Hi, I am a 19-year-old female, and I am currently grappling with a painful mystery illness. My symptoms first started May of 2009. One day out of the blue, I started urinating every hour, and I had to get up to use the bathroom several times per night. Soon after, I started feeling as though I had to urgently use the bathroom all the time, and, even when I relieved myself, the horribly tingly feeling in my urethra was still there. The pain became unbearable, and one night, my mom took me to the hospital. Percoset became my only way of coping.
A week later, my urologist looked inside my bladder. He thought I had interstitial cystitis, and he claimed that, if he was right, there would be a lot of tearing inside the wall of my bladder. Upon inspection, my bladder seemed perfectly normal; the only significant finding was that my urethra was slightly constricted. After that, I started to feel better, and I thought I was healed. However, the symptoms came back. My urologist still claimed I had interstitial cystitis, even though he had no evidence to support his claim. I went to a new urologist who told me that the diagnosis was irrelevant; he would try different drug therapies until I felt better.
Of all the medications I've tried, the only one that has helped is Urelle. However, it's been many months since I started taking it, and, at this point, I'm not sure how great of an impact it has. I still feel the need to urinate frequently, and my urethra still has a slight burning sensation. My urine burns when it comes out, and I have hesitation. In other words, I have to push in order for my urine to come out. I haven't had an uninterrupted night of sleep in almost a year now. I also feel achy in my pelvis sometimes, almost like period cramps.
Please help. I've gone to so many doctors, and no one can figure out what's wrong with me. Most of the doctors I've gone to agree that I don't have interstitial cystitis; they just don't know what I really DO have. Before you ask, I was treated for a urinary tract infection at the beginning, and it didn't help. I also do not have any STDs.
Any ideas would be wonderful!