Discussions By Condition: Hair conditions

severe burning scalp hair loss

Posted In: Hair conditions 21 Replies
  • Posted By: burninghead
  • March 17, 2008
  • 06:44 PM

I dont suppose anyone can help me, I gave up on that after two years of this but my hope is to talk to someone else who has this

Two years ago scalp became sensitive and hairs hurt, then it spread to the nape of my neck and currently the nape and crown are in severe pain it ranges from an intense itch to severe bee sting and gets molted and pink in color, sometimes wine color. Fingernails feel painful all 10 of them, joint pain, muscle pain, brain fogginess, kidney back pain, kidney stones, major hair loss about half all over head, body diffuse hair shedding, yeast on face, frequent vaginal yeast infections, burning on face, extreme fatigue just to name a few, but the worst is the scalp pain and hair loss - its killing me.

Anyone else get anything like this? Im a middle aged woman no near menopause and every single thing i've been checked for is normal. I truly dont know how much more of this ***l I can take - or how much longer my body can withstand all these horrible symptoms?

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21 Replies:

  • Have you been to a dermatologist yet? I was just diagnosed today with Scarring alopecia or another name for it lichen planopilaris. I’m in a state of shock over all this as I just found out today. They did a biopsy today also and I have stitches in my scalp. I’m just praying that they are wrong. Some of the symtoms you have listed here fit the same catogory as me.
    morningstarfire 5 Replies Flag this Response
  • Who diagnosed you? Was it a reputable dermatologist? Yes i've been to derms all over even had the scalp biopsy and it did not show anything despite the wine colored scalp where they took the biopsy. I also loose lashes, brows, body hair jusst not in discrete patches all diffuse. Is your hair loss patchy spotty or diffuse all over? I asked my derm about Lichen Planus and they told me no that is not what this is but they do not know. You might want to request a copy of the biopsy which they diagnosed you from because there are certain things they look for in LLP, it takes a very good pathologist to diagnose it, you can't diagnose it via visual its got to be through a biopsy. Let me know more about your condition and what kind of pain you experience. Mine at times is so severe it requires ice packs on my head or sedation I really thought for sure it was LLP but according to my derm it is not, I am loosing hair all over my head at times scalp feels like its got a dozen hornets on it stinging me.
    burninghead 37 Replies Flag this Response
  • Thanks for your post back. No Im not having pain like you are. I have 2 patches on the back of my head about the size of a quarter that are bald with some scabs. The rest of my head is just very ITCHY. Im never really in any acutal pain though. I also have hair loss down my part line and its getting wider. I am a 27 year old woman who at one time had very, very thick hair. Right now they perscribed me with a clear solution called clobetasol propionate 0.05% Im supposed to be putting that on my head at night and washing it out in the morning. Its supposed to be getting rid of any fungal thing in my head I guess? first how do you find out if the are a reputable dermatologist? I found him online and he is board certified and all that.
    morningstarfire 5 Replies Flag this Response
  • Morningstar, I can see from your description the thinking behind LLP. It usually does present with bald patches - but the only way to know for sure is scalp biopsy. They need to biopsy an actual patch to get the diagnosis. But remember there are other things that cause discrete bald patches one is alopecia areata but it would not cause scabbing, the second most common is scalp ringworm. IT would cause bald spots along with some crusting - its a fungal infection and not super uncommon. The clobetasol is a steriod not an antifungal so it would help with inflammation only. One good thing to use for scalp fungus is selsun blue and also tea tree oil shampoo. I would not count on you having LLP. I mean wait until the biopsy returns it could be MANY things. Scarring alopecia is kind of rare. Itching is common with it along with balding patches - but something tells me fungus for you I dont know why. I saw a leading dermatologist one of the top 6 in the usa for scalp and hair disorders and they could not find anything. Hang in there ok?
    burninghead 37 Replies Flag this Response
  • Thank you so much for your kind words and for the info. Tonight my mom has been helping me put on the solution maybe I can get her to take a picture of one of the bald spots so I can show you. You seem very educated in this. I’m sure with dealing with the pain you have in the past 2 years you have done a lot of research. Today is not too bad. I have just been very very itchy. It’s almost like a tingly itchy feeling like something’s crawling though my hair...... the auto immune disease's run in my family so maybe that is why the dermatologist was quick to do the biopsy? I guess I'll find out at my next appt. On April 8th. I hope you’re feeling better today. Im going to try the selsun blue shampoo your recomend.. thanks so much for your advice and help.
    morningstarfire 5 Replies Flag this Response
  • Morning, Yea unfortunatly im alittle to educated on hair problems, I wish I never had to know about hair disorders - In the past two years me and my doctors have looked into the autoimmune angle, the LLP, dermatitis, areata, lupus and still nothing comes up. My one doc thought LLP but the biopsy showed it was not, nor is it areata - its a real mystery. Please let me know what you learn onthe 8th if you can- I am hoping its fungal. Do you have any dogs, cats or children that are swimmers or wrestelrs? family members who might have been exposed? LLP is not common but does present like your saying - yet don't count on anything until the biopsy comes back. if you can get a copy of your biopsy and save it in your records for yourself. With LLP scarring is seen along with absence of sebacious glands and other markers. I can't see how using selsun blue or tea tree shampoo would hurt or make things worse. If its a fungus that might help. The steroid just cuts the inflammation but thats important be sure to use it regularly.Keep your chin up
    burninghead 37 Replies Flag this Response
  • I managed to get my mom to take a few pics tonight... sorry they are not that clear... I have these red pimple looking things in spots all over my scalp. http://i14.photobucket.com/albums/a349/morningstarfire/IMG_0002-1.jpg http://i14.photobucket.com/albums/a349/morningstarfire/IMG_0003.jpg http://i14.photobucket.com/albums/a349/morningstarfire/IMG_0009.jpg http://i14.photobucket.com/albums/a349/morningstarfire/IMG_0015-1.jpg
    morningstarfire 5 Replies Flag this Response
  • I tried to post this the other day but it never showed up. Here are the pics again...sorry they are not very good quality but let me know what you think. I have some red dots all over my scalp and that is what some of the pictures are trying to show. http://i14.photobucket.com/albums/a349/morningstarfire/IMG_0015-1.jpg http://i14.photobucket.com/albums/a349/morningstarfire/IMG_0009.jpg http://i14.photobucket.com/albums/a349/morningstarfire/IMG_0003.jpg http://i14.photobucket.com/albums/a349/morningstarfire/IMG_0002-1.jpg
    morningstarfire 5 Replies Flag this Response
  • Hi there, I do see the spots your talking about - the biopsy is going to give you the answer you need. Its very hard to say what it is without the biopsy. I think your doctor is just going on what he thinks it looks like and what it fits the best so his LLP diagnosis. He may or may not be right - the only way to know for sure is to get the biopsy report back. Be sure to get a copy of the biopsy report and it its "questionable" There are a few fantastic doctors who specialize in hair disorders. One is Dr Vera Price I think out of california?? Then there is a Dr Costeleris (sp) out of the university of PA - if your in the Ohio area there is Dr Wilma Bergfeld at the cleveland clinic. I've been told that alot of derms just are not very well rehearsed in scarring alopecias, and while they are very smart they just dont understand it. That is where these hair speclialists come in - they can distinguish it from other things. I know a woman who had a biopsy at her local derm and they said LLP - then she went to a specialist for hair disorders and he did a biopsy that came back no LLP and he diagnosed her with female pattern hair loss. So dont give up hope. Please let me know what you find out? Best wishes
    burninghead 37 Replies Flag this Response
  • Hi Morning have you ever gotten your diagnosis as of yet? You are in my thoughts.
    burninghead 37 Replies Flag this Response
  • Hi, I moved to New jersey 1 year back.since then me and my 7 year old daughter have been losing hair only on scalp.In this 1 year it affected so much that i can see her scalp and mine too.I am more worried about my daughter than mine as she is very small girl and thinking of her future I am scared.I have discussed this with her paediatrician,but she didnt care.what should I do to prevent this.whom should I consult??Her nails are fine.she is a very healthy girl but has allergic bronchitis.she has beautiful long hair.I am scared is it kind of inheretance from me.If that is the case what are my options.Please help!!!
    satya_sa 1 Replies Flag this Response
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  • I tried to post this the other day but it never showed up. Here are the pics again...sorry they are not very good quality but let me know what you think. I have some red dots all over my scalp and that is what some of the pictures are trying to show. http://i14.photobucket.com/albums/a349/morningstarfire/IMG_0015-1.jpg http://i14.photobucket.com/albums/a349/morningstarfire/IMG_0009.jpg http://i14.photobucket.com/albums/a349/morningstarfire/IMG_0003.jpg http://i14.photobucket.com/albums/a349/morningstarfire/IMG_0002-1.jpgI have experienced very similar pink scalp and hair issues including hair texture changes and hair loss. My scalp got a surge of prickly pain and redness, scalp painful bumps and sometimes scabs. I spent 2 years running from Dr to Dr knowing that there had to be an internal cause. I tried everything from olux to onion juice.... I finally figured it out but it is not easy. You have to listen to me becuase for me it was severe and I had only few symptoms. I went from suzanne somers Dr to top endocrinologists and dermatologists in NYC and Fl. I finally found out the cuase and in 1 month have no scalp issues and no hair falling otu. The texture of my hair is normalizing too. I live in Florida and use to camp when I was in school. I never remembered getting bit by a tick but did have several mosquito bites. I have Bartonella. It is a coinfection of lyme and invades the thin layer of membranes in hair follicles as well as your entire body. I cannot tell you how hard it was to diagnose but i know who to go to and what tests to do. The other suggestion is to get a Pavati in the meantime. Its a pillowcase that is antibacterial and antifungal. It wont cure bartonella but they are way better than any regular pillowcase. Made a difference for me. If you have ever been bitten by a tick you have spirochettes from Lyme. Bartonella is one of them! Like I said, i dont even remember being bit! Im 41... this is the real deal. Let me provide you with guidance! Robin4godalia@aol.com
    Anonymous 42,789 Replies
    • October 12, 2008
    • 01:54 AM
    • 0
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  • :(Hello how does one treat bartonella? Antibiotics? You mentioned your doing better but did not mention how, please tell I am suffering so bad I cant take much more and hair is desinigrating off my head.
    burninghead 37 Replies
    • November 1, 2008
    • 05:13 PM
    • 0
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  • Hi morning star and others,i have just come back from the doctors today becuase i have the EXACT same hair as the pictures posted previously. They think its scarring alopeca and have prescribed me Dermovate which has 0.05% clobetasol propioate. they are also takeing a bisopsy in 4 weeks and are chekcing if it is a thyroid problem by doing some blood tests. im 22and have the same thickness of hair as my nan :(iplease let me know how you get on with your diagnosis. Does your head hurt in the same way that when you used to scrape your hair back on a bun when you were little then let it down, that same hurting of hair? thats how mine feels all the time. If you want to chat my email is racheldeehalliday@hotmail.com
    Anonymous 42,789 Replies
    • November 11, 2008
    • 10:10 PM
    • 0
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  • Rachael I emailed you. Hang in there!!! I wish morningstare would post an update. If she is reading this I want her to know how sorry I am she is going through this mess.
    burninghead 37 Replies
    • November 12, 2008
    • 09:28 PM
    • 0
    Flag this Response
  • I got your email , thankyou for that. im trying to upload some pictures of my hair but i dont know how... any suggestions???
    Anonymous 42,789 Replies
    • November 13, 2008
    • 06:29 PM
    • 0
    Flag this Response
  • Hi you might try photobucket.com then you just cut and paste I believe the last link - i'll find some of my crown and post them too.
    burninghead 37 Replies
    • November 13, 2008
    • 09:31 PM
    • 0
    Flag this Response
  • I dont suppose anyone can help me, I gave up on that after two years of this but my hope is to talk to someone else who has this Two years ago scalp became sensitive and hairs hurt, then it spread to the nape of my neck and currently the nape and crown are in severe pain it ranges from an intense itch to severe bee sting and gets molted and pink in color, sometimes wine color. Fingernails feel painful all 10 of them, joint pain, muscle pain, brain fogginess, kidney back pain, kidney stones, major hair loss about half all over head, body diffuse hair shedding, yeast on face, frequent vaginal yeast infections, burning on face, extreme fatigue just to name a few, but the worst is the scalp pain and hair loss - its killing me. Anyone else get anything like this? Im a middle aged woman no near menopause and every single thing i've been checked for is normal. I truly dont know how much more of this ***l I can take - or how much longer my body can withstand all these horrible symptoms?I had a dermotolgist tell me that I have a positive low reading for lupus and have to have a biopsy. My symptoms were inflaming itchy red scalp sometimes wetness after I would scratch .Painful to the touch ,hair thining and lost to bald spots . It would get worse when I would wash my hair.I use to scratch like a dog it looked like a snow fall after I scratched.The deermertologist gave me a foam cream called OLUX-E and my scalp calmed down immediatly. I was also getting that crust that u are describing. One of my spots are actually grownig hair in it again. I wash my hair once a week and grease my scalp and massage each bald spot real gentle. i hope every thing work out for you!
    Anonymous 42,789 Replies Flag this Response
  • HiI have had similiar symptons as early described by morningstar. Were I woke up one day with a burning sensation on my scalp and hair loss. My scalp burns very bad around the widows peak in the front area only and that is were I have had alot of hair loss. It sometimes burns really bad were it just makes me cry. I have been to 3 dermatologist and they did a scalp bio which came back all normal. I also have been seen by a nuerologist and a rheumotologist, they have done alot of blood work testing on my including a full panel thyroid testing and everything comes back normal. I have also had a cat scan and a MRI done which also came back normal. And now I am being sent to a Pain Management Dr. This has been going on for a year now and no doctors can find out what is causing this burning pain and hair loss. So I am hoping maybe somebody out there has maybe been through what I have and have hopefully found out what it causing this. Please let me know because I feel like I am just going crazy out of my mind....
    Anonymous 42,789 Replies Flag this Response
  • I dont suppose anyone can help me, I gave up on that after two years of this but my hope is to talk to someone else who has this Two years ago scalp became sensitive and hairs hurt, then it spread to the nape of my neck and currently the nape and crown are in severe pain it ranges from an intense itch to severe bee sting and gets molted and pink in color, sometimes wine color. Fingernails feel painful all 10 of them, joint pain, muscle pain, brain fogginess, kidney back pain, kidney stones, major hair loss about half all over head, body diffuse hair shedding, yeast on face, frequent vaginal yeast infections, burning on face, extreme fatigue just to name a few, but the worst is the scalp pain and hair loss - its killing me. Anyone else get anything like this? Im a middle aged woman no near menopause and every single thing i've been checked for is normal. I truly dont know how much more of this ***l I can take - or how much longer my body can withstand all these horrible symptoms?Hi Burninghead !Please get back to me, I have the same problem, my scalp pain and burning is killing me, returning yeast infection, back pain....I would like to find out if U got any better, or what happened ? thanks zs please write me to my email ! zsuzs76@gmail.com
    Anonymous 42,789 Replies Flag this Response
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