Discussions By Condition: I cannot get a diagnosis.

Extreme fatigue and achiness

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • June 13, 2011
  • 04:52 PM

In the fall 2009 I got lyme disease. Not diagnosed until March 2010. Swollen lymph and clavicular nodes, sore throat, chills, achiness, awful fatigue. 3 weeks doxycyline and lyme is gone. Blood test confirmed. Fatgue, bouts of chills and achiness daily didnt go away. July 2010- Rheumatologist said I had high Epstein-Barr antibodies. Not sure what that means.
The achiness and bouts of fatigue and chills never went away and its June 2011. Blood tests all came back normal. DIagnosed with CFS/Chronic fatigue Syndrome. They cant do a thing about it but I worry that there is something else wrong with me, just undiagnosed. I cannot get thru the day without an hour nap and I went from 5-6 hrs of sleep each night to 8 or 9 and its still not enough. I feel like I have the eternal flu. Any thoughts?? THANKS

PS I have 2 nodes on my thyroid. Ultrasound came back normal..same as last year.no growth.

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  • In the fall 2009 I got lyme disease. Not diagnosed until March 2010. Swollen lymph and clavicular nodes, sore throat, chills, achiness, awful fatigue. 3 weeks doxycyline and lyme is gone. Blood test confirmed. Fatgue, bouts of chills and achiness daily didnt go away. July 2010- Rheumatologist said I had high Epstein-Barr antibodies. Not sure what that means.The achiness and bouts of fatigue and chills never went away and its June 2011. Blood tests all came back normal. DIagnosed with CFS/Chronic fatigue Syndrome. They cant do a thing about it but I worry that there is something else wrong with me, just undiagnosed. I cannot get thru the day without an hour nap and I went from 5-6 hrs of sleep each night to 8 or 9 and its still not enough. I feel like I have the eternal flu. Any thoughts?? THANKS PS I have 2 nodes on my thyroid. Ultrasound came back normal..same as last year.no growth. It does certainly sound like CFS not just due to your symptoms but also due to lyme before and the EBV. The statistic is that 10% of Lyme cases lead to CFS. There is a connection between EBV and CFS ..orginally it was thought to actually cause CFS but that turned out to be not the case throu it can trigger off CFS for some. For those with CFS... getting mono bad (EBV) or reactivating EBV is quite common. The theory for this is that CFS overactives one side of the immune system which leaves the other side, not able to fight certain things well including EBV hence things like it reactivating. This is a TH2 dominance so one can say those with CFS are TH2 activated. One can say this helps to confirm that you probably now have CFS triggered off from the Lyme. If you want to research all this further look up TH1/TH2 balance and CFS. "Some" Lymies who develop CFS find that long term antibotic rotation treatments for lyme can help some (by long term.. i mean 2-3 years). Be aware that there is a higher risk of thyriod cancer with CFS .. in one subgroup who has CFS, it was found that a very rare cancer of thyriod was found in one in every 16 of this subgroup. So make sure those growths are watched. At this point I strongly suggest you to find a ME/CFS specialist who is up to date on things. Your illness isnt something most doctors can deal with. There is many things which can be trialed in CFS which may help some for symptoms etc
    taniaaust1 2,267 Replies Flag this Response
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