Discussions By Condition: Kidney conditions

hydronephrosis in infants

Posted In: Kidney conditions 69 Replies
  • Posted By: Anonymous
  • April 21, 2006
  • 04:13 PM

My infant son has been diagnosed with hydronephrosis. I am curious if anyone has experience with this condition? I am trying to avoid complicated tests such as renal scan for him and am wondering if it can resolve on its own?

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  • HI, my son has also been diagnosed with hydronephrosis....my ped. assured me he would probably grow out of it but he has still scheduled him for the renal scan...just to be sure....i have a question for you...did your baby ever have sudden symptoms of colic...2 weeks ago my son developed colic and im afraid it is from discomfort from the swollen kidneys....Please let me know...thanks Kritter86
    Anonymous 42,789 Replies Flag this Response
  • I am 20 years old and I had hydronephrosis when I was pregnant with my daughter. I develope stone regularly. It is severely painful so i have no doubts at all that thats why hes colic now.
    Anonymous 42,789 Replies
    • November 27, 2006
    • 08:46 PM
    • 0
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  • Hello,My son is also diagnosed with hydronephrosis & VCUG was normal..no reflux. Kidney is still swollen & urologist has asked for a Renal Scan to be sure that the kidney function isn't suffering.I was wondering if anyone else went through this test??? I really don't like the idea of inflicting pain on my 7 month old...will be 9 months at time of test....but, at the same time i want to make sure everything is okay.The urologist also said that it usually does clear up on its own as he gets older. Please share your stories & thoughts.
    Anonymous 42,789 Replies Flag this Response
  • My son was diagnosed by ultrasound w/ hydronephrosis when I was 19 weeks pregnant w/ him. At 28 weeks, another ultrasound revealed it was a little worse. My OB/GYN informed me that most babies out grow it before they are born. Well, his ped said he would order an ultrasound when my son turned 1 month old and see how the hydronephrosis was doing. That ultrasound revealed it was still there, slightly worse still.So, his ped referred him to a pediatric urologist. That doctor ordered the VCUG and the Mag3 Renal Scan w/ Lasix at 2 1/2 months of age. The tests lasted about 4 hours and at the end of all of it, we found out he does not have kidney reflux, he has a UPJ Obstruction (which is an obstruction either by malformation or blockage of the uterer tubes that lead from the kidneys to the bladder) I must warn you that the tests themselves didn't seem to bother him...however, make sure you specifically request a nurse trained to put in pediatric IVs. It took them 5 tries to get that IV in his little foot and I was about ready to hurt someone! My poor baby!Apparently, his left kidney is worse than his right but he has it in both kidneys. He is such a happy baby most of the time but there are some days, and I mean like 2/3 days a week, where he screams like he is in pain for hours at a time. His urologist insists that the hydronephrosis doesn't cause him any pain but every research project I've done on the subject says that it can cause sporadic pain.Anyhow, he is scheduled to have a follow up renal ultrasound on June 1 to see if the UPJ obstruction is correcting itself. The urologist said they don't like to do surgery on babies my son's age (he is only 4 months old right now) but if his ultrasound shows his hydronephrosis getting any worse they may have to do the surgery sooner than his 1 year mark.I'm trying to find out if it is truly "normal" for him to have the sporadic bouts of being in pain or uncomfortable. Anyone else have kids with this that show signs of severe colic?
    My2Boys 3 Replies Flag this Response
  • My2boys, my son has the similar condition. We were told that he has blockage in his both kidneys, the left kidney being the worse. The urologist ordered the VCUG and Renel scan. The scan showed the partial blockage on both sides. Based on the Renel scan, the urologist has determined that a surgery is needed to fix the problem. By the time of his surgery, my son will be little over 3 months. He does not have the pain symptoms, but some time we feel that he is uneasy and has some pains (though we are not sure). Ask your doctor, at what capacity (%) his left kidney is working. If they do decide to go for the surgery, ask him iif it will be open or leproscopy. My son's urologist will do the open surgery. At this point I am very concerned on my son's health and the upcoming surgery. But as I understand the success rate is over 95%.
    Nicator 1 Replies Flag this Response
  • My son's left kidney is worse too, right has it too but not as bad. When they did the Mag3 test, the doc said a normal kidney releases the urine into the bladder w/in 0-7 minutes, my son's is releasing between 25-30 minutes. He said that his left is as 47% and his right is at 53%. I don't know if that means at its functioning level or what. I decided I wasn't going to wait until June 1 for his follow up. I moved his ultrasound and follow up w/ his urologist to May 11 so we can see how things are going. I've done research on the surgery, and it seems pretty routine (as routine as you can get w/ a newborn I guess). AND my boss' son had the EXACT same thing. He had the surgery when he was 16 months old and has not had one problem since and he is in high school now. I will keep your little one in my prayers! No matter how routine, surgery on your child is scary! (My 4 year old has his tonsils & adenoids out about a year ago and that freaked me out too!!!) Do you know when they will do the surgery yet? His urologist told me they try to put it off as long as possible to see if they'll out grow it but will do the surgery on my little guy if it has gotten any worse and his next appt. Please keep me posted on how your little one is doing. Good Luck!
    My2Boys 3 Replies Flag this Response
  • My son was diagnosed with hydronephrosis on his left kidney when I was 19 weeks pregnant with him. He went on to have surgery for it at 17 months and is doing great now. He was very very colicky until he was 4 months old and though the pediatrician told us that hydronephrosis isn't painful for him, I still think otherwise. His urologist said that there is no way to know if infants are in pain - that they have never know otherwise but a 5 year old does complain of pain from hydronephrosis (maybe all people are in pain from it or maybe it has just gotten to be more severe by the time a child is 5). I felt so frustrated when we were going thru this because I couldn't find answers anywhere so I am more than willing to share any or my experiences or information that I have. My email address is trjackson12@yahoo.com
    Anonymous 42,789 Replies Flag this Response
  • My infant son has been diagnosed with hydronephrosis. I am curious if anyone has experience with this condition? I am trying to avoid complicated tests such as renal scan for him and am wondering if it can resolve on its own?HiWe too have a similar situation with our 5 months old son, doc says it gets cleared up on its own. Can you please share the measurements with us. We are seeing a different surgeon and will share the thoughts. Thank you.
    Anonymous 42,789 Replies Flag this Response
  • My son was diagnosed by ultrasound w/ hydronephrosis when I was 19 weeks pregnant w/ him. At 28 weeks, another ultrasound revealed it was a little worse. My OB/GYN informed me that most babies out grow it before they are born. Well, his ped said he would order an ultrasound when my son turned 1 month old and see how the hydronephrosis was doing. That ultrasound revealed it was still there, slightly worse still.So, his ped referred him to a pediatric urologist. That doctor ordered the VCUG and the Mag3 Renal Scan w/ Lasix at 2 1/2 months of age. The tests lasted about 4 hours and at the end of all of it, we found out he does not have kidney reflux, he has a UPJ Obstruction (which is an obstruction either by malformation or blockage of the uterer tubes that lead from the kidneys to the bladder) I must warn you that the tests themselves didn't seem to bother him...however, make sure you specifically request a nurse trained to put in pediatric IVs. It took them 5 tries to get that IV in his little foot and I was about ready to hurt someone! My poor baby!Apparently, his left kidney is worse than his right but he has it in both kidneys. He is such a happy baby most of the time but there are some days, and I mean like 2/3 days a week, where he screams like he is in pain for hours at a time. His urologist insists that the hydronephrosis doesn't cause him any pain but every research project I've done on the subject says that it can cause sporadic pain.Anyhow, he is scheduled to have a follow up renal ultrasound on June 1 to see if the UPJ obstruction is correcting itself. The urologist said they don't like to do surgery on babies my son's age (he is only 4 months old right now) but if his ultrasound shows his hydronephrosis getting any worse they may have to do the surgery sooner than his 1 year mark.I'm trying to find out if it is truly "normal" for him to have the sporadic bouts of being in pain or uncomfortable. Anyone else have kids with this that show signs of severe colic?My son is 8 months old and has mild hydronephrosis. Ultrasound today revealed he still has it. Will find out from urologist next week if worse, same, better and where to go from here. Anyway, he has never shown any signs of sporatic severe colic or pain. He did have pyloric stenosis surgery at 3 weeks old (found after one projectile spit up!) so if he acted fussy for the first few weeks after that, it was probably due to that. I will say, he still spits up a ton. From what I understand, and I know surgery is sooooo scary as I've been through it already with him, it is better than to possibly compromise the kidneys. I'll pray neither of ours requires it though.
    Anonymous 42,789 Replies Flag this Response
  • My son has hydronephrosis also. We found out when I was 18 weeks pregnant. He had a VCUG at 2 months, which came back normal, and just had a renal lasik scan done last week. He right kidney is fine, but his left kidney is only working at 50%. The ped urologist has scheduled him for surgery to remove the blockage and put in a stent. My son also has bouts of uncontrollable crying too, but when I asked the urologist he said that he did not think he was in pain from the kidney (I think he does have some pain from the kidney and that's why he has his crying spells). My son will almost be 6 months at the time of his surgery and we are so scared and worried. Has anyone's child had this surgery at such a young age?
    Anonymous 42,789 Replies
    • August 27, 2007
    • 00:59 AM
    • 0
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  • My son has hydronephrosis also. We found out when I was 18 weeks pregnant. He had a VCUG at 2 months, which came back normal, and just had a renal lasik scan done last week. He right kidney is fine, but his left kidney is only working at 50%. The ped urologist has scheduled him for surgery to remove the blockage and put in a stent. My son also has bouts of uncontrollable crying too, but when I asked the urologist he said that he did not think he was in pain from the kidney (I think he does have some pain from the kidney and that's why he has his crying spells). My son will almost be 6 months at the time of his surgery and we are so scared and worried. Has anyone's child had this surgery at such a young age?My daughter was diagnosed halfway through the pregnancy. It was mild hydronephrosis in the left kidney. I was told it would probably need surgery to correct and then the before baby's birth told it might resolve on its own. We were referred to a pediatric urologist and told to return two weeks after the baby is born. I went ahead at birth and requested an ultrasound be done which showed it had gone from mil;d/moderate to severe. At one week they did a VCUG which showed severe reflux in the left and mild in the right.We were told prepare for a diagnosis of obstruction in the left and most likely it will require surgery to correct. A mag three renal scan was performed at 6 weeks- sadly there was no kidney function in the left and our urolgist suggest removing the nonfunctional kidney and using a deflux to correct the 20% reflux in the right. I am shocked at how quickly this has progressed so make sure your little ones get the tests they need. The Iv for the renal scan is the worst but necessary. The VCUG wasn't bad at all. My baby does seem to scream in pain and be in discomfort most of the day. I truly feel she is in pain that is related to her condition. I was also told that surgery is safest anytime after 6 months of age. After that the risk isthe same weather it is done at 6 months or a year. If anyone wants to email me regarding this feel free to email me. i have spent many hours on the net researching this and am also seeking a second opinion just for peace of mind before we schedule the surgery. I was told we could leave the nonfunctioning kidney in but that increases the chance of infection. My email is gatogirl75@yahoo.com.
    Anonymous 42,789 Replies
    • September 18, 2007
    • 05:46 AM
    • 0
    Flag this Response
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  • I am so glad that I found this post! My son is 8 1/2 months old and was diagnosed with hydronephrosis of the left kidney when I was 19 weeks pregnant. We had several sonograms during my pregnancy and every 3 months after he arrived. He has had 2 renal scans and VCUG's and a 3rd renal scan tomorrow. The right kidney is operating close to perfectly. My concern is what I have read on the post from some of the other parents. My son is excatly the same as the posting from My2Boys. He is a very happy baby sometimes, but a lot of the time he cries and I can't ever seem to figure out why. My husband and I sometimes get at our wits end and when we talk during the day, we'll often ask "is he having a good day?" Now after reading this post, I wonder if at times he is in pain from his kidney.My other concern is that my son spits up a lot, sometimes 4-5 times a day. I have not mentioned this to the pediatric urologist, but our regular ped keeps saying that he'll grow out of it. At 8 1/2 months, he doesn't seem to be spitting up less than he did before. I wonder if the spitting up constantly and crying are related to the kidney issues. Have other moms noticed spit up issues in their children with the hydronephrosis? What about crying/fussiness?document.getElementById("MsgContainer").innerHTML='\x0d\x0a\x0d\x0a\x0d\x0a\x3cmeta http-equiv\x3dContent-Type content\x3d\x22text\x2fhtml\x3b charset\x3dunicode\x22\x3e\x0d\x0a\x3cmeta name\x3dGenerator content\x3d\x22Microsoft SafeHTML\x22\x3e\x0d\x0a\x0d\x0a\x0d\x0a\x3ctitle\x3e\x3c\x2ftitle\x3e\x0d\x0a\x0d\x0a\x0d\x0a\x0d\x0a\x0d\x0a\x3cp\x3e\x3cfont size\x3d2 face\x3dArial\x3eI am so glad that I found this post\x21\u00a0 My son is 8 1\x2f2 months old and was diagnosed with hydronephrosis of the left kidney when I was 19 weeks pregnant. We had several sonograms during my pregnancy and every 3 months after he arrived.\u00a0 He has had 2 renal scans and VCUG\x27s and a 3rd renal scan tomorrow.\u00a0 The right kidney is operating close to perfectly.\u00a0 \x3c\x2ffont\x3e\x3c\x2fp\x3e\x0d\x0a\x0d\x0a\x3cp\x3e\x3cfont size\x3d2 face\x3dArial\x3eMy concern is what I have read on the post from some of the other parents.\u00a0 My son is excatly the same as the posting from My2Boys.\u00a0 He is a very happy baby sometimes, but a lot of the time he cries and I can\x27t ever seem to figure out why.\u00a0 My husband and I sometimes get at our wits end and when we talk during the day, we\x27ll often ask \x26quot\x3bis he having a good day\x3f\x26quot\x3b\u00a0 Now after reading this post, I wonder if at times he is in pain from his kidney.\x3c\x2ffont\x3e\x3c\x2fp\x3e\x0d\x0a\x0d\x0a\x3cp\x3e\x3cfont size\x3d2 face\x3dArial\x3eMy other concern is that my son spits up a lot, sometimes 4-5 times a day.\u00a0 I have not mentioned this to the pediatric urologist, but our regular ped keeps saying that he\x27ll grow out of it.\u00a0 At 8 1\x2f2 months, he doesn\x27t seem to be spitting up less than he did before.\u00a0 \x3c\x2ffont\x3e\x3c\x2fp\x3e\x0d\x0a\x0d\x0a\x3cp\x3e\x3cfont size\x3d2 face\x3dArial\x3eI wonder if the spitting up constantly and crying are related to the kidney issues.\u00a0 Have other moms noticed spit up issues in their children with the hydronephrosis\x3f\u00a0 What about crying\x2ffussiness\x3f\x3c\x2ffont\x3e\x3c\x2fp\x3e\x0d\x0a\x0d\x0a\x0d\x0a';
    BStroh 1 Replies
    • November 29, 2007
    • 02:50 PM
    • 0
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  • My infant son has been diagnosed with hydronephrosis. I am curious if anyone has experience with this condition? I am trying to avoid complicated tests such as renal scan for him and am wondering if it can resolve on its own?I know what you are going through... my son was diagnosed with hydronephrosis during my 2nd sonogram at 35.5 weeks. When the dr. didnt say anything to me about it, yet I saw it on their report I asked. You know what his answer was???? "Dont worry, it's the most common birth defect in babies" As a new mother, dont worry and birth defect didnt seem to belong in the same sentence. I researched it and found it could be as severe as a blockage or tumor or as simple as the baby doesn't urinate often enough. Anyhow, when he was born I told the pediatritian about what was seen on ultrasound and they immediately whisked him away and were angry that the OBGYN didn't include it on their report. They did sonograms on my son and said he too had a form that he would quickly grow out of... just keep an eye on how many wet diapers he has. Good luck!Sarah
    Anonymous 42,789 Replies
    • December 12, 2007
    • 06:02 PM
    • 0
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  • Hello, I have read all the replies. My son had belly button infection and I took him to the hospital for treatment. He was admitted for 7 days and on antibiotic. The doctors found this hydro... during that time with one of the ultrasounds they did. He is now 3 months old. He doesnt cry. He is a very good and happy boy. We did ultrasound and VCUG, not the scan. VCUG came out to be fine. Only ultrasound revealed this issue. Our ped asked us to go for MAG III scan. We are little worried to go for it. But from your replies, looks like its a good idea to go for the scan and make sure everything is fine. If anyone had gone through the surgery thing, could you please share your babies health and recovery process?I just want to understand how serious this hydro... is. As everyone else, me and my wife really scared!thanks
    Iladad 3 Replies
    • December 29, 2007
    • 00:42 AM
    • 0
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  • Has anyone seen a pediatric homeopath or naturopath to treat this? I think it would be very helpful, and homeopathy is extremely safe for infants. Please look into it. I would think it would help restore balance to the kidneys without resorting to surgery. Best wishesDOM
    acuann 3,080 Replies
    • December 29, 2007
    • 02:36 AM
    • 0
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  • Per Doctor's advice, I took my boy to Boston Tufts medical center and did MAG III scan, came out to be nothing! Basically his right kidney works 100% fine and left is at 90%. After lasix administration, the pictures showed that there is no fixed obstruction. Now the nephrology specialist asked me to take my boy to a urology specialist for further investigation!Note: This hydronephrosis can be detected during pregnancy, please check with your Doctor and try to treat from there.Iladad
    Iladad 3 Replies Flag this Response
  • hello our son was dianoied at 33 weeks utero they said to watch and montoir his con we did ultrasounds and all the renal reflux scans at the age of 1 urologists said lets do surgury we got 2 more opinins they both said no surgury that they usually grow out of it well our son has no systoms at all no fever no blood in urine no uriner tract infection so why do surgury we need some help,they want us to go back in june for another ultrasound see how that one compares to the last one 3 months ago and maybe do another renal scan to see if there is any damage being done to the kidneys.that will be his 4 test and 2 time going under.any suggustions???????
    Anonymous 42,789 Replies Flag this Response
  • Hi, What is the reason for the surgery? is it for the hydronephrosis? or any other reasons? if there was no fixed obstruction found during your MAG 3 scanning, you dont need to go for the surgery. Please wait and try another ultrasound after couple of months. If its for some other reason, check with the doctor for the exact reason and search on the web for the reason, you might get some ideas.I didnt meet any urologist so far for my son because I decided to wait for some more time and try another ultrasound before I goto any urologist.I am sorry, I dont have any clue for now to say what to do, because when it comes to our babies, its very important to analyze a lot of things before decide anything.Hope everything will be fine.good luck.
    Iladad 3 Replies Flag this Response
  • I have just come home from an ultrasound app. and have been told that my childs left kidney and ureter is dialated and there is an obstruction. I was so shocked to hear there was a problem that I didn't ask many questions. I don't know what to think. What do I do? Who should I talk to? Where do I find out more info on this? Where do I go from here?
    Anonymous 42,789 Replies
    • August 11, 2008
    • 06:18 PM
    • 0
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  • Hi there,I normally don't reply to these forums but I am 23 years only and about 6 months ago I found out I have hydronephrosis in my right kidney... it turns out after EVERY test in the book that my kidney never rose into my back as a foetus... thus the renal pelvis (tubes) got tangled and that caused the hydronephrosis. My right kidney now is totally non-functioning and will have to be removed... I don't know what that woman was saying about it not hurting... every 6 to 8 weeks I get the most extreme pain I can imagine I have had a ruptured appendix, kidney stones and broken bones all before, this is by far a thousand times worse!, it usually comes and goes within 24hrs... usually it goes like this...I get a mild pain in my lower back to front region, then within 30 mins it gets extremely severe, then within another hour or so I start vomiting for at least 12 hrs on regular intervals... this has been going on for a year...I recommend that if you child has hydronephrosis do all you can do to get it checked as it is common in very young babies and usually goes by itself, but if it persists it's dangerous...Also I defiantly know that for an adult with 2 kidneys with hydronephrosis the life expectancy is very grim... sort it out now when their young or it will get worse... the tests aren’t too bad they make you feel kind of funny and the machines can be daunting for young people but it doesn't matter if it’s the worst thing ever get it done! I wish I had!
    Anonymous 42,789 Replies
    • August 19, 2008
    • 06:50 AM
    • 0
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