Discussions By Condition: Urinary conditions

women and bladder cancer

Posted In: Urinary conditions 11 Replies
  • Posted By: Anonymous
  • September 8, 2006
  • 06:41 PM

I have noticed in many cancer forums that there seems to be a large misdiagnosis of bladder cancer in women. It seems as though many women are diagnosed incorrectly time and again with urinary tract infections, and treated with anti-biotics. Often they are finally diagnosed when it is too late for anything but surgery. Are there any women out there who have had this experience? I have been misdiagnosed for almost a year. Gross hematuria should not be overlooked in so many women, old and young. Cancer is on the rise, doctors are rushed and careless with women. Tell me your stories if you have them. thanks, Vi

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11 Replies:

  • could I have this? I was diagnosed with a bladder infection in which antibodics were supposed to clear up in a day or two however I took 5 days worth and still had problems so then was given another 3 day supply of a stronger antibodic which seemed to have cleared me up for a while, but just recently I have had some discomfort in urinating again:confused: I've had a slight cough that hasn't gone away... don't know what's wrong with me
    Anonymous 42789 Replies
    • September 19, 2006
    • 05:57 PM
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  • If this eases your mind then I am happy. I am a urology nurse. Bladder cancer typically shows up as painless hematuria (blood in the urine). UTI's typically will show some microscopic hematuria. If you are having gross hematuria, this is different. When I say gross I mean bright red blood or dark red blood that may present with moderate to large clots. If you are a smoker you do run a higher chance of getting bladder cancer. So you should stop smoking if you are. If you are worried go to a urology office and speak to one of the md's about cystoscopy. Another test can be done with the urine, it's called urine cytology or a FISH study but it can sometimes miss bladder cancer, as can a ct scan. The best way is to directly visualize the bladder with a cystoscopy.Hope this helps.
    Anonymous 42789 Replies
    • October 5, 2006
    • 11:11 PM
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  • I am a cashier and was having trouble standing for a long period of time. I felt only a pressure, nothing painful. Went to urologist. He said I had a UTI and RX for antibiotic. Urine test showed blood in urine and he said I had a fever. I felt wonderful. I laughed. That was on a Tuesday. By Friday, I had tomato juice urine and pain and knew it wasn't right. Called doctor and said if he couldn't see me I was going to ER. He let me go right in to his office. Between 9AM and 5:30 Pm I had 7 different tests STAT and surgery was scheduled for the next Tuesday to determine whether he could remove cancer laparoscopically. It ws pervasive. Had a nephroureterectomy 2 wks later. I had kidney cancer. he got it all. That was 4 months ago. I am left with incontinence and doctor could care less. My gynecologist found a vesicovaginal fistula yesterday which is the cause of my incontinence and I need surgery. I also have nerve damage affecting two different areas of my front quads and the left backleg bicep (hamstring muscle.) That's my story. I hope for a happy ending. Thinking of suing urologist who would not see me after surgery and got defensive right away when I made an appt to talk with him. He said it wasn't his fault instead sending me to a physical therapist who said she could "fix" me by January. She was $320.00 an hour 3X a week and not covered by my insurance. i went for 8 wks and quit since it wasn't doing any good.I will lose my job when I have the fistula repair surgery as my generous company allowed 12 wks of disability. i used it for the bladder cancer surgery and subsequent treatment. I will be rehired but will lose certain benefits for which I've worked very hard. I will lose my insurance and be put on COBRA. I am fortunate to not NEED the job. I just love it. My fistula was misdiagnosed and cost me tremendously. I am real sad about this.
    Anonymous 42789 Replies
    • February 3, 2007
    • 01:20 AM
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  • I'd smoked for 34 yrs and had successfully quit for 15 yrs when my problems began. My bladder cancer started off being treated as urinary tract infection. At first I saw a tiny drop of blood in my urine, but it just didn't 'feel' like bladder infections I'd had in my younger years. Over the next 2 years the symptoms returned intermittently, with the episodes being closer together and increases in the amount of blood I saw per episode. My nurse practitioner continued to treat me for plain old bladder infections. Close to the end of 2 years I began to pass clots. I was sent to a nephrologist and had an ultrasound which didn't show anything. Again the symptoms went away...so that department didn't follow up on me. When the clots got really large and made urinating difficult to start and painful when it stopped, I finally got sent to the Urologist. After the initial consultation, it was only days before I had a cystoscopy which showed 3 tumors. A week later I was having MRI w/contrast, the EKG and chest x-ray for surgery. It was diagnosed as TA Cancer and no treatment was recommended. Cystoscopy's were planned for every 3 months for 2 yrs and after that it would be every 6 months. My first post surgery cystoscope showed no new tumors and the cell wash evidently was clear of cancer cells, or at least no one has gotten back to me and it's over two weeks. I feel lucky and thankful. I've also read that this type of cancer has a high reoccurrence rate, so I'm uneasy with that prospect.
    Coleah 2 Replies Flag this Response
  • hey therei have had uti's for 3 years now tried everything now im starting to get really scared do you think i could have it?
    Anonymous 42789 Replies
    • November 25, 2009
    • 00:51 PM
    • 0
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  • hey therei have had uti's for 3 years now tried everything now im starting to get really scared do you think i could have it?When I was younger I had frequent UTI's. The Urologist said the urethra tube had narrowed (I think it was like a calcuim build up, but could be wrong). The narrowing was causing urine to be held in the bladder longer than if there was 'normal' urination and emptying (thus the infections). I had a simple surgery to remove the build up and expand the tube's diameter. That took care of it for decades.One of the signs of bladder cancer is blood in the urine. If that is seen, it would need to be investigated by a urologist. Be aware, educate yourself and it will ease your worries. I think the not knowing what is going on is the catalyst for learning. Best to you.
    Coleah 2 Replies
    • November 26, 2009
    • 02:29 AM
    • 0
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  • Hi, I am 20 years old and have had blood in my urine since Feb 2010. At first they diagnosed a kidney stone, but have just recently had a meeting with a consultant radiologist who has said it is not a kidney stone but calcified veins. This does not explain the blood in my urine. Since feb I have had at least 10 UTI's. I don't know what's wrong... but something has to be wrong for me to consistently have blood in my urine for that long. They have also found protein in my urine on a few occasions. Could this be bladder cancer?
    Anonymous 42789 Replies
    • January 17, 2011
    • 11:13 PM
    • 0
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  • I have had problem with blood in my urnine since I was 13 years old, had many bladder infections. Went through th 24 hour urine tests, went through the dye and xray tests, only to show I had high protein levels as well. Over the last few years I had to go to the washroom more and when I had to go there was no warning. I smoked and at the age of 41 began having severe lower back pains that started out of no where. The wonderful Dr. I have knows that I don't complain about pain (in accident 2 years a go that damaged my shoulder tearing the labrum etc.) and don't like to take pain meds. He sent me for ultrasound with in the week and found a mass in my bladder. He immediately sent me to a urinologist, who proceeded to tell me the likely hood of it being cancer was slim, asked if I smoked, said yes, said unlikely that I smoke 2 packs a day, said no maybe 1/2. Proceeded with the cystoscopy and found that it was cancer, Diagnosed October 2010. Had surgery 3 weeks later to remove the cancer. Did not need chemo or radiation, stated that it is a recurring and aggressive cancer so wanted to wait until next appointment. I have my 1st post surgery check up in April, sore back is once again but urine is clear ( didn't know that is what it is suppose to look like, mine was always rusty colored for years) Have quit smoking, but I feel confident and trusting of my specialist. If you don't trust them you really don't have anything to help you through those next 3 months. Came across this forum and someone asked for personal experiences so this is mine. And for the record the cystoscopy that some say is so painful, really on takes a few minutes and they use a gel to freeze you. There is some discomfort after the procedure to go to the washroom, but it is all worth to find out if it is cancer or not.
    Anonymous 42789 Replies Flag this Response
  • I have noticed in many cancer forums that there seems to be a large misdiagnosis of bladder cancer in women. It seems as though many women are diagnosed incorrectly time and again with urinary tract infections, and treated with anti-biotics. Often they are finally diagnosed when it is too late for anything but surgery. Are there any women out there who have had this experience? I have been misdiagnosed for almost a year. Gross hematuria should not be overlooked in so many women, old and young. Cancer is on the rise, doctors are rushed and careless with women. Tell me your stories if you have them. thanks, Vi hi I've just been diagnosed with bladder cancer & having ct scan tomorrow morning to check whether it is in other tissues. I first started with symptoms similar to cystitis feeling uncomfortable, like I needed to pass urine & then a smear of pink blood for which I was prescribed Trimothrepine which helped clear it, That was around May last year 2010 & i had just started a new temp job in a hospital where I was walking a lot. I then kept getting that uncomfortable feeling & would drink loads water, so i went to GP & they were going to prescribe the same antibiotic again. I then asked for my bladder to be checked and was referred for an ultrasound that was in july last year. The ultrasound therapist just checked my bladder & asked me to empty it & rechecked again & said it was emptying fine. I was a bit confused as I knew that but assumed she had not seen anything. I didn't hear back & assumed all ok as apparently no report was sent to gp. My point being that I continued to get little niggles & same problem again few months ago, and again with blood residue on wiping. I went back to gp & was then referred to Urology thru rapid referral system. Had ultrasound yesterday where she told me there was a thickening on right side of bladder wall & a cyst on kidney., I had cystoscopy also where i could see the mass on screen & the therapist confirmed cancer but i must see the consultant. Consultant had to go to theatre so i will be having ct scan tomorrow morning & then seeing Consultant. I am wondering why this was not picked up on my first scan a year ago when i started to have problems. Ive asked my gp to request report from that scan & I will try & get copies of scan. i am so worried as its now a year later since that first ultrasound which has given more time for the cancer to grow. Ive just turned 58 & a smoker with an aunt who had bladder cancer.
    ndb3005 1 Replies Flag this Response
  • I'm 20 and I'm terrified I've been getting told I have bladder infections since I was 10 yrs old, now I'm 20 n the infections are every 5-10 weeks after clearing up, and for past 2 month I've had blood in my urine and I get severe abdominal pains every couple days, my lower back get painful, I'm not a smoker but my entire family smoke near me. I'm scared and I hate wasting doctors time.
    Anonymous 1 Replies Flag this Response
  • I have had UTI's every few months leading up to now, a constant UTI that nothing helps (3 months every day), inability to hold my urine in. I started getting UTI and bladder infections at the age of 13 and thought the symptoms were normal. At that time, I experienced just the clots and cloudy urine. As years progressed with a progression of more painful UTI and bladder infections, I finally saw a urologist at the age of 27. Now 35, the symptoms have varied from clots in urine (tiny like pen tip to a little bigger), bladder spasms, more blood clots, blood mixed with the blood clots, to just blood in urine (looks dark, but watered down, not like physical bleeding), feeling more feverish with symptom. I now cannot hold my pee and do not feel my bladder filling up. The urge just comes and I cannot hold it in. I am seeing a urologist this Monday. For about a year or so, it hurts with every bathroom trip as the pee is emptying towards the end of urination. It's so intense, my eyes water.
    Anonymous 1 Replies Flag this Response
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