Discussions By Condition: I cannot get a diagnosis.

"stomach flu" persists for months - no one knows why

Posted In: I cannot get a diagnosis. 21 Replies
  • Posted By: Anonymous
  • July 17, 2007
  • 00:38 AM

I have had diarrhea for 3 months now - it started with an outbreak in the medical office where I work - EVERYONE got sick within days of each other, originally everyone experienced 3 days of high fever, constant diarrhea, vomiting, and really bad gas/belching/flatulance, and very very loud lower abdominal stomach gurgling.
After that, everyone continued to have diarrhea that was basically just water, worse in the morning and better by early afternoon into late evening, then started with the uncomfortable gas and stomach gurgling that persisted all night and then started all over with the diarrhea in the morning again. Sometimes people would experience low grade fevers/chills off and on.
Now, everyone experienced the EXACT same symptoms, right down to the time of day the symptoms occurred, and they persisted for 4-6 weeks in everyone affected (except me). Even the spouses and children at home got sick, too.
No one ended up getting tested for bacteria/parasites becuase no one was brave enough to undergo a stool culture.
Now, we all have very, very strict OSHA compliant disinfection and hygienic techniques both at home and at our office. We never go out to eat together, or even tend to eat common foods - we're all on different diets, and bring lunches (AND WATER) from home every day. So I would think it wouldn't be highly likely that we all got a pathogen that is passed thru the fecal-oral route - rather, I would suspect it was more like an airborne virus - however, it lasted so long! Everyone else recovered in 4-6 weeks, and I still have the same symptoms after 3 months. No change.
I have been tested for food allergies, lactose intolerance, parasites, bacteria such as E.Coli/Salmonella, and have had scope tests for ulcers, crohns/colitis/cancer, C.diff, etc. Nothing. They want to pin the "irritable bowel" label on me but agree that it's a stretch - IBS typically has alternating constipation/diarrhea, and I have CONSTANT watery diarrhea (no blood or pain with it, no mucous or fat in stool, etc.) and still experience extreme fatigue and fevers. I'm NOT under any stress, don't have depression, and I've seen a gastroenterologist, and am soon going to try an infectious disease specialist.
Anyone have any other suggestions? I hate leaving the house because I have to stay close to the bathroom! Any help would be appreciated!
Thanks! (Sorry for the long post, just wanted to be thorough).

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21 Replies:

  • They want to pin the "irritable bowel" label on me but agree that it's a stretch - IBS typically has alternating constipation/diarrhea, and I have CONSTANT watery diarrhea (no blood or pain with it, no mucous or fat in stool, etc.) and still experience extreme fatigue and fevers. I'm NOT under any stress, don't have depression, and I've seen a gastroenterologist, and am soon going to try an infectious disease specialist. IBS doesnt always go alternating constipation/diarrhea in people. There are three forms of IBS someone can have 1/ alternating constipation/diarrhea 2/ diarrhea predominant 3/ constipation predominant Some people develop IBS following gut infections and food poisoning!!! For IBS its best if one takes fibre supplements and also uses proboitics eg lactobacillus. Maybe seeing you still are getting fevers, maybe you still have some of the original infection there too as well.
    taniaaust1 2,267 Replies Flag this Response
  • Where do you live? Is the local water used to make ice?
    rad-skw 1,605 Replies Flag this Response
  • Have you lost any weight? Sounds a lot like what I was having a few months ago.
    Anonymous 42,789 Replies Flag this Response
  • Have you found out what's wrong yet? This is what my daighter is experiencing except no fever. It can't be IBS for her... she's one.
    bonarro75 8 Replies Flag this Response
  • Have you found what is wrong yet?
    jramos1977 1 Replies Flag this Response
  • maybe there are infectious.....spreading fastbetter go for infectious specialist.food poisoning etc/
    Anonymous 42,789 Replies Flag this Response
  • campylobacter jejuni, a bacteria in unchlorinated water.
    rad-skw 1,605 Replies Flag this Response
  • Also contact your county health department. Or maybe the CDC?
    rad-skw 1,605 Replies Flag this Response
  • I had the stomach flu 11 times. It started in December and it was an intense 24-48 hour thing and then I was fine. Then I would get it again 2-4 weeks later. Finally, I went to the doctor. The tests began. My gastro thought it was Crohn's disease. After a ton of tests, they couldn't find anything. I went to the best gastro in the state and he said that my body got an infection and my brain wouldn't get over it and so my stomache and my brain were off. I thought he was nuts but I now believe him. They put me on a low dose anti-depressant and I haven't been sick anymore. I am eating healthy and taking probiotics. Very bizarre. Sometimes we think we are not stressed, but we are.
    Anonymous 42,789 Replies
    • September 21, 2007
    • 05:21 AM
    • 0
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  • As a child I was eventually diagnosed with gastroenteritis. I would get the most intense stomach flu like pains on a yearly basis around the same time every year for three years. I would be sick (naseau, vomiting, diarrhea, headaches, sensitivities, fever, etc.) for about 2 weeks then it would go away, poof! After it was diagnosed, 3 years later, I never got sick again, and it has been gone for about 30 years, freaky or what?!
    Anonymous 42,789 Replies
    • October 21, 2008
    • 08:01 PM
    • 0
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  • Another thought-- have you been looked at for IgA deficiency?
    aquila 1,263 Replies
    • October 22, 2008
    • 06:59 PM
    • 0
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  • Complications of Crohn’s Disease

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  • Ive not had a solid stool for about 10 years, constant diorreah and gurgleing in lower stomach, cant eat anything either! IBS unfortunately, can be more than 5 mins away from a toilet!
    Anonymous 42,789 Replies
    • December 14, 2008
    • 06:43 PM
    • 0
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  • Did you ever get over this? My husband and I have something for months now that sounds similar. We are taking a lot of probiotics. The doctor said he has seen a lot of people with this. Where the heck does it come from and how does one get over it? Maybe it just goes away eventually???
    Anonymous 42,789 Replies
    • January 21, 2009
    • 10:19 PM
    • 0
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  • HEY, HOPEFULLY THIS POST IS STILL ACTIVE! I have had similar symptoms with mild bloating abdominal discomfort radiating to back. Diarrhea has continued, stomach gurgles after eating which leads to diarrhea.. could this be PI-IBS or something its lasted 2 weeks. Please reply tell me if anybody has experienced similar symptoms and it eventually went away or something. 19 year old male i have been extremely stressed and anxious about the entire thing
    Anonymous 42,789 Replies Flag this Response
  • Stressing won't help, although I understand your worries. I had diarrhea, gas, bloating, terrible stomach cramps for quite a while. It was hard to go anywhere as scared to leave the house. Eventually it began to taper off, but it has persisted now for maybe three or four months without going away, and it is still not gone. I am taking Pepto Bismol for diarrhea, antacid tablets if stomach cramps up, lots of probiotics such as drinking Kefir (health food section of grocery store), taking over the counter pills called Culturelle, eating probiotic yogurts, and those probiotic chocolate bars I forget what they are called but at the grocery store in the refrigerated natural food section. All those things help some. But the problem is not gone. If you learn something that helps let us know. My husband had it and his symptoms finally went away, so...eventually, I guess, mine will too I hope.Go to the doctor though and make sure they test your white blood cell count, as you wouldn't want something awful going on and not know. You always want to let them test you to make certain. That will decrease your stress/anxieties! You could have the same symptoms and have something different than I as these are very general symptoms.
    Anonymous 42,789 Replies Flag this Response
  • Wow sounds like me when I was on Prilosec and then when I came off of it. Been 9 months since stopping ,still sick.
    Anonymous 42,789 Replies Flag this Response
  • HEY, HOPEFULLY THIS POST IS STILL ACTIVE! I have had similar symptoms with mild bloating abdominal discomfort radiating to back. Diarrhea has continued, stomach gurgles after eating which leads to diarrhea.. could this be PI-IBS or something its lasted 2 weeks. Please reply tell me if anybody has experienced similar symptoms and it eventually went away or something. 19 year old male i have been extremely stressed and anxious about the entire thingHi,Have you considered a need for a colonoscopy? I was reading something similar to your issue and they suggested this with control with pills. Did you doctor mentioned this? They were mentioning the 4 months of horrible constant diarrhea. Also there where dizziness after the diarrhea.
    Clear-sky 76 Replies
    • December 28, 2009
    • 11:40 AM
    • 0
    Flag this Response
  • Have you lost any weight? Sounds a lot like what I was having a few months ago.This sounds exactly like what I have at the moment and no one can figure out what is wrong with me. I am waiting on an appointment with a specialist but that could take months. I have had it for three months now aswell. I've ended up in A&E a few times because the pain was so severe. What was the name of what you had??? I am crippled by the abdominal cramping, I have no life anymore. I can't sleep with the pain and I have no appetite so I am losing alot of weight... it would help so much if you could tell me what you had!!
    Anonymous 42,789 Replies
    • November 6, 2010
    • 11:47 PM
    • 0
    Flag this Response
  • These 2 web site are very helpful for chronic diarrhea. From the Mayo Clinic seewww.mayoclinicproceedings.com/content/82/4/487.full or search on 86 year old womsn with abdominal pain and diarrhea. The article tells that she had collagenous colitis and was helped with loperamide. Also see diagnosis and management of microscopic colitis from Canadian doctors at www.cfpc.ca/cfp/2003/Nov/vol49-nov-cme-2.asp Also anecdotally on woman used high vitamin c and another used coconut milk and macaroosn and said they were cured. God Bless You
    annabanana 1 Replies
    • November 10, 2010
    • 06:54 PM
    • 0
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  • Did any of you ever get better/get diagnosed & treated? I'm curious abt the OP but seeing how this thread is now 5 years old, not sure if she or anyone else still checks replies here. My best friend is having the same symptoms. I'm trying to help her find answers. She's currently waiting on ab ultrasound results. It all started 3 weeks ago when stomach "flu" was going around. Her white blood cells elevated but the antibiotic she's almost finished with isn't working bc for 3 weeks she's had persistent, low grade fever. Plus the other symptoms of loose stools, cramping, stomach gurgling & constant urge to have diarrhea but not always producing anything. BRAT diet til she gets this figured out. So depressing. Any input would be appreciated, thanks!
    Anonymous 42,789 Replies Flag this Response
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