Discussions By Condition: I cannot get a diagnosis.

could I have Cushings

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Marla Gingrich
  • March 26, 2008
  • 08:50 PM

For years I've had problems with pain and fatigue. Originally diagnosed with Fibro but recently doctor found had low potassium that is not improved with medication, I'm also low in vitamin D, I have insomnia, headaches and have a very difficult time losing weight. I've recently developed high blood pressure and have a small buffalo hump which I was originally told was due to excess weight. I would really like to find out what is wrong because I do not have enough energy for my life or motivation to lose a this weight. I have gained another 20 pounds in the last few months even though eating hasn't changed. HELP!!

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7 Replies:

  • For years I've had problems with pain and fatigue. Originally diagnosed with Fibro but recently doctor found had low potassium that is not improved with medication, I'm also low in vitamin D, I have insomnia, headaches and have a very difficult time losing weight. I've recently developed high blood pressure and have a small buffalo hump which I was originally told was due to excess weight. I would really like to find out what is wrong because I do not have enough energy for my life or motivation to lose a this weight. I have gained another 20 pounds in the last few months even though eating hasn't changed. HELP!! Hi, sorry ur not well.................did they do blood tests for ur thyroid ? could explain somethings ! :)
    Tootsie 628 Replies Flag this Response
  • I have had my thyroid checked. I have been on synthroid for years and have it checked every yer, but it doesn't seem to alleviate problems except for losing hair.
    Marla Gingrich 3 Replies Flag this Response
  • Hashimoto's thyroiditis maybe, i think the test is different........im sorry i don't know enough about it........im Hypothroid & my brother has Hashimoto's, but in one ear & out the other ! I don't know enough about it or other possible causes of ur illness but some of the other members will.........hang in there & someone will reply to u when theyre online. I'm here for a different reason. I do hope u get ur answers and correct treatment ! Sorry im of no use to help u but replying to u keeps u up the list ! Hope you get well soon. :)
    Tootsie 628 Replies Flag this Response
  • You could have cushings. You mentioned that you gained 20 lbs. One major sympom of Cushings is obesity, especially excess weight around your abdomen and the hump you mentioned is another major symptom. Others are fatigue, weakness, sometimes high blood pressure, irritability, anxiety, depression, thinning hair on your head or excess hair growth everywhere else. Sometimes women get irregular periods or diminished libido. Other people get skin problems, where you skin is fragile and thin, you bruise easily and heal slowly. Some people get stretch marks. Cushings is caused by an overproduction of Cortisol, which is produced by your adrenal glands. The most common diagnostic test is a 24 hour urine collection that tests for the cortisol level. Treatment depends on the reason for the problem
    brandic77 10 Replies Flag this Response
  • Thanks! From research, i see the same things, but since it is rare, I'm not sure how much to push doctors to check without sounding like a hypochondriac. Have an appointment at Mayo in April.
    Marla Gingrich 3 Replies Flag this Response
  • I had Cushing's and it went misdiagnosed for a long time. I would not wait and I would get to an endocrinologist asap. It is potentially fatal as it can cause you to have many other problems from hight blood pressure to diabetes. If you notice your face getting puffy or like a "moon face," unexplained weight gain, irritability, diabetes, dark knuckles and dark skin around neck and joints (insulin resistance), headaches, swelling of feet/legs, profuse sweating, osteopenia, etc....you could have what I had. It was awaful and not many doctors have experience with it so you can go misdiagnosed for years. I would seek an endocrinologist and a specialist for the surgery if it is a pituitary adenoma that's causing it. I had pituitary surgery and was effectively cured. I di dmy own research online and was able to given doctors clues. Never be afraid of what a doctor thinks of your complaints. It's your life and many I have seen were wrong. Some simple tests will isolate and diagnose it. I had blood, urine and MRI to diagnose it. Don't wait on it and push to get cured as soon as possible.
    Anonymous 42,789 Replies Flag this Response
  • I am looking forward to the Mayo Clinic and hopefully getting some answers but then again it seems like may never find answer so don't want to get hopes up:rolleyes: What made your doctor finally test for Cushings and do those symptoms point to other things?http://forums.wrongdiagnosis.com/images/icons/icon5.gif
    Marla Gingrich 3 Replies Flag this Response
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