Patient Stories

30 years old a female who has had many health issues and still waiting for more!

Posted In: Nerve conditions Writelife31 | August 30, 2015 | 04:54 AM

Hi my name is Jenny. I am a mother of 1 and also a step-mom of one. I have 2 associate degrees and moving to my bachelors in psychology. I was diagnosed with multiple sclerosis in 2014,but was told I had for 4 years already. I go to Mass General Hospital now where I got my second opinion and my MS Dr. says that I have something else causing my symptoms and something rare and I am so complex that I need to basically be researched. So far I have been diagnosed with; MS, narcolepsy, ADD, DDD, Anxiety, depression, insomnia, IBS, Chron's disease and then un-diagnosed, cervical cancer, I had a lump removed from my breast around age 16-17, a colonoscopy around age 19, tested positive for TB at age 26 and my pcp had to call the CDC and prescribe me the meds that I did not take because it was a false-positive, a C-section due to complications and preeclampsia, Fibromyalgia, spinal stenosis, and my newest problem is that my lymph nodes on the left side of my neck are inflamed and infected and did not respond to 2 different antibiotics, seizures, arthritis.....
Sounds fun, right? I was advised to go to a research hospital and I may have an extremely rare disease or one that has not even been discovered yet. So I'm now a research project.
So I decided to embrace my "un-healthiness," and write a book. I have started to write a book series and I am currently working on my first one about MS. I have a co-author, an illustrator, and a few possible publishers. This is an unfortunate situation, but it has also made my dream since I was a little girl come true which, is to write a book or books. I take one day at a time and I just keep on keeping in because what else can I do? Lay down and die or embrace anything I can? I chose to live! One love! Jenny

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