Discussions By Condition: Spinal conditions

tired of hearing it's in my head!

Posted In: Spinal conditions 3 Replies
  • Posted By: cherylanne
  • August 21, 2007
  • 03:23 PM

:confused:
about eight months ago i woke up and got up to go to the bathroom. i fell on my face because my left calf and foot were suddenly gone. er doc ruled out a blood clot and told me to call my pcp. by nine am my right leg started to go. i had a spinal mri and it was reviewed by two docs who said i had degeneration but it wasn't serious enough to account for the leg issues. back to my pcp who sent me to a neuro. i am positive for hsv and epstien barr, my crp and ige are both high. my brain mri was negative for lesions so he explained away the weird lab results and suggested i have conversion syndrome (all in your head) i completely disagree, when something is really wrong you can tell. when i saw him again for follow up he finally started being concerned because my left leg weakness and foot numbness is progressing faster than the right and he is considering bracing my leg so it doesn't give out and dump me on the floor. i have also lost the achillies reflex in both feet. now i have developed chronic urticaria (hives) and the itch is driving me out of my mind! my pcp says its stress but i think it is related to whatever is happening to me. i've had much more stressfull times in my life before and have never experienced anything like this. i also have vertigo and dizziness and intermitten eye focusing problems. my pcp gave me prednisone for the hives but as the dosage was decreased it started to come back. i am now on a second longer round of prednisone but it doesn't seem to help as much as it did the first time. i have a referral to an allergist in a month. in the mean time it's getting harder to walk. i have noticed a pattern of severe fatigue for a few days right before the numbness progresses and i can tell where the new hives will pop up before they even show. over the last two weeks i have developed severe back pain and serious numbness in hand(s) and/or feet when getting up in the morning. it goes away within about 15 minutes leaving just the usuall symptoms that never go away. it's not the pin and needle feeling you get when your hand or foot falls asleep from being in the wrong position, it's different.i'm at my wits end, does anyone recognize any of this?

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  • :confused: about eight months ago i woke up and got up to go to the bathroom. i fell on my face because my left calf and foot were suddenly gone. er doc ruled out a blood clot and told me to call my pcp. by nine am my right leg started to go. i had a spinal mri and it was reviewed by two docs who said i had degeneration but it wasn't serious enough to account for the leg issues. back to my pcp who sent me to a neuro. i am positive for hsv and epstien barr, my crp and ige are both high. my brain mri was negative for lesions so he explained away the weird lab results and suggested i have conversion syndrome (all in your head) i completely disagree, when something is really wrong you can tell. when i saw him again for follow up he finally started being concerned because my left leg weakness and foot numbness is progressing faster than the right and he is considering bracing my leg so it doesn't give out and dump me on the floor. i have also lost the achillies reflex in both feet. now i have developed chronic urticaria (hives) and the itch is driving me out of my mind! my pcp says its stress but i think it is related to whatever is happening to me. i've had much more stressfull times in my life before and have never experienced anything like this. i also have vertigo and dizziness and intermitten eye focusing problems. my pcp gave me prednisone for the hives but as the dosage was decreased it started to come back. i am now on a second longer round of prednisone but it doesn't seem to help as much as it did the first time. i have a referral to an allergist in a month. in the mean time it's getting harder to walk. i have noticed a pattern of severe fatigue for a few days right before the numbness progresses and i can tell where the new hives will pop up before they even show. over the last two weeks i have developed severe back pain and serious numbness in hand(s) and/or feet when getting up in the morning. it goes away within about 15 minutes leaving just the usuall symptoms that never go away. it's not the pin and needle feeling you get when your hand or foot falls asleep from being in the wrong position, it's different.i'm at my wits end, does anyone recognize any of this?Visit a Doctor of Oriental Medicine or Chiro who practices NAET.Best,Frui.
    Eatafruit78 960 Replies
    • August 21, 2007
    • 04:01 PM
    • 0
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  • All my problems started the summer of '06 when I had a very stressful car trip from Nebraska to Washington State. I ended up in the hospital because I couldn't talk and my limbs went numb from the feet up. They misdiagnosed me with everything they possibly could, anyway, horrible story past, about 4 months later it happened again and I went into the ER and they told my I was having an anxiety attack. No problem. Things got better. As you know thats never the end of anything... Well, for my birthday Dec 31st we went to Zoolights. It was cold but I had a good time. The next day my ears hurt and my head felt like it was going to explode. My ears wouldn't pop when I went down hills and I was dizzy all the time. I went to several ENT's, a neurologist, and of course my pcp. They couldn't find anything and always, always, always blamed it on the anxiety. I know my anxiety symptoms, come on! They just didn't want to have to say the dreaded words of I don't know. Well a couple of months later I started taking allergy meds and that slowly cleared up. The next month my abdomin is in major pain. That continues as I see numerous doctors who all say well, you're constipated. Ok after 7 doctors don't you think they would try to find another reason? nope. Well I stopped eating gluten, cleared the pain and constipation right up. Then the dizziness came back, very badly. I went to a new pcp that I'd never seen before and because of the dizziness and the headaches I was having my pcp had me do another MRI. I don't do well with MRI's but I did it anyway. Turns out I have a chiari malformation. You should look that up because it will take too long to describe it all right now. Anyway, when I saw him I also told him that my legs were weak and I kept having abdominal pain even though I'm not eating gluten anymore. He said ok lets do a CT scan. Nothing. Then I lost the use of my legs. They feel vibratey inside and I feel like I'm on a ship when I try to stand. I even have dizzy spells from it. I decided that since the pelvic ultrasound (I didn't mention that from before but thats part of the constipation time) well since that and the CT were negative there had to be something else. I looked it up and those symptoms came around to endometriosis. I'm headed in to have surgery for that to see if it fixes things because I only have the leg weakness around the time of my period. We'll see what happens though. I'm kind of worried about it because I read on here that other people have had these problems and having a hysterectomy didn't help with the leg issues. sigh. I'm tired of having to use a wheelchair for 3 weeks a month. There has to be an answer. God Bless you! I hope you find help soon.
    brennysmom 2 Replies
    • September 25, 2007
    • 00:52 AM
    • 0
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  • I had similar symptoms. Turned out to be a spinal cord tumor. Insist on an MRI to see if you might have one. Mine was attached to my spinal cord. Had surgery and it was removed. Good luck!
    Anonymous 42789 Replies
    • October 1, 2007
    • 01:20 AM
    • 0
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