I've recently been diagnosed with von willebrand's disease. Although I've always been prone to nose bleeds and spontaneous bursting of blood vessels no doctor has ever followed up on my complaints...until I happened to see a very sharp family physician in my area. Luckily he had the smarts to look into it. And sure enough, I had von willebrand.
Not only did he find that, but he also found that I have hemochromatosis.
Would really like to talk to others who have the von willebrand disorder and/or hemochromatosis.