Discussions By Condition: Eye conditions

Terrible Light Sensitivity

Posted In: Eye conditions 12 Replies
  • Posted By: Anonymous
  • March 29, 2008
  • 06:14 AM

I'm 18 and have had this light problem for about 3 years. It started when I'd go out with my friends at night. I'd get really sensitive to the headlights of other cars which seemed to trigger a whole bunch of other symptoms (nausea, shaking, dizziness, hot flashes). It'd get so bad I'd have to pull over and have someone drive me home while I lay in the back with a jacket over my head.

Now it's even worse. I can't go out of my room without sunglasses. My eyes ache constantly. I can barely stand any light. I wear my sunglasses day and night, indoors and outdoors. It's gotten to a point where I'm afraid to go out with my friends and even to work for fear of having an attack and not being able to drive home. I can't sit through movies or play laser tag or go to clubs. It happened last night where I was shaking so hard I could barely stand. My mom finally realized how bad it was when I spent my grandma's funeral laying in the back of the car. We've been to my doctor, but he's a pediatric who mostly sees colds so I'm not sure if he'd be the right person to see. He said it was migraines (mostly because my mom wouldn't let me talk and kept on talking about seeing spots, which I don't really get). I don't really agree mostly because I don't really have any head pain.

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12 Replies:

  • Thanks for the responses :DI read up on both of those, but I don't think either of them are it. I did have a tick bite a few years back, but I'm missing a lot of the symptoms, especially the joint pain and what not. And I've never noticed any particular problem when around an electrical source. Hopefully if I list symptoms you could help me get a better understanding? Not all of them are eye-related though.-photophobia -light sensitivity -all the time-phonophobia -noise sensitivity - episodic-achey eyes -all the time-tremor/shaking Full body -episodic-dizziness -episodic-vertigo -episodic-(almost fainted a few times)- episodic-hot flashes -episodic-weakness -episodic-worse later in the day -all the time-seems to get better after eating (the shakes stop) -all the time-Drowsiness after episode -obviously episodic :PThe tremors and dizziness have been bad lately, happening in episodes. I keep feeling light-headed and dizzy all of a sudden and my vision may dim a little and I feel weak, but then it goes away before I actually pass out.
    Anonymous 42,789 Replies Flag this Response
  • Get to an ophthalmologist as soon as possible. You might be suffering from Acute Narrow-Angle Glaucoma attacks. If not that, then something elseGlaucoma is serious and needs immediate medical treatment. With this type, you don't necessarily see halos until the conditions worsens.Any symptoms with your eyes you want to take seriously. Some can cause blindness, like the one I mentioned.
    Anonymous 42,789 Replies Flag this Response
  • Hey I have the same exact symptoms. i was diagnosed with labyrinthitis. I've been put on antibiotics which made it go away for about 2 weeks and now it's back. so i went back to the doctor and he gave me more antibiotics, steroids, and anti dizzy pills. i honestly don't think that is whats wrong. so if you find anything out please let me know. thanks!
    curlylo26 1 Replies Flag this Response
  • Hello All, I have been reading all the threads on light sensitivity to see if anyone has the same problem as my 4year old son. He developed a terrible sensitivity to light back in the middle of March (and it certainly wasnt sunny here back then!). At times during the day he cannot stand the light at all and has sunglasses, baseball cap and hands covering his face (this can be indoor or outdoor light). For a lot of the day he is fine as long as he has his glasses on. His eyes aren't red or runny and there is no discharge. He does rub them when he gets severe attacks (usually in the car when he can't bear the light at all and squeals in pain). His eyelids do look a bit swollen and one is more noticeably so than the other. We have seen 4 different doctors a total of 6 times and have had diagnoses of viral conjunctivits, allergic conjunctivits, eye infection and allergy. He has been to the optician who said although he couldn't tell whether he had had viral conjunctivits it was more than likely a result of having had it and could take 6 months to heal. At the moment he is on oral anti histimine medicine and 2 lots of eye drops. He is a little better but far from his usual self. After waking in the morning he cannot take his hands away from his face for at least half an hour. Today, a half hour car journey was agony for him. I have lost faith a bit in the doctors after yesterday being told it was partly in his mind and a habit he had got into! If anyone has any suggestions or similar experiences please let me know as this is really spoiling his summer - we cannot travel anywhere and he is missing loads of school. Thanks.
    Anonymous 42,789 Replies Flag this Response
  • Have u ever looked up Iritis? It is an autoimmune disease that causes these same symptoms.. My aunt has been diagnosed with this, and her main complaint was driving at night as well! She has had multiple eye surgerys and guess she is doing much better.. I would seriously check it out though.. http://en.wikipedia.org/wiki/Iritis .... I wish u luck!
    makahfili 8 Replies Flag this Response
  • Iritis: While driving it's bad. I was given steroids and antibiotic drops ( antibiotics because the steroids increase chance of infection). It took a few weeks for symptoms to totally clear but found basic relief in a few days. It usually occurs after a illness or something that makes you weak or stressed.
    Anonymous 42,789 Replies Flag this Response
  • Hi all, I have had iritis and uveitis as a complication of the sarcoidosis that I have had. Both times the major symptom I had was terrible light sensitivity. If you are having to wear dark glasses/sunglasses when driving including at night in order to get relief, then I suggest that you get a referal to an opthamologist at a hospital for a check. The condition responds well to prescribed steriod eye drops in my personal experience. I hope that this is helpful. Kind Regards,Tony
    tonygibbs16 1 Replies Flag this Response
  • My friend’s 5 year old girl has the same problem, and received no real help from various doctors. The kid seemed to have "fits" all the time from light. Finally, after watching TV and seeing on of those "rare" cases on the "HOUSE" TV show. The mom had to keep badgering her kid's doctor until he agreed to test her daughter for "Erythropoietic Protoporphyria". The doctor insisted it was "too rare" to even consider. Finally they agreed to test the kid and it was positive. (I don't know what test(s) they used, except that blood tests were involved.) Since if not treated (light avoidance) this can cause liver damage, it is important to have the doctor rule that out - no matter how rare the doctor insists it is.
    Anonymous 42,789 Replies Flag this Response
  • Did you ever find a solution to this issue? My son is 3 and has asked us to stop turning on his fish light at night because it's too bright. Can't stand bright light when he wakes up. Today his one eye is very red and painful...Thanks.Hello All, I have been reading all the threads on light sensitivity to see if anyone has the same problem as my 4year old son. He developed a terrible sensitivity to light back in the middle of March (and it certainly wasnt sunny here back then!). At times during the day he cannot stand the light at all and has sunglasses, baseball cap and hands covering his face (this can be indoor or outdoor light). For a lot of the day he is fine as long as he has his glasses on. His eyes aren't red or runny and there is no discharge. He does rub them when he gets severe attacks (usually in the car when he can't bear the light at all and squeals in pain). His eyelids do look a bit swollen and one is more noticeably so than the other. We have seen 4 different doctors a total of 6 times and have had diagnoses of viral conjunctivits, allergic conjunctivits, eye infection and allergy. He has been to the optician who said although he couldn't tell whether he had had viral conjunctivits it was more than likely a result of having had it and could take 6 months to heal. At the moment he is on oral anti histimine medicine and 2 lots of eye drops. He is a little better but far from his usual self. After waking in the morning he cannot take his hands away from his face for at least half an hour. Today, a half hour car journey was agony for him. I have lost faith a bit in the doctors after yesterday being told it was partly in his mind and a habit he had got into! If anyone has any suggestions or similar experiences please let me know as this is really spoiling his summer - we cannot travel anywhere and he is missing loads of school. Thanks.
    Anonymous 42,789 Replies
    • February 13, 2010
    • 11:22 AM
    • 0
    Flag this Response
  • My friend’s 5 year old girl has the same problem, and received no real help from various doctors. The kid seemed to have "fits" all the time from light. Finally, after watching TV and seeing on of those "rare" cases on the "HOUSE" TV show. The mom had to keep badgering her kid's doctor until he agreed to test her daughter for "Erythropoietic Protoporphyria". The doctor insisted it was "too rare" to even consider. Finally they agreed to test the kid and it was positive. (I don't know what test(s) they used, except that blood tests were involved.) Since if not treated (light avoidance) this can cause liver damage, it is important to have the doctor rule that out - no matter how rare the doctor insists it is.Could that also be interversible..i have sustained liver damage and then developed sensitivity to light??
    Anonymous 42,789 Replies Flag this Response
  • Check into Irlen Syndrome
    Anonymous 42,789 Replies Flag this Response
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  • I am having the same problem with my 4 year old boy and it has been going on since he was 8 months. Did you ever find out about what your son had? We have been to 4 eye specialists and no one can find what is wrong. Is there any way we can exchange emails so we can talk about it in more detail? Please help.Hello All, I have been reading all the threads on light sensitivity to see if anyone has the same problem as my 4year old son. He developed a terrible sensitivity to light back in the middle of March (and it certainly wasnt sunny here back then!). At times during the day he cannot stand the light at all and has sunglasses, baseball cap and hands covering his face (this can be indoor or outdoor light). For a lot of the day he is fine as long as he has his glasses on. His eyes aren't red or runny and there is no discharge. He does rub them when he gets severe attacks (usually in the car when he can't bear the light at all and squeals in pain). His eyelids do look a bit swollen and one is more noticeably so than the other. We have seen 4 different doctors a total of 6 times and have had diagnoses of viral conjunctivits, allergic conjunctivits, eye infection and allergy. He has been to the optician who said although he couldn't tell whether he had had viral conjunctivits it was more than likely a result of having had it and could take 6 months to heal. At the moment he is on oral anti histimine medicine and 2 lots of eye drops. He is a little better but far from his usual self. After waking in the morning he cannot take his hands away from his face for at least half an hour. Today, a half hour car journey was agony for him. I have lost faith a bit in the doctors after yesterday being told it was partly in his mind and a habit he had got into! If anyone has any suggestions or similar experiences please let me know as this is really spoiling his summer - we cannot travel anywhere and he is missing loads of school. Thanks.
    guinterb 1 Replies
    • February 10, 2012
    • 08:21 PM
    • 0
    Flag this Response
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