Discussions By Condition: I cannot get a diagnosis.

severe burning hand pain

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: jbrgstrm
  • April 18, 2007
  • 04:46 AM

:( Hello, I am hoping someone out there can help me. I have pain in both hands and worse at night. Everynight i am awoken with this severe burning in my hands and fingers, especially in between the 2-3rd fingers. This is the worst pain i have every had in my life. During the day my hands are stiff and sore. On my left hand the tips of my fingers (1,2,3) are numb. It is also hard for me to make a fist d/t pain and stiffness. I cannot even pick up a coffe cup in the am without extreme pain. This is starting to affect my life and I very frustrated with Dr.'s. They seem to think I am a drug seeker and since there is no concrete diagnosis (I had nerve conduction test that was normal) (all lab work is normal) will not perscribe me any pain medication. I do not know what to do - If anyone knows or has the same thing and can offer advice it would greatly be appreciated.
Thanks

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17 Replies:

  • Sounds like Reflex Sympathetic Dystrophy (RSD) also known as Chornic Pain Snydrome. Try searching for it in google. Be warned it's hard to get diagnosed with (adverge 18 months of tests) but will get worse without treatment so see a doctor asap to either rule this condition out or to diagnose it. Good luck.
    Anonymous 42,789 Replies Flag this Response
  • Sounds more like carpal tunnel syndrome in the distribution you describe!Have you ever had any hand trauma/operations?
    Anonymous 42,789 Replies Flag this Response
  • Thanks -- I Will- This Is The First Time I Posted And I Was So Frustrated Because Nobody Could Help Me- Now I See There Are A Great Deal Of People Out There Who Are As Frustrated As Me -- That At Least Makes Me Feel A Little Better:)
    jbrgstrm 2 Replies Flag this Response
  • I have had a electrical nerve stimulation test for Carpal Tunnel and the results were normal. That is the frustrating part. I have all normal tests but have all this pain. The symptoms are some what like carpal tunnel though - i agree -but can you get carpal tunnel in both hands at the same time?
    jbrgstrm 2 Replies Flag this Response
  • Please try acupuncture - it may be very helpful for you! I have treated quite a few patients with carpal tunnel, tendonitis, and RA symptoms with excellent results. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • I have herniated disc at c5 and a failed fusion a c6 that cases this pain. It took 6 docs to figure this out going for second fusion. I pray it works to type this is hard my hands feel like they are sunburned all the time. My arms are weak cutting my own food has been hard for over 8 months. Docs have been same way about pain meds, I feel like the pain is a part of me now, the very thought of not have itseems almost unbelieveable, my frustation with the medical community is high when I get better I am going back to school to hopefully figure out a way for docs to be docs again and not slaves to the insurance companys.I plan to study legal clincal nursing and see where it leadsme. My main advice is never give up you have the moraland legal right to get better without having to see 10 specialists to get there.
    Anonymous 42,789 Replies Flag this Response
  • Sounds like Reflex Sympathetic Dystrophy (RSD) also known as Chornic Pain Snydrome. Try searching for it in google. Be warned it's hard to get diagnosed with (adverge 18 months of tests) but will get worse without treatment so see a doctor asap to either rule this condition out or to diagnose it. Good luck.My daughter has been diagnosed with RSD and the way she was diagnosed was with a Thermography test -- that being put into a temp controlled room and running a scanner around her nude body to determine temp changes and where they were. She got hers from a broken arm and it's a nerve damage. She lives with the pain as she is not a pill popper. And most of the medication she was perscribed was too strong and made her too spaced out for driving, working, etc. She takes Tylonel PM at night and that's about it.
    Anonymous 42,789 Replies Flag this Response
  • I am sorry to hear about your daughter. Chronic pain syndrome can be completely debilitating! Have you or your daughter considered trying acupuncture? It may be helpful and is noninvasive. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • My carpal started with a fall onto my hand with a lot of gravel in the palm of my hand. It stung like crazy for a very long time. Then I noticed it was worse at night and started reading about carpal and other nerve impingement problems. One of the easiest self cures is to wear good wrist splints to bed. You would need to get them from your ortho doc. The drugstore kind doesn't put you in the correct position. (called the ***k-up wrist position!). There are numerous types of carpal, and also ulnar and shoulder nerve problems. Look up ulnar and shoulder impingements. When you count fingers, start with the thumb which is number 1, pinkie is 5. I had some ultrasonic therapy, which didn't do much for me, but I've heard that acupuncture might work. I had carpal in both hands, but only had surgery on the right hand. Now neither hand hurts, though the nerve study showed the left was worse. At the same time I had appendicitis and was off work for about 5 weeks. Maybe the rest did the trick!
    rad-skw 1,605 Replies Flag this Response
  • I had the same problem. I know what you mean about the most pain ever -- and also the burning hands at night. Doc's thought I wanted pills, but I just wanted relief. All Sed Rate and ANA tests were negative. I was referred to a Rheumatologist. and it took him about 15 minutes to figure out I have Tendonitis in my SHOULDERS! Certain postures and other outside causes would increase the irritation, which pinched nerves in my shoulder, which caused the pain, numbness, burning & swelling in my hands & wrists. I have begun Courtisteroid treatments - one in each shoulder - a series of 3 at 1 month apart. I feel better already. I seems strange, but this is all coming from your shoulders!
    diane hopkins 1 Replies
    • November 21, 2007
    • 03:17 PM
    • 0
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  • Oh my gosh, I could have written the exact same letter although I haven't seen a doctor yet. I wake up at night with my hands burning, and in so much pain I can't believe it. Sometimes I can't feel myself washing my hair or brushing my teeth in the mornings my hands are so numb. Aleve doesn't touch it, hydrocodone doesn't touch it, I don't know what to do. I'm exhausted from not sleeping. I'm thinking it's either repetitive movement syndrome or osteoporosis - what are your thoughts about that ?
    Anonymous 42,789 Replies Flag this Response
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  • I've had this for 4 yrs. Dr's thought it was a result of carpal tunnel (I had the surgery yrs ago & never got the desired results) or small nerves being sensitive in which case there is no test. Going to neurologist & he is giving me seizure meds - Zonisamide w/little help. Finally went to my internist to and added Cymbalta, 60 mg - one in am & one in pm to the Zonisamide (6/day) w/much help but not quite enough so I added Tryptophan w/Cymbalta & have gotten a lot of relief. You might not need the Zonisamide and my dr. wants me to try and stop taking it but said it's not incompatible w/Cymbalta if I still want to take it. It's still not perfect but livable. Still have to watch what I do but much better than before. I use Swansons Ultra L-Tryptophan "TryptoPure" (90 caps for $19.909) and take 2 caps at night. My nutritionist recommended the Swansons Company. Phone is 1-800-437-4148 or www.swansonvitamins.com Hope this helps. This is worst thing I've dealt in my life
    m. l. hand 2 Replies Flag this Response
  • I have the same thing. Dr.'s said it could be from my carpal tunnel, low thyroid or small, sensitive nerves. I took anti seizure meds w/no luck & finally resorted to antidepresant, Cymbalta (60 mg in am & 60 mg at nigh) & it helped somewhat but then I added Swanson's Company's Tryptphan (2/day) and feel much better. Not perfect, but livable and able to use computer & do a lot of things I wasn't able to to before. My nutritionist recommended Swansons & the phone # is 1-800-437-4148 (it's vegetarian as well). I also take Zonisamide from my Neurologist (6/day). My internist said Cymbalta & Zonis. are not incompatible & can be taken together. Hope this helps.
    m. l. hand 2 Replies Flag this Response
  • Just wanna share this...Carpal tunnel Syndrome effects millions of people in America. Carpal tunnel is when your nerve is entrapped. In simplified terms a nerve in your wrist is being pinched or crushed. The ergonomic keyboard is one way of combating a repetitive strain injury. Intended to alleviate wrist strain, these keyboards are designed in a manner that does not look the same as a traditional keyboard. The keys are spaced differently, and the keyboards are often at an angle that is more natural than a normal keyboard. These design features can help alleviate strain on your wrists.
    gabrieljosh 2 Replies Flag this Response
  • :( Hello, I am hoping someone out there can help me. I have pain in both hands and worse at night. Everynight i am awoken with this severe burning in my hands and fingers, especially in between the 2-3rd fingers. This is the worst pain i have every had in my life. During the day my hands are stiff and sore. On my left hand the tips of my fingers (1,2,3) are numb. It is also hard for me to make a fist d/t pain and stiffness. I cannot even pick up a coffe cup in the am without extreme pain. This is starting to affect my life and I very frustrated with Dr.'s. They seem to think I am a drug seeker and since there is no concrete diagnosis (I had nerve conduction test that was normal) (all lab work is normal) will not perscribe me any pain medication. I do not know what to do - If anyone knows or has the same thing and can offer advice it would greatly be appreciated.ThanksI had burning in my hands and in the evening also. I did a little research and came upon B12 deficiency. It felt better after a B100 vitamin.Sincerely,Thea
    Anonymous 42,789 Replies
    • December 8, 2009
    • 08:15 AM
    • 0
    Flag this Response
  • I have struggled w/hand burning for several yrs after having unsuccessful bilateral carpal & cubital tunnel surgery. Have finally found a few things that help but don't completely eliminate the problem. Pain meds never worked for me & always made me sick.1) Cymbalta - highest dose they'll give you. This helped a lot. I was against & refused to try for a along time but finally gave in & am glad that I did. Causes dry mouth. Use sugar-free candy or gum & watch the ingredients as some sugar-free stuff can cause stomach upset. I use CVS brand. Keep your teeth very clean & go to dentist regularly as dry mouth can wreak havoc w/teeth.2) Swanson Brand Tryptophan - Don't know the website offhand, but I trust them as a nutritionist friend did studies w/Swanson & endorses them & Swanson is inexpensive. I got a magazine & order from 1-800 # (am at library or would have the info for you, sorry). Anyway - take two Tryptophan at bedtime - it works similar to Cymbalta & my dr. said no problem in taking both together. The Cymbalta wasn't enough & I couldn't increase dose, so that's why I chose the Trypt. route.3) Xentec - Don't remember the spelling, but's it's a prescription vitamin for people w/nerve damage. Biopsies have been done showing good results. You must be on this for a few months to see if it works for you. I've been on for about 6 mos & it's really been helping me. Wish that I had the spelling for you, but your dr. should know about it. It can cause nausea, so eat before you take it. I take one in the am & one in the pm.4) I'm also taking Zonegran (seizure med) but don't know that you would need this to start. Try the other stuff first.5) Also started using an over-the-counter oil that I found at Walgreens (or any other drugstore) & I'm trying to remember the name - Neurogran or something like that. Ask the pharmacist. It's for diabetic people w/nerve damage. It's a little pricy - $30.00 for a little bottle, but worth it as it has really helped me, especially at night. I just saw a $5.00 coupon in the coupon section of my Sun. paper for this (sometimes they have $10.00 coupons). You just use the code & go to their website to request the coupon.Hope this helps - 6 mos. ago, I wouldn't even be typing, but sitting at home in constant pain. I still get the pain if I do too much, but am much better. Good luck to you.
    Anonymous 42,789 Replies
    • December 8, 2009
    • 08:02 PM
    • 0
    Flag this Response
  • I have been down a similar path and found doctors to be unhelpful, rude and disrespectful when they don't know. Burning pain can be caused from pinched nerves in the spine. Hand pain from the upper spine, foot and leg pain from the lumbar area. See a chiropractor for adjustments to relieve the pressure on nerves in the cervial spine. C-7, T-1:( Hello, I am hoping someone out there can help me. I have pain in both hands and worse at night. Everynight i am awoken with this severe burning in my hands and fingers, especially in between the 2-3rd fingers. This is the worst pain i have every had in my life. During the day my hands are stiff and sore. On my left hand the tips of my fingers (1,2,3) are numb. It is also hard for me to make a fist d/t pain and stiffness. I cannot even pick up a coffe cup in the am without extreme pain. This is starting to affect my life and I very frustrated with Dr.'s. They seem to think I am a drug seeker and since there is no concrete diagnosis (I had nerve conduction test that was normal) (all lab work is normal) will not perscribe me any pain medication. I do not know what to do - If anyone knows or has the same thing and can offer advice it would greatly be appreciated.Thanks
    Anonymous 42,789 Replies Flag this Response
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