Discussions By Condition: Urinary conditions

Constant UTI's/Endometriosis/possible IC

Posted In: Urinary conditions 4 Replies
  • Posted By: Anonymous
  • April 10, 2007
  • 09:49 PM

I had reoccuring UTI's when I was around 10 for about a year. About 2 years ago I started getting them all the time again (I am 17 now, almost 18). When I don't have a UTI, I still have the burning.

I have done my research, and I know that endometriosis (I had surgery for this when I was 14) can also grow on the bladder. Does anyone have it on their bladder and have this problem?

I went to one doctor at the after hours clinic and she told me I have have Interstitial Cystitus. Before my family doctor retired and we got a new one, he was going to refer me to a urologist (which clearly means this isn't normal).

The problem is my current family doctor doesn't take me seriously, and keeps telling me it's just puberty. I hit puberty when I was 10. I had to fight with him before he would give me anything for it (he gave me perydium). It was so bad I couldn't go to school.

I'm not really sure what I'm trying to ask. I just don't know what to do if my doctors not taking me seriously. I'm not the kind of person who fakes things for medication; I only go to the doctors if I absolutely have to, because I have bad experiences with them. It took 3 hospital visits to find out I had a Bartholin Cyst (I was told it was an ingrown hair).

I can't just switch doctors, because there is a big shortage in my area. Any ideas?

I am trying to wait until the perydium runs out before I go back, but when I do go back I want real answers, not to be thrown aside again.

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4 Replies:

  • Hi there. I just went to the doctor for what I thought was a bladder infection.He told me that my urinalysis was normal. No infection. But he did mention endometriosis. For the last year, every month 4 days after I start my period I get horrible bladder pain when I pee. It lasts about a week. Are these symptons similar to yours?
    Anonymous 42789 Replies
    • August 28, 2007
    • 11:37 PM
    • 0
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  • That is pretty much what I had, except it didn't matter if I had my period or not. I have been ok lately, minus the bladder infections.
    Anonymous 42789 Replies
    • August 31, 2007
    • 01:41 AM
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  • I had reoccuring UTI's when I was around 10 for about a year. About 2 years ago I started getting them all the time again (I am 17 now, almost 18). When I don't have a UTI, I still have the burning.I have done my research, and I know that endometriosis (I had surgery for this when I was 14) can also grow on the bladder. Does anyone have it on their bladder and have this problem?I went to one doctor at the after hours clinic and she told me I have have Interstitial Cystitus. Before my family doctor retired and we got a new one, he was going to refer me to a urologist (which clearly means this isn't normal).The problem is my current family doctor doesn't take me seriously, and keeps telling me it's just puberty. I hit puberty when I was 10. I had to fight with him before he would give me anything for it (he gave me perydium). It was so bad I couldn't go to school.I'm not really sure what I'm trying to ask. I just don't know what to do if my doctors not taking me seriously. I'm not the kind of person who fakes things for medication; I only go to the doctors if I absolutely have to, because I have bad experiences with them. It took 3 hospital visits to find out I had a Bartholin Cyst (I was told it was an ingrown hair).I can't just switch doctors, because there is a big shortage in my area. Any ideas?I am trying to wait until the perydium runs out before I go back, but when I do go back I want real answers, not to be thrown aside again.I too had 4 UIT's in my late teens. They stopped as I got older and practiced better hygiene after intercourse. But..... I recently was diagnosed with interstitial cystitis and found out I was very acidic. IC is very painful in general and urinating can hurt too. It also causes stress incontinence and urgency. I treated my pH levels with Alkamax and pH regulating drops, tested through urinalysis with litmus paper i got at the health food store, changed my diet and have no more pain. My stress incontenance is gone and urgency is only present when my bladder is full. One other possibility is that your urine may be too alkaline and that sometimes can cause constant UTI's because there are not enough acids to kill bacteria. It cannot hurt to check the pH of your urine and ask your doctor if this may be a problem. Ideal urine pH is between 7.0 -7.5 Just thought I would share my story. Hope all works out with you. An ultrasound or CAT scan would confirm endometriosis. Ask your doctor about that too. Good Luck! And pyridium only covers up the problem, your doctor should know that. Go to another doctor. Have you been treated for cystitis? You may also have a low grade UTI.
    Anonymous 42789 Replies
    • February 2, 2010
    • 04:37 PM
    • 0
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  • I also started puberty early (9). I have IC, endometriosis and get Bartholin Cysta. I have been going back and forth to doctors for the majority of my life. Finally, I have a OBGYN that is a pelvic pain specialist and who works closely with my urologist. The first time I went to a urologist I was in a room full of old men and felt very uncomfortable. My OBGYN referred me to a female urologist who specializes in issues with women not just general urology. I am now 34 and have just recently started to see promising results with these new doctors. Most of the doctors wanted to say that stuff was in my head or that it was just because I was female. Balancing my diet (NO ACID) and staying on top of my medications has greatly helped with the IC issues.
    Anonymous 42789 Replies
    • November 29, 2010
    • 05:43 AM
    • 0
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