Discussions By Condition: Thyroid conditions

thyroid and eye problems

Posted In: Thyroid conditions 3 Replies
  • Posted By: ginjee
  • January 16, 2008
  • 11:30 PM

I had my thyroid out 7 years ago. Since then I have my levels checked and have been told all is normal. This Sept, I started to have dry eye symptoms along with fuzzy perifial vision. I went to an eye specialist. He said that the Free t4 and TSh levels are in the normal range but one is elevated and one is low, which told him that it could be thyroid disease causing the eye problems. I didnt ask him what the levels were at that time. MY PCP took blood this week and has told me that thyroid levels are fine, Free T4 is 1.2 and tsh is 3.48.
I am confused. I have asked my PCP to refer me to an Endocrinologist. I havent gotten a call to confirm the request yet, and I know it will take a couple months to get the appt, once the refferal is sent . I am so frustrated and so uncomfortable with these symptoms. Can anyone give me some opinions about all this ?

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3 Replies:

  • I was diagnosed with Thyroid Eye Disease back in Dec 2006 after four years of complaining that my vision and constant dryness was NOT just chronic eye dryness but WAS related to my thyroid disorder. Now I did not have mine removed but I did effectively have it distroyed (radioactive iodine) back in 1999 after being diagnosed with hyperthyroidism in 1998. So I can't say that my situation is the same as yours but I can tell you that in June 2007 I had orbital decompression surgery. It relieved me of the severe pain in back of my eyes and it relieved the pressure that was building up and effectively "pushing" my eyes out in a bulging look.I ended up going to three eye specialists before I found one that understood thyroid and it's effects on the entire body.Stick to your guns and don't take no for an answer.:o
    Critteress 2 Replies
    • January 26, 2008
    • 08:18 PM
    • 0
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  • Thank you for the reply. I feel like I am alone with this sometimes. I am still waiting for my PCP to send the referral to the endo doc. I called on Friday to ask why it hasnt been done yet and got the run around. I have decided to keep calling till I get it, then I will dump the pcp as soon as I can find another. I am very angry with her. I dont understand why the pcp is dragging her feet about it. If she is offended that I asked for a referral, too bad for her. Its my health, and vision.When did you notice your eyes starting to bulge? :) ginjee
    ginjee 2 Replies
    • January 26, 2008
    • 10:52 PM
    • 0
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  • My eyes started bulging about 4 years after my diagnoses with Graves. Slowly at first, I was told over and over that it was dry eye syndrome.......I knew better I new that Graves caused problems with the eyes in a high percentage of cases.The bulging seemed bad enough but then the pain started. It got so bad that my head pounded hard all day everyday. After all the doctors I went to I thought nothing could ever take care of the problem.I lucked out when I went for a regular eye appointment (for glasses) and as soon as the doctor walked in she looked at me without my glasses and said "how long have you had Thyroid Eye Disease?"I almost feel off the chair........FINALLY someone noticed.She set up an appointment with a highly respected eye specialist (specializing in thyroid issues). Well that was late 2006 and I have had three surgeries and the pain is gone and my eyes are ALMOST normal.....I say almost. Of course being female I am extremely picky and I think it looks pretty bad still but everyone that knew me before tell me to stuff it....LOLThere is HOPE believe me there is.....
    Critteress 2 Replies
    • February 7, 2008
    • 03:30 AM
    • 0
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