Discussions By Condition: Thyroid conditions

Hyperthyroid or crazy?

Posted In: Thyroid conditions 11 Replies
  • Posted By: Anonymous
  • October 20, 2006
  • 06:41 PM

I am currently in the process of being diagnosed with hyperthyroid. I have all of the symptoms. I first noticed them in August when I had my Dr run a baseline he found that my tsh was .35 which is not bad. Only mildly suppressed. I then went to my family Dr. and he ran more tests and found that I have anti-thyroid antibodies. He put me on ptu. I was on that for about 6 weeks when I broke out in hives. I then went to an endo and she took me off and gave me a beta blocker. At that time my tsh was .47 which was then in the normal range but I had been on 300 mg of ptu per day for 6 weeks. I was off all meds but the beta blocker and my tsh was then .22. They t4 and t3 were in the high normal range. However they were still normal none the less. My problem, is, there is nothing normal about the way I feel. I have hand tremors, my heart races, my eyes hurt, I hardly sleep, I can lose my temper at the drop of a hat, I am hot all of the time. My skin is thinning, my fingernails are rigid. Now I have skipped a period. I want to know how long it took for others to get diagnosed. My endo has the compassion of a brick wall and tells me that I look better than some of her other patients. I am very lucky I have a great family Dr that is concerned. He ordered me a thyroid scan for 10/30. I am just terrified that it will come back normal. Has anyone else had these fears? Am I going crazy?

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  • I am currently in the process of being diagnosed with hyperthyroid. I have all of the symptoms. I first noticed them in August when I had my Dr run a baseline he found that my tsh was .35 which is not bad. Only mildly suppressed. I then went to my family Dr. and he ran more tests and found that I have anti-thyroid antibodies. He put me on ptu. I was on that for about 6 weeks when I broke out in hives. I then went to an endo and she took me off and gave me a beta blocker. At that time my tsh was .47 which was then in the normal range but I had been on 300 mg of ptu per day for 6 weeks. I was off all meds but the beta blocker and my tsh was then .22. They t4 and t3 were in the high normal range. However they were still normal none the less. My problem, is, there is nothing normal about the way I feel. I have hand tremors, my heart races, my eyes hurt, I hardly sleep, I can lose my temper at the drop of a hat, I am hot all of the time. My skin is thinning, my fingernails are rigid. Now I have skipped a period. I want to know how long it took for others to get diagnosed. My endo has the compassion of a brick wall and tells me that I look better than some of her other patients. I am very lucky I have a great family Dr that is concerned. He ordered me a thyroid scan for 10/30. I am just terrified that it will come back normal. Has anyone else had these fears? Am I going crazy?hey i kinda know what your goin through but i diddint know what my symptoms were from and im not one to go to the doc at all and i have been having real bad back pains and the nurologist took one look at me and said have you have your thyroyd checked and i have like maby a year ago and i guess my results came back fine cause i never heard nothing about it again and so the nurologist ordered blood tests for me and my ths was 250.00 and the normal ranges from 0.75 to 4.75 and it took the doctors 2 weeks to get back to me on all of it and when i did finally talk to her she was suprized and diddint understand how i was walkin arround all this time and so she ordered me a ultrasound of my thyroyd and she is sending me to a specialist im just terrified of haviing to go in for surgeryand then again im scared to have the results come back normal and me always feeling like i do im only 22 and i feel like im getting old fast lol well thanks for sharing your story and i feel a lil betting what i wanted to say out also and i wish you the best of luck on your scan if you wanna continue to talk let me know and i will give you my e mail i wanna know how your scan goes and your not goin crazy there is deffinatly something wrong
    Anonymous 42789 Replies
    • October 21, 2006
    • 08:01 PM
    • 0
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  • It is quite common for people to be tested several times before getting a diagnosis of hyperthyroidism. Don't give up and be insistent about your symptoms and the difficulty of putting up with them. Keep a symptom diary if necessary. Levels of endocrine hormones vary naturally during the day and the range varies between individuals and with age. What counts as normal is a matter of scientific convention. Levels can become more variable because of abnormality, adding to the difficulty of diagnosis. The problem with endocrine disorders is that they make people feel horrible in ways that are difficult to communicate and stop you enjoying life. It is difficult to press your case when you aren't well but you musn't give up, precisely because people are literally driven crazy by endocrine disorders! Good luck.
    Catriona Waldron 1 Replies
    • October 24, 2006
    • 06:42 PM
    • 0
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  • Two years ago I noticed a lump in my neck & went to my Doctor. She dismissed it as in infection and gave me antibiotics. Never ran one test. I went back & complained about it some more. Finally this past October she did an Ultra sound and it came back that I have a complex nodule on the left lobe of my thyroid and a simple one on the right. She said my lymphnodes were enlarged and ordered an ultra sound on them.That came back that there was something on the lymphnode. Then she ordered a nuclear scan & that came back as hyperthyroidis, but did not come back as hot or cold. In the meantime, my bloodwork came back normal for hyperthyroidism. She ordered another test and the 2nd blood test came back normal again for hyperthyroidism. Then my doctor ordered an MRI and sent me to a specialist. He said he thinks I may have grave's disease but that i need a fine needle biopsy to make sure there is no cancer there. He did say the MRI showed my lymphnodes are normal. I do have some strange symptoms. I am very jittery. I have been having trouble sleeping, waking in the night. My period has become very irregular, missing months at a time. I have heart palpitations and feel tired alot. One very weird symptom is that I am completly unable to sit down and read a book. I used to read all the time and it is impossible for me to concentrate on a book any longer. I have been worried about this biopsy, afraid that I may have cancer. I am frustrated with all the tests and differing test results. If I have hyperthyroidsim or graves, why is my bloodowrk normal? If I have thyroid cancer, are there any other symptoms that i should have? Does anybody have any expereince with any of this? I would appreciate your input. Thanks
    Anonymous 42789 Replies
    • November 22, 2006
    • 01:12 AM
    • 0
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  • Hi-This part is for the first person. It took the doctors about 10 years to finally get me help. My levels were at an abnormal range before, but they said I would grow out of it. Well finally my obgyn did a test, and it came back at 80. It does seem to take some doctors a while to get you help, depends on the dr. I hope your scan went well and everything is getting under control now. This is for the 2nd person. I can't belive you were functioning either!!! My levels being where they were at, the drs were amazed at me, I can't even imagine how you felt, I hope you are better now.This is for the last person to post. I didn't have graves or thyroid cancer, but my sister-in-law had thyroid cancer. I don't really know all of her symptoms, but here is some info I do know. Her nurse practioner found the lump on her thyroid and refered her to a specialist. I don't think the test showed much but they were a little worried. She lost way to much weight. She went from like 120 to 80 pounds. They wanted to do a biopsy so they did and it came back abnormal, so they decided it was a good idea to take out the half of her thyroid, with the lump, out and see if it really was cancer, and if so, they would have to take out the other side. Well she did have cancer in the one side where she had the lump. So they had to do the other side the next week. So they made her Hypo. She told me that she had to go off her thyroid so they could give her a scan to see if the cancer was back. When she is off the meds, she has different symptoms or side effects. That was when I think she actually had been different. She was really irritable one time, and emotional, another time. The last time she didn't want to be around anyone. I would be more then happy to ask her any questions for you. I don't want to scare you, but she did say that the biopsy was a little painful. Again I am more then happy to try and help you as much as I can. Let me know.
    crazybrazy 30 Replies
    • November 22, 2006
    • 02:40 AM
    • 0
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  • I definitely understand how you feel. I have been having symptoms that seemed unrelated for the last 7 years. I've seen numerous doctors and specialists with no diagnosis. I've been tested for diabetes, thyroid problems, lupus, and a handful of other conditions and all of the results have been negative or normal. All of the doctors keep telling me that it is stress and they make me feel like a hypochondriac.
    Anonymous 42789 Replies
    • January 31, 2007
    • 02:04 PM
    • 0
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  • hi, i've had it for almost 9 years, the rembling hands, the racing heart, diaree every now and then but nobody could help. 2 years ago my dok told me it is the stres i'm under seeing as i was in the middle of my exams. i told the doks repeatedly that hyperthyroidism runs in the family but get this no dokter insisted on doing blood tests. mid last year i started getting really sick, started losing a lot of weight, by now 28 km, i was permanently in the bathroom, all i did was sleep, and the head aces i ended up staying off work alot and then only my dok disided to do sum tests, my resulst came back <77.2 now im going 4 the radio therapy in 3 weeks. hope you don't have to wait as long as i did. good luck
    Anonymous 42789 Replies
    • February 11, 2007
    • 06:20 PM
    • 0
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  • To all the people here complaining about hyperthyroidism, you have it.Don't waste your time going to endocrinologists, they specialize and make most of their money treating diabetics. They don't know much about thyroid issues. My guess is that the people they see for diabetes are in horrible shape. So when people like us show up explaining how our thyroid issues are ruining our life they look at us and think "well you look fine, you're in much better shape than most of my patients, your blood work is close to normal, you're fine." Its exteremly frustrating. Don't let the doctors tell you its stress and you need antidepressants. That's the biggest cop out in the medical industry right now. Just keep reading. Don't post a bunch of posts with poor information and ignorant statements. Its up to you to fix you not the doctors. If you read a couple of books and go to the good websites you will know more than most doctors on this issue. Please start with www.thyroid-info.com There is a wealth of info there. Don't spend too much time reading these posts, because people don't know enough and write really strange things. If your TSH is 0.35 I would say that is very supressed. Also I've learned everyone is different. 0.35 could be slightly suppressed or very suppressed. I am a hypothyroid person so my TSH is usually around 5 and I can feel normal there. Many people can't feel normal until they get to 1. I took too much Synthroid once (T4) and my TSH was suppressed to 0.25 and I felt like I was being poisoned. So to all of you with these hyper symptoms read about hyperthyroidism, read about what tests are best to diagnose you(your doctor doesn't know), read about the symptoms and read about the treatments. Don't come into the doctor without a well documented symptoms list (write it down). Also explain everything to your doctor calmly and confidently. If they say, "we'll watch it" tell them you've been watching for a long time. Don't take no for an answer. Maybe they'll tell you they don't want to see you anymore, great. Find a new doctor. If they won't help you the way you'd like to be helped, find a new doctor. Its up to you to get treated. Don't let a lame doctor let you feel like crap for months. And surely don't sit around feeling terrible for years.Good luck people. Educate yourselves.
    Anonymous 42789 Replies
    • December 24, 2009
    • 05:49 PM
    • 0
    Flag this Response
  • Hi, I have been having some crazy symptoms for the past four months. The first time I ended up in the ER with my heart rate sky rocketing to 171 bpm.. the said it was just heart palpitations and sent me home.. well a few days later I had another one and they kept coming from there.. the doctor said I had an anxiety disorder after he tested my thyroid and other blood test had all came back normal that was in October.. well he put me on buspar and my symptoms kept getting worse so I quit taking the medication. I felt better for about a month and started having issues again. I noticed I had been losing some weight but nothing to drastic and he tried to put me on another anxiety medicine I didn't take it thinking I could overcome this.. well in January one night my heart started pounding again and I ended back in the ER the doctor there did an EKG again and told me I wasn't properly treating my anxiety issue well after that I went to family doctor they ordered a 24 heart monitor and when that came back normal I went back in again stating I didn't feel well .. they checked my bp and thats when we started noticing that I had low bp one time it was 84/70 and sometimes the top number will be 90 and the bottom will be 30 they said it could be normal because I am small framed and I also smoke and I was concerned because my bp was never that low yes it was on the low side but it was considered optimal at the time.. I then started taking lexapro and had a ultrsound of my heart done so my doctor could rule out that nothing was wrong with my heart... it came back normal .. so I felt crazy .. heart palpitations, dizziness, can't eat well, feel breathless, headaches. nervousness, anxiety, low bp, shakiness, no energy, insomnia, and sometimes when I eat my heart just races.. well I ended up back in the ER 3 days ago and doctor checked my thyroid again and the levels were abnormal and said I may have hyperthyroidism.. and that I need to call my doctor and have an ultrasound or something needs to be done but the levels weren't dangerous.. I went to my doctors the next day and he is referring me to endocrinologist and it could be months before I get in and if I am to have anymore problems to contact the pffice and prescribed me a thyroid medicine but they are still not sure if there is something wrong with my thyroid and said 2 out of three test came back normal just the TSH was abnormal and the one they really need to see if I have it had to be sent away because there is only three or four places in the country that test for it I don't know if I am getting the run around or what but I am worried and I don't want to feel like this any longer my symptoms last all day long everyday.. And to be quite honest I feel like I am dying .. these are not normal thought s for a 22 yr old I am now at 110 pounds instead of my healthy 130 I have lost 20 pounds in 2 months.. and I am scared I am going to get this test back and it will be normal .. If anyone has any information on this I would greatly appreciate it !!!!! To all the people here complaining about hyperthyroidism, you have it.Don't waste your time going to endocrinologists, they specialize and make most of their money treating diabetics. They don't know much about thyroid issues. My guess is that the people they see for diabetes are in horrible shape. So when people like us show up explaining how our thyroid issues are ruining our life they look at us and think "well you look fine, you're in much better shape than most of my patients, your blood work is close to normal, you're fine." Its exteremly frustrating. Don't let the doctors tell you its stress and you need antidepressants. That's the biggest cop out in the medical industry right now. Just keep reading. Don't post a bunch of posts with poor information and ignorant statements. Its up to you to fix you not the doctors. If you read a couple of books and go to the good websites you will know more than most doctors on this issue. Please start with www.thyroid-info.com There is a wealth of info there. Don't spend too much time reading these posts, because people don't know enough and write really strange things. If your TSH is 0.35 I would say that is very supressed. Also I've learned everyone is different. 0.35 could be slightly suppressed or very suppressed. I am a hypothyroid person so my TSH is usually around 5 and I can feel normal there. Many people can't feel normal until they get to 1. I took too much Synthroid once (T4) and my TSH was suppressed to 0.25 and I felt like I was being poisoned. So to all of you with these hyper symptoms read about hyperthyroidism, read about what tests are best to diagnose you(your doctor doesn't know), read about the symptoms and read about the treatments. Don't come into the doctor without a well documented symptoms list (write it down). Also explain everything to your doctor calmly and confidently. If they say, "we'll watch it" tell them you've been watching for a long time. Don't take no for an answer. Maybe they'll tell you they don't want to see you anymore, great. Find a new doctor. If they won't help you the way you'd like to be helped, find a new doctor. Its up to you to get treated. Don't let a lame doctor let you feel like crap for months. And surely don't sit around feeling terrible for years.Good luck people. Educate yourselves.
    Anonymous 42789 Replies Flag this Response
  • Hyperthyroid or crazy, ha! I vote myself crazy! I feel as though I've been fighting against this invisible nemesis for years. One minute I'm happy, the next I'm depressed. My weight loss and gain is that of a roller coaster and if I forget one more thing I swear I'm going to diagnose myself with dementia. I've been trying to ignore these symptoms for so long that it has finally caught up to me. I cannot function any longer with this foggy head that feels so strange that I'd swear it's been taken over by aliens. I went to my internist with a laundry list of weird symptoms and my TSH came back 0.1 and my Free T4 was 2.0. Finally! There is actually a reason for all the craziness. I was starting to wonder if I was having a mental break lol. I have to admit that I was happy to know what the problem was but this is only the beginning of my journey. I'm only 31 so I hope I can get this thing regulated and get back to normal life. Anyway, my face is about to hit the keyboard because I'm so tired. Just another one of my wonderful symptoms. Good night and good luck.
    Anonymous 42789 Replies
    • October 27, 2010
    • 00:22 AM
    • 0
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  • I am currently in the process of being diagnosed with hyperthyroid. I have all of the symptoms. I first noticed them in August when I had my Dr run a baseline he found that my tsh was .35 which is not bad. Only mildly suppressed. I then went to my family Dr. and he ran more tests and found that I have anti-thyroid antibodies. He put me on ptu. I was on that for about 6 weeks when I broke out in hives. I then went to an endo and she took me off and gave me a beta blocker. At that time my tsh was .47 which was then in the normal range but I had been on 300 mg of ptu per day for 6 weeks. I was off all meds but the beta blocker and my tsh was then .22. They t4 and t3 were in the high normal range. However they were still normal none the less. My problem, is, there is nothing normal about the way I feel. I have hand tremors, my heart races, my eyes hurt, I hardly sleep, I can lose my temper at the drop of a hat, I am hot all of the time. My skin is thinning, my fingernails are rigid. Now I have skipped a period. I want to know how long it took for others to get diagnosed. My endo has the compassion of a brick wall and tells me that I look better than some of her other patients. I am very lucky I have a great family Dr that is concerned. He ordered me a thyroid scan for 10/30. I am just terrified that it will come back normal. Has anyone else had these fears? Am I going crazy? I have been treated mistakingly for panic attacks, having all the episodes that you list. Finally, as I got thin over nigght and started to lose all reality, one ER doctor tested me and found Hyperthyroidism. It snuck up like a train, but now that I realize the whole picture, I had been sedated for years, and the effects just came to a peak. Now atleast I know that there is a legitimate problem. Yes, all that you say I am experiencing. I have pets, and the parrot making noise would pull my attention, almost painful to hear repeatative sounds : Thought I was going Crazy. the good thing is (opinion) people that think they are going crazy generally aren't, going crazy likely would be silent to the sufferer. Atleast now you or I know where that battle field is, and we choose the next steps. I am being treated with Methimazole 10MG once a day until a Iodine test in a month. Contrast in a CAT Scan made it impossible to test me faster because the contrast apparenly throws the test results off. So, what I can tell you is 2 plus 2 never equals 4 when episodes hit hard. The "going crazy " feeling is very real, and very hard to fight. My medication has helped bring me to earth, but I get very nervous at the thought of one pill correcting this, relying on one pill? To bring back 2+ years of suffering in a couple weeks? Very strong reality that has been happening. My only deep thought is I sure hope children don't go through this, for it feels like nervous torture. Hoping the best for everyone.
    Anonymous 42789 Replies
    • December 24, 2010
    • 11:07 PM
    • 0
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  • I am currently in the process of being diagnosed with hyperthyroid. I have all of the symptoms. I first noticed them in August when I had my Dr run a baseline he found that my tsh was .35 which is not bad. Only mildly suppressed. I then went to my family Dr. and he ran more tests and found that I have anti-thyroid antibodies. He put me on ptu. I was on that for about 6 weeks when I broke out in hives. I then went to an endo and she took me off and gave me a beta blocker. At that time my tsh was .47 which was then in the normal range but I had been on 300 mg of ptu per day for 6 weeks. I was off all meds but the beta blocker and my tsh was then .22. They t4 and t3 were in the high normal range. However they were still normal none the less. My problem, is, there is nothing normal about the way I feel. I have hand tremors, my heart races, my eyes hurt, I hardly sleep, I can lose my temper at the drop of a hat, I am hot all of the time. My skin is thinning, my fingernails are rigid. Now I have skipped a period. I want to know how long it took for others to get diagnosed. My endo has the compassion of a brick wall and tells me that I look better than some of her other patients. I am very lucky I have a great family Dr that is concerned. He ordered me a thyroid scan for 10/30. I am just terrified that it will come back normal. Has anyone else had these fears? Am I going crazy? I have just found out I have hyperthyroid and I have a nodule I go for an ultrasound and uptake scan tomorrow but I feel crazy I hope Ithey can find out whats wrong and fix me I feel for you good luck
    Anonymous 42789 Replies
    • January 11, 2011
    • 00:59 AM
    • 0
    Flag this Response
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