Discussions By Condition: I cannot get a diagnosis.

Miserable after giving birth......dizzy, lightheaded, short of breath

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: Momoftwins
  • April 4, 2007
  • 11:50 PM

I am 30 years old and gave birth to twins on 6/14/06. I lost over 1000 cc's of blood during delivery. I never started feeling 100% after. On 8/15 I started hemmoraging and went to the ER and they found 2 large (7 cm X 7 cm) pieces of retained placenta. I had no infection but lost over 60 cc's of blood. They told me that I was lucky to be alive. The next day I had a DNC and thats when the problems started. While I was in recovery they couldn't get my blood pressure to stabilize. It was 60/30 - 70/20 - 80/40. Finally it came up to 90/50 and they took me back to my room. After that I was extremely dizzy when standing and they said it was from the blood loss. They wanted to do a transfusion but I refused. They kept me for a week running tests. I had an ECG, Echo, hromone level tests which showed my cortisol level as 1.4. They did an MRI that showed a dark spot on my pituitary. They thought I had Shee Hans Syndrome. I went to an endocrinologist and had every hormone test done. All came back normal. They determined that I have a Micro Adenoma on my pituitary but it is of no concern. I had an inner ear test - normal. My symptoms started getting better until Sept 20. 06. I stood up and got extremely dizzy and blacked out. My ears were ringing, my head was pounding, and my heart was racing. My blood pressure was 62/43. I went to the ER and my BP was fine my blood work was normal so they sent me home. I let it go again until I had another spell but worse - I was short of breath and had chest pain. In January 07 I felt really dizzy and all the same symptoms again except my BP was 130/115 and 150/105. I went to the ER and thought I was having a heart attack. I have been to a cardiologist and had an ECG, Echo and a 48 hour Holter Monitor. The Echo showed mild regurgitation and leakage but they said it is of no concern. I am scheduled for a Stress Test and electrical studies of the heart. I have a hard time doing anything - going up steps or picking up one of my babies. My heart goes crazy 100-180 bpm with any activity. Does anyone have any ideas? I am miserable and need to be in better condition to take care of my babies!

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17 Replies:

  • Hi Momoftwins- sorry to hear about your situation. It sounds like you had a really difficult time giving birth but thankfully you got through it. Now it's just a matter of finding out what these symptoms are from. Is your blood pressure normally as low as it is now? For the average person, normal blood pressure is at around 120/70, though it can vary. Yours seems to have been very low recently, which would explain the fainting, and dizzy spells. I notice you mention it happened when you stood up- this is probably because your blood pressure had a sharp change in a matter of seconds; it can be indiciative of a heart related problem. The Stress Test and further electrical studies are quite relevant to your situation. With the stress test, you will run on a treadmill as a machine monitors your heart. This gives the cardiologist(s) a picture of what your heart does under stress. Did you have an EKG?Also, consider asking for a 30 day halter monitor, or else an event monitor. And event monitor is like a halter monitor except you manually start the recording when a symptom occurs rather than it recording 24-7. Have you had your glucose levels checked for diabetes? Sometimes pregnancy can create a temporairy bout of diabetes actually.
    Anonymous 42,789 Replies Flag this Response
  • My blood pressure has always been normal - 120's/70-80. I had gestational diabetes. Whenever I have a bad spell I check my sugar and it is always normal 80-90. I had an EKG and a 48 holter monitor which showed nothing.
    Momoftwins 2 Replies Flag this Response
  • I'm assuming since you went to the endoronologist that they checked your thyroid. I had gestational diabetes and preeclampsia during my pregnancy. (not really relevant I guess, just wanted to share). I still feel horrible since my sons birth in September. I found out I have post-partum thyroidis.Hypothyroid can make your blood pressure low along with the symptoms you described. Did they tell you what your TSH was?They checked mine a week after I gave birth and said I was fine. Four months later they checked it and it was a 12(which is hypothyroid). What I found out recently, though,after obtaing my medical records is that my first thyroid test was a 4. which is normal for the old standards but the range of "normal" has recently changed and many Doctors have yet to acknoldge this.sooo, maybe have it rechecked because having thyroid issues is VERY common after pregnancy and it can make your whole body go wonky and feel just plain horrible!!
    do11face 5 Replies Flag this Response
  • Wow, sorry to hear of your birth trauma...I too had a horrible time with birth of my daughter, and took over a year to get better...hang in there. You sound extremely depleted. I recommend finding a good naturopath, or Oriental Medical practitioner to help rebuild your blood and get your Heart and Kidneys back in balance. Even though your blood tests are "normal" this doesn't mean that is the case according to TCM. Herbs and supplements may really help get you back in balance. Traditional Chinese medicine is a very balanced form of medicine and is extremely helpful for post partum and hormonal issues. Yes, get your thyroid checked, as last poster said. I would also get your B12 levels checked - check out the post by Sally on B12 deficiency. Good blood tonics are burdock root, red clover, nettle, black strap molasses. Herbs and supplements for the heart include essential fatty acids, folic acid, coQ10, hawthorne. But find a qualified alternative practitioner who can better pinpoint where your imbalance lies. Visit www.acufinder.com for more info. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • What time was that cortisol test done??? That sounds like that's the problem. How can it be 1.4 one time ,then normal the next time????
    Anonymous 42,789 Replies Flag this Response
  • I would stay on the endocrinologist and get them to repeat the cortisol tests. If you do any research you will see that cortisol levels cycle through the day and over time. You can test completely "normal" but be having problems when they aren't looking. 1 in 4 people do have tumors on their pituitary and most are benign, but remember benign just means not cancerous. It has nothing to do with whether or not there are symptoms or even growth of the tumor. Good Luck and I hope you get better soon. Until then increase your sodium and fluid intake and change position VERY SLOWLY and this should help a little.
    emsbabydoll 73 Replies Flag this Response
  • I had my thyroid and cortisol and all other hormone levels tests within the last month. All results are normal. I drink lots of water and eat a lot of salt. Thank you for all of your suggestions. If anyone has any others please let me know!
    Momoftwins 2 Replies Flag this Response
  • PLEASE go to www.ahummingbirdsguide.com you have ME sx it is viral, neurological and affects several systems...I have several myself...please look
    mommy cat 1,654 Replies Flag this Response
  • Two months ago I started to get dizzy. The dizziness came one day and didn't go away, it was there day and nigh. I felt light headedness and also vertigo.I also got blurred vision some times, at times only in one eye, and, for the first time in my life, I got panic attacks, all completely out of the blue. I went to see many doctors, an ear-nose-throat specialist, a neurologist...I had all kinds of test and they told me I had an anxiety disorder and needed medication. By mere chance a friend of mine read me an article from the Balance and Dizziness Society of Vancouver (balanceanddizziness.org) that talked about blurred vision, anxiety and dizziness all related to having the first and second vertebrae of the neck out of place.Fortunately for me, I went to see a chiropractor that very day, though I had no hope of recovery because I didn't feel any pain in my neck.I had lots of anxiety and was willing to take the medication just to feel better. I thought I was going crazy.But the chiropractor explained to me that my neck was really out, and that the squishing of the vertebrae was causing the blurred vision in one or both eyes (it was even one of the questions in the questionnaire, "do you experience blurred vision in one or both eyes"), and that the anxiety was caused by the nervous system sending a "fight or flight" signal on it own, on and on, with no external reason.He told me I had a chronic back condition, though I had no back or neck pain, and asked me to give him 10 sessions without taking the medication. Well, I have gone there 3 times and I feel so good, 80% better. I am not dizzy, I have no anxiety, and no blurred vision.Without this chiropractor I would be on meds, thinking I am crazy.Please consider trying a chiropractor, it saved my life! I hope this helps.Venus
    Anonymous 42,789 Replies
    • September 20, 2007
    • 09:37 PM
    • 0
    Flag this Response
  • Postpartum pituitary necrosisPostpartum hemorrhage and hypovolemia can cause infarction of part or all of the pituitary gland, resulting in postpartum pituitary necrosis, or Sheehan's syndrome. Depending on the amount of pituitary tissue that has been destroyed, acute hypopituitarism can occur immediately, or deficiency can develop slowly over many years. The acute form is associated with persistent hypotension, tachycardia, failure to lactate, and hypoglycemia and requires prompt treatment with glucocorticoids. The slowly developing form often begins as postpartum amenorrhea and an inability to lactate; after many years, the classic features of hypothyroidism and adrenal insufficiency may manifest themselves. Also it seems like you have post-partum thyroiditis in the hypothyroid stage. Stay with the endocrinologist.
    rad-skw 1,605 Replies
    • September 21, 2007
    • 08:59 AM
    • 0
    Flag this Response
  • I have had a terrible time since giving birth four and a half years and things haven't improved greatly. A couple of weeks after giving birth to my son i started to feel very odd. Had dizzy spells, lightheadedness, bit nauseous, generally feeling a bit peculiar. Went to the GP on numerous occasions and spent many a long afternoon in my local casualty department and have seen a gastroenterologist, a neurologist, a rheumatologist and a cardiologist over the years, alternatively being told i was anxious, depressed, making it up, couldn't find anything wrong with me etc. To cut a long story short i had a massive heart attack on the 7th of January last year and 'died' four times. To my sheer frustration they said that i had been 'unlucky' and that it had nothing to do with giving birth. I am a 38 year old women, who was perfectly fit and healthy before giving birth and am therefore inclined not to agree! The worst part of all is that all my symptoms have returned, the dizziness, the lightheadedness, the low blood pressure, the funny turns and am sat here in the early morning having been up all night again, suffering from the most dreadful stomach ache. I think the message i'm trying to relay is not to give up. Whether anybody will actually listen to you is another story. Good luck.
    unhappymum69 5 Replies
    • January 20, 2008
    • 05:37 AM
    • 0
    Flag this Response
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  • I have had a terrible time since giving birth four and a half years and things haven't improved greatly. A couple of weeks after giving birth to my son i started to feel very odd. Had dizzy spells, lightheadedness, bit nauseous, generally feeling a bit peculiar. Went to the GP on numerous occasions and spent many a long afternoon in my local casualty department and have seen a gastroenterologist, a neurologist, a rheumatologist and a cardiologist over the years, alternatively being told i was anxious, depressed, making it up, couldn't find anything wrong with me etc. To cut a long story short i had a massive heart attack on the 7th of January last year and 'died' four times. To my sheer frustration they said that i had been 'unlucky' and that it had nothing to do with giving birth. I am a 38 year old women, who was perfectly fit and healthy before giving birth and am therefore inclined not to agree! The worst part of all is that all my symptoms have returned, the dizziness, the lightheadedness, the low blood pressure, the funny turns and am sat here in the early morning having been up all night again, suffering from the most dreadful stomach ache. I think the message i'm trying to relay is not to give up. Whether anybody will actually listen to you is another story. Good luck. First of all I am so sorry to hear of your difficulties!:( Please explore your holistic options to help get you back on track. Often pregnancy and labor can be very traumatic, and any trauma can help trigger an autoimmune dysfunction. I had my second child at 38, an emergency C section with lots of complications (transfusion, illeus, blood clots, ...) It took me a LONG time to get back to health. Western allopathic medicine had no answers, but, as an acupuncturist and Oriental medical practititioner, I was determined to get myself back on track. My little girl is now three years old, and I feel better than I have in years. I have been getting NAET (Nambudripad Allergy Elimination Techniques) for the past year, and use Chinese herbs and acupuncture and massage...these things, along with exercise and good eating, have given me my life back. Western medicine surely saved my life and my babies life. But when it came to getting my health back, there were fewer options. Acupuncture, NAET, naturopathy: these modalities can really make a difference. Please consider this. I wish you well. Best wishesDOM
    acuann 3,080 Replies
    • January 21, 2008
    • 04:25 AM
    • 0
    Flag this Response
  • I am 30 years old and gave birth to twins on 6/14/06. I lost over 1000 cc's of blood during delivery. I never started feeling 100% after. On 8/15 I started hemmoraging and went to the ER and they found 2 large (7 cm X 7 cm) pieces of retained placenta. I had no infection but lost over 60 cc's of blood. They told me that I was lucky to be alive. The next day I had a DNC and thats when the problems started. While I was in recovery they couldn't get my blood pressure to stabilize. It was 60/30 - 70/20 - 80/40. Finally it came up to 90/50 and they took me back to my room. After that I was extremely dizzy when standing and they said it was from the blood loss. They wanted to do a transfusion but I refused. They kept me for a week running tests. I had an ECG, Echo, hromone level tests which showed my cortisol level as 1.4. They did an MRI that showed a dark spot on my pituitary. They thought I had Shee Hans Syndrome. I went to an endocrinologist and had every hormone test done. All came back normal. They determined that I have a Micro Adenoma on my pituitary but it is of no concern. I had an inner ear test - normal. My symptoms started getting better until Sept 20. 06. I stood up and got extremely dizzy and blacked out. My ears were ringing, my head was pounding, and my heart was racing. My blood pressure was 62/43. I went to the ER and my BP was fine my blood work was normal so they sent me home. I let it go again until I had another spell but worse - I was short of breath and had chest pain. In January 07 I felt really dizzy and all the same symptoms again except my BP was 130/115 and 150/105. I went to the ER and thought I was having a heart attack. I have been to a cardiologist and had an ECG, Echo and a 48 hour Holter Monitor. The Echo showed mild regurgitation and leakage but they said it is of no concern. I am scheduled for a Stress Test and electrical studies of the heart. I have a hard time doing anything - going up steps or picking up one of my babies. My heart goes crazy 100-180 bpm with any activity. Does anyone have any ideas? I am miserable and need to be in better condition to take care of my babies!Just out of curiosity, why did u refuse a blood transfusion?
    cbalcomgo 38 Replies
    • January 21, 2008
    • 02:14 PM
    • 0
    Flag this Response
  • Hey I gave birth last month and i get dizzy spells. I will speak to my physician about it but its scary...does anyone know about this?
    Anonymous 42,789 Replies
    • November 3, 2009
    • 00:49 AM
    • 0
    Flag this Response
  • I lost over 1000 cc's of blood during delivery. I never started feeling 100% after. While I was in recovery they couldn't get my blood pressure to stabilize. It was 60/30 - 70/20 - 80/40. Finally it came up to 90/50 and they took me back to my room. After that I was extremely dizzy when standing and they said it was from the blood loss. They wanted to do a transfusion but I refused. Now why would you refuse a blood transfusion when you had lost so much blood ? It will take your body many months to recover the iron you must have lost during your difficult labour. A transfusion would have instantly replaced that. I suspect your symptoms are a result of severe blood loss induced anaemia. Keep eating lots of iron rich foods, and you should be ok.
    gungwane 62 Replies
    • November 3, 2009
    • 05:45 AM
    • 0
    Flag this Response
  • i totally understand what your going through, im 19 years old. and i had a baby boy three months ago.. well the first week after having him i had these severe headaches that would come every day, so i ended up going to the hopsital and they said everything was fine.. it was from my epideral. well then about a month later ive been having so many problems, i have been dizzy everyday for the last atleast month, and heart would always race, i have anxiety attacks all the time, and i was thinking alot might have to do with it because ive gained alot of weight when i was pregnant.. so on top of trying to get my body back i have this on my shoulders, ive had a ekg, ct scan everything.. and they keep telling me nothing wrong, except my blood pressure was a little high but i heard that was common after having a baby & it will go away. so ive been on meds for that. i just wanted to know if anyone else was having/had these kinda symptoms after having a child. just worries me and i feel like im going nuts because im so dizzy and stufff.. and im only 19 & i feel like i cant even enjoy my life with my son or anything because everything thats wrong with me right now.. i just wanna be back to normal.. and my mom keeps telling me that its because i just had a baby and my hormones are all messed up but i just have a hard time believeing her ... ughhh.
    Anonymous 42,789 Replies Flag this Response
  • Water! I found I have to drink 12+ cups a day to get rid of the constant dizziness. I didnt believe I was dehydrated until I had to be hospitalized for it. Its tough to keep up with but it works.
    Anonymous 1 Replies
    • August 16, 2014
    • 06:50 PM
    • 0
    Flag this Response
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