Discussions By Condition: I cannot get a diagnosis.

Persistent low-grade fever

Posted In: I cannot get a diagnosis. 24 Replies
  • Posted By: Fever boy
  • May 25, 2008
  • 02:29 AM

I've had a low-grade fever (around 100F) for two weeks now. I've been to two hospitals and had a number of tests done, including blood tests, urine tests, and chest X-rays, and everything comes back normal. Nothing seems swollen or tender, and I have no symptoms other than fever and the general lethargy and achiness that goes along with it. I have a normal appetite. The second hospital I went to is a renowned one, FWIW, and the doctor there spent quite a bit of time with me. His conclusion was that there isn't much more I can do without being admitted and that it would be better to wait and see how things go.

My normal, pre-fever temperature cycle is relatively low in the morning (around 97.5) rising to around 98.6 in the late afternoon and then dropping off before bed. The past two weeks, though, have seen it around 99 when I first wake up and then rising to around 100 or 100.5 in the afternoon and evening.

One difference in the past several days is that I can get my temperature back below 98.6 if I cover up with blankets and sweat for about an hour, and that was not the case a week or so ago.

I'm concerned at how long this has lasted, so any advice would be greatly appreciated.

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  • I saw a show on discovery health channel i don't remember which one either mystery ER or Diagnosis X where a guy got a fever at the same time every day for a while, and he had stills disease. How old are you?
    qwertyuiop123 453 Replies Flag this Response
  • I'm 35 years old. I don't have severe joint pain, though.
    Fever boy 1 Replies Flag this Response
  • The symptoms can vary from person to person and the man on the show's only symptom was fever... Also he had been given tylenol for fever all along, and i think the treatment for stills or the way they diagnosed it or something was that he took aspirin before the time of day when he would get the fever, and then he didn't get a fever, so it might be worth trying the aspirin.
    qwertyuiop123 453 Replies Flag this Response
  • I've had a low-grade fever (around 100F) for two weeks now. I've been to two hospitals and had a number of tests done, including blood tests, urine tests, and chest X-rays, and everything comes back normal. Nothing seems swollen or tender, and I have no symptoms other than fever and the general lethargy and achiness that goes along with it. I have a normal appetite. The second hospital I went to is a renowned one, FWIW, and the doctor there spent quite a bit of time with me. His conclusion was that there isn't much more I can do without being admitted and that it would be better to wait and see how things go.My normal, pre-fever temperature cycle is relatively low in the morning (around 97.5) rising to around 98.6 in the late afternoon and then dropping off before bed. The past two weeks, though, have seen it around 99 when I first wake up and then rising to around 100 or 100.5 in the afternoon and evening. One difference in the past several days is that I can get my temperature back below 98.6 if I cover up with blankets and sweat for about an hour, and that was not the case a week or so ago.I'm concerned at how long this has lasted, so any advice would be greatly appreciated.I've had the same thing for 8 days now, but I also have a red throat. Do you live in California?
    Anonymous 42,789 Replies
    • September 17, 2008
    • 09:13 PM
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  • I'm 35 also, and have had a persistent, low-grade fever (between 100 and 100.8) for weeks now. Last year I had the same thing and it lasted for 6 months straight. I was then fever free for almost 5 months, and now it seems to be back. Last year, I went to Boston to have it checked out by numerous specialists (rheumatologists, infectious disease, etc.) and all the blood work and tests came back normal. They considered Lyme, early stage lupus, and ended up with 'fever of unknown origin'. I have massive lethargy with the fevers, but have no other real symptoms other than a history of knee problems/ pain, and intense headaches (which I don't think are related). I would love to know what this is, because it isn't severe enough to take time off of work, but is just bad enough to interfere with my daily functioning.
    Anonymous 42,789 Replies
    • January 21, 2010
    • 01:24 AM
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  • I'm 35 also, and have had a persistent, low-grade fever (between 100 and 100.8) for weeks now. Last year I had the same thing and it lasted for 6 months straight. I was then fever free for almost 5 months, and now it seems to be back. Last year, I went to Boston to have it checked out by numerous specialists (rheumatologists, infectious disease, etc.) and all the blood work and tests came back normal. They considered Lyme, early stage lupus, and ended up with 'fever of unknown origin'. I have massive lethargy with the fevers, but have no other real symptoms other than a history of knee problems/ pain, and intense headaches (which I don't think are related). I would love to know what this is, because it isn't severe enough to take time off of work, but is just bad enough to interfere with my daily functioning.Hi there, I was just googling 'low grade fever for 2 weeks' and I ended up in this page. Im 26yo.We have the same problem. I have been having fever for amost 2 weeks now. I know my normal body temp but for the passed few weeks, my temperature has elevated to a low grade temp. When I wake up now, I have a temp f 99degrees. This will elevate by around 9 30am. It will go up to 99.5. Then as the hours pass, it'll decrease or increase. By 6pm, it reaches it peak at around 100f. Then around 7pm, it will start decreasing. Ive done several tests too. xrays, ultrasounds, blood test and urinalysis. All came back normal. I am way too worried. I dnt have much symptoms except that my left eye is a bit blurred, but i dnt even know if that's connected to my problem. My heart rate seems to be higher though as I catch myself hyperventilating sometimes. I dnt know too if that's because of my anxiety wth these darn fevers. PLS HELP. Im so scared that this may be an early stage of C(I dnt even want to say it out loud).
    Anonymous 42,789 Replies
    • February 25, 2010
    • 11:43 AM
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  • Hi there, I was just googling 'low grade fever for 2 weeks' and I ended up in this page. Im 26yo.We have the same problem. I have been having fever for amost 2 weeks now. I know my normal body temp but for the passed few weeks, my temperature has elevated to a low grade temp. When I wake up now, I have a temp f 99degrees. This will elevate by around 9 30am. It will go up to 99.5. Then as the hours pass, it'll decrease or increase. By 6pm, it reaches it peak at around 100f. Then around 7pm, it will start decreasing. Ive done several tests too. xrays, ultrasounds, blood test and urinalysis. All came back normal. I am way too worried. I dnt have much symptoms except that my left eye is a bit blurred, but i dnt even know if that's connected to my problem. My heart rate seems to be higher though as I catch myself hyperventilating sometimes. I dnt know too if that's because of my anxiety wth these darn fevers. PLS HELP. Im so scared that this may be an early stage of C(I dnt even want to say it out loud). Hi, I doubt I will be much help, but at least I can help you rule out a great many causes. I have had persistent low-grade (100.8) fevers several (sometimes as many as four) times a day for over four years. I have been disabled since 1989. I have Chronic Fatigue Syndrome, Fibromyalgia, Severe Sleep Apnea, Osteoarthritis, Osteoporosis, Rheumatoid Arthritis, Sjogren's Syndrome, on and off again pancreatitis (I figured out how to stop that, and went from 10 attacks (hospital for a week each time) per year to 1 in 2009, but now my pancreas is causing me to have mild Type 2 Diabetes, which is not yet under control, Depression, Anxiety, Insomnia, High Blood Pressure, Mitral Valve Prolapse, mild Cataracts on both eyes, and I can't remember the rest, because Chronic Fatigue wipes out your short term memory :p I am on a lot of medications, I have a bevy of doctors and my own personal hospitalist who cares for me when I am in the hospital. My normal temp, when it IS normal, is 97.2. Unfortunately, my fever begins to climb every day, it isn't any particular time, and gets up to 100.4 to 100.8 and then I start sweating. I sweat until it goes back down to a little under 98, and then after an hour or two, it starts all over again. I have to use bed pads to sleep, so it won't soak the bottom sheet, but I wake up needing to do the back-stroke to get out of bed. My hair, my pillows, anything I am wearing, the bed pad, the upper sheet and sometimes the blanket are all soaking. Sometimes I just sit up all night until I can bring it down. With all my doctors, and all the hospital stays, and all the tests that have been conceived by our illustrious researchers, none of them can figure out what is causing this. It's not interaction from my drugs (all 16 of them), they have all ruled that out (they all consult with my primary care doctor, who gets all the information from my other doctors, and weaves the net of my treatment into a web readable by all my doctors). It's not my teeth, I had to have all of them removed because the pain medicines rotted the roots of my teeth (cheer for me, I have gotten off all restricted drugs and all the controlled ones that were for pain, and ditched my pain doctor, who just made me worse :o). It is not my pancreas, which was infected because my gall bladder had been dead for two years before they figured it out and removed it, because it is healed mostly and just gives me pancreatitis if it can and high blood sugar, which I am determined to stop it from doing. Neither of those conditions gives me a fever. The only way I have found to combat it is to freeze different flavors of sodas in ice cube trays, and when it starts climbing, I eat lots and lots of ice cubes. That mostly will bring it down a lot faster, though if I am sitting on the sofa all night, eating ice cubes, I sweat there instead of in the bed, and the couch cover is soaked, along with my hair and whatever clothes I have on. One thing that helps at night (besides the bed pad) is to not wear anything when I sleep, as it keeps me from waking up in a sodden gown and panties stuck to my butt. I have had great success at finding unusual ways to diagnose and treat or stop some of my problems on the Internet. I went to Webmd but they are so convoluted, in their diagnosing of symptoms, that it is fairly useless when trying to figure out something like this, so I just Googled, and found this place, and you other good people who are having these same fevers, only not as long as I have. I would like for any of you with any information at all that might help to email me at LadyeFaire@windstream.net , so that maybe we can help each other, kind of start a little community of people who have these unexplained, prolonged low-grade fevers and sweats. I've given up trying to find the info at Webmd, and now will try all the different search engines. If I learn anything, I will come back here and post it. My husband, who has herpes simplex (not the STD kind, the kind that makes him have ulcers) happened by while I was writing this and said he thought I should be tested for that. I probably will, but I do not think I have that. We've been married for 33 years, and I've never had a single ulcer of any kind. So, if you have found anything, email me, or post it here, as I will check back often. Cheerio, and good hunting!:D
    LadyeFaire 8 Replies Flag this Response
  • Have you gotten tested for all tick borne illness, including Babesia? You could have a milder case of it that will go away with treatment. I would look into Lyme, just in case, too. I've had Babesia and Lyme, and they had some of the same symptoms.When you've been tested for darn near everything else, it's time to look elsewhere. Maybe this will help? BTW, I recommend Igenex tests. (But note that Babesia tests can be incredibly inaccurate - the smears miss infection... so a doctor might treat based on clinical suspicion)I would ask your GP if s/he can request these tests from Igenex for you - any Labcorp can run them, I think.Good luck.
    Anonymous 42,789 Replies Flag this Response
  • I have had low-grad fevers off and on for all of my life. Then at thirty-eight, more than thirteen years ago, I started suffering a staggering array of symptoms that were baffling and debilitating. Within a year I was diagnosed as having multiple auto-immune disease. (After diagnosis of, I think, three, they are lumped together and referred to as a multiple disease.) The first was chronic Fibromyalgia, followed by Chronic Fatigue Syndrome, then SLE (Lupus) and somewhere amongst the three the persistent low-grade fever was documented and explained as a symptom of the chronic Fibromyalgia. I don't have it all the time and have gone as long as a year without it but it seems to me that now it is a harbinger of a flare of some of the more gruesome symptoms (currently mouth sores, like cold sores, that cover the inside of my mouth, gums, tongue and throat). The fever begins a couple of weeks before and persists throughout the flare. I do find it interesting that those of you who stated a normal temperature, that temperature was actually below what is considered the norm, as mine has been all of my life. The severity of auto-immune diseases varies wildly. I know people who have been diagnosed with Fibromyalgia and suffer no more than flu-like symptoms once a year to persons who are bed-ridden for the better part of their lives. By all means have every possibility checked out but if in the end that is the only symptom that rears it's ugly head, enjoy your life.
    mja32561 1 Replies Flag this Response
  • Have you gotten tested for all tick borne illness, including Babesia? You could have a milder case of it that will go away with treatment. I would look into Lyme, just in case, too. I've had Babesia and Lyme, and they had some of the same symptoms. When you've been tested for darn near everything else, it's time to look elsewhere. Maybe this will help? BTW, I recommend Igenex tests. (But note that Babesia tests can be incredibly inaccurate - the smears miss infection... so a doctor might treat based on clinical suspicion) I would ask your GP if s/he can request these tests from Igenex for you - any Labcorp can run them, I think. Good luck. Hi, Unknown (there are a lot of unknowns in the world, most of them not human), I felt like saying "Duh!" when I read your reply. I have been breeding and training animals since I was five years old. I finally found Border Collies, and I fell in love, and so I breed and adopt out my puppies from my website, huckleberryoaks.spaces.live.com . I also have a bunch of music there. At the present time, we have 14 dogs, (8 Border Collies and six from the humane society, as we feel, since we bring new puppies into the world, we should take care of some who got here on their own), three cats and 10 zebra finches. We live out basically in the wilderness, with miles of forest around us, so our dogs run free. We have dog doors so they can come and go in the house. We put Advantix on them, but sometimes, especially the border collies, who have long, silky hair (some curly), will come inside with small ones who have gotten on their coats but not made it through all that hair and the undercoats, and they will transfer them to furniture or the floor and they end up biting us. My dogs catch different kinds of tick fever, and we treat them and they are okay. I am very good at spotting it in one of our dogs, but I never thought to apply it to myself, since my symptoms are not what a dog's symptoms are. However, I do find small ticks on me (we all do, when tick season is here, and I am allergic to Advantix....lol...) so I could very well have some kind of tick fever. I will take your advice, and I thank you for it, and for the details, to my doctor and have the tests run. I have so many illnesses, it is difficult for them to think of the entirety and still look for other things, especially something like a tick-borne disease. Thank you very much for the information!LadyeFaire :cool:
    LadyeFaire 8 Replies Flag this Response
  • I have low-grade fevers pretty much everyday at the same time, most of the time. I'm in my early 30s. I get it from allergies or if I get a fibro flare. I have high titers for HHV1, HHV4 & HHV6. If you get canker sore in the mouth, get tested for HHV1. I get fevers with those flares and had them ever since I was in nursery school: there are anti-virals they can put you on to control the outbreaks. I also get hight thyroglobulin antibody titers too, for some strange reason. I haven't tried antivirals yet, as I was hesitant with my doctors treatment advice for CFIDS/FMS, due to my high titers. I must say...these fevers are getting pretty annoying.My advice...get tested for Lyme, do a good viral panel that they usually do for CFIDS (if you google it, you should be able to find a comprehensive list on the CFIDS/ME forums), allergies, CBC, and a thorough endocrine work-up (ANA, etc). Anything unusual or showing chronic viral infection can help guide you and your doctors in how to treat it.
    Anonymous 42,789 Replies Flag this Response
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  • It sounds like you have Chronic Fatigue Syndrome.
    Anonymous 42,789 Replies Flag this Response
  • It sounds like you have Chronic Fatigue Syndrome. Hi, yes I do have Chronic Fatigue Syndrome, I've had it since 1989 after contracting Epstein-Barr virus from my doctor (she didn't know she had it) after seeing her right after a bad car wreck. I also have Fibromyalgia, and take 225 mg Lyrica twice a day. It has really helped with my pain level. I also have osteoarthris in my hands, I take Plaquenil for that and it stopped it cold, which is good, because I am a musician and can't loose the use of my fingers. Plaquenil is really a drug developed for Malaria, but when they gave it to the people with malaria who also had osteoarthitis in their fingers and toes, it stopped it. I also have Rheumatoid Arthritis, which I have had since I was five years old. I also have Osteoporosis, and I am going to get an infusion of Reclast this week. My Arthritis doctor says it will stay in my system and help rebuild my hips and spine. It is a once a year infusion (I.V.) and Medicare will pay 80% and my Blue Cross will pick up the other 20%. I also take Skelaxin for muscle cramps, and I use Emu Cream, which can be obtained at newemu.com and I recommend it highly, just enough to wet your skin and five minutes later, voila, no pain for at least six hours. I also take Synthroid, since the right lobe and half of the middle lobe had to be removed shortly before I was in the wreck in 1989, after which I had Epstein Barr virus for 9 months, and during that same time, I had Mononeuclosis and then Pneumonia twice while I had the Epstein-Barr virus, which is like the worst flu possible, but it doesn't go away for a long time, and then for a while, you will get relapses, and that is what caused the Chronic Fatigue Syndrome. I had to retire at age 39 from the manufacturing company where I worked as Purchasing Agent, Inventory Control Officer, Computer Systems Manager, and Computer Programmer. Unfortunately, I was also their credit, working out payments with vendors, and they went bankrupt four months after I retired. I take Toprol for mitral valve prolapse, and Verapamil for blood pressure, though when my home nurse comes each Friday, my blood pressure is in a perfect range, so maybe the Verapamil is working. I also have Irritable Bowel Syndrome and take Bentyl for that. I also have Restless Leg Syndrome, but cannot take the medicine for it because I have really bad reactions to Dilaudid (makes me into a raving psychotic) and the medicine for Restless Leg will make the same thing happen. Instead, I take 99 mg of Potassium every day and that helps a LOT! But when my legs and back start kicking, first I use the Emu Cream and let it dry and then I put Lidoderm pain patches over the two places next to the base of my spine where it comes from. That will stop it, and I also take an extra Potassium if I have an attack. My Psychiatrist has me on 1 mg of Xanax 4 times a day for anxiety (I wish I never started taking them, it's impossible to get off), Cymbalta for depression (it also helps with pain from Fibromyalgia) and two 30 mg tablets of Remron for sleep (I usually only take one). I also have severe sleep apnea, and use not only a CPAP machine, but also an oxygen machine that pulls only Oxygen from the air and shoots it straight into my mask. I have to have the Oxygen because if I don't, even using the CPAP machine, my blood oxygen level falls to about 50, and it's supposed to be at least 90 or better. I take Probiotic Acidiphilous every morning to help my digestion. I take 1000 units of Vitamin D twice a day or I will get to where I have NO Vitamin D. My blood sugar runs from 140 to 170, and my doctor has tried two kinds of medicines to lower it, Glippazide, which "causes excessive tiredness" (that's a really great drug to give to somebody with Chronic Fatigue), and Levamir, which damned near killed me. I've always run on caffeine and sugar until I was diagnosed with severe sleep apnea. Now I get no caffeine beyond one cup of hot tea when I wake up, and no sugar and try to watch my carbohydrates. That helps the blood sugar some. My pancreas was terribly infected because my gall bladder was dead, and I am having to wait for it to get better, they won't let me have anti-biotics because I have been given way too many all my life (I'm now penicillin resistent, & was always allergic to sulfa drugs, and erythromyacin knocks me out cold and makes me sicker). I caught Whooping Cough at the Emergency room in February 2009 and it also just about killed me until they let me have doxycycline to get rid of it. It took a long time to get over that cough though. Make sure you are up on your vaccines, because immigrants from Mexico (legal or illegal) have not had vaccinations for any of the childhood diseases (measles, mumps, whooping cough, diptheria, polio) and they are bringing them back into our country when we though we had pretty much conquored them. However, if you are older (I am 60) it has been a long time since you had your innoculations, so talk to your doctor about that. The fevers drive me nuts. I hate having to use a bed pad, and still waking up with soaked pillows, night clothes, upper sheet and blanket wet, and my hair soaking. I have more when I sleep I think, but I also have them during the day. I will sometimes go three or four days without a fever, and then I may have as many as four in the same day and another when I sleep and that will continue for weeks until another short break. This has been going on about four or five years. The only defense and help I have found is to freeze soda in ice cube trays and then eat the cubes when the fever starts, and sometimes it will lower it before I get to the sweat level. My "normal" temp is 97.2, but before I got Chronic Fatigue it was 98.6. My fevers never get any higher than 100.8 and I'll feel like I'm burning up, no chills at all, and then I sweat like a river running fast. I've probably got something else that I may have forgotten, and maybe other illnesses I don't recall right now. I weaned myself off all the narcotics my pain doctor had me on (I think the worst was Oxycontin, and I went cold Turkey off of 120 mg a day in the hospital, it was sheer ***l for four days, but at least they could give me morphine) and now take only Mobic once a day if I need it. Pain doctors don't have a clue as to how to treat pain from Chronic Fatigue or Fibromyalgia, but they will give you all kinds of narcotics that make you hurt worse or have horrible side effects. The only thing that has helped me is the Lyrica.That's about it.LadyeFaire;)
    LadyeFaire 8 Replies Flag this Response
  • Hi, to all those seeking the truth4 years ago I got what seemed to be a really complicated case of mono. It lasted 2 years: I was extremely tired, could barely walk to the bathroom, naucious & dizzy all the time, low grade fever of 99.4-100 (normal for me 98.6 ), could not think straight, bad joint pains, sore throat & cough on & off. Exams did not show anything particular. That was the time when I got to the limit of being unhappy. 2 years ago I decided to change all my life, ditch everything that was making me uncomfortable. Over 1 year I gradually started feeling better. By now it's almost like it's never been there.I am not saying that medical reasons do not exist. But it seems sometimes it's worth to try to figure out if you are living your life the way you feel right , rather then looking for the for the exact cause. Most of the cases medicine can recognise only at the final or terminal stages and how to interprete what preceeds those it's unclear. Even if something is identified, there is not that much medicine can do. From what I've seen it's only yourself that you can count on in figuring out. The body always lets us know when something is going on
    Anonymous 42,789 Replies Flag this Response
  • Hi, to all those seeking the truth 4 years ago I got what seemed to be a really complicated case of mono. It lasted 2 years: I was extremely tired, could barely walk to the bathroom, naucious & dizzy all the time, low grade fever of 99.4-100 (normal for me 98.6 ), could not think straight, bad joint pains, sore throat & cough on & off. Exams did not show anything particular. That was the time when I got to the limit of being unhappy. 2 years ago I decided to change all my life, ditch everything that was making me uncomfortable. Over 1 year I gradually started feeling better. By now it's almost like it's never been there. I am not saying that medical reasons do not exist. But it seems sometimes it's worth to try to figure out if you are living your life the way you feel right , rather then looking for the for the exact cause. Most of the cases medicine can recognise only at the final or terminal stages and how to interprete what preceeds those it's unclear. Even if something is identified, there is not that much medicine can do. From what I've seen it's only yourself that you can count on in figuring out. The body always lets us know when something is going on Hi again,As I have mentioned before, I became disabled in 1989 (see earlier thread). I have many disabilities, and I dread going to my doctors, because I am usually diagnosed with another problem. I recently went through getting a Reclast infusion because I have severe osteoporosis. The side effects were absolutely horrible, I've never been so sick in my life, but they have now gone away, and if it helps rebuild my bones, I will do it again. I am kind of like Job, in the Bible. God and the Devil made a bet that God could do as many horrible things as he could think of and Job would still love him. Job was reduced from being a very rich man with a wonderful life to sitting under his last grape vine while it withered. I am not like Job in one way: I'm pouring plant food and water on that durn vine, and fighting as much as I can. The only way you can overcome serious illnesses is to learn as much as you can about them (thanks to the Internet, this is relatively simple) and then appplying what you have learned. My husband also studies herbal remedies and I take a good many of those. He has helped me more than most of my doctors. You do have to fight, you do have to maintain at least a somewhat hopeful attitude, and you have to get the best doctors you can find. If I don't think one of my doctors is the best, I find one who I do think is good, and switch to that doctor. I now have a "ring" of very smart doctors who all report to my main doctor, who weaves it all together to give me the best treatments she can. However, it is up to ME to take the responsibility to fight. I urge all of you to fight, even if you cannot see any hope in your future. There is hope.As for the fevers, I am still getting them, and I have had a cold/flu since Thanksgiving but I am finally over that except for a persistent cough and of course, the tiredness. I also got E. Coli poisoning, but I think it is finally killed off. The fevers have nothing to do with the surface illnesses. I did make a list of my medicines and looked up side effects and almost all of them list "fevers and sweats" as a possible side effect, so I guess that may be where they are coming from. I cannot do without the medicines, so I guess I will just keep on learning more about how to deal with them. The best way I have found is, when the fever starts, I start eating ice cubes I make from various flavors of soda. A lot of the time, it will lower my temperature back to close to where it is normally (97.2) and I don't get the sweats. The only time when this can't work is when I am asleep, because I can't eat the ice cubes, and I wake up in a puddle. I also have severe sleep apnea, and I sleep a long time.Don't know if this helps anybody at all, but here it is,LadyeFaire
    LadyeFaire 8 Replies Flag this Response
  • Please read this article about Chronic Fatigue Syndrome: http://www.womansday.com/Articles/Health/Conditions-Diseases/Understanding-Chronic-Fatigue.htmlThere is information in the article that my physician had never heard of and he is a specialist in Auto Immune Diseases. Since giving him this article, he has been more open to trying different treatments and I am hopeful that one day I will find the right combination of medications, herbs, and vitamins to finally help. I have been plagued since I was very young with this horrible, debilitating fatigue. Most of my life has been spent in bed because of this and I am now 36. I would do/try anything at this point to feel even a little better. Be sure to click on the various links in the article as some give more insight on ME/CFS. Good luck to everyone!
    Anonymous 42,789 Replies
    • October 3, 2010
    • 10:25 PM
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  • Thanks for the link. It was very interesting. I have come to believe, over the 22 years I have had CFIDS, that it is caused by a variety of viruses that cause people to end up with CFIDS. In my case, it was Epstein Barr virus, caught after thyroid surgery and a very bad car wreck. I also have Fibromyalgia and too many other maladies to list. Lyrica helps very much with the muscle pain and so does the anti-depressant Cymbalta. Plaquenil will help with the joint pain. It still all comes back when bad weather comes through, but I am glad to say I have been off restricted narcotics, such as morphine, for over a year and a half and I feel better now than I did when I took the heavy pain killers. Find a doctor who believes in CFIDS and then find doctors who can treat your other illnesses, such as sleep apnea, arthritis and the depression that a serious illness always causes. Have these doctors report back to your main doctor, who can coordinate your treatments. There is help out there, but you must find it and ask for it. Do not be ashamed to ask, this is NOT your fault. Also, if you haven't done so, apply for disability. It may take a while, but you paid for this work insurance every week you worked, and you are entitled to the help now that you have the need. You will also get Medicare, and that is a really big help. Keep thinking, keep searching, just keep TRYING! You will never get any better unless you make up your mind to fight.
    LadyeFaire 8 Replies
    • October 7, 2010
    • 03:08 AM
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  • Have you ever been tested for a gluten sensitivity??
    Anonymous 42,789 Replies
    • December 6, 2010
    • 04:23 PM
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  • Have you ever been tested for a gluten sensitivity?? No, actually I have not, but that is a good idea. I have many allergies, and maybe I do have a sensitivity to gluten. I just want to be able to go through at least one day without my temperature going up to 101 or so, and then sweating it off, sometimes as many as three a day. Thanks for the suggestion. I am open to any ideas that anyone may have. None of my doctors has a clue.LadyeFaire
    LadyeFaire 8 Replies
    • December 7, 2010
    • 06:21 PM
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  • No, actually I have not, but that is a good idea. I have many allergies, and maybe I do have a sensitivity to gluten. I just want to be able to go through at least one day without my temperature going up to 101 or so, and then sweating it off, sometimes as many as three a day. Thanks for the suggestion. I am open to any ideas that anyone may have. None of my doctors has a clue.LadyeFaire[/QUOTEI was about to suggest this very same thing of a gluten sensitivity or even Celiac's disease. I have Celiac's and I am very familiar with so many of your symptoms from this. Specifically the arthritis, osteoporosis, irritable bowel, restless leg syndrome, pancreatic and diabetes. Untreated Celiac's or a gluten sensitivity or intolerance can also fully explain the Chronic Fatigue Syndrome too.Before I knew I had Celiac's, I was tired ALL the time. Once I went gluten-free I got all my energy back. I've been gluten-free now for almost two years. When do have a contamination of gluten, I know it because that night in bed I'll have restless legs. Untreated Celiac's leads to malabsorption of proper nutrients in the small intestine which is what leads to the osteoporosis due to no calcium absorption. Celiac's is known to lead to diabetes if left untreated.Long and short of it; get tested for a gluten intolerance and Celiac's Disease (IgA & tTG antibodies). Just make sure you do NOT change your diet prior to getting tested as the presence of gluten in your diet is necessary for proper detection.One suggestion though; Celiac's is still a fairly newly discovered disease so many doctors still don't know much about it. Even the present day test is seemingly not as accurate as it should be. I know personally multiple people with many of the exact same symptoms (or subset thereof) but. Have came up negative on the Celiac test. Though when they went 100% gluten-free the vast majority of their symptoms went away. I must stress here 100% adherence to the diet for it to be effective. Even something the size of a bread crumb containing gluten is enough to trigger an auto-immune response if you have Celiac's disease. If you've already been tested or have tried the GF diet, I'd love to hear how you're faring.
    Jeremy22 1 Replies
    • January 23, 2011
    • 01:55 AM
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