiencing severe fatigue to the point where I would sleep all day if I could! I was tested for hemoglobin, iron deficiency, and thyroid problems, and everything came back fine. I bruise easily and sometimes have light pain throughout my body, but that has always been the case. I am just wondering if anybody has any ideas of what could be possible... I am going back to the doctor soon and would like to suggest a few tests in case they don't think of them!! Thank you!DOnt worry I have the symptoms as you and have coped with it over time. I was diagnosed with low a platelet count many years ago when I was in my 20's. It was a very worying time as I had a young family & my wife at that time was convinced I was going to die! I saw various doctors and they gave differing opinions which didn't help as my platelet count fluctuated from very low to dangerously low. I had consultants to registrars giving differing opinions from leaukemia to rare underly blood anomolies, probably because they are trained to only look for physical symptoms. I am now in my 40's and whoohoo still alive!My platelet count has dropped very low in the past as it has again & one thing I have learned is that it only happens when I am severely stressed. Right through from my teens to now in my 40's I can think back & count the times that this has only happened to me when something unjust and out of my hands is going on in my life.So by all means get your Doctor to conduct tests including those for underactive thyroids but ask yourself before taking unncessary medication or having my spleen removed as was suggested to me are you feeling unusually stressed/depressed or anxious about anything going on in your life?
    Anonymous 42,789 Replies Flag this Response
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  • You have to see an Hematologist,Trombocytopenia is a dangerous condition, if bleeding ocurs it can put your life at risk.Here are the most common causes of trombocytopenia:Idiopathic(immune)trombocytopenic purpura,Trombocytopenia folowing a viral infection,Lymphoproliferative disorders,Systemic lupus erytrematosus,Splenomegaly.BONE MARROW BIOPSY IS NEEDED AND IF IT IS NOT A PRODUCTION PROBLEM THEN YOU MIGHT NEED YOUR SPLEEN REMOVED(the spleen "kills" your plattelets too fast)
    Anonymous 42,789 Replies Flag this Response
  • hi. my platelet level is dropping too i found out since i was experiencing extreme fatigue and tiredness to the point that i can't spend my whole day at my uni and wud go home. i wake up in the morning and i feel lik ive been up for a while if i just go outside the house. :-( i dun have a previous history of any conditions. Ive had MRI,CAT scans, lots of blood tests, seen an ENT and a dentist. nothing was wrong only platelets are low.. I'm going to see a hematologist soon and another ENT. Have u figured out what's wrong with you ? please let me know i'm desperate for some helpMy daughter also has a low platelet count.. flucuates between 40,000 and 60,000. She has had bone biopsy and has been seeing a hemotolgist for a year... no diagnosis ... still calling it ideopathic. She is 39. Don't know how long it's been this low but within last 5 years.. last blood workup we could track down was normal 5 years ago. We are also desperate for some help and some kind of diagnosis
    Anonymous 42,789 Replies Flag this Response
  • Hi im 26 female about 10yrs ago i started getting small fingertip bruises on my legs, sore to touch with nodules underneath the skin.. they kept going up my leg and then started on my nuckles ..i had a biopsy done and it came back as fatty tissue around the nuckles and i was diagnosed with erythema nodosum it turned out that it was the oral contraceptive pill that had effected this as there was history in my family of allergy to same .. unknown to me at the time. and havent been on it since.Now 26 these same symptoms are back and this time its with low platelet count, im v fatigued could sleep anywhere i need to keep myself busy to keep me awake. Nodules on my legs are bigger this time and painful to touch. Got admitted to hospital 6mths ago with gasteritis- apparently- it was unbearably painful but after a week had black stool -signs of an internal bleed- old blood. then just recently had more abdominal pain with a PR bleed im scared now and cant get another appointment in hosp with a specialist until jan 11th 2011. From having this low platelet count aka thrombocytopenia, im hoping to get a platelet transfusion to bring the levels up again so i can have more energy and feel normal again.
    Anonymous 42,789 Replies
    • December 13, 2010
    • 04:07 PM
    • 0
    Flag this Response
  • Hi I don't really have any suggestions, but I found your post interesting because I have been feeling the same way. I also went to the doctor because I was feeling fatigued, and they found that I had a low blood platelet count. I then went to a hemotologist and from there they confirmed it, and I then had to take a series of tests to ensure nothing was wrong. Everything came back fine. I am not vitamin deficient either because I take a multi-vitamin with an addition intake of Vitamin B, and I also exercise regularly and eat healthy. I also bruise easily. Lately, the fatigue has been the worse it's ever been. All I want to do is sleep, and I have no energy to do anything. It's really frustrating, and I don't know what else to do. If you or anyone has learned anything new and can suggest anything, I would appreciate it. Thanks and good luck to you.Hello, Last summer I went in to get blood work done, and was told that I had a low platelet count. Over the entire summer, I went in approx. every 4 weeks and my count continued to drop. They told me that I would be referred to a specialist if it continued, but eventually I gave up and stopped going in to get work done. Now this summer, I am experiencing severe fatigue to the point where I would sleep all day if I could! I was tested for hemoglobin, iron deficiency, and thyroid problems, and everything came back fine. I bruise easily and sometimes have light pain throughout my body, but that has always been the case. I am just wondering if anybody has any ideas of what could be possible... I am going back to the doctor soon and would like to suggest a few tests in case they don't think of them!! Thank you!
    Anonymous 42,789 Replies
    • January 25, 2011
    • 09:16 PM
    • 0
    Flag this Response
  • As many other have said there can be many causes for low platelet count; ITP being one of them. Some insight I can offer however, is that there are other genetic Blood Disorders which result in a low platelet count. These include conditions which are more rare and genetic (you are born with) and may not be initially detected: May-Hegglin Anomaly, Fetchner Syndrome, Sebastian Platelet syndrome, Epstein Syndrome. The symptoms you describe sound similar to those that I have. I have May Hegglin Anamoly a VERY RARE blood disorder which can be misdiagnosed as ITP if a Doctor does not get a thorough case history and full detail of symptoms or changes you notice in your own body. My condition wasn't detected till my teens and I was not diagnosed until I was 17. It took information about me, parents and other family members to connect all the dots. When talking to a doctor I recommend looking at other conditions seeing if they match yours and mention it to them. This may steer them in the right direction, since the general default condition doctors think of with thrombocytopenia (low platelet count) is ITP. It is important to know the cause because treatment is different for various conditions. For example steriods are used to treat ITP while for May-Hegglin they are useless.I hope this helpsHere are some helpful links to learn more about other conditions: http://www.everydayhealth.com/health-center/may-hegglin-anomaly.aspxhttp://www.ncbi.nlm.nih.gov/pubmed/11935325http://www.healthline.com/galecontent/sebastian-syndromeHello, Last summer I went in to get blood work done, and was told that I had a low platelet count. Over the entire summer, I went in approx. every 4 weeks and my count continued to drop. They told me that I would be referred to a specialist if it continued, but eventually I gave up and stopped going in to get work done. Now this summer, I am experiencing severe fatigue to the point where I would sleep all day if I could! I was tested for hemoglobin, iron deficiency, and thyroid problems, and everything came back fine. I bruise easily and sometimes have light pain throughout my body, but that has always been the case. I am just wondering if anybody has any ideas of what could be possible... I am going back to the doctor soon and would like to suggest a few tests in case they don't think of them!! Thank you!
    Anonymous 42,789 Replies Flag this Response
  • I have had ITP for over 10 years now – it is NOT contagious, but rather an auto-immune disease whereby your body creates anti-bodies against its own cells and destroys them. There IS NO CURE and you definitely cannot “CATCH IT”.You could have a low platelet count for a number of reasons, it can even be caused by some medications. Having a low platelet count does not mean you have ITP!!ITP is a life-long condition and is an auto-immune disease like Lupus, Diabetes, Rheumatoid Arthritis etc.YOU CANNOT CATCH IT FROM another person and it is NOT contagious!When my count was first tested it was on 3000 – they suspected Leukaemia and did a bone marrow biopsy. Only after extensive blood tests did they find anti-bodies to my platelets. I have chronic ITP but respond well on cortisone. I find that my count always drops when I am sick – then my immune system kicks in to fight the illness, and hence, destroys more platelets.
    Anonymous 42,789 Replies Flag this Response
  • As many other have said there can be many causes for low platelet count; ITP being one of them. Some insight I can offer however, is that there are other genetic Blood Disorders which result in a low platelet count. These include conditions which are more rare and genetic (you are born with) and may not be initially detected: May-Hegglin Anomaly, Fetchner Syndrome, Sebastian Platelet syndrome, Epstein Syndrome. The symptoms you describe sound similar to those that I have. I have May Hegglin Anamoly a VERY RARE blood disorder which can be misdiagnosed as ITP if a Doctor does not get a thorough case history and full detail of symptoms or changes you notice in your own body. My condition wasn't detected till my teens and I was not diagnosed until I was 17. It took information about me, parents and other family members to connect all the dots. When talking to a doctor I recommend looking at other conditions seeing if they match yours and mention it to them. This may steer them in the right direction, since the general default condition doctors think of with thrombocytopenia (low platelet count) is ITP. It is important to know the cause because treatment is different for various conditions. For example steriods are used to treat ITP while for May-Hegglin they are useless.I hope this helpsHere are some helpful links to learn more about other conditions: http://www.everydayhealth.com/health-center/may-hegglin-anomaly.aspxhttp://www.ncbi.nlm.nih.gov/pubmed/11935325http://www.healthline.com/galecontent/sebastian-syndromeI also have May-Hegglin and know NO ONE else that has it. I would love to contact the person that wrote this post. I am hoping they will read my post and try to contact me.
    ajhuffer 1 Replies Flag this Response
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