Discussions By Condition: I cannot get a diagnosis.

Weird sensation in my head

Posted In: I cannot get a diagnosis. 84 Replies
  • Posted By: whatsupdoc
  • October 23, 2006
  • 07:52 PM

I get weird sensations in my head. Feels like I am off kilter, almost off balance in a way. sometimes like when you are on a roller coaster and your stomach goes up and down... thats how it feels in my head. Sometimes, feels like pressure behind my eyes, and into my sinus. I get a "wave like" sensation that comes on suddenly. GOes away just as suddenly. This "wave" goes from ear to ear.

I have had an MRI, a CT and had my heart tested. (told I have anxiety). I have had blood tests done for Lymes, for chemicals (such as lead, etc), for my thyroid & diabetes tested. (all negative..wonderfully!)

I have seen 2 family physicians, 2 neurologists, 1 ears/nose and throat doctor, 2 eye doctors, 3 chiropractors, 2 massage therapists, and one dentist.

Some insist I have migranes. But this is NOT a headache the way I know a headache to be. Nothing makes it go away, asprin, tylenol, ibuprofin, motion sickness meds. Ive tried so many meds just out of desperation.

This sensation comes on at any time .. no warning, nothing I can relate it to. I can be in the shower, I can be sleeping and it will wake me up, I can be working, watching tv... anything.. nothing in aprticlar triggers it. Used to be the sensation happened throughout the day... typically 10-20 times a day. NOW it happens more and lasts longer. Most times I awaken with this sensation, and it hangs on for hours. Although I can say that when I bend over, such as after sweeping the floor and picking up with a dust pan, then I get this huge pressure feeling in my head.

Along with these sensations, which I am not sure if it's related or not, but my feet are killing me. I am on my feet all the time. My family doctor says its from being on my feet too long, should wear "teds" to feel better (no relief), One chiropractor says I have falling arches and thats why the "tops" of my feet hurt the way they do. (inserts should make it better... but it doesnt) A second chiropractor says I have calcium deposits in my feet. I also seen a "foot" specialist who told me I had arthritis in my feet.


All these symptoms developed about 3 years ago. (they just continually worsen over time) I have a ton of stress in my life, being care taker for my terminally ill mother, and trying to run a business also. Stress/Anxiety doesnt sound out of the question to me, but is it really that simple, and if so, how come I can't get any relief or a true diagnosis.

Does anybody have any suggestions on what sort of a "specialist" that I should be seeing? Or any ideas as to what is going on?

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84 Replies:

  • Hi,I have had for the last 6 weeks something that might be similar. It comes and goes, but I can only describe it as feeling "swervy", as if sometimes falling, or things sort of moving. I'm get sensations of tightness in my scalp, and feeling of pressure on my face, especially the left eye and temple. Sometimes I need to go to the toilet, and occassionaly get diarrhoea. Seems to be worse in mornings and early afternoon, and gets better in the evening,.Going through process of blood tests - nothing so far - pretty sure my GP thinks its pyschosomatic or anxiety/stress.Probably this isn't very helpful, but in some ways knowing someone else is going through something similar makes it a bit better ?
    swervy 3 Replies
    • October 27, 2006
    • 02:12 PM
    • 0
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  • Hi there, I'm 26 years old and I've been having some problems similar to yours for about a year now. It's all sorts of funny sensations, I feel like someone is pouring a bucket of cool water down the back of my head. Sometimes I feel as if I have to struggle with keeping my head up straight like it's too heavy for my neck to support, and sometimes I fell really really off balance and light headed and it is not headaches causing these probs. I too have had MRI's, cat scans, I've seen Neurologists, I've had heart tests, thyroid tests, blood work is normal but somehow I fell that something is wrong. The doctors also told me I'm having anxiety but it seems so hard to believe! So finally I am seeing a psychiatrists, and it doesn't mean that you are crazy to see one, but from taking some medical courses I know that sometimes there are some chemicals in your brain that are not balanced well and that it can cause all sorts of funny sensations throughout your body, especially your head.Ever consider seeing one?
    Anonymous 42,789 Replies
    • October 28, 2006
    • 02:03 AM
    • 0
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  • Another thing to investigate is some kind of vestibular problem - do a search, there's quite a lot of info on it...I've had a history of labyrinthitis, so I'm investigating that routeGood luck...
    swervy 3 Replies
    • October 29, 2006
    • 11:23 AM
    • 0
    Flag this Response
  • did anyone say vertigo of meniere's diseas as a possibility? fluid imbalances in the inner ear can cause this sensation. Check it out online somewhere.
    Anonymous 42,789 Replies
    • October 29, 2006
    • 04:26 PM
    • 0
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  • Not sure if this will help you, since you mentioned you've already seen an ENT doctor, but it might be worth checking out. I had similar symptoms for months several years ago - head fullness, lightheadedness, feeling foggy, and sometimes ear pain, and the doctor suggested it might be an allergy, and that the symptoms could be from inflamed sinuses. Though I never pinpointed exactly what the allergen(s) was (though I suspect it started when I moved into a newly constructed apartment), I found that simply taking a decongestant (pseudoephedrine) really helped clear my head, even though I never had the runny nose or any of other classic allergy symptoms. An antihistamine might be worth a try, too.Even now I get these symptoms occasionally, and I find that they usually correspond to air pressure changes due to weather!And my 2 cents on anxiety - I sympathize 100%. Anxiety may not cause the problem, but it sure does make it worse. Do you tend to feel better if you've been "outside your own head" for a while, like concentrating on a project or hanging out with other folks? Maybe just finding some good distractions will give you some relief until you've pinned something down.
    Anonymous 42,789 Replies
    • November 3, 2006
    • 08:05 PM
    • 0
    Flag this Response
  • It might be a sinus infection. That would explain the dizziness and pressure in your head when you bend down. Or it could be a sinus infection made worse by anxiety.
    kate1982 6 Replies
    • November 3, 2006
    • 11:17 PM
    • 0
    Flag this Response
  • I have the exact same feeling! I also have a slight ringing in the ears. I also have the dizziness, pressure, wave sensation, foggy head, headaches that are worsened when I stand up or bend over and just a sense of being tired too often. I feel like I'm living my life in a dream sometimes! I do have allergy issues and was told recently that I have developed asthma. I never had allergies before my mid 20's and no one in my family has asthma! I notice a difference when the weather changes also, so I'm pretty sure it's somehow related to my allergies. I too have seen a neurologist, my general physician, an ENT and an allergist. I have had a MRI and tons of bloodwork and everyone says there's nothing wrong with me. I had a scan of my sinus' done also, nothing showed up. I just keep hoping it will get better!
    Anonymous 42,789 Replies
    • November 17, 2006
    • 08:39 PM
    • 0
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  • Have you been tested for acoustic neroma? this can present with the symptoms you mentioned, good luck.
    Anonymous 42,789 Replies
    • November 28, 2006
    • 02:52 AM
    • 0
    Flag this Response
  • THis sounds almost exactly like me...I do have anxiety for sure, but it's because of these physical symptoms I've been dealing with. I'm not sure what happened first, it's like a chicken and egg thing. I did use ephedrine off and on for years, for sinus, etc. and I had to stop taking it, so maybe it's related to that? It seems like many people are referencing the sinus, and when I had my brain MRI they said I did have some sinusitis.I feel your pain as far as the stress goes, I've been under a tremendous amount of stress myself this past year - I've been running my own business for the past 3 years. I've come to conclusion I have to get out and find something different. For the stress and anxiety, try Lucinda Bassets series. It helped me tremendously...
    Anonymous 42,789 Replies
    • February 7, 2007
    • 06:14 PM
    • 0
    Flag this Response
  • I also have had similar episodes. When it started happening, I had a normal MRI done but they did detect that all my sinuses were infected. Several years later I developed more and more episodes, sometimes followed by a NASTY headache, and usually preceded by the funky head feeling, and often with visual disturbances like flashing lights and "things" floating across my field of vision. They say they are occular migraines, and that they do not have to always have a "headache included". Although when they do have the headache with them, I can't even drive and have to pull the car over....which can be embarrasing! Good luck....
    Anonymous 42,789 Replies
    • February 10, 2007
    • 06:22 AM
    • 0
    Flag this Response
  • I have VERY similar issues. When I bend over to pick something up I have unbelievable pressure. Sneezing is the absolute worst. Takes me over a minute or 2 to recover from the intense pain/pressure. Then the general pain from it can last up to 20 minutes. I have chronic head aches, but not in the same way you would really describe. It is pressure behind my eyes and ears. My temples also hurt. I have been to been to 4 doctors: GP, ENT, Neurologist and Maxillofacial MD. I have had: MRIs, CTs, X-Rays, EKG, Hearing tests, lots of blood work. Blood work resulted in: Additional B12 tests for Macrocytosis - followup normal, Additional Liver Ultra-Sound - followup normal, Additional Liver test - followup normal, Additional HEP tests all negative, Additional Hyperthyroidism tests.Current prognosis:Neurologist is having me take Nortriptyline to help sleep and I will be going to the Sleep Study lab soon to see if I have Sleep Apnea.Maxillofacial MD followup is scheduled to see the MRI results of the scan of my TMJ region (insurance did not cover all and I owe them $600.00 more). This is to determine if I have a TMJ disorder. My neurologist does not like me going to see him, the neurologist is afraid they will fit me for a splint and I'll have even more trouble breathing while I sleep.I hope this is over soon and they figure something out.
    shawncarl 1 Replies Flag this Response
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  • please read last 5 pages of "It's a mystery until we solve it"..mommy cat there you will find others with exact symptoms read...you will see the picture...mommy cat
    mommy cat 1,654 Replies Flag this Response
  • I also have a similar sensation to what others have described. I've been spending my time since it started worrying that I have a brain tumor. Of course anxiety makes it worse. I haven't had MRI or CT, my doctors performed the basic neurological check that they do in cases like this and chalked my problem up to allergies and anxiety. That's all fine and good, but I don't feel physically much better. I need to find a way to make this better because it's actually kind of debilitating.
    chesteadman 14 Replies Flag this Response
  • I get weird sensations in my head. Feels like I am off kilter, almost off balance in a way. sometimes like when you are on a roller coaster and your stomach goes up and down... thats how it feels in my head. Sometimes, feels like pressure behind my eyes, and into my sinus. I get a "wave like" sensation that comes on suddenly. GOes away just as suddenly. This "wave" goes from ear to ear. I have had an MRI, a CT and had my heart tested. (told I have anxiety). I have had blood tests done for Lymes, for chemicals (such as lead, etc), for my thyroid & diabetes tested. (all negative..wonderfully!) I have seen 2 family physicians, 2 neurologists, 1 ears/nose and throat doctor, 2 eye doctors, 3 chiropractors, 2 massage therapists, and one dentist. Some insist I have migranes. But this is NOT a headache the way I know a headache to be. Nothing makes it go away, asprin, tylenol, ibuprofin, motion sickness meds. Ive tried so many meds just out of desperation. This sensation comes on at any time .. no warning, nothing I can relate it to. I can be in the shower, I can be sleeping and it will wake me up, I can be working, watching tv... anything.. nothing in aprticlar triggers it. Used to be the sensation happened throughout the day... typically 10-20 times a day. NOW it happens more and lasts longer. Most times I awaken with this sensation, and it hangs on for hours. Although I can say that when I bend over, such as after sweeping the floor and picking up with a dust pan, then I get this huge pressure feeling in my head.Along with these sensations, which I am not sure if it's related or not, but my feet are killing me. I am on my feet all the time. My family doctor says its from being on my feet too long, should wear "teds" to feel better (no relief), One chiropractor says I have falling arches and thats why the "tops" of my feet hurt the way they do. (inserts should make it better... but it doesnt) A second chiropractor says I have calcium deposits in my feet. I also seen a "foot" specialist who told me I had arthritis in my feet. All these symptoms developed about 3 years ago. (they just continually worsen over time) I have a ton of stress in my life, being care taker for my terminally ill mother, and trying to run a business also. Stress/Anxiety doesnt sound out of the question to me, but is it really that simple, and if so, how come I can't get any relief or a true diagnosis.Does anybody have any suggestions on what sort of a "specialist" that I should be seeing? Or any ideas as to what is going on?Have you been checked for celiac disease. I was dumbfounded when I read all your symptoms especially about how your brain "felt" {all doc's I have seen think I am nuts too} b/c they are mine as well and then some. I woke up Friday Labor Day weekend unable to get out of bed. I tried but would fall back into it. I could feel my brain "sloshing"/blood pulsating; chronic headaches; fatigue; memory problems...I was finally diagnosed with celiac disease but still have balance problems and memory. The brain feeling seems to have left.I would request a celiac panel for blood work from your doc. Who knows it could be CD and that is a change in diet. It is overwhelming at first but then not so bad.Good luck!Jaqui
    Anonymous 42,789 Replies Flag this Response
  • strange sensationsanxietyallergies-new and increase of existing onesnot getting better please ask doc anf neurologist to check for ME/CFS as I have mentioned before...to many people having similar symptoms, that can't get a diagnosis It makes sense...mommy cat:)
    mommy cat 1,654 Replies Flag this Response
  • Anyone noticing many similarities on this thread?I did...many of them Anyone who has posted here, ask doc to check for ME/CFS...I know I keep posting it...but some are not listening and just continue to post regarding more symptoms...not any results If any of you are upset with my postings...put that aside and get tested several already are including myselfI will let everyone know the outcome of the testing...although after my last visit with a doc...he wrote "Chronic Fatigue" as my first diagnosis without any test results yet...He knows and so do II have over 70 ME/CFS symptoms..hard to ignore those numbers and symptoms don't lie...mommy cat
    mommy cat 1,654 Replies Flag this Response
  • The problem with ME/CFS is that it can't really be diagnosed. It is a diagnosis of exclusion... once everything else is ruled out, then ME/CFS can blamed. This is especially true due to the wide range of symptoms that ME/CFS can present. Finallly, I feel like a lot of people aren't really willing to consider it without testing out other options, quite frankly because there isn't really any way to treat it.
    chesteadman 14 Replies Flag this Response
  • Just because there is no simple test and no magic pill...does not mean this diagnosis is not real most people in this forum say they have seen every doc, speacialist,test,meds. many have exhausted every option...hence the fact we are all here in this forum? NOONE has said they had negative results for ME/CFS-NOT ONEI have a huge medical file that tells me everything I don't have there are several tests to be done on a personRombergsSPECT scanPET scanMRI of braina slew of bloodworkand many other things to consider there are many foundations in this country and around the world...all for a disease that isn't real? makes no sense When all the other diseases have been ruled out...will they still get tested for it? many don't believe in it...many don't WANT it and many will just keep searching for a diagnosis with a cure or a magic pill...they will not find one I completely understand what you mean...do you see my points? Have a great day and thank you...mommy cat
    mommy cat 1,654 Replies Flag this Response
  • PS...jusst reading previous posts on this page...Shawncarl and others all saying they are having same symptoms/experience none have an answer...does that strike you as odd? it did me...one of the reasons I've posted the info in so many placesso many having same problems:(
    mommy cat 1,654 Replies Flag this Response
  • over 2 million people in US have ME/CFS...if it can't be diagnosed...how did they get one? not trying to be a wisea%#...just letting you know...it is possible to get a diagnosis...it's not easy but neither is what we've all been doing for years!
    mommy cat 1,654 Replies Flag this Response
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