Discussions By Condition: Infectious diseases

Flesh eating parasite ravaging body; losing eyesight

Posted In: Infectious diseases 21 Replies
  • Posted By: Euronymous
  • December 30, 2007
  • 09:30 PM

Hello. I sure am glad I finally found a live message board, maybe someone knows something about this. Three months ago, I noticed itching on my body, but nothing appeared to be there, I thought it was fleas as I have several cats as pets. Next, when I felt jumping and crawling sensations on my scalp and in my hair, and couldn't get rid of them, I thought it was head lice. When RID wouldn't get rid of them, I went to a doctor and was diagnosed with scabies when I told her how the mites would burrow beneath the skin, itch, and become more active at night. I had some areas on my body that had the hallmark red bumps that scabies causes, so I figured that's what it was. I've used Permethrin in attempts to treat the parasite to no effect. I've tried Permethrin several times, and Ivermectin on two separate occasions, still my entire body is covered with the mites.
Doctors say that what I describe cannot be scabies, scabies doesn't get in the eyes, on the scalp, it causes wounds whereas this isn't rejected by the skin. What's worst is the ability of this mite or worm to conceal itself, as I can no longer even get help from doctors who think I'm imagining this. The parasite mimics skin cells, and sheathes itself in the skin, where it poses as rough dry skin. It is very small, but large enough to be recognized with a magnifying glass. It can alter it's appearance, but generally looks like a translucent to white grain similar in shape to a scabies mite, but it also appears as a worm, yellowish-brown (perhaps trying to blend with my hairs). When agitated, the mite can project a dart from it's body - I believe it "shoots" some kind of thread like fiber from this dart...I don't know what for, very weird.
My right hand is in very bad shape, it is swollen (with the parasite) and the top layer of skin has been removed. This is the hand that I use most often to wipe the crawling bugs off of my skin, and to brush my hair. The mite goes inside the body and affects other organs, the extent of which I'm not sure. I'm experiencing nausea, weakness, loss of coordination and balance, tremors, numbness, muscle and joint aches, weight loss, twitching, nervousness, earache, and alot of eye discomfort. They've affected my vision, and everything appears foggy, or dim, and things seem to blink or flicker. I'm really worried and in agony from the persisting crawling (like an ant) and biting (like a flea), but I can do nothing about it. I've been to every hospital in the area, out of pocket because I have no insurance. Doctors won't take me seriously and I'm afraid that this stuff could be deadly. My grandmother recently contracted it, but she doesn't want to tell anyone for embarrassment. Any help would be great, I'm running out of hope that I'll ever have my life back.

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21 Replies:

  • Hopefully, Grandmother has insurance you better insist that she go to a dermatologist to find out what it is. Once she knows, you will know...it is nothing to be ashamed of. It could be that when you use to poison, that you do not do a thorough housekeeping job like you should. You need to wash the bedding and towels and all clothes...clean the floors and rugs...that is cleaning number one...then you wash towels and bedding and any clothes that you wear everyday as the thing dies out--along with floors and rug again......try to start with a new doctor, like you haven't been to any yet...dermatologists usually have a waiting list, so make some calls for a new one. You need to be persistant and try to avoid the ER, you need the specialist if grandmother is not going...ask for a cash discount...if grandmother does get an appointment, you could escort her and go into the room with her...he would be forced to look at you too...
    Monsterlove 2,921 Replies
    • January 1, 2008
    • 08:23 AM
    • 0
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  • THIS CURED MEI had mites on me for a couple weeks that I could not get rid of.I got rid of them from my hair and face by using white vinegar. However, they kept coming back. Especially to my vagina and anus area. And the vinegar gave me yeast on my skin (made it a bit red, itchy, irritated) so i don't recommend vinegar! It is a yeast fermented product and contains yeast.What finally worked for me to keep them from coming back, was I rubbed my skin with hydrogen peroxide (this got rid of the itchy redness from the vinegar), and then i dried off and applied baby powder whereever the mites were biting me, to keep my skin nice and dry. This kept the mites away. I used 15% water soluble tea tree oil on my vagina and anus, and hair. This also got rid of my dandruff on my head.It only took a couple days of this, and i have no more problems with mites!I really think that mites are attracted to people who have poor health/immune systems and yeast on their skin. That's why some people get mites and others go into the same rooms and dont get bit at all. I didnt have obvious yeast on my skin, my skin looks normal, but i dont think it's something we can see.I do know that after cleaning the yeast from my skin with hydrogen peroxide, baby powder (yeast like a moist environment, and baby powder keeps the skin dry), and tea tree oil, i have had no more problems from mites, even though i do not walk around with those products on me, i still do not have problems because i killed off the yeast on my skin. They are attracted to yeast!I know i have a poor immune system at the moment, so that's why i think i get yeast on my skin. I am improving my health though through healthy diet and exercise. In the meantime, i occasionally use hydrogen peroxide and tea tree oil to prevent yeast growing back on my skin, until my health is better and my immune system is back up.So that's my theory - people with poor health, poor immune function, get yeast on their skin, and this attracts mites. If you clean your skin of the yeast using hydrogen peroxide, baby powder, and tea tree oil, and improve your immune system with healthy diet and exercise, you can rid yourself of mites. Don't forget to vacuum, and clean your floors, and do your laundry to. I add borax powder to my laundry.Hope this helps.
    Anonymous 42,789 Replies
    • January 27, 2008
    • 03:58 AM
    • 0
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  • UVC is also renowned to kill mites after about 6-8 seconds of contact at 1cm away.........this may help you as well.............
    Marclau 3 Replies Flag this Response
  • I don't know what you have but I think I have it too...Started with scalp sores, which I didn't think much of, until becoming very ill. Now I can hardly eat, have lost lots of weight, am in pain all the time, and have had many medical tests which are all "normal" except for two small cysts--one on my kidney and one on a rib.I have seen the white granules come out of my skin, which I think are egg sacs, and had the tiny wormlike creatures come out of my ears and nose; and they have the tiny filament you mentioned. They are definitely more active at night. The creatures are about 2.5 mm long. I have one under my skin, after it migrated there and laid eggs. My body was able to produce an inflammatory response, and after 5 days, there were just two bumps, which I expressed...out came not only two collections of debris (dark colored, tiny) but a long filament, about 1 cm long.I have had some success shampooing with tar based shampoo daily, and studiously avoiding picking at my scalp. Also am very careful about any coughing or spitting, and washing my hands frequently. Consider washing hair daily, and not "wiping" your forehead with your right hand...try the tar shampoo on that hand too...maybe someone would biopsy the skin on it.Where do you live? Do your cats have access to foxes or coyotes? There is a parasite called echincossus multilocaris which has some of these properties, but I don't know if this is the problem. I have just ordered two Parasitology books to try to find this. Google on echinococcus multilocaris and you can learn a lot. Also, if you google pictures of parasites, you will see a picture of this parasite. It is about 2.5 mm long.I cannot get my parasitologist to believe me although I have taken samples to him. Please keep trying to find the answer...maybe you and your grandmother could both go to an infectious disease specialist, together. Let me know if you learn anything.The CDC does an antigen test for this parasite (called hydatid disease; not common in the US); it takes 6 weeks to get the results back, but it is worth it.
    marionstar 228 Replies Flag this Response
  • Dear Euronymous, did you ever get a diagnosis on your parasite? Thanks. Marionstar
    marionstar 228 Replies Flag this Response
  • Sounds exactly like Morgellons. An excellent message board is http://lymebusters.proboards39.com/index.cgi?board=rash Samento and Sulfinex helped me along with other things.
    Anonymous 42,789 Replies
    • August 16, 2008
    • 08:07 AM
    • 0
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  • Marionstar makes a lot of sense.I don't believe it's Morgellons. I've seen a documentary about it and one of the characteristics are tiny fibers coming out of the skin and it hurts like ***l when you pull it out. This is a different one....A way different and a very serious parasite that has to be treated a.s.a.p.I do suggest some Aveeno products to soothe ur discomfort, scratching will only make ur skin worse.I urge medical help and at the same time researching some facts for yourself.GOOD LUCK and try convincing grandma.p.s.Wiki link for Marionstar's suspected culprit - http://en.wikipedia.org/wiki/Echinococcus_multilocularis
    Anonymous 42,789 Replies
    • August 19, 2008
    • 06:57 PM
    • 0
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  • Hey There all!!!!! I have had similar experiences throughout my 39 yr lifespan. Most recently, in Jacksonville, Fla, I gained a huge amt of weight quickly and seemed to lose my agility and I had difficulty seeing at times and a constant ear infection. I used a nettie pot with sea salt and rinse my sinus'. I rarely have the need to use it these days. I also used peppermint castile soap to wash my hair and body. This has done wonders!!! I also use it for altzheimers patients that I take care of. And I must tell you that I have met with great success in regaining brain power for my patients! I recently read of diamateous earth working wonders and I am going to try that next as I have a huge belly. Let me know if any of this stuff works for you. peace and love, Radonna Grace
    Anonymous 42,789 Replies
    • October 3, 2008
    • 08:14 PM
    • 0
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  • I have something similar to what you have. It is like scabies, but worse than the descriptions. Scabies causes that dry crust on the skin. I have lost about 5 to ten pounds in 8 weeks because eating makes me feel sick. My dog began shedding in massive amounts at the same time I got this mess. She also lost her appetite. I put a flea and tick collar on her, the shedding stopped, and her appetite improved over time. When dogs get scabies, they get a type of mange.Here is what I have learned: Scabies die underwater when they are on top of your skin. I have been taking baths daily, and submerging myself completely as soon as I get in the water. If I only get in up to my head or neck, they crawl or jump up and bit me on my exposed skin. It would not be a bad idea to join a club with a pool, and jump in the water all at once - every day. Once you kill the live bugs on your skin, you have a short amount of time before some more eggs hatch and start crawling on you again. Mine start biting again before 24 hours is up, so I have to do everything I can to kill them three times a day - or whenever I feel them. Some of the bugs are going to get on your bed, clothes, towels etc. You must wash all of these things EVERYDAY in bug killer. I put everything in the washer, sprinkle flea powder on top, leave it in the washer for one hour, then wash them. I know it works, because when I don't do this, they bit me all over within five minutes of touching the clothes, sheets, or clothes. Call me crazy for doing this, but I have to spray the bed with bug killer too. I use the stuff that says it kills fleas, ticks, and mites. Scabies are related to ticks. They are not true mites. They burrow into your skin, lay eggs, and suck your blood. Remember that after one bit, the eggs will survive up to two weeks under your skin. When they hatch, the bugs can live up to two weeks burrowing and bitting you mercylessly. The only time they are vulnerable is when they are crawling on your skin.I have been using neem shampoo, soap, and conditioner to wash. I leave the shampoo in for five minutes. After bathing, I use neem lotion, and during the day I use neem lotion, neem paste, and neem oil. I also tried "Scabies killer" oil and enzyme. The stuff costs a fortune, but I do think the oil works well. I didn't feel any difference with the enzyme. I am going to try some less expensive remedies too. I heard Epson salt and Borax work well. I am not over this yet, but I am gaining on them. I still have some bites left over, and I can feel them when they hatch, but they are getting weaker. In a week or so most of the eggs should be hatched, and their numbers should drop off. I also noticed that when I put the oils on my skin, the bugs start bitting more right away. I think they are running for cover! Then I tried opening a bottle of citronella oil first and dotting it on my body before using the oil. The bugs don't bit as much when you bring out the citronella. I put some on the inside of my clothes at work too. Don't put the citronella on sensitive skin though! It will burn when you bathe. Remember the rules:They cannot swim or breath in water. Chlorine kills them, but bath water works too.After one bite, the eggs will survive under your skin for up to two weeks.When they are off your body, I believe that they can survive 4-5 days. They are on your chairs, bed, keyboard, car seats, etc. You need to spray!You need to kill them before they are old enough to bite - 12-16 hours old?They do survive in the washer and dryer! Best of luck to you all! L
    Anonymous 42,789 Replies
    • December 19, 2008
    • 04:53 AM
    • 0
    Flag this Response
  • Hi, I think my friend has the same thing. Have you found any help yet !!!.Does anyone know anything about this parasite.your post was 2007 now its almost 2010. HELP HELP. IS there any help yet !!!IF Anyone who reads this knows aynthing about this parasite please send me an email.( ztransporter@yahoo.com ) .Thanks Tim.
    Anonymous 42,789 Replies
    • December 4, 2009
    • 04:36 AM
    • 0
    Flag this Response
  • Hi I've been doing alot of research for 4 months now and I'm very impressed with the following and I'm about to try them all. I'd like to direct you to a couple sources you'll have to read and come to your own conclusions so it's totaly up to you but1000 of people are saying they were 100 relieved.visit these sites. The protacal was developed by Dr Hulda Clark1.) drclark.com (shop)2.) drclark.net (protocal)curzone.com (tons of info diagrams etc)check for a battery operated "zapper" this really works and the cheapest one works great it's under 15 bucks and it sends a frequency through you that will not harm you at all as it's way too mild but but kills all the parasitesalsocheck for the parasite cleanse using step 1.) 3 herbs wormwood, black walnut green hull, cloves $36 for the kit (get the 3 piece kit not the tincture)step 2.) ozonated olive oil & L-cyteine (not sure how much) step 3.) enema with the 3 herbs in step one. when you click on the picture of the products scroll down and they will give youthe dosage and protacal. don't bother too much with the forum get the stuffand instructionsalso checkmms1 and mms2 one uses a simple cheap ($25 bucks for the kit) gets oxygen to your cells, blood, organs and kills any negative living microbes, pathogens and parasitesand mms2 uses a technique to give you a large dose of a precious chemical that is alreadyin your body to kill pathogens but it's too little of an amount. You'll be suprised that you can use a cheap mineral that's used for pools ($5 bucks a pound)depending on if you want to try them all you'll spend from $30 up to $150 total and I think this will solve your problem!
    Anonymous 42,789 Replies
    • February 10, 2010
    • 01:17 AM
    • 0
    Flag this Response
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  • Hello, google Earth Clinic and Demodex mites . You will find some great info.
    Anonymous 42,789 Replies Flag this Response
  • please see www.johnofgod.info Hello. I sure am glad I finally found a live message board, maybe someone knows something about this. Three months ago, I noticed itching on my body, but nothing appeared to be there, I thought it was fleas as I have several cats as pets. Next, when I felt jumping and crawling sensations on my scalp and in my hair, and couldn't get rid of them, I thought it was head lice. When RID wouldn't get rid of them, I went to a doctor and was diagnosed with scabies when I told her how the mites would burrow beneath the skin, itch, and become more active at night. I had some areas on my body that had the hallmark red bumps that scabies causes, so I figured that's what it was. I've used Permethrin in attempts to treat the parasite to no effect. I've tried Permethrin several times, and Ivermectin on two separate occasions, still my entire body is covered with the mites. Doctors say that what I describe cannot be scabies, scabies doesn't get in the eyes, on the scalp, it causes wounds whereas this isn't rejected by the skin. What's worst is the ability of this mite or worm to conceal itself, as I can no longer even get help from doctors who think I'm imagining this. The parasite mimics skin cells, and sheathes itself in the skin, where it poses as rough dry skin. It is very small, but large enough to be recognized with a magnifying glass. It can alter it's appearance, but generally looks like a translucent to white grain similar in shape to a scabies mite, but it also appears as a worm, yellowish-brown (perhaps trying to blend with my hairs). When agitated, the mite can project a dart from it's body - I believe it "shoots" some kind of thread like fiber from this dart...I don't know what for, very weird. My right hand is in very bad shape, it is swollen (with the parasite) and the top layer of skin has been removed. This is the hand that I use most often to wipe the crawling bugs off of my skin, and to brush my hair. The mite goes inside the body and affects other organs, the extent of which I'm not sure. I'm experiencing nausea, weakness, loss of coordination and balance, tremors, numbness, muscle and joint aches, weight loss, twitching, nervousness, earache, and alot of eye discomfort. They've affected my vision, and everything appears foggy, or dim, and things seem to blink or flicker. I'm really worried and in agony from the persisting crawling (like an ant) and biting (like a flea), but I can do nothing about it. I've been to every hospital in the area, out of pocket because I have no insurance. Doctors won't take me seriously and I'm afraid that this stuff could be deadly. My grandmother recently contracted it, but she doesn't want to tell anyone for embarrassment. Any help would be great, I'm running out of hope that I'll ever have my life back.
    Anonymous 42,789 Replies Flag this Response
  • Hello. I sure am glad I finally found a live message board, maybe someone knows something about this. Three months ago, I noticed itching on my body, but nothing appeared to be there, I thought it was fleas as I have several cats as pets. Next, when I felt jumping and crawling sensations on my scalp and in my hair, and couldn't get rid of them, I thought it was head lice. When RID wouldn't get rid of them, I went to a doctor and was diagnosed with scabies when I told her how the mites would burrow beneath the skin, itch, and become more active at night. I had some areas on my body that had the hallmark red bumps that scabies causes, so I figured that's what it was. I've used Permethrin in attempts to treat the parasite to no effect. I've tried Permethrin several times, and Ivermectin on two separate occasions, still my entire body is covered with the mites. Doctors say that what I describe cannot be scabies, scabies doesn't get in the eyes, on the scalp, it causes wounds whereas this isn't rejected by the skin. What's worst is the ability of this mite or worm to conceal itself, as I can no longer even get help from doctors who think I'm imagining this. The parasite mimics skin cells, and sheathes itself in the skin, where it poses as rough dry skin. It is very small, but large enough to be recognized with a magnifying glass. It can alter it's appearance, but generally looks like a translucent to white grain similar in shape to a scabies mite, but it also appears as a worm, yellowish-brown (perhaps trying to blend with my hairs). When agitated, the mite can project a dart from it's body - I believe it "shoots" some kind of thread like fiber from this dart...I don't know what for, very weird. My right hand is in very bad shape, it is swollen (with the parasite) and the top layer of skin has been removed. This is the hand that I use most often to wipe the crawling bugs off of my skin, and to brush my hair. The mite goes inside the body and affects other organs, the extent of which I'm not sure. I'm experiencing nausea, weakness, loss of coordination and balance, tremors, numbness, muscle and joint aches, weight loss, twitching, nervousness, earache, and alot of eye discomfort. They've affected my vision, and everything appears foggy, or dim, and things seem to blink or flicker. I'm really worried and in agony from the persisting crawling (like an ant) and biting (like a flea), but I can do nothing about it. I've been to every hospital in the area, out of pocket because I have no insurance. Doctors won't take me seriously and I'm afraid that this stuff could be deadly. My grandmother recently contracted it, but she doesn't want to tell anyone for embarrassment. Any help would be great, I'm running out of hope that I'll ever have my life back.Me too. I got some medicine for it from a doctor who didn't seem to believe that I got it from moving into a filty apartment. It's a weird variety or something. It was supposed to die withing 72 hours, but this seemed to survive for days in my sheets after washing in hot water while I did the treatment. This sucks!
    Anonymous 42,789 Replies
    • February 3, 2011
    • 06:25 AM
    • 0
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  • My wife and her sister both are having some of the symptoms described here. They have both been to different doctors and dermatoligists with no relief, we have spent thousands on (cures) that also have no effect. Both women are medicated with opiats for chronic pain of different types and they do not live together. No one living with them get bitten or sores. I fear that my wife will soon not be able to take it any longer and her doctors underestimate the absolute torture that this condition creates. I appriciate the advise that you all offer and will continue to try to make her comfortable. If real help is out there we need it now.
    Anonymous 42,789 Replies Flag this Response
  • It has been quite a while since your post, I have the same symptoms...exactly! I am at my wits end with the doctors and wondering if I am going to have to fly to some 3rd world country, where the doctors are actually educated in parasitology! Vets are, but not the doctors...I could go on and on about that, but God help me, I will refrain... I hope and pray you will see this and contact me. I tell others- detail for detail as you have explained above- subjects change or I get a quick back in my face. I feel better just knowing I am not the only one. Please, Please contact me; I am not familiar with this site, but I will try to get my info to you. A mini-support group would be so helpful...two minds are better than one!:o I have yet to have a professional opinion offered, and believe me I HAVE TRIED. Looks like I am about to be the first DR. COMMON-Sense, because a ridiculous combination of things are finally restoring my hope...Thank God!
    Anonymous 42,789 Replies
    • August 10, 2011
    • 08:40 PM
    • 0
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  • I have observed the similar simptoms on my face and body. I have been experiencing a feeling like 4 or 5 small ants like creatures crawling on my face.This is more prominent after I take bath and apply fairness cream on my face for removing oilyness on my skin.I was under the impression that this sensation is due to the hair that fall on my face untill I spotted the creatures this morning. These creatures are very small, but I was able to spot three or four of them by focussing ******n the sensation using a mirror in bright light.These creatures appear to be translucent or skin coloured and move very fast (faster then the fastest ant i ever saw).I think that these are affecting my eyes also. I have a constant feeling like I havent slept for a long time. I stay in New Delhi (India) and have never heard of anything about mites or scabies.Please help.
    Anonymous 42,789 Replies
    • August 16, 2011
    • 04:49 PM
    • 0
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  • same exact symptoms. my roommate doesnt have them.+the last thing i wanted to do was infect my eight year old, so he has been with dad for over a month. My brother and i had symptoms start at the same time. His fzmily used permetherin. its been well over a month and now his 15 year old son, his daughter and beautiful wife are all infected. i have these in my hair and face also. like follicle mites, there is hair where i usually have none. i have lost much of my hair. we've tried everything. it is constant pain and disassociation from others. im afraid to expose anyone to these horrible parasites, two er visits, one visit to apn, then chief resident dermatologist declared (sweetly) that i am delusional. no, no, im not. that would have been good news. this isnt living. i cant do this without knowing what i'm it is that i am battling. losing hope, hostess with the mostess
    hostess 1 Replies
    • September 10, 2012
    • 00:32 PM
    • 0
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  • please see www.johnofgod.infoI had a really bright opthalmalogist who said it looks like Actinomyces Israeli--really overlooked a lot. http://en.wikipedia.org/wiki/Actinomyces_israelii
    SusieMadison 5 Replies
    • September 21, 2012
    • 01:09 AM
    • 0
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  • Hello to all, We fought this thing for 7 years. Finally, my mother sent off a specimen to the Univ. of Texas entomology. Came back a red mite. Lives on humans or animals, Can live without a meal for up to 9 months. Causes the same symptoms as scabies mite, but goes to all parts of the body. Ted's Borax bath works. one cup regular hydrogen peroxide in the bath, swirl to mix, then add 1 1/2 cups 20 mule team borax. Make like a mermaid, head to toe for at least 20 min, scrubbing all.
    Anonymous 1 Replies Flag this Response
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