Discussions By Condition: Liver conditions

The final stage of liver cirrhosis

Posted In: Liver conditions 60 Replies
  • Posted By: Anonymous
  • June 9, 2007
  • 02:24 AM

I often wondered what was the final stage of liver cirrhosis since my mom had it. She was NOT an alcoholic. All her liver problems was due to her Hepatitis B and clotted of the bile ducts. I had tried to research the information on the Internet but was not very sucessful. Until I found this website, I found it to be very helpful and gave hope to my family. But in May, I finally got to see the end results of liver cirrhosis because she had passed away. So now I wanted to return the favor by passing my past experiences to a person or other family members who has a loved one with liver cirrhosis and hope it would help them.

That Friday, before she passed away, she was fine. She EVEN did some baking with me. But the following day, she got a little confused. She put on her make-up and painted her nails and thought she was going to see the doctor. Yes, she was going to see the doctor but not until the upcoming Thursday. I just thought she forgot what day it was. She also had some illusions of the couch being on fire. I checked her temperatured and it was 99. I thought she was dehydrated so I forced her to drink every 15 minutes. A couple of hours later I checked her temperature again and it had drop. By Monday, she got worst. She lost all her muscles movements. Her blood pressure was 70/40 so we rushed her to the ER. The doctors placed her in ICU. They said she had two infections in her blood but can not found where it was coming from. The doctors tried their best to cure mom but by Wednesday she passed away at the age of 68. It was not the first time she had the blood infections she had two a month before and even then they did not know where the infections were. Even though I missed her terribly, I know she is in a better place with no suffering.

My point to all of you is DO NOT ASSUME ANYTHING!!!!!!!!!!! BE AWARE OF INFECTIONS!! All my thoughts and prayers are with you all.

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  • I am sorry to hear about your mother, my father as well is at the end stages of cirrhosis of the liver. He was taken today to the emergency room and is now in the ICU. He collapsed at a friends house and was bleeding profusly from the mouth and nose. An anuerysm has busted either in his esophogus or his stomach. He now lies in a hospital bed with tubes down him and has had a blood transfusion. He is in so much pain and it breaks my heart to see him this way. I am at wits end investigating on line just hoping that some one will tell me what might happen next. I know when he goes he will be in a better place and there will be no more suffering but, it doesnt make it any easier. God bless.
    Anonymous 42,789 Replies Flag this Response
  • Dear ronii6I am sooo sorry to hear about your father. It is NEVER easy to see a loved one in so much pain when all we wanted to help them. Your father, you, and your family are in my prayers and thoughts. Hope he is still with you and with less pain. I don't know what is ahead for your father since everyone's experiences are different. From my mom's experience, the end result of liver cirrhosis was jaudice (yellowing of the eyes).Best wishes!!!
    Anonymous 42,789 Replies Flag this Response
  • My step father passed away April 22nd of this year to cirrhosis of the liver due to alcoholism. You know, no matter how much you search and read on line, the fact of the matter is, it doesn't prepare you for what's going to happen. His choice of drink vodka - and a lot of it - at least a gallon every other day or so. And wine, he liked his wine. Last week my mother walked into the office where her and my stepdaddy worked and she was stopped in her tracks by his appearance. She said it was like looking death in the face. She said he was yellow, like the deli mustard, and his eyes weren't white anymore, but yellow. And he looked frail. And apparently he started losing muscle control in his legs that week as well. A friend of his had to help him at the post office because he had fallen. He was starting to become paranoid and making rash decisions. Something that my stepdad would never do. He had the IQ of a genious. (Wonder why someone that smart couldn't figure out that drinking was killing him.) That's when my mom called his biological children and told them (again) that their daddy was very sick and they should come and see them. Thank God they did. They spent the whole day Saturday with him. He could barely walk, but he made it through the day without falling. On Monday (April 21st), he lost total control of muscle in his legs. Every time he tried to stand up he would fall. He kept telling my mom "If I can make it to my car, I can drive". RIGHT! NOT! My mother had a co-worker call 911 and an ambulance came to take him to the hospital. His blood pressue was so low, the cuff wouldn't measure it. He had a lung collapse due to the pressures of the build-up of fluid in his chest and stomach. He was due to be drained the next day. The doctor came in and told him that if he wasn't responsive within 48 hours of administration of the medications, that there was nothing that they would be able to do for him. My mom said they talked the whole day. They were making plans of moving the office to the house so that they could continue running the business while mom cared for him. After all this was well over his 5th or 6th trip to the hospital and he went home each time. Why wouldn't he go home this time??? Mom said he was lucid while they talked. Unfortunately, we later found out that he didn't understand what he was saying. And most of what he was saying was untruths. Not that he was lying, but maybe he really thought that he had taken care of things or said things or done things, when in fact, none of it was true. How were we to know? He was talking normal. And it wasn't anything off the wall. Just untruths. My mom stayed with him until 11:00 that evening. She kissed him goodnight and said "I'll be back in the morning". He responded with "I'll be right here". She said "you promise?" and he said "yes". When she got to the hospital at 6:45, she walked in to a room full of nurses. He had slipped into a coma. Mom asked how long he had been like that and they said since about 5:30 a.m. They put him on a morphine drip in case he was in pain and couldn't express it. He didn't not keep his promise. He was still there, just not conscious. She talked to him. Tried to get him to respond to her. She kept telling him to open his eyes. At some point he did. But he was staring into space, not blinking, just staring. She asked him to squeeze her hand, but she got no response from him. She did say that everytime she touched his shoulder he would move it in a nice slow motion as if to say - yes I feel you. He took his last breath at 9:30 a.m. My mom was there by his side. She said he gasped two times and his eyes closed and his head fell softly to the side. And he was gone. Just like that. She said the hardest thing to do was to walk away from him. I can't imagine the pain she felt that day. He died on his 66th birthday. My stepdaddy drank until he was hospitalized. The doctors kept telling him he was killing himself. But he said that's what made him happy, so that's what he wanted to do. This is a very cruel disease. All aspects of it. My mother is going to have a very hard time coping with this. I don't think she realizes how much time she spent caring for him. Taking care of the things he couldn't. My mom loved that man with all her heart. And she stuck by his side. That's all you can do when you know someone that is dying of cirrhosis of the liver. Even she couldn't get him to stop drinking. I think I could go on writing forever. Of everything that happened over the last year. This was good for me. I don't think it has really sunk in yet that I'm never going to see the man that was more of a father to me than my real dad. I love him dearly and he will be missed by many.
    Anonymous 42,789 Replies Flag this Response
  • Dear ReneeWager,I am very sorry for your loss. You and your family are in my thoughts and prayers. Eventually Time will heal all wounds. God Bless
    Anonymous 42,789 Replies Flag this Response
  • My dad was diagnosed with esophegeal varicies two weeks ago. He was told this was due to his cirrosis in his liver. He wasn't given any substantial information except he needed to cease drinking right away, which he has and is also stoping smoking. He has now developed ascities in the last week and yesterday they drained 7 liters from his abodemen. He feels as if there is still fluid in there today. I am very concerned about his prognosis and feel we don't have all the information we need to understand the complexity of this disease. He is in the process of being referred to a liver specialist in the meantime I would appreciate any information from personal experience that anyone could provide.
    slfuhrer 1 Replies Flag this Response
  • My granddad is also in the final stage of Liver cirrhosis. he was diagnosed 5 years ago and doctors says that he was probably exposed to poor nutrition or contaminated water while he was a child. His brothers both died of liver related diseases.After years of my grandma taking care of him - we watched him slowly lose the ability to stand, walk, have a conversation and so much more. We had many close calls and stays at the hospital. But unfortuantly - we brought him to the hospital last week and his kidneys were blocked. After numerous scans and ultrasounds, his liver is just too sick to continue working. The antibiotics they tried to give him was not working at all. Doctors have told us he only has a couple of weeks left before the toxins reach his blood and his main organs can no longer function. He's had fevers at night only, and at times has been extremely alert. But other days he sleeps the whole time. I agree with a previous poster that it is a very cruel disease. I've seen him go from near death - to him smiling and making jokes and i heard this is common with cirrhosis. My grandparents had a great love story and its going to be very painful to see my grandma lose the only thing that meant everything to her. The bright side is that people can still live a couple of years more than expected if they eat/drink right and take care of themselves. Be alert for any or all symptoms. Anything out of the ordinary could be an indication that the liver is weak and needs help to work.
    Shyloh29 1 Replies Flag this Response
  • well...as I have read many threads today am really realizing what my family has coming and it frankly appears to be very ugly...my Mother who is 71 was diagnosis by her Hepatologist with end stage liver cirrhosis 2 weeks ago...her primary physicians totally dropped the ball when she saw her with complains of being cold...fatigue...bloating... and edema of her legs..she mearly picked up her pants leg prescibed Lasix and lab work and sent her out the door...abnormal labs atleast showed severe anemia which luckily got her a trip to a Hematologist who upon entering the room noted the size of her abdomen before anything was said and ultimately sent her to see the Hepatologist she has now...while I know she has probably had silent symptoms for years it's very irritating that in the 2 years she has been with her primary Physcian she has never had her clothes off...the anorexia is unmistakeable...the huge rigid abdomen cannot be missed ...paleness and her general fagility in undeniable...its very frustrating the primary physcian could be so blind...question is where do we go from here...she's had her first paracentesis taking 9 liters off about a month ago and is schedule for the next one in a week...she will have a scope done the next week when the Hepatologist reviews her labs work..to see if esophogeal varises are present...she can bareley swallow ..partially do to the ascites and I'm afraid varices so nutrional staus is poor she has history of hemmorage..and I know this is a life threatening situation...about the only thing I'm not seeing is jaundice and confusion yet...I plan to care for her at home as much as I can...any input would be appreciated...Thanks for listening PS her problems according to the Hepatologist stem from Primary billiary cirrhosis
    sunedae 2 Replies Flag this Response
  • ***l...as I have read many threads today am really realizing what my family has coming and it frankly appears to be very ugly...my Mother who is 71 was diagnosis by her Hepatologist with end stage liver cirrhosis 2 weeks ago...her primary physicians totally dropped the ball when she saw her with complains of being cold...fatigue...bloating... and edema of her legs..she mearly picked up her pants leg prescibed Lasix and lab work and sent her out the door...abnormal labs atleast showed severve anemia which luckily got her a trip to a Hematologist who upon entering the room noted the size of her abdomen before anything was said and ultimately sent her to see the Hepatologist she has now...while I know she has probably had silent symptoms for years it's very irritaing that in the 2 years she has been with her primary Physcian she has never had her clothes off...the anorexia is unmistakeable...the huge rigid abdomen cannot be missed ...paleness and her general fagility in undeniable...its very frustrating the primary physcian could be so blind...question is where do we go from here...she's had her first paracentesis taking 9 liters off about a month ago and is schedule for the next one in a week...she will have a scope done the next week when the Hepatologist reviews her labs work..to see if esophogeal varises are present...she can bareley swallow ..partially do to the ascites and I'm afraid varices so nutrional staus is poor she has history of hemmorage..and know this is a life threatening situation...about the only thing I'm not seeing is jaundice and confusion yet...I plan to care for her at home as much as I can...any input would be appreciated...Thanks for listening
    sunedae 2 Replies Flag this Response
  • Hello to you all. It helps to read your stories...so I hope mine can be of some help.My father is 58. Last year, he suffered a heart attack( 2 stints) and started entering stage 4 kidney failure. He was always a heavy drinker (30-35yrs). Before the heart attack, he knew of his kidney issues and diabetes, but continued to drink and ignored what his drs where telling him. After the heart attack, he stopped drinking, but they noticed his liver was severely damaged and he was enetring end stage liver failure. Cirrosis child class b. He never let me know of his liver failure, though I figured with the heavy drinking, kidney failure and congestive heart failure that his liver had to be in bad shape.Exactly one month ago, He was found on his bedroom floor. Blood sugar at 17, he was slipping into a comma. he was in ICu for 2 weeks and they weren't sure if he would come off of the ventalator..but he did. Shortly after, the hospital suggested hin for the TIPS procedure. I had already read about it, but questioned if he was too far gone for it to be effective. they life flighted him to a hospital in a different state. When he arrived, they confirmed the worst.Due to Hepatorenal syndrome( kidney and liver failure), the congestive heart failure( severe right heart failure causing pulmonary hypertension in his lungs) he was not a candidate for TIPS. In fact, they said he would need a liver, kidney, heart and lung transplant at this point which would be impossible to manage due to too many organs in failure and too weak to be considered for transplantation of any of those organs...there's nothing they could do but try to make him comfortable.His ammonia levels remain high even with lactilose 3 timesa daily and now his bowels have even stopped functioning( 5 DAYS NOW). He did have a ferocious appetite up to 2weeks ago, but that was due to how much energy his body was burning off just trying to function. Now, in the last week, he barely eats or drinks anything. they have tapped his lungs and belly 20= times over the last year, but now, his belly is larger than ever..yet there's no fluid to remove( the liver has expanded and they can't get the fluid out. The liver is absorbing it. His legs are 4 times the size that they ever were. His privates are severely swelled as well. they could barely manage to get a cathiter inserted and even when they did, he's only putting out 300 cc daily. Everything is shutting down. Only the left heart is functioning. he's sleeping alot, but it's restless sleep. tugging and pulling on bed linens and clothing, talking , shouting in his sleep. Skin is discolored, complete loss of all muscle tone. I've been told a week or two at best...yet they've been saying that for a month now. In the last month, we've been in 3 hospitals, 30-40 specialists and today, they are sending him home with hospice crisis care because they feel it's not much longer and that's where I know he would want to be. He's been in denial about his condition all along. "when I get through this" started most of his converstations until I screamed at his doctors to be truthful with him instead of "we're looking into it buddy...everything looks good!" meanwhile, those same drs are telling me to make sure all his affairs are in order.My step mother( she and I have always had a strained relationship) yesterday blamed me for his condition worsening. She said by having his drs. explain why hospice is needed and that transplantation is no longer an option...I'm helping him to give up...die faster. I know she is grieveing and she is in denial that he may live another year( I still thought it was a vicious attack upon his only child still in his life)...even though he's displaying the classic last stages of life. that really hurt. I'm trying to help him the best way that I can. To give him closure and not keep him guessing as to when the miracle cure is arriving. I don't want to lose my father, but I want him to have the dignity and respect he deserves by having a peaceful passing. he worked hard all his life and was six months away from his retirement when this all started a year ago. His job was a huge part of his life and really he began to give up when he knew he couldn't work anymore.I don't now what to think or do. I feel terrible I pulled down the wall of denial for him, but someone had to be honest with him. Anyone out there struggling with that aspect?My prayers to you all. This is one of the hardest diseases to watch someone suffer from. I just want his suffering to end. it's too difficult to watch.
    Anonymous 42,789 Replies
    • August 28, 2008
    • 01:53 PM
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  • God bless all that have had to stay strong for our loved one's. My dad is currently in a hospice unit in florida ,it's so hard to believe that just last month he flew up here alone to visit me an my sister. as you all may know the slow process of the organs shutting down is a heart wrenching site but i am glad to say my dad was alert for a few hours while i was down there. I just hope the little time he has left is as painless as possible . I am grateful for the care my family in florida has given him and the hospice unit thus far. May we all have the strength for our families.
    Anonymous 42,789 Replies
    • September 2, 2008
    • 05:49 AM
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  • My fiance and I go to the see the internal specialist tomorrow morning, for our final diagnosis and prognosis of his cirrhosis.My fiance is only 37 years old, and we have two and half year old daughter. I knew he drank too much...way too much, but I can't believe that we are dealing with this, at his age. I am so scared...his skin is already jaundice, and his hands and feet are covered in dry red patches. He has been complaining about how itchy he is everywhere, and about the pain in his abdomen. He has lost about 27 pounds in the last 7 months, and he looks as though he is wasting away.He was admitted to the hospital two years ago, with similar symptoms, but was inable to move his muscles and was suffering from a temp of 105. They sent him home a few days later stating he had an "unknown" virus. I am so dissappointed that the doctors didn't listen to me when I said he was a heavy drinker, and that his skin looked yellow....HOw can a 35 year old man have cirrhosis...don't be fooled, it does not discriminate.I have every intention of taking care of him myself in our home...he is my love, and hopefully that will be strong enough to pull us through this.
    Anonymous 42,789 Replies
    • September 22, 2008
    • 10:40 PM
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  • My most sincere condolences to all who have lost loved ones and respect to those caring for those still fighting the disease. I had Hepatitis B and D in 1987, Alcoholic Hepatitis in 1993, and contracted Hep C in 1996. I drank heavily for over 20 years but gave it up when I contracted C. I've never had a biopsy or taken treatments for C as I don't put much stock in going to the doctor.My oldest "friend", who I had known since I was 8 years old, set me up to contract HepC in a drug deal because he thought I had done something to him and that was his way of getting even. I found him out and beat him down when I finally caught him 2 years later, but it didn't make me well. I had to let all that hatred and anger go as it was eating me up inside and am at peace with myself. I'm OK with what may lie in store for me but that won't make things any easier on those I leave behind.
    alias2277b 18 Replies
    • September 30, 2008
    • 11:15 PM
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  • I am so sorry to hear about everyones families and what they have or still are going threw. My father has cirrhosis due to drinking. He was hospitalizes in January and we thought it was the end but he pulled threw. Since then hes been in and out of the hospital for bleeding. He just had the TIPS put in . And now he's been having to go for blood transfuions. He isn't bleeding anywhere that we can see, but the blood work comes back low everyweek. So if anyone can please tell me where the blood is going that would be great . I know he wont live forever but I only lost my mother 6months ago from cancer and i promised her i would do whatever it takes to help my dad.
    Anonymous 42,789 Replies
    • October 6, 2008
    • 03:22 PM
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  • my mom is 68 she was diagnosed with cirrhosis over a year ago. she has never drank alcohol but has diabetes for years.she now weights 108 and is a walking skeleton. Always in and out of the hospital. This week she became very confused incoherent and was taking to the hospital. I dont know how much she has to suffer. The only thing she has left is her strong voice, faith in god, and she still knows who we are.I am trying to find out how much longer she has to live.
    Anonymous 42,789 Replies
    • December 1, 2008
    • 02:31 PM
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  • Not all Stage 4 Liver Cirrhosis is caused by hepatitis or alcoholism. The auto-immune system can go out of control and attack an otherwise healthy liver. I have that condition. It is called Primary Sclerosing Cholangitis (PSC). I sympathize with all of you who have suffered from the symptoms. I know what they are like. It is not fun. Friends and family feel helpless and hurt deeply because there is nothing that you can do. Be there for them. As hard as it is to watch the pain, your caring does help so much.God bless.
    Anonymous 42,789 Replies
    • January 19, 2009
    • 04:56 AM
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  • To Gibby (and the rest of you) who are caring for someone in end stage. I may bring a somewhat different perspective to the conversation for two reasons.One...I'm a little "outside the box" in my thinking, so no pat answers or cliche's here, and two....instead of being the one CARING for someone dealing with it...I am the patient who IS in end stage liver failure cirrhosis. oh---I should probably also mention that I lost my fiance to cirrhosis 8 years ago--the love of my life at the age of 40...so I've theunwanted, unwished for but 360 degree view from BOTH sides of the coin. First let me say...I'm NOT a drinker. I don't judge those who do (we all choose our vices)...my fiance was a HEAVY drinker / alcoholic. I'm simply stating here that alcohol is not always the culprit (but sadly the ignorant tend to assume without even asking and treat you with a "you brought this on yourself", callousness --adding to the patient's load an attitude, judgement and harshness which is unfair, unprofessional and most of all...unkind. It's also irrelevent. The drinker has already beaten themselves up so it's unwarranted punishment in any direction. As to the issue which gave me the impetus to write this missive...Gibby. Please know that telling him was the ABSOLUTE right thing to do. For anyone to think otherwise is wrong even if their intentions are from a place of love. Many people and many experiences clutter whatever path we walk called Life. Some good some bad, some happy some sad. Some joyous and some painful...and each is OURS. OURS TO OWN. To learn from, to get through or not, to make choices and decisions about, and to take responsibility for how it plays out as much as is within human hands. Todeprive them of any portion of participation makes someone a spectator in their own life. I told my doctor this...don't talk to me like a colleague in medical terms. Don't talk down to me like you know better than I do about what I should do with MY life. You know medicine. You know options. You know test results. It is not your place to tell me WHAT to do...only what I CAN do...tell me my options, and my choices and respect the fact that I may choose differently than you. Don't assume ignorance is bliss. Stupid people are not happy...they are just not armed with more than one expression in their arsenal. I LIKE being intelligent. But part of being smart is knowing where you're stupid. SO I come to you for that which YOU posess that I don't...medical knowledge, information and options. The choices? that's on me. Because ultimately the consequences are mine. I won't sue you if you're off by the time frame etc. but I need you be a person who has medical knowledge FIRST not a doctor first and person second. Skip the disclaimers, and CYA phrases. I'm not a litigious person. This is my life. WHat am I looking at? How long? (best guess...I realize you have no countdown clock). WHat should I expect to see in the way of symptomsas I decline? (so I can look ahead to what I may or may not be able to do and arrange some "work-arounds". And...to her credit (and WAY out of her comfort zone I'm sure) she was. Although further testing will show a more definitive timeline...she did tell me the truth. Did I LIKE hearing what I'd be looking at? not really. Am I better for knowing? absolutely! I have a lawyer working on medical directive /living will reflecting changes in what I do or don't want done based on most likely scenarios specificic to MY DISEASES. I've discussed with my neice and nephew-in-law that I live with, that excessive bleeding in various forms leaves me concerned about possibility of the Hepatitis putting them as risk because of it and discussed housing options to avoid that, only to be reassured that it was a non issue. (she's a paramedic and he's an EMT/Firefighter) so both are aware of how to prevent that. Still much different than having this come on unknown and unplanned when my options might be fewer and would feel like she was just "sucking it up" in silence. And perhaps most important of all to me...I know it FIRST. I don't have friends and family whispering about how maybe there's something wrong because I'm not looking well...avoiding the White Elephant in the room thing. I've managed to send an email to some friends who live elsewhere telling them in MY way...what's about to happen and that I'm ok with it...which allows them to wrap THEIR heads around it too since death effects those we love and leave behind. To not have them get the information (or misinformation) through whipers and gossip. To not put them in the position of telling them on the phone or in person either of which puts them in a poition of knowing what to say when there's nothing TO say. To avoid the rah rah's and river of denial. To avoid them having to be aware of the look on their face (ever have a writer ask you to read their work while they sit staring at you ffor expression?--that kind of thing) To allow them to process this in their own way. To tell them that I'd like to see them again, but that they don't need to drop everything to do so...and no need to feel guilty if we don't because there are no unspoken words and the love on both sides is understood and to do so in a way that I hope allows for a little dignity and grace on my way out. So...HOW a person choose to handle their death is a very personal matter and we must each do it in the way that suits us (again within human limitations)...but to deny them the knowledge is to deny them the choice... and that is no one's to take away.
    justlinda 1 Replies
    • January 28, 2009
    • 08:27 AM
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  • My husband has Hep C and cirrhosis also hemochromatosis and varices they have took him off his blood pressure meds and I have noticed a differnet in his memory. They said that he is between and A & B stage not sure about all this we have 6 children and almost 8 grandchildren I am trying to figure out the same how long it will be a year in April that we found out he has Chronic Hep C and he did have a liver biopsy that was painful for him he has a growth on his adrenal gland he was taking Vit K but they stopped that also all he takes now is prilosec he has also had mascula degeneration that is better now he got treatment for that he had a Echo heart thing done they said he pressure was good in the high normal level it was at 23.5 they said that at 30 is a concern and 40 is really bad can someone let me know what I am in for please I am scared and so are the children thank you and god bless everyone
    kat1635 3 Replies
    • February 9, 2009
    • 00:58 AM
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  • My step father passed away April 22nd of this year to cirrhosis of the liver due to alcoholism. You know, no matter how much you search and read on line, the fact of the matter is, it doesn't prepare you for what's going to happen. His choice of drink vodka - and a lot of it - at least a gallon every other day or so. And wine, he liked his wine. Last week my mother walked into the office where her and my stepdaddy worked and she was stopped in her tracks by his appearance. She said it was like looking death in the face. She said he was yellow, like the deli mustard, and his eyes weren't white anymore, but yellow. And he looked frail. And apparently he started losing muscle control in his legs that week as well. A friend of his had to help him at the post office because he had fallen. He was starting to become paranoid and making rash decisions. Something that my stepdad would never do. He had the IQ of a genious. (Wonder why someone that smart couldn't figure out that drinking was killing him.) That's when my mom called his biological children and told them (again) that their daddy was very sick and they should come and see them. Thank God they did. They spent the whole day Saturday with him. He could barely walk, but he made it through the day without falling. On Monday (April 21st), he lost total control of muscle in his legs. Every time he tried to stand up he would fall. He kept telling my mom "If I can make it to my car, I can drive". RIGHT! NOT! My mother had a co-worker call 911 and an ambulance came to take him to the hospital. His blood pressue was so low, the cuff wouldn't measure it. He had a lung collapse due to the pressures of the build-up of fluid in his chest and stomach. He was due to be drained the next day. The doctor came in and told him that if he wasn't responsive within 48 hours of administration of the medications, that there was nothing that they would be able to do for him. My mom said they talked the whole day. They were making plans of moving the office to the house so that they could continue running the business while mom cared for him. After all this was well over his 5th or 6th trip to the hospital and he went home each time. Why wouldn't he go home this time??? Mom said he was lucid while they talked. Unfortunately, we later found out that he didn't understand what he was saying. And most of what he was saying was untruths. Not that he was lying, but maybe he really thought that he had taken care of things or said things or done things, when in fact, none of it was true. How were we to know? He was talking normal. And it wasn't anything off the wall. Just untruths. My mom stayed with him until 11:00 that evening. She kissed him goodnight and said "I'll be back in the morning". He responded with "I'll be right here". She said "you promise?" and he said "yes". When she got to the hospital at 6:45, she walked in to a room full of nurses. He had slipped into a coma. Mom asked how long he had been like that and they said since about 5:30 a.m. They put him on a morphine drip in case he was in pain and couldn't express it. He didn't not keep his promise. He was still there, just not conscious. She talked to him. Tried to get him to respond to her. She kept telling him to open his eyes. At some point he did. But he was staring into space, not blinking, just staring. She asked him to squeeze her hand, but she got no response from him. She did say that everytime she touched his shoulder he would move it in a nice slow motion as if to say - yes I feel you. He took his last breath at 9:30 a.m. My mom was there by his side. She said he gasped two times and his eyes closed and his head fell softly to the side. And he was gone. Just like that. She said the hardest thing to do was to walk away from him. I can't imagine the pain she felt that day. He died on his 66th birthday. My stepdaddy drank until he was hospitalized. The doctors kept telling him he was killing himself. But he said that's what made him happy, so that's what he wanted to do. This is a very cruel disease. All aspects of it. My mother is going to have a very hard time coping with this. I don't think she realizes how much time she spent caring for him. Taking care of the things he couldn't. My mom loved that man with all her heart. And she stuck by his side. That's all you can do when you know someone that is dying of cirrhosis of the liver. Even she couldn't get him to stop drinking. I think I could go on writing forever. Of everything that happened over the last year. This was good for me. I don't think it has really sunk in yet that I'm never going to see the man that was more of a father to me than my real dad. I love him dearly and he will be missed by many.i am so sorry for your lost, I too am living with my husband who has cirrhosis, the difference is he hasn't told me everything and because of our law in Canada the doctors can't tell me unless he gives his approvel. I do have permission to talk to his specialist but not our family doctor. He's eyes are so yellow you can't see the whites anymore. His skin is yellow as well. His sleeping has really changed, he doesn't have alot of energy and no longer works. I called the doctor the other day ( the one I can talk to) and she said he was in Advanced Liver disease. When I told her he said he got a clean bill of health from her 2 weeks ago she was shoked. He never eats, and drinks what is called in Canada (a 60 lber) (I think that's what it's called) He was put in the hospital last year because his blood count was 41 he needed 5 bags of blood. His had trouble last year with his stomach acid coming up on him and needed work on that. He seems to be repeating himself these last few weeks and getting upset about things that aren't happening. He doesn't work at all anymore just drinks a bottle of white rum every 2 days. His legs are week, his belly is bigger, he goes to bed early. He also caughs alot at night. If there is anyone that can help me with more imformation I would be grateful.... Lynne
    Anonymous 42,789 Replies
    • February 24, 2009
    • 03:11 AM
    • 0
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  • Hello everyone ... We have to keep in our hearts and our minds all the memories and happines and the smiles that we shared with our love ones. My Stepdad has this terrible disease. Iam so upset, sad and depress to see what this is doing to him, and also I can see how much is affecting my mother. He used to be very funny we like to make jokes on each other all the time. And more important fact is that he is very smart unfurtunally this condition is afecting him really bad. It hurts me to see him so thin, weak and yellow. I real ly hope he can stay with us a lot longer so I can continued trying to get a liver transplant because my blood type doesnt match with his. This is why For Everyone out there who has a loved one like me in this situation not look far make phone calls to your brother(s), sister(s) aunt(s) uncle(s) blood related people of the loved one and asked them if front and centered if they can help. But please find out fist the person blood type, size (ask all this to the transplant coordinator), also look for people that are healthy, no high blood presure, diabetis and less the 50 years old. I hope this will help in some good way!.GOD BLESS YOU ALL!!!
    Anonymous 42,789 Replies Flag this Response
  • It truly is difficult to find information on this disease on the internet. Particularly, the specifics. My husband has been a heavy drinker for many years, in and out of rehabs and hospitals more often than I care to count. Based on the descriptions I read here, he is definitely in the final stages of cirrhosis. I cannot get the doctors to confirm this. They simply tell me he has a little scarring. He is now in the hospital with what they are calling alcoholic hepatitis and telling me it's not a, b, or c, it's not viral. They also say he has alcoholic poisoning. Over the past two weeks he was turning very yellow and the whites of eyes are goblin yellow. His tongue had many sores and grayness and regular nosebleeds. After vomiting blood this past Monday he finally allowed a trip to the hospital. By Tuesday things started to be okay, at first, he seemed to be responding to the medications for withdrawal and morphine for the pain. By Wednesday his bilirubin and iodine levels continue to climb. I could talk to him Tuesday, but today I cannot. He's hallucinating, agitated, fouling himself and giving the nurses quite a time. They have him pretty heavily sedated and hes now a bright orange and looks pregnant, his feet look swollen as well. They're telling me he has a 50/50 chance of survival, but still won't use the cirrhosis word. We're all so very worried because normally doctor's don't give you a death sentence, so the fact that they're 50/50 makes me believe the probability of death is so much higher. Everyone in the family is hurting and the waiting is killing us. Even if by some miracle he pulls out of this, what quality of life, if any, will he have left?
    Anonymous 42,789 Replies Flag this Response
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