I was diagnosed with Graves disease 7 months ago. It happened almost overnight - one day my foot swelled up, 2 days later I had a blood test, 24 hours later my calf muscles became rigid and painful, 24 hours after that I could bearly stand or walk. Graves disease was diagnosed and I started on Carbimazole.
For 3 weeks I could hardly move - the pains in my legs and feet were so bad, a vein swelled up in one ankle and I had white spots and tingling all over my legs and feet. I had blood tests for everything you can imagine and a ultrasound to check for blood clots - all negative. Carbimazole was increased and then my feet and knees started to swell up and my knee joints got really painful.
My thyroid consultant said it was nothing to do with the thyroid or the medication - but it all started at exactly the same time so I didn't believe her. 7 months on and the carbimazole is down to 2.5mg per day and all the thyroid tests are coming back nearly normal. The pains in my knees and legs started to improve and I felt nearly normal by Christmas - with the exception of a humming noise in my ear which has been there since the onset.
Now, suddenly, the pains in my leg muscles are back (calf muscles and behind my knees), I have really bad tingling/burning sensation in my feet and the vein in my ankle is inflamed and painful again. I thought that as it had all nearly gone away that it was definitely caused by the thyroid but now I don't know. My doctor and consultant don't know what it is - all suggestions welcome I'm tired of being in pain and unable to walk.