Discussions By Condition: Thyroid conditions

Who should I believe

Posted In: Thyroid conditions 11 Replies
  • Posted By: Anonymous
  • August 2, 2006
  • 06:49 PM

I've been very sickly for the past 6 months. A slow decline in health. I recently went to the Dr's to find out that I had every single symptom of hypothyroidism. My tests came back within normal range. I've had regular bloodwork done...all normal. No diabetes, no anemia, no infection, no luekemia and so on. I'm getting worse each day and I'm starting to have trouble functioning/working as I'm weak. My body temp does not go above 96 degrees. I have ordered a natural thyroid support product. Has anyone been through this where they are told they are within normal range but have all the symptoms. I feel like if it walks like a duck and quacks like a duck...it's a duck...Instead my Dr. keeps ordering tests...pulling rare disorders from the sky. I have no medical insurance and I can't get thousands of tests but also I need to start getting better NOW. My next test scheduled is Cushings which I don't think I have....

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11 Replies:

  • Get your doctor to order a full thyroid blood panel to includeTSH (next to useless for diagnosing hypothyroidism)TT4 (total T4)FT3 (Free T3 which is converted from T4 and is what are bodies actualy use)Thyroid antibodies.Without the above tests you dont get a true picture of whats going on. The TSH tests your pituatrys ability to detect T4 in your body. The other tests expecialy the FT3 blood test tells us what is really happening in our bodies. T4 which is inactive is converted in our livest into T3 which is what our bodies need to function. Its important that doctors dont just look at the numbers but diagnose on symptoms as well.Hope this helpsloveBrigsxx
    Anonymous 42789 Replies
    • August 26, 2006
    • 07:33 AM
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  • i have been going through the same thing,i have had baby#4 and i have been so weak it's hard to get out of bed and function in everyday life.my last child is now 8 mths old,had my gallbladder out when she was 4mths.doctors pull diagnossis from the air because they really don't know what is really wrong.i have been going numb,fatigued all the time and been bleeding every since she has been born,and i also like you have no insurance.maybe someone can help us!!!
    Anonymous 42789 Replies
    • August 27, 2006
    • 05:09 AM
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  • Things have not gotten better. I have been to an endicrinologist and just got the word that all my tests are normal. They included my 4th complete thyroid profile, the antibody test for Hashimoto, Thyroid ultrasound and all testing having to do with the adrenal glands....I really can't take it anymore and have come to the reality that what ever is going on with me has got to be taken care of by me!Thanks for the replies.....
    Anonymous 42789 Replies
    • August 29, 2006
    • 02:15 PM
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  • Hi perseI wonder what range your lab is using? The bottom line is, whatever your blood tests tell you, if you have the symptoms of Hypot' then you are hypoT. I was normal from the age of 19 until finaly diagnosed at the age of 39. I knew I was ill that whole time but all the tests came back normal. Diagnosed with thyroid cancer in 2004 so no thyroid at all now. Standard treatment with synthetic thyroxine left me feeling so ill. So took my health into my own hands and changed my medication.You know your hypothyroid hun, don't waste your life waiting for your doctor to finaly agree with you. Find a doctor that treats you the person and the symptoms you have and not the numbers on a print out from the lab. You need a doctor that has the confidance to treat the person.
    Anonymous 42789 Replies
    • August 31, 2006
    • 09:48 AM
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  • my legs are weak to walk. my skin looks uncomfortable apetite is low my tongue burns.
    Anonymous 42789 Replies
    • November 16, 2006
    • 02:01 PM
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  • I just was diagnosed about 2 months ago, but my mom and I knew I was hypo. It started at 9 and I'm 22 now. Also my levels were too high when they finally got me on something. So if you are wanting to get something to help you out, untill the drs help, I would check out some natural stuff. I had to go that route for a while. It will help you out, considering you are in the "normal" range. If it doesn't help at least this way you are trying something. Hope all goes well.
    Anonymous 42789 Replies
    • November 19, 2006
    • 01:07 AM
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  • Sorry to disagree about the natural stuff. That is fine after you have been on ATDs and know and understand your labs and what it means when you are below range and above range and understand how to dose.A lot of the natural vitamins etc. are for thyroid boosting and if you are hyperthyroidism, you certainly don't need thyroid boosting. I am a vitamin taker and have had hyperthyridism for 4-5 yrs. I know what I speak.Another thing is why should she "wait" for what, the doctor to come to his senses? Never gonna happen.Change doctors, read and learn, get your printed out lab results in your hands and learn how to read them, keep a chart of how you felt on the day of your lab and the days before, write it on your lab results paper, and in a couple of months you will see a pattern.You and your newly appointed doctor then will dose according to your Free T3 and Free T4 level test results. Then you will begin to feel better. Until that happens you will continue to feel poorly.Doctors that dose according to the TSH Blood result are stupid and behind in their learning. Dosing according to the TSH which lags 6 weeks, will make you ill. Very Important:When you're Free T3 and Free T4 numbers are low, below range, you need LESS ATDs, (lowering your dosage). Your TSH will show high on this same test.If your dr. goes by TSH he will give you MORE ATDs --- when you should be getting less. This is when the patient gets sicker.The same goes for the opposite, High, above range Free T3 and Free T4 --- you need MORE ATDs, (upping your dosage) Your TSH will show LOW on this same test. If your dr. goes by TSH he will give you LESS ATDs dosage.Plus this TSH lags, is the result of 6 weeks before.Please read all you can on this, your health needs your knowledge.
    Anonymous 42789 Replies
    • November 19, 2006
    • 02:42 PM
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  • Although natural remidies aren't going to help ENTIRELY if you don't know your levels. Until you actually find a doctor who will help you, go with the natural stuff. If you take it and your symptoms are worse stop taking them. Its that simple. There is NOTHING wrong with trying to help yourself out until you get a good doctor that understands and knows what their talking about. YOU know how you feel, you don't feel well. I had a hard time getting diagnosed with it, at least 10yrs. So don't give up. I am not one to sell natural remedies, and I am not saying it will help you. But it is always worth a try, when no one else will. I am also not saying to stop going to doctors. Keep going and trying to find a doctor who WILL help and if you WANT to try natural in the mean time, then TRY it. Nobody can push you except you. It looks to me as if you want to try the natural way. Good luck with in finding out.
    Anonymous 42789 Replies
    • November 21, 2006
    • 04:44 AM
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  • Get your B-12 levels checked NOW! I have been diagnosed with pernicious anemia lacking the intrinsic factor to process B-12, and mimics many of the same symptoms of hypothyroidism (which my mother has), and was misdiagnosed since birth with numerous other things, but 31 years later, they figured it out! but the main clues are red, swollen tongue that look like you have fissures on it, tingling in the hands & feet, breathlessness, bruising, the white of the eyes aren't "bright". This is something that is not normally done on regular blood tests for people under the age of 60 or vegans unless you ask for it.
    Anonymous 42789 Replies
    • December 7, 2006
    • 09:19 PM
    • 0
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  • Oh my gosh. I have been having the exact same problem as you. I've done alot of research on Hypothyroidism and I seem to have almost all of the symptoms yet the test keep coming back normal. I am now trying to get into to see another dr. to get another opinion. It is sooooo frustrating. This has been going on for almost 6 months now. I know there is something wrong with me but the dr. just keeps saying oh we all are tired and we just have to keep going on with our lives. That is just a bunch of crap (excuse my language). Well I hope you and I both find some answers soon. Good luck to you!
    Anonymous 42789 Replies
    • January 14, 2007
    • 10:43 PM
    • 0
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  • Have your parathyroids checked which can also have some of the same symptoms of hypothyroidism. It's done by checking calcium levels. thyroid-info.com is a great web site for thyroid info and doctor referrals
    Brandy30 8 Replies
    • January 15, 2007
    • 06:17 PM
    • 0
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