Discussions By Condition: Medical Stories

Meralgia paresthetica

Posted In: Medical Stories 22 Replies
  • Posted By: Jim Burgan
  • October 19, 2006
  • 07:43 PM

I just went through my second surgery for Meralgia Paresthetica in my right thigh. If anyone is reading this that has been diagnosed with this horrble condition than please feel free to contact me. I have fought for a few years now with doctors who are clueless and can't believe the pain this condition causes. In my case the right lateral femoral cutaneous nerve in my right thigh has been the culprit. My nerve actually split out in two sections which there is only suppose to be a single nerve and on top on that my right lateral femoral cutaneous nerve went over the pelvic bone instead of under which only happens in 9% of the populations.

I have been through many doctors and and have bills out the wazoo from all the testing. The pain at one point was so bad I thought they are going to remove my leg or I want to die. No medication worked until I was put on a Fentanyl Transdermal Patch 50 mcg/h. This took a big bite out of the pain but I still needed percocet to keep me from putting my fist through a wall some days.

I finally found a surgeon who deals with this disorder. My surgeon is from Georgetown University in Washington DC and his name is Dr. Ducic he is with the plastic Surgery department. It has been six days since my surgery and I think he may have actually fixed this nightmare of a problem. It takes time for the nerve to calm down so time will tell but I pray that his efforts worked.

What he did was cut one of the branches of the nerve because it was chewed up from a prior surgical attempt several months ago by another doctor, who I still respect and who had the profesional wisdom that he was over his head with my problem and referred me to Dr. Ducic.

Dr. Ducic also moved the nerve from a high point where it layed over my pelvic bone and decompressing it in the process.

I do have pain but it has subsided and I have hope that the future will be pain free.

If you are going through this you need to be very active in your care. make sure your doctor is very familier with the problem and has experiance in dealing with it.

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22 Replies:

  • PLEASE E-MAIL ME WHO EVER YOU ARE I NEED HELP I HAVE THIS BUT THE DR DO NOT HAVE A CLUE ON HOW BAD IT REALLY HURTS SORRY FOR YELLEN BUT I JUST WANT TO DIE MY E-MAIL IS frogsms@yahoo.com thank you so much
    Anonymous 42,789 Replies
    • December 28, 2007
    • 06:07 AM
    • 0
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  • :eek: I have similar symptoms, except that the side of my foot hurts, too. I can not stand or walk far. I am only 51. Does Dr. Ducic take insurance? I live in Raleigh, NC, but am considering what help he could add. The pain triggered Chronic Regional Pain Syndrome and I have been to FL to get Ketamine. It helps, but the core problem still exist and the CRPS will come back as the pain continues. Any help is greatly appreciated. I am a nurse. I can't believe how our medical system is so disjointed and drops the ball. CindyB
    CindyB 1 Replies
    • December 20, 2008
    • 01:16 PM
    • 0
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  • would jim burgan get back to me on this PLEASE...i am going nuts with the same conditions and no one has been able to dignose this...it is driving me crazy...i need help...it is a burning tingling in my left thigh and it hurts like ***l did your surgery fix things? andyandyarakelian@aol.com
    Anonymous 42,789 Replies Flag this Response
  • So i was just diagnosed with this as well i noticed that this page is a little lagging in posts. My pain is in both thighs so it sucks sometimes they compete to see which one can hurt the most lol. Anyway i went to a neurologist and they werent little help my mri came back normal except to herniated disks but with there location couldnt be causing my pain. Physical therapy was actually the one to diagnose it believe it or not. I havent gotten to the pain relief part yet so i deal with the tingling which is bearable, and the burning/stinging which is not. I describe it as being stung by hundreds of bees all within location. But when step at a time if anyone has and helpful tips, or wants to know more about my situation can email at brandnpennynhenri@yahoo.com hopes this helps some what. Also my symptoms have lasted over a year and also im not overweight definately not pregnant since im a male, and not diabetic so dont fall within the "typical" patient.
    Anonymous 42,789 Replies
    • September 3, 2009
    • 03:53 PM
    • 0
    Flag this Response
  • So i was just diagnosed with this as well i noticed that this page is a little lagging in posts. My pain is in both thighs so it sucks sometimes they compete to see which one can hurt the most lol. Anyway i went to a neurologist and they werent little help my mri came back normal except to herniated disks but with there location couldnt be causing my pain. Physical therapy was actually the one to diagnose it believe it or not. I havent gotten to the pain relief part yet so i deal with the tingling which is bearable, and the burning/stinging which is not. I describe it as being stung by hundreds of bees all within location. But when step at a time if anyone has and helpful tips, or wants to know more about my situation can email at brandnpennynhenri@yahoo.com hopes this helps some what. Also my symptoms have lasted over a year and also im not overweight definately not pregnant since im a male, and not diabetic so dont fall within the "typical" patient. Dear Friends, Read this link on this subject...http://forums.wrongdiagnosis.com/showthread.php?p=193133#post193133and make proper judgements in your cases. I am available thru e-mail ....PArjuna85210@yahoo.com Good Luck to all of you,Garla Arjuna.
    PArjuna 43 Replies
    • September 6, 2009
    • 03:55 AM
    • 0
    Flag this Response
  • I just went through my second surgery for Meralgia Paresthetica in my right thigh. If anyone is reading this that has been diagnosed with this horrble condition than please feel free to contact me. I have fought for a few years now with doctors who are clueless and can't believe the pain this condition causes. In my case the right lateral femoral cutaneous nerve in my right thigh has been the culprit. My nerve actually split out in two sections which there is only suppose to be a single nerve and on top on that my right lateral femoral cutaneous nerve went over the pelvic bone instead of under which only happens in 9% of the populations. I have been through many doctors and and have bills out the wazoo from all the testing. The pain at one point was so bad I thought they are going to remove my leg or I want to die. No medication worked until I was put on a Fentanyl Transdermal Patch 50 mcg/h. This took a big bite out of the pain but I still needed percocet to keep me from putting my fist through a wall some days. I finally found a surgeon who deals with this disorder. My surgeon is from Georgetown University in Washington DC and his name is Dr. Ducic he is with the plastic Surgery department. It has been six days since my surgery and I think he may have actually fixed this nightmare of a problem. It takes time for the nerve to calm down so time will tell but I pray that his efforts worked. What he did was cut one of the branches of the nerve because it was chewed up from a prior surgical attempt several months ago by another doctor, who I still respect and who had the profesional wisdom that he was over his head with my problem and referred me to Dr. Ducic. Dr. Ducic also moved the nerve from a high point where it layed over my pelvic bone and decompressing it in the process. I do have pain but it has subsided and I have hope that the future will be pain free. If you are going through this you need to be very active in your care. make sure your doctor is very familier with the problem and has experiance in dealing with it.Hello Jim, I too have MP and am having trouble with my doctors. I have done PT two times and have done accupunture as well. Finally they refered me to the pain clinic and they are not doing much help either. I am 20 years old and I have had MP since I was 15. I am also not overweight. I do not fit into the typical MP patient. Again like I said they are not doing much. I have tried Nurotin, Vicoden, Lyrica, Steriods, NSAIDS, Zanaflex, Flexeral, and Ultram and none of this has helped. I too know the EXTREME pain that MP causes and I think you are right in saying that some doctors either do not have much experience in MP or simply do not understand the pain it can cause. I have pain on both sides of my legs and for the past five years ive had pain and numbness as well as hypersensitivity in these areas. I would like to know if the surgery has helped you because I am so fed up with this pain I am thinking of getting something done (A neurologist told me it would not work for me and the damage is prolly life long) Please e-mail me at LJayle8@aol.com
    Anonymous 42,789 Replies
    • September 13, 2009
    • 04:22 AM
    • 0
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  • I have been diagnosed with this problem as well. In my right leg/thigh. It feels like my leg is asleep and it won't wake up. I am 5'2 and not overweight, pregnant, or diabetic. I don't fit the profile for why this should be happening! I have been getting nerve block injections in my leg, around the nerve, but the pain and tingling only have relief for about a week or two before the medicine wears off. I am considering the surgery to decompress the nerve. Does anyone have any advice. I am only 29 and a female, but it drives me crazy, so I am looking for the best suggestions! Please help! You can email me at melis_121@hotmail.com
    Anonymous 42,789 Replies Flag this Response
  • Hi, I've been having this problem for 9 years now of numbness of the right thigh area above the knee to the hip and ive been to the acupunture and got and injection through my lower part of my spine this was in 2002 and in 2008 when i went to the games in beijing i went to the doctors at the games village and had a scan and the doctor said everything was ok but he prescribed some bills fro the numbness but it didnt work as well now im still looking for a cure to this it is so annoying especially at night when i go to bed very itchy, its like an ant crawling under my(thigh) skin and sometimes i just put rub it with deepheat so that it wont itch and have a good rest.iF YOU HAVE A CURE FOR THIS PLEASE HELP,WHAT SHOULD I DOEddieSamoaAPIA
    Anonymous 42,789 Replies Flag this Response
  • Hi, I've been having this problem for 9 years now of numbness of the right thigh area above the knee to the hip and ive been to the acupunture and got and injection through my lower part of my spine this was in 2002 and in 2008 when i went to the games in beijing i went to the doctors at the games village and had a scan and the doctor said everything was ok but he prescribed some bills fro the numbness but it didnt work as well now im still looking for a cure to this it is so annoying especially at night when i go to bed very itchy, its like an ant crawling under my(thigh) skin and sometimes i just put rub it with deepheat so that it wont itch and have a good rest.iF YOU HAVE A CURE FOR THIS PLEASE HELP,WHAT SHOULD I DOEddieSamoaAPIAHey there-I am 24 years old and was diagnosed with MP. I had to see a neurologist becaus ethe other docters pushed me off like my pain was not a thing. I am not overweight either, so my dr prescribed Neurotin which didnt work....however, he then put me on Keppra. It actually worked. My leg is still numb and always will be but the pain is gone.
    Anonymous 42,789 Replies Flag this Response
  • it feels like my leg is comatose and it will not deathwatch up. I am 5'2 and not overweight, pregnant, or diabetic. I don't fit the contour for why this should be happening! I accept been accepting assumption block injections in my leg, about the nerve, but the affliction and amazing alone accept abatement for about a anniversary or two afore the anesthetic wears off. I am because the anaplasty to decompress the nerve. Does anyone accept any advice.
    Anonymous 42,789 Replies Flag this Response
  • I am scheduled to have surgery in a few weeks to fix my MP. I am going to Georgetown Hospital to see a specialist who really knows what he is talking about. He has written many articles about MP and the treatments. I would say anyone suffering with this pain/tingling/numbness, go and get a consult for the surgery. Its a simple decompression of the lateral femoral cutaneous nerve. My doctor said its a very basic procedure, 45 minutes, and about a 2 week recovery. I'll keep you all posted!Melissamelis_121@hotmail.com
    Anonymous 42,789 Replies Flag this Response
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  • I have had surgery for MP 3 months ago. I was told by the surgeon that it was a simple procedure. Well, 3 months later, I can advice that I have been in severe discomfort. I continue to have referred pain in my lower thigh and a constant feeling of rawness in my thigh. I suffer from hypersensitivity and I have recently been perscribed amnitripline 25mg to increase my pain threshold to cope with the stinging / electric shock type sensations.I am scheduled to have surgery in a few weeks to fix my MP. I am going to Georgetown Hospital to see a specialist who really knows what he is talking about. He has written many articles about MP and the treatments. I would say anyone suffering with this pain/tingling/numbness, go and get a consult for the surgery. Its a simple decompression of the lateral femoral cutaneous nerve. My doctor said its a very basic procedure, 45 minutes, and about a 2 week recovery. I'll keep you all posted!Melissamelis_121@hotmail.com
    Anonymous 42,789 Replies
    • September 19, 2010
    • 11:07 PM
    • 0
    Flag this Response
  • I just went through my second surgery for Meralgia Paresthetica in my right thigh. If anyone is reading this that has been diagnosed with this horrble condition than please feel free to contact me. I have fought for a few years now with doctors who are clueless and can't believe the pain this condition causes. In my case the right lateral femoral cutaneous nerve in my right thigh has been the culprit. My nerve actually split out in two sections which there is only suppose to be a single nerve and on top on that my right lateral femoral cutaneous nerve went over the pelvic bone instead of under which only happens in 9% of the populations. I have been through many doctors and and have bills out the wazoo from all the testing. The pain at one point was so bad I thought they are going to remove my leg or I want to die. No medication worked until I was put on a Fentanyl Transdermal Patch 50 mcg/h. This took a big bite out of the pain but I still needed percocet to keep me from putting my fist through a wall some days. I finally found a surgeon who deals with this disorder. My surgeon is from Georgetown University in Washington DC and his name is Dr. Ducic he is with the plastic Surgery department. It has been six days since my surgery and I think he may have actually fixed this nightmare of a problem. It takes time for the nerve to calm down so time will tell but I pray that his efforts worked. What he did was cut one of the branches of the nerve because it was chewed up from a prior surgical attempt several months ago by another doctor, who I still respect and who had the profesional wisdom that he was over his head with my problem and referred me to Dr. Ducic. Dr. Ducic also moved the nerve from a high point where it layed over my pelvic bone and decompressing it in the process. I do have pain but it has subsided and I have hope that the future will be pain free. If you are going through this you need to be very active in your care. make sure your doctor is very familier with the problem and has experiance in dealing with it.I have been dealing w/MP since Oct 2003 and feel your pain. I have a spinalcord stimulation device, which does cover the muscle spasms but the burning and stabbing pain are still prevalent. I also take 300 mg of Lyrica which does a bit of good as well...alas, my pain is so bad sometimes I do wish my leg was cut off. I feel like my life revolves around my thigh and its' pain :"( How do I get ahold of Dr. Ducic. I have googled the name and found several links to Dr. I Ducic out of Georgetown University, I will call them back on Monday. I have had 3 surgerys, including 2 spinalcord implants (the 1st one died), a nerve decomp, several block shots and was orig prescribed Neuronton, nothing works. Except for the Lyrica is better than not having it and percocet. Oooooh Lord, Help Me, Please...
    mary929 1 Replies
    • January 22, 2011
    • 06:54 PM
    • 0
    Flag this Response
  • I am sorry to hear that you are in discomfort. I had the surgery and am feeling 99% better. it takes up to 9 months for the nerve to regenerate as it only grows 1 inch per month. Give it some time! All I had done was the nerve cut and moved so that it could regrow without any ligaments crushing it and causing it pain. If your pain continues, I would go and see a specialist who specializes in MP or nerve reconstruction.
    Anonymous 42,789 Replies Flag this Response
  • WOW...all these comments that describe what I have been going through for the past three years! The pain from this is insanse...wanting to "punch a wall" sums it up really nicely, though.I'm getting the surgery in 10 days, and I can't wait. I don't care if they sever the nerve at this point. Just make the pain go away so I can walk again!I'm 46 now, never been pregnant, not overweight or diabetic, and the only thing I can think of that may have had ANYthing to do with MP to cause this is that I got a tattoo that basically covers the "target area" exactly. I got the tattoo in 2000, but MP didn't start until ~2008.I just have to say that reading these comments made me feel better, too...it's nice to know you aren't alone, and you aren't crazy. Thank you.
    Anonymous 42,789 Replies Flag this Response
  • I have been suffering with this for well over a year now and have been to 4 different doctors: (internal med, orthopedic, neurologist and pain management). I have had multiple MRI's including with dye shot directly into my hip socket... I have had a nerve block through my groin into my femoral nerve. When nothing helped I figured I would just live with it... I tell you though, it just gets old. I have good and bad days.Has anyone ever tried chiropractic for this? I guess I want to try all my options prior to having the surgery.Also - what type of doctor have you had perform the surgery???Thanks so much for any feedback!!!M
    maslesen 1 Replies
    • October 22, 2011
    • 11:18 PM
    • 0
    Flag this Response
  • I am a 72 year old female; not diabetic, a little 'bottom heavy' and definitly NOT pg. I have had MP for over 1 year now and can find NO relief at all,.I also have a herniated disk, but that is not the problem. I haven't had any trauma to the area, but have had deep tissue massages to help relieve the pain but I fear they did more damage than help. I had MRIs,, EMGs, Ultrasounds of the left thigh, Chiropractic help, neurologists help, and the first one to recognize MP was my family doctor. All the others blamed my back. Not so.The feeling is a deep burning; sharp lightning strikes and very tender to the touch. I tried pain patches and they hurt too much to pull off. It started as itching abt 1 year ago, and I thought that was bad. OMG Not like this! Sitting and lying down are the worst. I had to buy a lounge chair so I could raise my leg while my head remains down. that helps a little. Lyrica helped for abt 5 months but instead of losing weight I gained a ton and my hands and feet became like clubs. Now I am on Neurontin, but so far that hasn't helped at all. Someone wrote in abt Keppra and I will do some looking into that. The ONLY thing that really helps is ice packs. The only DR info I have is from this board. There is a doctor at NYU who wrote a book on MP and then there is a doctor at georgtown , Dr Ducic at who operated on someone who wrote in, Jim, but he hasn't gotten favorable results. If u have any good news pls contact me at; brendamacy@yahoo.comthanks and I hope you all find relief.
    lauren3 1 Replies Flag this Response
  • I just went through my second surgery for Meralgia Paresthetica in my right thigh. If anyone is reading this that has been diagnosed with this horrble condition than please feel free to contact me. I have fought for a few years now with doctors who are clueless and can't believe the pain this condition causes. In my case the right lateral femoral cutaneous nerve in my right thigh has been the culprit. My nerve actually split out in two sections which there is only suppose to be a single nerve and on top on that my right lateral femoral cutaneous nerve went over the pelvic bone instead of under which only happens in 9% of the populations. I have been through many doctors and and have bills out the wazoo from all the testing. The pain at one point was so bad I thought they are going to remove my leg or I want to die. No medication worked until I was put on a Fentanyl Transdermal Patch 50 mcg/h. This took a big bite out of the pain but I still needed percocet to keep me from putting my fist through a wall some days. I finally found a surgeon who deals with this disorder. My surgeon is from Georgetown University in Washington DC and his name is Dr. Ducic he is with the plastic Surgery department. It has been six days since my surgery and I think he may have actually fixed this nightmare of a problem. It takes time for the nerve to calm down so time will tell but I pray that his efforts worked. What he did was cut one of the branches of the nerve because it was chewed up from a prior surgical attempt several months ago by another doctor, who I still respect and who had the profesional wisdom that he was over his head with my problem and referred me to Dr. Ducic. Dr. Ducic also moved the nerve from a high point where it layed over my pelvic bone and decompressing it in the process. I do have pain but it has subsided and I have hope that the future will be pain free. If you are going through this you need to be very active in your care. make sure your doctor is very familier with the problem and has experiance in dealing with it. _____________I can't believe that someone else is experiencing the immense pain that Meralgia paresthetica causes. I will have to say one thing, when IWent to the emergency room for what I thought was a back problem, was surprised when I was told about this type of injury. The pain isAbsolutely UNBEARABLE !! Right groin area, lower right back area along with the terrible pain that travels up and down the inside andOutside of my right thigh down to my knee. The Dr.that made the diagnosis told me that Meralgia paresthetica is often misdiagnosedAs a lower back problem or a groin injury. I've had both and I'm here to tell you, I'll take both the back issue and pulled groin over Meralgia paresthetica anyday. Meralgia paresthetica has left me pretty much useless...I pretty much have to crawl around on my kneesTo get to the bathroom or to do anything. I've a question...how long did it take for the doctors to decide on the surgery? I don't know how much longer I can take this pain.Please let me know soon...appreciate your post..been searching sine 7/5.Eric
    Unclereeky 1 Replies Flag this Response
  • I have just come across this site and when I read the comments on MP I cried. I have had MP for 16 months now after a hand operation which took bone from my left hip to graft onto my left thumb. The consultant explained that he had probably caught the nerve in the wound site on my hip when stitching it. I have been in agony ever since and yet even my own doctor can't give me any advice and just hands out prescriptions for drugs. I am taking Gabapentin, Nefopam, Citalopram, Ibuprophen & ranitidine each day which dulls the pain & sensations some of the time. I am 59 years old and I have struggled with osteoarthritis in both hands for a few years now and hoped that the hand ops would help relieve some of the pain. The first op on my right hand went without any complications but since the second op and the consequences I have felt like my life is essentially over and yet no one seems to treat this condition with any seriousness. I have just got back from a doctors appointment in which I brought up the subject of getting a second opinion on possible benefits and side effects of surgery and was told that she couldn't help as she didn't know of any other specialist who could advise me and it would have to be my decision to go ahead or not. It's like constantly hitting a brick wall but then it's not their life that's been affected by this. Talk about living a day in my shoes! I just want to say that I sympathise so much with ANYONE who is dealing with MP and hope that someday it will ease for us all.
    janice1308 1 Replies
    • November 20, 2012
    • 02:05 PM
    • 0
    Flag this Response
  • Dear Jim Burgan,How was your surgeryI am having MP right thigh since one yearThanks
    nandakumar 1 Replies Flag this Response
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