Discussions By Condition: I cannot get a diagnosis.

Aching pains in hands, feet, and knees. Genetic. Please help!

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: Kuruna
  • March 27, 2008
  • 09:57 PM

I've had this problem all my life, apparently inherited from my mother, who got it from her father. My uncle also has it. My parents took me to several doctors when I was little (I'm now 16) and no one knew what it was.
I have pains that come and go in my hands, feet, and knees. There's no stiffness or swelling and it doesn't affect my movement so I don't think it's any kind of arthritis. If it was, I think a doctor would have been able to diagnose it. I have to take ibuprofen every day, sometimes 2 or 3 times a day, to get rid of the pain. It's not extremely intense but it's enough to keep from being able to continue whatever I was doing without taking any painkiller. The pain seems to come and go randomly and I don't think it occurs more in one body part than another. It seems to come most often at night. If anyone has any ideas or knows what this might be, please tell me.

Reply Flag this Discussion

14 Replies:

  • Careful with the Ibuprofen. It can be ***l on your stomach. I know people with problems from taking NSAIDs similar to Ibuprofen. Wish you luck.
    richedie 74 Replies Flag this Response
  • You really should see a geneticist or a rheumatologist.
    aquila 1,263 Replies Flag this Response
  • by any chance, do you have hyper extension in those areas eg are you very flexable in those joints? eg can you bend make your thumbs touch your arm? do your knees bend backwards a little? etc If they do.. im thinking of a problem (i think it's genetic??).. in which ones with it are more flexible than normal and it does give pains. also be aware that regular doctors only usually deal with common conditions so probably wouldnt have a clue about your condition.. and you probably should of been to see a specialist.
    taniaaust1 2,267 Replies Flag this Response
  • Thanks for the warning. I know it's bad for you to take ibuprofen a lot, but I don't really have any other choice other than to just suffer. The thing is, the pain won't go away unless I take something. It'll stop for a while and then keep coming back. My mother said she did take me to several specialists, and none could help. I was hoping maybe someone here would have an idea about what it could be. I don't think my parents will take me to doctors just to find out what this is. My mother acts like it's no big deal even though she has it too, but I really want to know. No, I don't think I'm double-jointed or any more flexible in those areas than any other person... and I don't have any other conditions or symptoms that could be related to it. And thanks for trying to help, Blaze, but I don't have Lyme, unless I was bitten by a tick at birth, since I've had this since then. I don't mean to be rude but not everyone who is sick has Lyme just because you do. Thanks for trying to help though. Thanks to all of you. :) I hope some more people will reply with some more ideas.
    Kuruna 8 Replies Flag this Response
  • You may have Fibromyalgia. I have have been diagnosed with this myself, although there is no proof that it is genetic. I have extreme hand, foot, and leg pain, as well as generalized sensitivity to touch and migranes. This is worth checking out with a Reumatologist. For your sake I truly hope you don't have it.
    armiller 1 Replies Flag this Response
  • Well, I don't get migraines and the pain isn't that extreme, but I will definitely look into this. Thanks for your help. :)
    Kuruna 8 Replies Flag this Response
  • I've had the same problem since I was a little girl, and I'm now 24. I normally get it in my knees but the pain seems to spread a little down to my ankles at the same. I also get it once and a while in my elbows and that also seems to spread into my wrists and nuckles. I've gone to a couple doctors regarding it, but no luck. However, just recently I have gone to ANOTHER doctor and have had blood work (which didn't show anything), and a full body scan. I am still waiting on the results of those so I will be sure to post something if anything turns up.I completely understand your pain! It is livable, however, I also don't want to be having to take pills every day of my life. Especial at this age!!! Will keep you posted!Soph
    Anonymous 42,789 Replies
    • October 27, 2009
    • 08:38 PM
    • 0
    Flag this Response
  • I've had the same problem since I was a little girl, and I'm now 24. I normally get it in my knees but the pain seems to spread a little down to my ankles at the same. I also get it once and a while in my elbows and that also seems to spread into my wrists and nuckles. I've gone to a couple doctors regarding it, but no luck. However, just recently I have gone to ANOTHER doctor and have had blood work (which didn't show anything), and a full body scan. I am still waiting on the results of those so I will be sure to post something if anything turns up.I completely understand your pain! It is livable, however, I also don't want to be having to take pills every day of my life. Especial at this age!!! Will keep you posted!SophSoph:Thank you so much! I never thought I would actually hear from someone who actually might have the same thing I do. I hate to say I hope it is, since it is painful, but since you are in pain anyway I do hope you get some results that might help both of us! I'm so glad someone else replied to this after two years. xD I know taking pills every day and having to carry them with you everywhere you go is a pain. I feel lucky that I have this and not something much worse but I do want to at least be able to give a name to it, if not treat it, and I'm sure you feel the same. Good luck with your tests and thank you so much for posting here.Kuruna
    Kuruna 8 Replies
    • October 28, 2009
    • 02:33 PM
    • 0
    Flag this Response
  • I've had this problem all my life, apparently inherited from my mother, who got it from her father. My uncle also has it. My parents took me to several doctors when I was little (I'm now 16) and no one knew what it was.I have pains that come and go in my hands, feet, and knees. There's no stiffness or swelling and it doesn't affect my movement so I don't think it's any kind of arthritis. If it was, I think a doctor would have been able to diagnose it. I have to take ibuprofen every day, sometimes 2 or 3 times a day, to get rid of the pain. It's not extremely intense but it's enough to keep from being able to continue whatever I was doing without taking any painkiller. The pain seems to come and go randomly and I don't think it occurs more in one body part than another. It seems to come most often at night. If anyone has any ideas or knows what this might be, please tell me.What blood and urine tests have you had and what was abnormal?
    Anonymous 42,789 Replies
    • October 28, 2009
    • 07:07 PM
    • 0
    Flag this Response
  • What blood and urine tests have you had and what was abnormal?I haven't had any, at least not since I was a baby. My parents would think I was an idiot if I wanted to go to the doctor and get tests done for this. My mom has the same thing but she acts like it's nothing.
    Kuruna 8 Replies
    • October 29, 2009
    • 00:44 AM
    • 0
    Flag this Response
  • It would be worth going to the doctors and getting tests for ana,rheumatoid factor,esr,crp,cbc,Anti-Sm antibody,HLA-B27 gene markerDo you have any other symptoms apart from these?Any symptoms that appear unrelated like gastrointestinal disturbances or diarrhea,constipation or respiratory symptoms or did you when you were a child?Are the painful area visibly inflamed or anything else visual?
    Anonymous 42,789 Replies
    • October 29, 2009
    • 05:39 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • It would be worth going to the doctors and getting tests for ana,rheumatoid factor,esr,crp,cbc,Anti-Sm antibody,HLA-B27 gene markerDo you have any other symptoms apart from these?Any symptoms that appear unrelated like gastrointestinal disturbances or diarrhea,constipation or respiratory symptoms or did you when you were a child?Are the painful area visibly inflamed or anything else visual?Thanks for the info. I guess I mostly just wanted to see if anyone else had it who knew what it was. No, there are no other symptoms and I didn't have any of those things as a child.This is going to sound weird, but my mom has made some kind of connection between the pain and having to urinate. It does seem like a lot of the time we get pains when we need to go to the bathroom but don't. I don't know if it's just coincidence or not.
    Kuruna 8 Replies
    • October 29, 2009
    • 06:21 PM
    • 0
    Flag this Response
  • Well, unfortunatly I still have no "good" news. Results from the bone scan came back and everything seems to be normal. I'm not letting it go this time though and will be making another appoinment with my doctor to see what the next step are to figuring this out. Was pretty dissapointed to find out that everything game back normal, but I guess that isn't all that bad. Just wish I knew what it was!!!Keep you posted!
    Anonymous 42,789 Replies
    • November 2, 2009
    • 08:29 PM
    • 0
    Flag this Response
  • Any luck in finding out .. I too have the same pain..
    adsouza 1 Replies
    • August 15, 2012
    • 11:41 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.
Advertisement

8 Health Dangers of Depression

Unmanaged depression can take a toll on your physical health.

Best Cough & Cold Meds for Kids

Help your child feel better, faster.

What HIV Positive Women Should Know About Sex

You can have sex after an HIV diagnosis.

Food Choices for Diabetes

What, when and how much you eat affects your blood sugar.

6 Exercises for Multiple Sclerosis

Ease your way into these stretching and strengthening moves,

Advertisement