Discussions By Condition: Medical Errors

misdiagnosis of cancer or biopsy?

Posted In: Medical Errors 14 Replies
  • Posted By: gdub35
  • July 30, 2007
  • 05:47 PM

My name is Gary, I am a 38 year old male living in the North West. At the beginning of this year I was diagnosed with Squamous Cell Cancer of the oral tongue. A biopsy was taken and the results were labeled at T3, T4 being terminal. I underwent surgery to remove the cancer, 1/3 of my tongue, two lymphoid and one tonsil were removed also. The removed tissue was then sent to the lab and tested for cancer so the doctors would know exactly how much radiation would be needed to stop the cancer. When the test results came back there was no cancer to be found…

Has any one else experienced something similar to this or know where I can go to find information about :confused:

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14 Replies:

  • We just went through this today...which is why I'm looking for information on what happened. My father was really sick in the earlier part of the year. After CT scans revealed both an enlarged thyroid and lymph nodes all in his chest, TWO biopsies of the lymph nodes in the chest....they removed his thyroid to find...NO CANCER.I don't know how they can find thyroid tissue in the lymph nodes of his chest if there isn't any thyroid cancer. We're baffled. And we now don't know where to turn from here.The doctor did tell us flat out it WAS thyroid cancer. And we found out today as well that NEITHER pathology report verified that, but rather suspected.
    Anonymous 42,789 Replies Flag this Response
  • Look for a good lawyer.
    Monsterlove 2,921 Replies
    • August 10, 2007
    • 01:35 AM
    • 0
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  • After you find the good lawyer, find a good NAET/Bioset practicioner in your area.I was sick for a long time. I was told by 5 doctors that I had carcinoid cancer even though none could be found on Octreoscans. I went to Roswell in Buffalo NY to be seen by one of the top oncologists who told me after reviewing my test results that I did NOT infact have Carcinoid Cancer. Whe I asked then what in fact I did have I was told "I don't know" I was sick and noone knew why. I came to this forum. A very wonderful woman advised me to seek Bioset/NAET therapy. The Neurologist who correctly diagnosed me with CFIDS, told me that patients were finding help in the "naturopath" realm and that western med didn't really have a "grasp" yet on CFIDS...Many doctors are just beginning to recognize it as a "real" disease. So, searching for the therapy I went.I found someone twenty minutes from me and I went.My results are incredible.My symptoms are 90% resolved after just 6 treatments!! The best advice I recieved was here, in this forum. Now, I am passing it on to all of you.May you find health...all of you...best regards, mommy cat
    mommy cat 1,654 Replies
    • August 20, 2007
    • 10:13 PM
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  • Just because no residual cancer was found in the tongue resection does not mean you didn't have cancer. The original biopsy that had squamous cell carcinoma should be reviewed. It's not that uncommon to find no residual disease after a biopsy - if you had a small lesion. The resection is however, necessary to make sure you have clean margins of resection. The tonsil and lymph nodes are needed in the staging process.
    Anonymous 42,789 Replies
    • October 18, 2007
    • 05:53 PM
    • 0
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  • I feel for you. I completed 25 radiation treatments before I was told I didn't really have cancer. I had a routine hysterectomy for fybroid tumors. The pathologist that looked at my tumors reported that I had a very serious uteran cancer (leiomyosarcoma) and I was told by two doctors that I needed radiation therapy right away. I did ask for a second oppinion on the pathology, which was delayed due to misplaced records--that oppinion came six weeks too late. No one ever said they were sorry.:cool:
    TraciVonK 3 Replies
    • October 20, 2007
    • 10:11 PM
    • 0
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  • We just went through this today...which is why I'm looking for information on what happened. My father was really sick in the earlier part of the year. After CT scans revealed both an enlarged thyroid and lymph nodes all in his chest, TWO biopsies of the lymph nodes in the chest....they removed his thyroid to find...NO CANCER.I don't know how they can find thyroid tissue in the lymph nodes of his chest if there isn't any thyroid cancer. We're baffled. And we now don't know where to turn from here.The doctor did tell us flat out it WAS thyroid cancer. And we found out today as well that NEITHER pathology report verified that, but rather suspected.Besides a good lawyer, there's support on the web for post thyroid surgery. Your father will need replacement hormones.http://www.freewebs.com/thyroid/There's a link to their great forum on the page. These are most helpful, knowledgeable, and welcoming people I've met on the web.
    Anonymous 42,789 Replies
    • October 21, 2007
    • 09:13 PM
    • 0
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  • My name is Gary, I am a 38 year old male living in the North West. At the beginning of this year I was diagnosed with Squamous Cell Cancer of the oral tongue. A biopsy was taken and the results were labeled at T3, T4 being terminal. I underwent surgery to remove the cancer, 1/3 of my tongue, two lymphoid and one tonsil were removed also. The removed tissue was then sent to the lab and tested for cancer so the doctors would know exactly how much radiation would be needed to stop the cancer. When the test results came back there was no cancer to be found… Has any one else experienced something similar to this or know where I can go to find information about :confused: I am a pathologist. More information is needed here. There may not have been any carcinoma in the resection specimen if it was all removed on the biopsy. This happens quite often, especially in microinvasive carcinoma. Sometimes carcinoma may have been there in the resection specimen, but not identifiable due to inflammation. Less likely is that the wrong areas were sampled by the pathologist who examined the resected specimen. If you have any question about it, have the original biopsy slides reviewed. There are some conditions which look like squamous carcinoma, but are really benign. One is pseudoepitheliomatous hyperplasia. Another is a granular cell tumor with overlying hyperplasia. Some ulcers can have reactive changes which could be misinterpreted as carcinoma.
    A pathologist 12 Replies
    • November 12, 2007
    • 08:11 PM
    • 0
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  • Hi there. I've been reading your stories and I certainly sympathize with you all and the suffering you've endured. I'm actually looking for patients who have been misdiagnosed from an imaging study. We have just created a new company that is working to prevent misdiagnosis by submitting the scan to a sub-specialist radiologist. It's called Premerus. Sadly, you are not alone. Misdiagnosis from a radiology study happens as much as 30% of the time for patients with known disease. We want to challenge the existing care model that allows this to happen. If you would like to tell your story publicly on the news, please email me and tell me what city you are located in. We have news stations interested in several cities. Right now, this is only a US-based service. You can reach me at matt.moynihan@premerus.com. Check us out online at www.premerus.com.
    Anonymous 42,789 Replies
    • February 18, 2008
    • 10:24 PM
    • 0
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  • Long Island Jewish Memorial Hospital, Lakeview road, New Hyde Park, New York. It's the best cancer in New York along with Sloan Kettering Memorial Hospital. My mom had the same kind of operation, worse actually, the remove half the tongue, the floor of the mouth/gums and recovered from the cancer. And that was 18 years ago. I just had a larynectomy and they are good. is it hard to live without speaking, it's been 4 months and i'm still trying to deal with it. Good Luck to you!
    forgetlee 11 Replies
    • August 24, 2008
    • 02:24 AM
    • 0
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  • my name is gary, i am a 38 year old male living in the north west. At the beginning of this year i was diagnosed with squamous cell cancer of the oral tongue. A biopsy was taken and the results were labeled at t3, t4 being terminal. I underwent surgery to remove the cancer, 1/3 of my tongue, two lymphoid and one tonsil were removed also. The removed tissue was then sent to the lab and tested for cancer so the doctors would know exactly how much radiation would be needed to stop the cancer. When the test results came back there was no cancer to be found… has any one else experienced something similar to this or know where i can go to find information about :confused: hi my name is sandy five doctors said i had kidney cancer and the biopsy showed i had kidney cancer my left kidney was removed and then it was tested and my kidney showed no signs of cancer,,,,,,,i got a lawyer but still living with one healthy kidney and the other healthy one is gone.......get a lawyer.........that makes me so sick,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,
    Anonymous 42,789 Replies Flag this Response
  • My father got the results of a TOUNGUE biopsy today..in the end it is written that "squamous carcinoma "MRI report suggested that..enhancing soft tissue lesion seen in left half of toungue reaching upto midline.It measures 50 x 22 x 28 mm in AP,transverse and cc axis.the base of toungue is uninvolvedPlease help me to understand report????
    Anonymous 42,789 Replies Flag this Response
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  • i was diagnosed in colombia with non hodgkins alk negative lymphoma wich is really rare and i did chemotherapy and got a second opinion and they said it was mononucleousis when i told orignal doctors they wagreed with the diagnosis and relaized they were wrong thank god..if i neevr got a second opinion i would have been doing chemotherapy for over a year with no cancer
    Anonymous 42,789 Replies Flag this Response
  • I was diagnosed with thyroid cancer last year biopsy came back with carcinoma had a total thyroidectomy and two lymph nodes removed. After surgery pathology on all tissue removed came back negative for cancer. Now the symptoms that lead to the ultrasound that found the supposed cancerous cyst on my thyroid are back and I am scared I was misdiagnosed and maybe there was a cancerous tumor just not on my thyroid. I was having the sensation of something stuck in my throat before surgery. The dr said it was the cyst pressing on my esphagus and it got better after surgery but now it is back and worse than ever. I am afraid they misdiagnosed the location of the cyst. Going to dr ASAP. But if anyone else has had any thing like this happen to them I would love some feed back. Thanks.
    Anonymous 42,789 Replies
    • August 10, 2011
    • 11:28 PM
    • 0
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  • I was diagnosed with metastatic breast cancer in the bones in 2011. Never was sick or in pain.I was given maybe 2 years because of cancer in 11 places in bones. I have not had chemo or radiation,only estrogen reducer Never got sick or had pain,so after 1 year,I went to Mayo clinic. Mayo agreed with information that was sent to them. I had additional tests that day and returned the next day for results. Doctors freaked out! No cancer at all! Unheard of, unbelievable, Mayo said! Oncology baffled.
    Anonymous 1 Replies
    • January 18, 2014
    • 07:30 PM
    • 0
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