Discussions By Condition: Spinal conditions

tethered spinal cord

Posted In: Spinal conditions 4 Replies
  • Posted By: Anonymous
  • August 2, 2007
  • 05:00 AM

We found out today that my ten year old son has Filum Lipoma, a tethered spinal cord. He walks on his tiptoes, which is why he had the MRI done. I'm worried about the effects of this untethering surgery, long term.

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4 Replies:

  • I'm a 41 yr old female who was diagnosed with a tethered cord in 1991. I was at the time confined to a wheel chair. I had the surgery and have been able to walk since. I do suffer from chronic pain etc. Hope this helps.
    Anonymous 42789 Replies Flag this Response
  • I'm a 41 yr old female who was diagnosed with a tethered cord in 1991. I was at the time confined to a wheel chair. I had the surgery and have been able to walk since. I do suffer from chronic pain etc. Hope this helps.--what happened that the doctors finally helped you? they keep trying to fix my hips, almost ignoring my spine..?
    Carla Mc 2 Replies
    • October 10, 2007
    • 03:06 PM
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  • My three year old daughter had the surgery to detether her spinal cord in September 2007. Her symptoms were: Inability to potty train, very large bowel movements, and several cafe lattes appearing on her skin. We tried for almost two years to potty train and were unsucessful, in the mean time she had several bladder infections and ecoli in the bladder 3 times because she could not empty her bladder completely and the remaining urine would become septic. It has been 3 months since she had the detethering surgery and so far the bladder nor the bowels have had any change. Her doctor said it could take up to a year to see any effects and to just watch for the symptoms to get worse and if they do the surgery may not have worked. We hope for the best but I guess we will see. He also told us that she will have the surgery repeated at every growing spurt in her life. If anyone knows how true this statement is please let me know. I am very concerned for the well being of my little angel.
    Anonymous 42789 Replies
    • December 24, 2007
    • 10:55 PM
    • 0
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  • i would have to say that the statement on having regular surgery would be true if itisnt freed properly by the research i have done as the spine grows the spinal cord can become teathered again caught up on the growing spinal canal if this isnt dethered it can streatch as the spine grows causing more problems as the spinal cord is supposed to flow freely in the canal i am currently being checked out for teathered spinal cord i at the moment have limited movement in both legs and am not sure if thats due to the leagth in time i was never diagnosedhopefully this helps and hope all goes well
    Anonymous 42789 Replies
    • January 4, 2008
    • 07:57 PM
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