Discussions By Condition: I cannot get a diagnosis.

Extreme fatigue, aches, loss of appetite

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: Urang4Me
  • May 21, 2007
  • 00:39 PM

For the last six weeks I have been extremely fatigued, have no appetite, and my body just feels totally out of rhythm, as if I'm going to pass out at any minute. Multiple visits to the doctor and numerous blood tests have turned up nothing. They said I'm not anemic, and thyroid profile was good. I also had an echocardiogram with good results. I showed the doctor swelling on both sides of my neck near the clavicle and he just thought it was strained muscles. He said he didn't feel any lymph nodes. Based on my research, I'm really concerned about Hodgkin’s disease or some other disease that can not be detected with standard blood tests. I have occasional fevers and chills that lasts a couple of hours, and the muscles in my shoulder and neck area are sore. Motrin seems to help. I also have occasional muscle twitches in one of my biceps or the thigh area. Some days are OK and then others I feel like I can't even walk to the front door. I'm sometimes very aware of a pounding heartbeat, although when I check my pulse it's always in the 70 - 80 range. The only medications I take are Nexium and Benadryl, and now Motrin when I feel a fever. I am a 40 yr old Black male with no medical problems other than seasonal allergies and acid reflux. The only surgery I've had was ACL reconstruction 6 months ago. What could be causing these symptoms and what other treatments should I try?

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15 Replies:

  • dear Lurch...LOL please read last 6 pages of It's a mystery until we solve it--mommy cat there you will find countless others having identical symptoms don't believe me? Look at headings alone in this forum muscle weaknessccant get diagnosedbeen to countless docsfatigueachesloss of appetitemany complain of thesetake a look read my threadyou will see a pattern I'm here...mommy cat
    mommy cat 1,654 Replies Flag this Response
  • Thanks for the response. It was very good information reading those posts. I noticed your symptoms and just wondered if anyone has considered Sarcoidosis with your case. It was mentioned to me, and I will get tested the next time I visit my doctor.
    Urang4Me 3 Replies Flag this Response
  • My doc is tesing for ME/CFS...I have over 70 symptoms...most get severeflare ups are involvedI used to work with someone diagnosed with Sarcoidosis...I wonder if he was misdiagnosed as I have been for yearsask doc about ME/CFStell him there are many with sx on one websitethat's what I did...my doc listened and I am currently being testedalready have results of Low potassium and abnormal atypical lymphocyte countbe well and best of luck, mommy cat
    Anonymous 42,789 Replies Flag this Response
  • Try alternative therapies, visit www.naet.com to locate a therapist in your area. They are good with allergies. A traditional Chinese doctor is another great idea, see www.acufinder.com to locate one. Check your dangerous meds for side effects at www.drugs.com and www.rxlist.comImportant - this doctor says we should drink quite a lot of water and also salt: http://www.phenomenews.com/nov2005/0a.htm - try to get Trocomare salt by Dr A. Vogel of Switzerland, in the place of "smooth flowing" salt .. Do read that link, it is most interesting, and cheap to try. This may be why marathon runners are so addicted to their running, they take plenty water and salt. I have only now tried this for some days, it works very well already.To start something (in case of a virus or bacteria) see www.nutrasilver.com for a type of colloidal silver (silver ions suspended in water) that you can take internally. One can drink the ordinary type as well, but rather just keep a tot in the mouth for 10 minutes and spit it out. Also great for external application, dab it on. Here in ZA we brew it at home. It has proven consistently better than any med or antibiotic, for almost any problem. If it is correctly made there are no side effects. Please see www.tetrahedron.org/articles/colloidal_silver.html for info.Of course boost your immune system all you can, perhaps you already do. Get homeopathic Resque Remedy. Add Vitamin-B12 (complex), Omega-3 (salmon oil / flax seed oil) and of Vitamin-C 1000 mg (slow release) per day. If you use supplements already, be sure not to overdo it. Too much of certain vitamins may have bad results. But you can take quite a lot of Vitamin-C and even tablespoons full of Omega-3. The best Omega-3 is kept in a freezer in the health shop, not in caps. Avoid heated cooking oil (cook veggies in water and flavour with unheated extra virgin olive oil) and avoid processed foods (containing hydrogenated vegetable fat, additives etc). No margarine please, use real butter. Be sure to include cabbage (lots) and garlic.A one-day fast is useful: Overcook baby marrows and cabbage in water, then save this water and discard the rest. Flavour with Trocomare salt. This brew can be kept in the fridge for a day. It is very nutritious, makes one feel great. Take only this for a day, and drink plenty water. It gives your organs a chance to reset. Take careful note of how it makes you feel. Do 2 days if possible.Treat for hypoglycemia (low blood sugar) as it partly looks the same. A related problem is too much insulin. See http://en.wikipedia.org/wiki/Hypoglycemia and http://www.henriettesherbal.com/blog/?p=390 .. Through the day, every hour, eat a bit of cheese and about 15 raisins - always protein and carbs together. Never eat much, but frequently. In between, snack on peeled apples, only a quarter at a time. Eliminate ALL simple sugar, artificial sweeteners, processed foods, sweet carbonated drinks, candy etc. Add more fish (tuna in brine) and as said plenty cabbage, cooked in water and flavoured with a little unheated olive oil and Trocomare salt.Avoid red meat and chicken for a while, they cause uric acid (promoting infections) and are furthermore ******n the immune system, more toxic and different from other foods when they digest. This is made even worse by what the animals are fed/med with. They also affect your frequency a lot (chakra stuff). By changing that for a while you may fight bugs better. Drink more good beer, NOT from the USA though. Get high quality light beer from Germany or the Czech Republic, it tastes better too. Also organic sour milk or yoghurt. Learn from Africa! :DExtras: I'm impressed with a site http://www.westonaprice.org/sitemap.html - be sure to read this one: www.westonaprice.org/soy/complaints.html whole page (!) and elsewhere http://thyroid.about.com/cs/soyinfo/a/soy.htm .. There is a lot of soy in commercial bread, and in almost everything. Even cancer can be fixed by taking flax seed oil, see http://www.cancertutor.com/Cancer/Budwig.html as well as http://www.beckwithfamily.com/Flax1.html .. And it may all be due to a parathyroid malfunction, read www.parathyroid.com
    Curly Stooge 319 Replies Flag this Response
  • I spent $19.95 on another website, and received a one paragraph response from a doctor, with information I already knew. I wish I had found this site first. Great info!!! Thanks
    Urang4Me 3 Replies Flag this Response
  • You are welcome...spread the word...tell everyone you knowThere are several of us all in the same boatwe have all got to come together and figure this outmany are printing articlesmany are highlighting their symptoms and correlating test resultsmany are taking to docs...I did his job for himmany will be diagnosed soon...including myselfglad you've found this "free" info...mommy cat
    Anonymous 42,789 Replies Flag this Response
  • For the last six weeks I have been extremely fatigued, have no appetite, and my body just feels totally out of rhythm, as if I'm going to pass out at any minute. Multiple visits to the doctor and numerous blood tests have turned up nothing. They said I'm not anemic, and thyroid profile was good. I also had an echocardiogram with good results. I showed the doctor swelling on both sides of my neck near the clavicle and he just thought it was strained muscles. He said he didn't feel any lymph nodes. Based on my research, I'm really concerned about Hodgkin’s disease or some other disease that can not be detected with standard blood tests. I have occasional fevers and chills that lasts a couple of hours, and the muscles in my shoulder and neck area are sore. Motrin seems to help. I also have occasional muscle twitches in one of my biceps or the thigh area. Some days are OK and then others I feel like I can't even walk to the front door. I'm sometimes very aware of a pounding heartbeat, although when I check my pulse it's always in the 70 - 80 range. The only medications I take are Nexium and Benadryl, and now Motrin when I feel a fever. I am a 40 yr old Black male with no medical problems other than seasonal allergies and acid reflux. The only surgery I've had was ACL reconstruction 6 months ago. What could be causing these symptoms and what other treatments should I try?Just last week the University of Nevada Reno has confirmed there IS a virus responsible for chronic fatigue syndrome! Hopefully soon they'll have a vaccine.
    Anonymous 42,789 Replies
    • October 10, 2009
    • 03:25 PM
    • 0
    Flag this Response
  • i have recently been diagnosed with tb and many of my symptoms relate with yours, i suggest you talk about this with your doctor who can take a few blood tests and chest xrays. However dont worry, tb is treated very safely and easily these days with a course of antibiotics. You probably wont have it but its worth a test.
    crayola24 1 Replies
    • October 17, 2009
    • 06:02 PM
    • 0
    Flag this Response
  • I have been having the same symptomes. Have you been checked for Lyme disease?
    Anonymous 42,789 Replies Flag this Response
  • My doc is tesing for ME/CFS...I have over 70 symptoms...most get severe flare ups are involved I used to work with someone diagnosed with Sarcoidosis...I wonder if he was misdiagnosed as I have been for years ask doc about ME/CFStell him there are many with sx on one website that's what I did...my doc listened and I am currently being tested already have results of Low potassium and abnormal atypical lymphocyte count be well and best of luck, mommy cat There is no specific testing as such for CFS/ME as everyone with it has slightly varying symptoms of it's symptoms, thou there are many tests for it which are non specific ones (eg the abnormalities found can also appear in other illnesses so hence the tests cant be used specifically for CFS/ME). eg Abnormal rombergs test, abnormal but non specific EEGs, low cortisol etc etc (unfortunately these tests most doctors do not end up doing to support a diagnoses due to the non specific nature). Currently diagnoses is based on having a certain amount of the CFS/ME symptoms and getting other things ruled out............................ If it does turn out that nearly all with CFS/ME actually have XRMV (the CDC and other scienctitis are currently trying to vertify the new research in which was found most people with CFS/ME have a newly discovered retrovirus)... If that does happen, maybe then that test will end up being the one used. The original poster did sound like she may have CFS/ME by her mentioned symptoms.
    taniaaust1 2,267 Replies Flag this Response
  • I have been having the same symptomes. Have you been checked for Lyme disease? If you have those same symptoms get Lyme ruled out and if Lyme isnt found... i suggest to then go and see a CFS/ME specialist who will be able to diagnose you with CFS/ME after making sure you havent got any similar appearing illness to CFS/ME.
    taniaaust1 2,267 Replies Flag this Response
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  • I'm having the same problems - extreme fatigue, aches, loss of appetite. I assume the fatigue is from the loss of appetite/not eating as much, but whenever I DO eat, my stomach makes REALLY loud sounds, like it's not happy w/ what I just ate. I also have acid reflux (but don't always take meds for it) and pet/seasonal allergies. I recently started taking a generic allergy med at night right when I go to bed. I don't know if this started when I started doing that.... Otherwise, I'm a healthy, late-20's female. But I have a baby, and I'm worried that I won't be able to take care of my baby b/c of the fatigue.
    Anonymous 42,789 Replies Flag this Response
  • I need advice and opinions, please. I have a loss of appetite, occasional light headedness, weight loss, certain food and food smells make me nocuous, I force food because I know it is important to eat but there is only so much I can eat. I haven't thrown up since I have been feeling this way. I do not suffer from headaches. I used to eat much more and maintained a weight of 155-160 and am now down to 148 in only one week. I will have more blood work tomorrow and am going to schedule an appt. with a GI doc, but I am curious if any of you have felt these exact symptoms and have any advice? Thank you. The more I research, the more anxious I am getting.
    Anonymous 42,789 Replies Flag this Response
  • For the last six weeks I have been extremely fatigued, have no appetite, and my body just feels totally out of rhythm, as if I'm going to pass out at any minute. Multiple visits to the doctor and numerous blood tests have turned up nothing. They said I'm not anemic, and thyroid profile was good. I also had an echocardiogram with good results. I showed the doctor swelling on both sides of my neck near the clavicle and he just thought it was strained muscles. He said he didn't feel any lymph nodes. Based on my research, I'm really concerned about Hodgkin’s disease or some other disease that can not be detected with standard blood tests. I have occasional fevers and chills that lasts a couple of hours, and the muscles in my shoulder and neck area are sore. Motrin seems to help. I also have occasional muscle twitches in one of my biceps or the thigh area. Some days are OK and then others I feel like I can't even walk to the front door. I'm sometimes very aware of a pounding heartbeat, although when I check my pulse it's always in the 70 - 80 range. The only medications I take are Nexium and Benadryl, and now Motrin when I feel a fever. I am a 40 yr old Black male with no medical problems other than seasonal allergies and acid reflux. The only surgery I've had was ACL reconstruction 6 months ago. What could be causing these symptoms and what other treatments should I try?You have Addison's Desease.. get help now! You will live a normal life with treatment!
    Anonymous 42,789 Replies Flag this Response
  • Have you been tested for MONO - some of the symptoms sound like it is a possiblity. IJS It has a much more serious affect on adults than it does children. It couldn't hurt to get tested.
    Anonymous 42,789 Replies Flag this Response
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