Discussions By Condition: I cannot get a diagnosis.

Mystery illness, gas, bloat, air hunger, fatigue

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: melz66
  • January 7, 2008
  • 03:14 PM

Help!!! I'm a 40 year old female. I have been suffering multiple symptoms affecting my entire body for the past 4 years. Symptoms include; stomach bloating, frequent excessive bouts of gas, air hunger(feeling I cannot take in enough air), difficulty swallowing which fluctuates in intensity, extreme fatigue--it feels as though the inside of my body is tired!! I take two naps a day just to do normal activity. I wake up in the morning feeling like I was run over by a truck. Muscles and joints ache. Overexertion (which would be normal activity for anyone else) requires over a week of rest to recover.
Upper endoscopy showed no problems. Pelvic CAT scan was fine. Diagnosed with minor food sensitivities and starved myself on a rotation diet for 3 months but saw no change in the GI symptoms. Treated for yeast overgrowth syndrome and actually got worse. Negative tests for H-pyelori. Lupus has been considered and rejected by at least 5 Doctors
Finally, was diagnosed with Lyme disease & treated for 7 months on antibiotics, and experienced improvement of other symptoms (fevers, night sweats, headaches, dizziness, some joint pain relief) However, the above symptoms still remain and I am at my wits end. I am Very depressed over living in pain and discomfort every day. So if anyone has experienced something similiar or have any ideas as to what this could be, I would be so grateful for your comments. I just need a direction. I don't know where to go with this anymore. Thank you for reading this long post.
Melz

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13 Replies:

  • Hi, I can certainly tell I feel the same way, always, and it's really depressing (sorry for my english). Air hunger, execisve yawning, bloating, fatigue... etc. I took a micoplasma test, cause this type of bacteria can cause cronic fatigue syndrome, but i've got negative results. It's probable my problem is just anxiety, but I recommend that you check if you may have caught mycoplasma, the symptoms are really similar like the ones you describe. I wish you the best. Help!!! I'm a 40 year old female. I have been suffering multiple symptoms affecting my entire body for the past 4 years. Symptoms include; stomach bloating, frequent excessive bouts of gas, air hunger(feeling I cannot take in enough air), difficulty swallowing which fluctuates in intensity, extreme fatigue--it feels as though the inside of my body is tired!! I take two naps a day just to do normal activity. I wake up in the morning feeling like I was run over by a truck. Muscles and joints ache. Overexertion (which would be normal activity for anyone else) requires over a week of rest to recover. Upper endoscopy showed no problems. Pelvic CAT scan was fine. Diagnosed with minor food sensitivities and starved myself on a rotation diet for 3 months but saw no change in the GI symptoms. Treated for yeast overgrowth syndrome and actually got worse. Negative tests for H-pyelori. Lupus has been considered and rejected by at least 5 DoctorsFinally, was diagnosed with Lyme disease & treated for 7 months on antibiotics, and experienced improvement of other symptoms (fevers, night sweats, headaches, dizziness, some joint pain relief) However, the above symptoms still remain and I am at my wits end. I am Very depressed over living in pain and discomfort every day. So if anyone has experienced something similiar or have any ideas as to what this could be, I would be so grateful for your comments. I just need a direction. I don't know where to go with this anymore. Thank you for reading this long post. Melz
    Anonymous 42,789 Replies
    • November 12, 2009
    • 02:32 AM
    • 0
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  • Hi, I can certainly tell I feel the same way, always, and it's really depressing (sorry for my english). Air hunger, execisve yawning, bloating, fatigue... etc. I took a micoplasma test, cause this type of bacteria can cause cronic fatigue syndrome, but i've got negative results. It's probable my problem is just anxiety, but I recommend that you check if you may have caught mycoplasma, the symptoms are really similar like the ones you describe. I wish you the best.Hi,Thank you for your suggestion. I will run that by my next doctor. I don't remember being tested for it.Melz
    Anonymous 42,789 Replies
    • November 16, 2009
    • 03:53 AM
    • 0
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  • Help!!! I'm a 40 year old female. I have been suffering multiple symptoms affecting my entire body for the past 4 years. Symptoms include; stomach bloating, frequent excessive bouts of gas, air hunger(feeling I cannot take in enough air), difficulty swallowing which fluctuates in intensity, extreme fatigue--it feels as though the inside of my body is tired!! I take two naps a day just to do normal activity. I wake up in the morning feeling like I was run over by a truck. Muscles and joints ache. Overexertion (which would be normal activity for anyone else) requires over a week of rest to recover. Upper endoscopy showed no problems. Pelvic CAT scan was fine. Diagnosed with minor food sensitivities and starved myself on a rotation diet for 3 months but saw no change in the GI symptoms. Treated for yeast overgrowth syndrome and actually got worse. Negative tests for H-pyelori. Lupus has been considered and rejected by at least 5 DoctorsFinally, was diagnosed with Lyme disease & treated for 7 months on antibiotics, and experienced improvement of other symptoms (fevers, night sweats, headaches, dizziness, some joint pain relief) However, the above symptoms still remain and I am at my wits end. I am Very depressed over living in pain and discomfort every day. So if anyone has experienced something similiar or have any ideas as to what this could be, I would be so grateful for your comments. I just need a direction. I don't know where to go with this anymore. Thank you for reading this long post. MelzHyperventilation and anxiety. I know you want a more clear cut answer but there isn't one. Do the symptoms go away when you are distracted? Air builds up in the abdomen, which excites pain nerves which causes fear and the cycle goes on.
    Anonymous 42,789 Replies
    • November 16, 2009
    • 09:40 PM
    • 0
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  • Hyperventilation and anxiety. I know you want a more clear cut answer but there isn't one. Do the symptoms go away when you are distracted? Air builds up in the abdomen, which excites pain nerves which causes fear and the cycle goes on.Your symptoms are very similar to mine; after visiting with a neurologist, I was given a muscle biopsy, which in turn discovered that I am suffering from one of the MANY forms of Mitochondrial Myopathy (www.umdf.org). I HIGHLY suggest you have your normal physician refer you to a neurologist, who can get a muscle biopsy done. It's becoming more common now in men and women in their late 20s/30s, who have no genetic history of it in their families. There is no cure, and every individual case seems to end up different with adults, as it normally strikes children. Good luck to you!
    Anonymous 42,789 Replies
    • December 19, 2009
    • 09:32 PM
    • 0
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  • Sounds like Hypothyroidism to me. Have you had your Thyroid levels checked? I had to have my thyroid removed and have experienced all of the symptoms you have listed. Ask your doctor if you haven't already!Help!!! I'm a 40 year old female. I have been suffering multiple symptoms affecting my entire body for the past 4 years. Symptoms include; stomach bloating, frequent excessive bouts of gas, air hunger(feeling I cannot take in enough air), difficulty swallowing which fluctuates in intensity, extreme fatigue--it feels as though the inside of my body is tired!! I take two naps a day just to do normal activity. I wake up in the morning feeling like I was run over by a truck. Muscles and joints ache. Overexertion (which would be normal activity for anyone else) requires over a week of rest to recover. Upper endoscopy showed no problems. Pelvic CAT scan was fine. Diagnosed with minor food sensitivities and starved myself on a rotation diet for 3 months but saw no change in the GI symptoms. Treated for yeast overgrowth syndrome and actually got worse. Negative tests for H-pyelori. Lupus has been considered and rejected by at least 5 DoctorsFinally, was diagnosed with Lyme disease & treated for 7 months on antibiotics, and experienced improvement of other symptoms (fevers, night sweats, headaches, dizziness, some joint pain relief) However, the above symptoms still remain and I am at my wits end. I am Very depressed over living in pain and discomfort every day. So if anyone has experienced something similiar or have any ideas as to what this could be, I would be so grateful for your comments. I just need a direction. I don't know where to go with this anymore. Thank you for reading this long post. Melz
    Anonymous 42,789 Replies
    • January 20, 2010
    • 04:49 PM
    • 0
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  • I have the same thing and after many years was finally diagnosed with Lyme Disease and Babesia. You should do a western Blot for Lyme and all co-infections. I have a blog about it. lymeball.com GOOD LUCK, and I hope you get some answers.Help!!! I'm a 40 year old female. I have been suffering multiple symptoms affecting my entire body for the past 4 years. Symptoms include; stomach bloating, frequent excessive bouts of gas, air hunger(feeling I cannot take in enough air), difficulty swallowing which fluctuates in intensity, extreme fatigue--it feels as though the inside of my body is tired!! I take two naps a day just to do normal activity. I wake up in the morning feeling like I was run over by a truck. Muscles and joints ache. Overexertion (which would be normal activity for anyone else) requires over a week of rest to recover. Upper endoscopy showed no problems. Pelvic CAT scan was fine. Diagnosed with minor food sensitivities and starved myself on a rotation diet for 3 months but saw no change in the GI symptoms. Treated for yeast overgrowth syndrome and actually got worse. Negative tests for H-pyelori. Lupus has been considered and rejected by at least 5 DoctorsFinally, was diagnosed with Lyme disease & treated for 7 months on antibiotics, and experienced improvement of other symptoms (fevers, night sweats, headaches, dizziness, some joint pain relief) However, the above symptoms still remain and I am at my wits end. I am Very depressed over living in pain and discomfort every day. So if anyone has experienced something similiar or have any ideas as to what this could be, I would be so grateful for your comments. I just need a direction. I don't know where to go with this anymore. Thank you for reading this long post. Melz
    Anonymous 42,789 Replies Flag this Response
  • Sounds like Hypothyroidism to me. Have you had your Thyroid levels checked? I had to have my thyroid removed and have experienced all of the symptoms you have listed. Ask your doctor if you haven't already!Also, if you get treated for Lyme and not co-infections your symptoms will persist!! It is super important that you find out if you had any co-infections
    Anonymous 42,789 Replies Flag this Response
  • Look up celiac disease. The complications consist of symptoms related to malnutrition and or malabsorption. Air hunger can be related to b12 deficiency. Also mult other vitamin def can cause confusion, extreme fatigue, anxiety, and a myriad of other probs. Also look up low adrenal function, and low progesterone. With vitamin supplements and gluten free diet, after 6 mths I am finally starting to feel better than I have in 10 years. And I have always been constipated, never had diarrhea so that is not always the main symptom as some docs think.
    Anonymous 42,789 Replies Flag this Response
  • Look up celiac disease. The complications consist of symptoms related to malnutrition and or malabsorption. Air hunger can be related to b12 deficiency. Also mult other vitamin def can cause confusion, extreme fatigue, anxiety, and a myriad of other probs. Also look up low adrenal function, and low progesterone. With vitamin supplements and gluten free diet, after 6 mths I am finally starting to feel better than I have in 10 years. And I have always been constipated, never had diarrhea so that is not always the main symptom as some docs think. I agree with this post. Definately rule out any food intolerances using an elimination diet.
    awakeningspirit 10 Replies Flag this Response
  • extreme fatigue--it feels as though the inside of my body is tired!! I take two naps a day just to do normal activity. I wake up in the morning feeling like I was run over by a truck. Muscles and joints ache. Overexertion (which would be normal activity for anyone else) requires over a week of rest to recover. I think you have got chronic fatigue immunity dysfunction syndrome (CFIDS). The long exercise recovery time points to that, i cant think of another illness in which exercise recovery takes so long and which has ALL your symptoms. With CFIDS care has to be taken with exercise.. too much can be harmful! (for some permanently) Air hunger also can happen in CFIDS, i spend one christmas in bed, feeling like i was going to suffocate due to it (felt like my very cells couldnt get enough air). It is thought nowdays by many CFIDS specialists that CFIDS is a mitochrondial issue. Ive seen some statistics that 10% of those with lyme disease.. end up with CFIDS. Treated for yeast overgrowth syndrome and actually got worse Sounds like yeast is an issue in your case too (it could be your whole issue). Treatment for yeast makes it die off and hence symptoms can worsen... due to what is called a "Herxheimer reaction".theworst the symptoms from the treatment, the more die off is going on. Treatment should be backed off a little so the die off going on is bearable. With the CFIDS you could have also fibromyalgia, Irritable bowel syndrome and maybe postural orthostatic tachycardia syndrome too. (food intollerances are common in CFIDS). http://wwcoco.com/cfids/bernesx.html for the symptoms of CFIDS from studies.
    taniaaust1 2,267 Replies Flag this Response
  • Help!!! I'm a 40 year old female. I have been suffering multiple symptoms affecting my entire body for the past 4 years. Symptoms include; stomach bloating, frequent excessive bouts of gas, air hunger(feeling I cannot take in enough air), difficulty swallowing which fluctuates in intensity, extreme fatigue--it feels as though the inside of my body is tired!! I take two naps a day just to do normal activity. I wake up in the morning feeling like I was run over by a truck. Muscles and joints ache. Overexertion (which would be normal activity for anyone else) requires over a week of rest to recover. Upper endoscopy showed no problems. Pelvic CAT scan was fine. Diagnosed with minor food sensitivities and starved myself on a rotation diet for 3 months but saw no change in the GI symptoms. Treated for yeast overgrowth syndrome and actually got worse. Negative tests for H-pyelori. Lupus has been considered and rejected by at least 5 DoctorsFinally, was diagnosed with Lyme disease & treated for 7 months on antibiotics, and experienced improvement of other symptoms (fevers, night sweats, headaches, dizziness, some joint pain relief) However, the above symptoms still remain and I am at my wits end. I am Very depressed over living in pain and discomfort every day. So if anyone has experienced something similiar or have any ideas as to what this could be, I would be so grateful for your comments. I just need a direction. I don't know where to go with this anymore. Thank you for reading this long post. MelzI had similar symptoms for months, and the doctors diagnosed it as "malabsorption". You might look into this.
    Anonymous 42,789 Replies Flag this Response
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  • I agree with this post. Definately rule out any food intolerances using an elimination diet.I agree with this. Just stopped in quickly to say that I thought my asthma was getting out-of-control. I was also having intestinal bloating, gas and gas pains... I started having some bowel issues eventually. So, my dietician suggested I go gluten-free. My issues stopped... including some headaches and muscle aches! Well, I'm negative for celiac sprue. I went to the allergist, proclaiming that I was CERTAIN I had a wheat allergy and wanted to be tested to be sure! Well, he agreed to test. I wasn't allergic to wheat, after all. BARLEY! I would give the elimination diets another go-around. Keep a food/symptom diary. Summer is the best time to do an elimination diet. You can eat real simply. For going gluten-free, I just grabbed up lots of fresh produce and fish and chicken... Packaged foods sneak in so many ingredients! For example, for my barley allergy, I have to watch out for: malt flavoring, malt vinegar, brown rice syrup, maltose, caramel/caramel color -- but maltodextrin is OK.I picked up a veggie rice mix (white rice with carrots and peas) and it had "caramel color" in it... but the next packet over with the complicated ingredients list of red rice, rye rice, chicken flavoring, brown rice, herbs, etc... was just fine!!!!So, it's so tricky with packaged foods. I know eating simply is no fun but here I am out the other side of it, and I feel like I have my life back! Here is a link about food allergies that I found to be very helpful: http://www.askdrsears.com/html/4/t041800.aspAn allergist can be very helpful in confirming or testing for food allergies. I DID test positive to barley... but I didn't get tested until I had done the gluten-free diet and had the suspicion that I was dealing with a food allergy. I want to shout off of rooftops that I can breathe! I'm not afraid that my "asthma" is going to kill me, that it's hopeless! I am sleeping better. I am not taking prednisone whenever I am visiting my parents and their 7 cats -- because I'm not breathing through a straw... my airway is wide-open and the cats just give me the sniffles now that my system isn't battling the food allergy on top of it. Walking is easier! My muscles don't hurt as much (I have mild fibromyalgia, but now it's a kitten instead of a lion). I have fewer headaches. I am focusing better at work and volunteering for physical tasks instead of hoping someone else will do them. Maybe it isn't a food allergy, but I know how complicated it can be to find out because I've gone years and years not knowing so I truly hope you find whatever you need to learn to help yourself feel better. Good luck to you. I'm really, really sorry you're feeling this way and that you don't have an answer yet.
    Anonymous 42,789 Replies Flag this Response
  • Help!!! I'm a 40 year old female. I have been suffering multiple symptoms affecting my entire body for the past 4 years. Symptoms include; stomach bloating, frequent excessive bouts of gas, air hunger(feeling I cannot take in enough air), difficulty swallowing which fluctuates in intensity, extreme fatigue--it feels as though the inside of my body is tired!! I take two naps a day just to do normal activity. I wake up in the morning feeling like I was run over by a truck. Muscles and joints ache. Overexertion (which would be normal activity for anyone else) requires over a week of rest to recover. Upper endoscopy showed no problems. Pelvic CAT scan was fine. Diagnosed with minor food sensitivities and starved myself on a rotation diet for 3 months but saw no change in the GI symptoms. Treated for yeast overgrowth syndrome and actually got worse. Negative tests for H-pyelori. Lupus has been considered and rejected by at least 5 DoctorsFinally, was diagnosed with Lyme disease & treated for 7 months on antibiotics, and experienced improvement of other symptoms (fevers, night sweats, headaches, dizziness, some joint pain relief) However, the above symptoms still remain and I am at my wits end. I am Very depressed over living in pain and discomfort every day. So if anyone has experienced something similiar or have any ideas as to what this could be, I would be so grateful for your comments. I just need a direction. I don't know where to go with this anymore. Thank you for reading this long post. MelzMycoplasma, CMV or some other pathogen is most likely cause of symptoms. The fact that you got worse during antibiotic treatment only confirms this because when pathogens like mycoplasma which live in your cells die off, the cells send out stress signals and the brain sends pro-inflammatory cytokines to do battle and it causes major inflammation and worsening of symptoms. I would see a doctor who does integrative medicine and get accurate diagnosis. Also look up Low Dose Naltrexone treatment, it really helps with all autoimmune disease - stops progression of disease and also reduces the symptoms during antibiotic therapy. I've seen amazing improvement in a short time, the benefits can be rapid and get even better with time. www.lowdosenaltrexone.org
    Anonymous 42,789 Replies
    • November 1, 2010
    • 11:35 AM
    • 0
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